My GP and Neurologist‘s Negligence
I phoned my GP today after waiting two months for a prescription that my neurologist consultant had prescribed for my unbearable pain which is caused as a result of my multiple sclerosis and yet, to this day I have not had the medication.
When I queried it today, the receptionist I spoke with stated that he was not ‘medically trained’ to read the letter sent from the neurologist at the hospital and that I would have to wait for the doctor to read it and approve. This goes to show the mentality of the receptionists at my GP as mentioned previously, he stated he couldn’t read my letter as he was not ‘medically trained’, when in reality, he shouldn’t be reading my letter at all as that would breach Data Protection Act 2015. None the less, I gave the GP the benefit of the doubt and continued to wait for my medication.
A few weeks go by and I get a call from the GP, although to my surprise it is not the doctor but a different receptionist. The woman I spoke with informed me that she was passing on a message from the doctor stating I had to have a consultation to discuss the medication at hand. When I questioned why I would need to discuss the medication when I had already done so with my consultant, she could not reply. As a result of this, it meant that I would have to ring up the GP at 8am the following day to fight for an appointment to then have to wait all day for a doctor to give me a call back.
Why do I need a consultation with the GP when my consultant who is a qualified neurologist has prescribed them?
I believe this is to test people and for them to beg to get medication. So am I to believe my general practitioner doctor is more qualified than the neurologist? This is now causing me anxiety and stress. Stress can lead to MS relapse.
So they cannot book an appointment at the time of the phone call, you have to be a good soldier and do as they ask.
When I told my mother who is also my carer, she said she would intervene and write a letter (which never gets answered, may I add) demanding that I have the medication otherwise my mother would take it up with the ombudsman.
I am worried I will get kicked out of the surgery as I am dependent on my drugs for the excruciating pain I endure, so told her not to pursue it. I have been threatened by this surgery before regarding not agreeing with some of the things they say. Both my mother and I have agreed that I contact my primary neurologist and explain not only have I fallen through the gaps regarding getting my monthly blood as stipulated on the Lemtrada website but my GP is refusing to give me the medication that the consultant requested.
This is Medical Negligence!
I am documenting this as evidence that my quality of life is being compromised because of my GP not giving me my medication and my concerns that my blood is not being tested to monitor any changes to catch them early.
This will be forwarded to PIP (Personal Independence Payments).
I will update again once I get further information.
I phoned my GP to book a consultation under duress otherwise I would have had hope in hell to get my medication, even though it was prescribed by a neurologist.
The doctor did phone me back only to ask me what I needed to talk about…OMG.
When I said about my medication she continued to ask which medication I was referring to, even though supposedly there was a message on my notes. She then asked if I am capable to take them…..what the hell?
What a waste of time and resources.
The doctor did not even know why she was ringing me other than me requesting a callback which I was put on the spot to do, otherwise, I would not have had my meds.
And people wonder why they struggle to get a GP appointment, this is a perfect example as to how the GP waste resources, time and effort. This appointment could have been utilised for someone who actually needed it, not for a chit chat.
Update 20/12/22 – Non-existent blood tests!
My non-existent blood tests (required by law).
After losing my patience waiting for my non-existence letter to arrive to notify me to have my blood test done, I decided to contact my primary neurologist by email. Baring in mind I am supposed to have a blood test done every month to prevent/pick up early, transfusion related conditions such as Immune Thrombocytopenic Purpura (ITP), kidney problems/anti-GBM disease and problems of the thyroid gland (hypo/hyperthyroidism). As I am writing this, it has been 7 weeks since my last blood test and yet my primary consultant could not care less, he is obviously happy I have lined his pockets ready for Christmas.
Granted he was quick to respond.
The unfortunate thing is, had I of not emailed him, he would have been none the wiser that I had not had any blood work done. Surely, as my primary consultant, it is his responsibility to ensure that as his patient, I am having the necessary tests to ensure I am ok.
Not only that, he confirmed my blood test on the 2nd November was okay, would he have not noticed that I was not scheduled for a repeat test for the following month? Would he have not spoken with the other neurologist that I saw last? Do people within the hospital even communicate with one another, or is that my responsibility too?
I did mention that I understood Royal Mail was on strike and the nurses and emergency service are following suit. I was concerned that I have not had any blood tests done and my neurologist replied to sort it out myself and phone his secretary.
Why should I go out of my way to chase blood tests?
I have always had my blood taken at the hospital so why suggest I have them done at my GP who is also as useful as a chocolate fireguard?
Why move the goalposts? Why try to fix something that is not broken, meaning continue to have my blood taken at the hospital?
It is the responsibility of the consultant to make sure I have a blood test done and not down to me to do their job for them.
I can see pound signs of their lack of empathy and aftercare for their patient.
If something is found that could have been prevented all hell will break loose, mark my words.
What the Government Has to Say:
Lemtrada▼ (alemtuzumab): updated restrictions and strengthened monitoring requirements following a review of serious cardiovascular and immune-mediated reactions
A review of the benefits and risks of alemtuzumab (including fatal reactions) in the treatment of multiple sclerosis has now concluded and recommended a revised indication, additional contraindications, and strengthened monitoring requirements before, during, and after treatment. Patients offered alemtuzumab should be alerted to the early risks of cardiovascular events and thrombocytopenia around the time of infusion and to the delayed risk of immune-mediated reactions. Healthcare professionals should inform patients what to do if they develop any symptoms of these disorders.lemtrada-article-20-procedure-lemtrada-multiple-sclerosis-measures-minimise-risk-serious-side_en
My primary consultant came up with all these fancy words as if I am supposed to understand even though I am not medically trained.
And we wonder why the NHS is in the state it is in because no one seems to be doing their jobs properly, yet everyone is complaining they are overworked and underpaid.
“Be lucky you have a job is all I can say”.
#gpnegiligence #prescribedmedication #neurology #neurologist #neurologistconsultant #consultant #specialist #ms #multiplesclerosis #MeddygfaAlbanySurgery
Zena is studying BA Hons Marketing Management at Cardiff Metropolitan University.
Zena may look normal to an untrained eye even though she has an invisible disability. Thanks to a great support network she is able to fit into society and can get additional help, whenever she needs it.
Zena aspires to be a role model for young people with Multiple Sclerosis.
Zena is also 'The Assistant Editor' of Disability UK Disabled Entrepreneur Journal, and Cymru Marketing Journal. She works remotely which does not put a strain on her health.