Cystic fibrosis is an inherited condition that causes sticky mucus to build up in the lungs and digestive system. This causes lung infections and problems with digesting food. In the UK, most cases of cystic fibrosis are picked up at birth using the newborn screening heel prick test.
Can you live a long life with cystic fibrosis? Whilst there is no cure for cystic fibrosis (CF), people with CF are extending their life expectancy and living longer, healthier lives than ever before. Babies born with CF today are expected to live into their mid-40s and beyond. Life expectancy has improved so dramatically that there are now more adults with cystic fibrosis than children.
A charity has been set up by Josh Llewellyn-Jones (OBE) and Mark his brother. Josh from Cardiff was diagnosed with cystic fibrosis at birth and at the age of two years of age was fortunate enough to get the right medical attention from an American specialist late Dr. Bob Kramer from Dallas in Texas USA. Josh is extremely fit and holds the Guinness Book of World Records for lifting one million kilograms in 22 hours 10 minutes back in October 2018, which is equivalent to lifting 700kg a minute. Josh is a motivational speaker and empowers children with cystic fibrosis.
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