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Obstructive Lung Diseases and PIP

PIP Eligibility Text on Typewriter Paper. Image Credit: PhotoFunia.com
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Comprehensive Guide to Obstructive Lung Diseases and PIP Eligibility

Obstructive lung diseases are a group of conditions that make it difficult for individuals to exhale all the air from their lungs, leading to breathing difficulties, reduced lung function, and other health complications. Common types include Chronic Obstructive Pulmonary Disease (COPD), asthma, bronchiectasis, and cystic fibrosis. For those living with these conditions, navigating daily life can be challenging, and obtaining financial support is crucial. Personal Independence Payment (PIP) is a UK government benefit designed to help cover the extra costs of living with a long-term health condition or disability, including obstructive lung diseases.

This guide will explore these diseases in detail and outline how PIP can provide support.

Understanding Obstructive Lung Diseases

Obstructive lung diseases cause a narrowing or blockage of the airways, leading to increased resistance to airflow. Below are the most common types:

  1. Chronic Obstructive Pulmonary Disease (COPD)
    • Overview: COPD is a chronic inflammatory lung disease that obstructs airflow from the lungs. It includes emphysema and chronic bronchitis.
    • Symptoms: Persistent cough, mucus production, shortness of breath, chest tightness, and frequent respiratory infections.
    • Causes: Mainly caused by long-term exposure to irritants like cigarette smoke, air pollution, and occupational dust.
  2. Asthma
    • Overview: Asthma is a condition in which the airways narrow and swell, producing extra mucus. It can make breathing difficult and trigger coughing, wheezing, and shortness of breath.
    • Symptoms: Wheezing, shortness of breath, chest tightness, and coughing, often worsening at night or during exercise.
    • Causes: Asthma can be triggered by allergens, cold air, exercise, or exposure to pollutants.
  3. Bronchiectasis
    • Overview: Bronchiectasis is a condition where the bronchial tubes of your lungs are permanently damaged, widened, and thickened, leading to mucus build-up and frequent lung infections.
    • Symptoms: Chronic cough, production of large amounts of sputum, shortness of breath, and recurrent lung infections.
    • Causes: Often results from infections, immune system issues, or conditions like cystic fibrosis.
  4. Cystic Fibrosis
    • Overview: Cystic fibrosis is a genetic disorder that affects the lungs and other organs, leading to thick, sticky mucus that clogs airways.
    • Symptoms: Persistent cough, frequent lung infections, wheezing, and difficulty breathing.
    • Causes: It is caused by a mutation in the CFTR gene, affecting the movement of salt and water in and out of cells.

Impact of Obstructive Lung Diseases on Daily Life

Living with obstructive lung diseases often means dealing with ongoing symptoms that can severely impact the quality of life. Individuals may experience fatigue, limited physical activity, anxiety, and depression due to breathing difficulties. Simple daily tasks like climbing stairs, cooking, or even talking can become exhausting. This impact on daily living is a key factor when assessing eligibility for financial support like PIP.

What is Personal Independence Payment (PIP)?

PIP is a UK government benefit designed to help people with long-term health conditions or disabilities, including obstructive lung diseases, manage the extra costs associated with their condition. PIP is not means-tested, meaning it is not affected by income or savings, and it is available whether the person is working or not.

PIP is divided into two components:

  • Daily Living Component: Helps with extra costs of daily tasks such as preparing food, washing, dressing, or communicating.
  • Mobility Component: Supports individuals with mobility challenges, helping with planning and following journeys or moving around.

Eligibility Criteria for PIP

To qualify for PIP, individuals must meet certain criteria:

  • Age: Must be aged between 16 and state pension age.
  • Residency: Must have been in the UK for at least 2 of the last 3 years and usually be living in the UK, Ireland, Isle of Man, or the Channel Islands.
  • Health Condition: The condition must have affected the person for at least 3 months and be expected to continue for at least 9 months.
  • Impact on Daily Life: The key aspect is how the condition affects a person’s ability to carry out daily tasks and mobility.

Applying for PIP with Obstructive Lung Diseases

Applying for PIP involves a series of steps, starting with an initial phone call to the Department for Work and Pensions (DWP). The application process includes filling out a detailed form describing how the condition affects daily living and mobility, followed by a face-to-face, telephone, or video assessment by a health professional.

Key Points to Consider During the PIP Assessment:

  • Describe Symptoms Clearly: Explain how symptoms like breathlessness, fatigue, or frequent coughing episodes affect your daily activities.
  • Provide Evidence: Medical records, prescriptions, letters from doctors, or details of hospital visits can help strengthen your case.
  • Emphasize Variability: Many obstructive lung diseases have good and bad days. It’s important to describe how symptoms can fluctuate and impact your life.

Tips for a Successful PIP Application

  1. Keep a Symptom Diary: Documenting your symptoms, triggers, and how they impact your daily activities can provide crucial evidence.
  2. Get Support: Seek assistance from welfare rights advisors, charities like the British Lung Foundation, or Citizens Advice for help with your application.
  3. Prepare for the Assessment: Be honest and detailed during your assessment, and don’t downplay your difficulties.

Daily Limitations for Individuals with Obstructive Lung Disorders

People suffering from obstructive lung disorders like COPD, asthma, bronchiectasis, or cystic fibrosis may face significant challenges in performing everyday tasks at home or work. Here’s a list of common activities that may be difficult or impossible for them:

At Home:

  1. Climbing Stairs: Breathlessness and fatigue make it hard to climb stairs or move between floors.
  2. Household Cleaning: Dusting, vacuuming, and other cleaning tasks can trigger coughing, wheezing, or breathlessness.
  3. Cooking: Standing for long periods, lifting pots, and exposure to smoke or steam can exacerbate breathing difficulties.
  4. Personal Care: Bathing, dressing, and grooming can become exhausting due to shortness of breath and limited stamina.
  5. Carrying Groceries or Laundry: Lifting and carrying heavy items can be overwhelming and may trigger coughing fits.
  6. Gardening or Outdoor Work: Physical exertion and exposure to pollen or pollutants can worsen symptoms.
  7. Walking Long Distances: Even walking short distances around the house can cause severe breathlessness and fatigue.
  8. Talking for Extended Periods: Prolonged conversations, especially on the phone, can be tiring and cause breathlessness.
  9. Managing Pet Care: Activities like walking dogs, cleaning litter boxes, or grooming pets can be physically demanding.
  10. Handling Emergency Situations: Reacting quickly in emergencies, such as moving quickly to a safe place, can be difficult.

At Work:

  1. Physical Labor: Jobs that involve heavy lifting, prolonged standing, or repetitive motions are often not manageable.
  2. Climbing or Walking: Tasks that require moving between floors or long distances within the workplace are challenging.
  3. Operating in Dusty or Polluted Environments: Exposure to dust, fumes, or chemicals can trigger respiratory symptoms.
  4. Meeting Deadlines Under Stress: Stress can worsen symptoms, making it hard to meet deadlines or work under pressure.
  5. Attending Meetings: Prolonged sitting, talking, or being in enclosed spaces can lead to discomfort and breathlessness.
  6. Handling Customer Service Roles: Roles that involve a lot of talking, especially phone-based jobs, can be difficult.
  7. Working in Extreme Temperatures: Heat, cold, or humidity can exacerbate breathing problems, making it hard to work comfortably.
  8. Using Stairs or Elevators Frequently: Frequent use of stairs or elevators can cause fatigue and shortness of breath.
  9. Prolonged Concentration Tasks: Fatigue and breathlessness can make it difficult to concentrate on complex tasks for long periods.
  10. Wearing Protective Equipment: Jobs requiring masks or other protective gear can further restrict breathing, adding to the discomfort.

These limitations highlight the everyday struggles faced by individuals with obstructive lung disorders, underscoring the importance of understanding and accommodating their needs both at home and in the workplace.

Conclusion

Living with obstructive lung disease is challenging, and managing day-to-day activities can be overwhelming. PIP can provide essential financial support to help alleviate some of the burdens associated with these conditions. Understanding your condition, how it impacts your life, and navigating the PIP application process can significantly enhance your chances of receiving the support you need.

For further assistance, it is advisable to consult with healthcare providers, support groups, and welfare advisors who can provide guidance tailored to your specific circumstances.


Feeding Tube: Mental Health Awareness

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Feeding Tube Awareness: Understanding the Challenges and Importance of Support

Feeding tubes are life-saving medical devices that provide nutrition to individuals who are unable to eat or swallow safely. While they offer essential support, living with a feeding tube presents numerous challenges, particularly when managing daily life or traveling.

Raising awareness about these difficulties is crucial for fostering empathy and improving the quality of life for those who rely on feeding tubes.

Many hospitality businesses, such as restaurants and cafes, may inadvertently or intentionally exhibit a form of discrimination towards individuals with feeding tubes, particularly when they are dining out with friends or family. This can manifest in various ways, such as being refused seating or facing pressure to purchase food and drinks despite not being able to partake in the menu offerings. Such practices can be seen as a form of ableism, where individuals with visible medical needs are unfairly judged or treated differently due to their health conditions. This form of discrimination often results from a lack of awareness or sensitivity to the challenges faced by those with feeding tubes. It can significantly impact the enjoyment and inclusivity of social outings, leading to feelings of exclusion and reinforcing negative stereotypes about disability. For many, this type of discrimination not only affects their dining experience but also adds to the emotional and psychological burden of managing a feeding tube in a public setting.

Introduction & demonstration of PEG tube

Video Credit YouTube: Introduction & demonstration of PEG tube. Leeds Teaching Hospitals NHS Trust

Conditions Requiring Feeding Tubes

Feeding tubes are used for a variety of medical conditions that affect the ability to consume food orally. Some of the most common disorders include:

  1. Neurological Disorders: Conditions such as stroke, cerebral palsy, amyotrophic lateral sclerosis (ALS), and multiple sclerosis (MS) can impair the muscles involved in swallowing, making it difficult or impossible to eat by mouth.
  2. Gastrointestinal Disorders: Severe cases of Crohn’s disease, gastroparesis, and esophageal strictures can necessitate the use of a feeding tube to bypass affected parts of the digestive system.
  3. Cancer: Head, neck, or esophageal cancers can obstruct the throat or esophagus, preventing safe swallowing. Chemotherapy or radiation treatments can also cause severe mouth sores or nausea, requiring alternative feeding methods.
  4. Genetic and Metabolic Disorders: Conditions like cystic fibrosis or metabolic disorders that affect nutrient absorption may require a feeding tube to ensure adequate nutrition.
  5. Premature Birth: Premature infants often lack the strength or coordination to suckle and may need a feeding tube until they develop the ability to eat on their own.
  6. Loeys-Dietz syndrome (LDS): This is a rare genetic disorder that affects the connective tissue throughout the body, leading to a range of serious complications. It is primarily characterized by abnormalities in the aorta, the large artery that carries blood from the heart to the rest of the body, which can lead to life-threatening aneurysms and dissections. People with LDS often have distinctive physical features, such as widely spaced eyes, a cleft palate, or a bifid uvula, along with skeletal abnormalities like scoliosis. The syndrome is caused by mutations in genes that are critical for the production and maintenance of connective tissue, and it can also affect the skin, bones, and joints. Due to the potential for severe cardiovascular complications, early diagnosis, and careful management are crucial for individuals with Loeys-Dietz syndrome, often requiring lifelong medical monitoring and, in some cases, surgical interventions to prevent catastrophic vascular events.

Daily Life with a Feeding Tube

Living with a feeding tube involves a complete reconfiguration of one’s daily routine. The process of feeding, which most people take for granted, becomes a meticulous task requiring attention to detail and hygiene.

  • Feeding Schedules: Individuals may need to adhere to strict feeding schedules, using pumps or syringes to deliver formula at specific times throughout the day. This schedule must be balanced with daily activities, making spontaneity difficult.
  • Tube Maintenance: The tube itself requires regular care to prevent blockages, infections, or dislodgement. Cleaning the tube, monitoring the stoma (the opening where the tube enters the body), and ensuring the tube is functioning correctly add to the daily responsibilities.
  • Physical Discomfort and Complications: Tube sites can be uncomfortable and prone to complications like infections, leakage, or irritation. Some individuals also experience nausea or bloating from the feeding formulas.
  • Social and Emotional Impact: Eating is a social activity, and not being able to participate in meals can lead to feelings of isolation. The visibility of a feeding tube can also draw unwanted attention or questions, contributing to self-consciousness or anxiety.

The Challenges of Traveling with a Feeding Tube

Traveling with a feeding tube introduces a whole new set of challenges. Airports, in particular, pose significant obstacles for individuals with feeding tubes.

  • Security Screening: Passing through airport security with feeding tube supplies can be stressful. Liquid formulas often exceed the typical liquid limit, requiring special screening. The feeding tube itself may trigger alarms, leading to additional security checks and potential delays.
  • Carrying Supplies: Packing and transporting all necessary supplies, including feeding pumps, formula, syringes, and cleaning materials, requires careful planning. Individuals must ensure they have enough supplies to last the entire trip, with extras in case of delays or emergencies.
  • Finding Appropriate Facilities: Airports and travel destinations may lack appropriate facilities for managing feeding tube care. This can make it difficult to clean the tube, prepare feeds, or find privacy when needed.
  • Time Zone Changes: Crossing time zones can disrupt feeding schedules, which are often carefully timed to align with medical needs. Adjusting these schedules without compromising health can be challenging.
  • Insurance and Medical Documentation: Traveling may require carrying detailed medical documentation to ensure access to necessary care and to navigate potential issues with insurance coverage. This paperwork is essential but adds to the stress of travel.

Overcoming Obstacles

Despite these challenges, individuals with feeding tubes and their caregivers demonstrate remarkable resilience. Planning ahead is key to managing daily life and travel:

  • Education and Advocacy: Understanding one’s rights and educating airport staff about feeding tubes can help ease the process. Advocating for oneself or a loved one is essential for ensuring that needs are met with understanding and respect.
  • Support Networks: Connecting with others who have similar experiences can provide emotional support and practical advice. Online communities and local support groups offer a platform for sharing tips, encouragement, and coping strategies.
  • Preparation and Flexibility: Detailed preparation, from creating a comprehensive packing list to rehearsing interactions with security personnel, can alleviate some of the stress associated with traveling. Flexibility and a positive mindset are also important, as unexpected challenges are almost inevitable.

The Mental Health Impact: Navigating Distress and Anxiety

Living with a feeding tube presents unique challenges that extend beyond the physical aspects of care. For many individuals, the reliance on a feeding tube can significantly impact mental health, leading to heightened distress and anxiety. The constant management of the feeding tube, coupled with the need for careful monitoring and maintenance, can be overwhelming and stressful. The inability to participate in normal eating experiences and the visibility of the tube may contribute to feelings of isolation, self-consciousness, and loss of control. The burden of adhering to strict feeding schedules, dealing with potential complications, and facing societal stigma can exacerbate anxiety and affect overall emotional well-being. Support from mental health professionals, along with a strong network of family and friends, is essential in addressing these psychological impacts and helping individuals cope with the emotional challenges of living with a feeding tube.

Conclusion

Feeding Tube Awareness is about more than understanding the medical reasons for feeding tubes—it’s about recognizing the daily realities and challenges faced by those who rely on them. Whether managing day-to-day life or navigating the complexities of travel, individuals with feeding tubes and their caregivers deserve empathy, support, and the resources they need to thrive. By raising awareness, we can help create a more inclusive world where everyone’s needs are understood and accommodated.

Individuals with feeding tubes often face a complex web of emotional and social challenges that can profoundly impact their mental health. The experience of humility, discrimination, isolation, and social stigma can lead to feelings of depression and marginalization. Ableism and societal ignorance may exacerbate these issues, further diminishing their quality of life. To address these difficulties, there is a pressing need for greater awareness and sensitivity, particularly in public spaces like airports. Establishing special security zones for disabled individuals could alleviate some of the stress associated with travel, ensuring that those with feeding tubes are treated with the respect and consideration they deserve. By fostering a more inclusive environment and recognizing the unique challenges faced by these individuals, we can contribute to improved mental well-being and a more compassionate society.


Further Reading:


Diabetes Awareness

Diabetes Awareness

Diabetes is a chronic disease that affects millions of people worldwide. Despite its prevalence, many people are still unaware of the signs and symptoms of diabetes, as well as the importance of early diagnosis and treatment. That is why diabetes awareness is crucial in improving the lives of those affected by this condition.

Diabetes occurs when the body is unable to produce enough insulin or use it effectively. Insulin is a hormone produced by the pancreas that helps regulate the body’s blood sugar levels. Without insulin, glucose builds up in the bloodstream, leading to high blood sugar levels, which can cause damage to organs and tissues over time.

There are three main types of diabetes: type 1, type 2, and gestational diabetes. Type 1 diabetes is an autoimmune condition that usually develops in children and young adults. Type 2 diabetes is more common in adults and is often linked to lifestyle factors such as obesity, a sedentary lifestyle, and poor diet. Gestational diabetes occurs during pregnancy and can increase the risk of complications for both the mother and baby.

The signs and symptoms of diabetes can include increased thirst and urination, blurred vision, fatigue, slow-healing wounds, and tingling in the hands and feet. However, many people with diabetes may not experience any symptoms at all, making early detection and diagnosis even more critical.

Diabetes awareness can help individuals recognize the warning signs of the condition and seek medical attention promptly. Healthcare professionals can perform simple tests to measure blood sugar levels and diagnose diabetes, allowing for early intervention and treatment.

Diabetes management typically involves a combination of medication, lifestyle changes, and regular monitoring of blood sugar levels. Medications such as insulin, oral medications, and other injectable medications can help regulate blood sugar levels. Lifestyle changes, such as a healthy diet, regular exercise, and maintaining a healthy weight, can also play a crucial role in managing diabetes.

Diabetes awareness campaigns can also help reduce the stigma associated with the condition. Many people with diabetes face discrimination and misconceptions about the disease, which can lead to isolation and feelings of shame. Raising awareness and educating the public about diabetes can help reduce stigma and promote acceptance and understanding.

What is Diabetes

Diabetes is a chronic condition that affects how the body processes blood sugar (glucose). Glucose is an essential source of energy for the body’s cells, and insulin, a hormone produced by the pancreas, is needed to move glucose from the bloodstream into the cells.

In diabetes, the body either doesn’t produce enough insulin, or it cannot use the insulin it produces effectively. As a result, glucose builds up in the blood, leading to high blood sugar levels, which can cause a range of health problems over time.

There are three main types of diabetes:

  1. Type 1 diabetes: This is an autoimmune disease in which the body’s immune system attacks and destroys the cells in the pancreas that produce insulin. Type 1 diabetes usually develops in children or young adults, and those with this type of diabetes need to take insulin every day to survive.
  2. Type 2 diabetes: This is the most common form of diabetes and occurs when the body becomes resistant to insulin, or when the pancreas cannot produce enough insulin to meet the body’s needs. Type 2 diabetes can develop at any age, but it is more common in people who are overweight or obese and over the age of 40.
  3. Gestational diabetes: This type of diabetes develops in some women during pregnancy, usually in the second or third trimester. It usually goes away after the baby is born, but women who have had gestational diabetes have a higher risk of developing type 2 diabetes later in life.

In addition to these three main types, there are also other forms of diabetes, such as monogenic diabetes, which is caused by a single gene mutation, and cystic fibrosis-related diabetes, which occurs in people with cystic fibrosis.

Symptoms of diabetes can include frequent urination, excessive thirst, increased hunger, blurry vision, fatigue, and slow healing of cuts or wounds. However, some people with type 2 diabetes may have no symptoms at all, and the condition may go undiagnosed for years.

Complications of diabetes can be serious and can include heart disease, stroke, kidney disease, nerve damage, and blindness. However, with proper management, people with diabetes can live long, healthy lives.

Management of diabetes typically involves a combination of medication, lifestyle changes, and regular monitoring of blood sugar levels. For people with type 1 diabetes, insulin injections or an insulin pump are necessary. For people with type 2 diabetes, oral medications, insulin injections, or other injectable medications may be used.

Lifestyle changes can also play a crucial role in managing diabetes. These may include a healthy diet, regular exercise, maintaining a healthy weight, and quitting smoking. Regular monitoring of blood sugar levels is also essential to ensure that blood sugar levels are within a healthy range.

Diabetes is a chronic condition that affects how the body processes blood sugar. While it can lead to serious health problems, proper management can help people with diabetes live long, healthy lives. If you have symptoms of diabetes or are at risk of developing the condition, it’s important to talk to your doctor about getting tested and starting treatment if necessary.

Is Diabetes Preventable

Type 1 diabetes, which accounts for about 5-10% of all cases of diabetes, is not preventable since it is an autoimmune disease that occurs when the immune system attacks and destroys the insulin-producing cells in the pancreas.

However, type 2 diabetes, which accounts for about 90-95% of all cases of diabetes, is largely preventable. Type 2 diabetes is often linked to lifestyle factors such as obesity, a sedentary lifestyle, poor diet, and smoking. Making healthy lifestyle choices can significantly reduce the risk of developing type 2 diabetes.

Here are some steps that can help prevent type 2 diabetes:

  1. Maintain a healthy weight: Being overweight or obese is one of the most significant risk factors for developing type 2 diabetes. Losing weight and maintaining a healthy weight through a balanced diet and regular exercise can significantly reduce the risk of developing the condition.
  2. Exercise regularly: Regular physical activity can help improve insulin sensitivity and reduce the risk of developing type 2 diabetes. Aim for at least 30 minutes of moderate-intensity exercise, such as brisk walking, most days of the week.
  3. Eat a healthy diet: A diet high in fruits, vegetables, whole grains, lean protein, and healthy fats can help reduce the risk of developing type 2 diabetes. Avoid sugary drinks, processed foods, and foods high in saturated and trans fats.
  4. Quit smoking: Smoking is a significant risk factor for developing type 2 diabetes. Quitting smoking can help reduce the risk of developing the condition, as well as improve overall health.
  5. Get regular check-ups: Regular check-ups with a healthcare provider can help identify early signs of diabetes and other health conditions. If you are at high risk of developing type 2 diabetes, your healthcare provider may recommend regular blood sugar screenings to monitor your blood sugar levels.

How To Treat Diabetes

Diabetes is a chronic condition that requires ongoing management to keep blood sugar levels within a healthy range. Treatment for diabetes involves a combination of medication, lifestyle changes, and regular monitoring of blood sugar levels.

  1. Medications: There are several types of medications that are used to treat diabetes. For people with type 1 diabetes, insulin is the main medication used to lower blood sugar levels. People with type 2 diabetes may also need to take insulin, as well as other oral medications or injectable medications, to help regulate blood sugar levels.
  2. Lifestyle changes: Making healthy lifestyle choices can help manage diabetes and reduce the risk of complications. Eating a healthy diet that is low in sugar and saturated fats, and high in fiber and complex carbohydrates, can help regulate blood sugar levels. Regular exercise can also improve insulin sensitivity and help manage blood sugar levels. Quitting smoking and reducing alcohol consumption can also help manage diabetes.
  3. Blood sugar monitoring: Regular monitoring of blood sugar levels is an essential part of diabetes management. People with diabetes should check their blood sugar levels regularly and work with their healthcare providers to adjust their medications and lifestyle choices accordingly.
  4. Managing complications: People with diabetes are at increased risk of developing complications such as nerve damage, kidney disease, and eye damage. Regular check-ups with a healthcare provider can help identify early signs of complications and prevent or manage them.
  5. Education and support: Diabetes education and support can help people with diabetes better manage their condition. Healthcare providers, diabetes educators, and support groups can provide education, resources, and emotional support for people with diabetes.

Conclusion

Diabetes awareness is essential in improving the lives of those affected by this condition. By educating the public about the signs and symptoms of diabetes, promoting early detection and diagnosis, and reducing stigma, we can help ensure that individuals with diabetes receive the care and support they need to manage their condition successfully. If you are at risk of developing diabetes or have any concerns about your health, it is essential to talk to your healthcare provider about screening and prevention measures.

While type 1 diabetes is not preventable, type 2 diabetes is largely preventable through healthy lifestyle choices. Maintaining a healthy weight, exercising regularly, eating a healthy diet, quitting smoking, and getting regular check-ups can all help reduce the risk of developing type 2 diabetes. If you have concerns about your risk of developing diabetes, it is essential to talk to your healthcare provider about prevention and screening measures.

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Cystic Fibrosis -Josh Llewellyn Jones OBE.

Cystic fibrosis is an inherited condition that causes sticky mucus to build up in the lungs and digestive system. This causes lung infections and problems with digesting food. In the UK, most cases of cystic fibrosis are picked up at birth using the newborn screening heel prick test.

Can you live a long life with cystic fibrosis? Whilst there is no cure for cystic fibrosis (CF), people with CF are extending their life expectancy and living longer, healthier lives than ever before. Babies born with CF today are expected to live into their mid-40s and beyond. Life expectancy has improved so dramatically that there are now more adults with cystic fibrosis than children.

A charity has been set up by Josh Llewellyn-Jones (OBE) and Mark his brother. Josh from Cardiff was diagnosed with cystic fibrosis at birth and at the age of two years of age was fortunate enough to get the right medical attention from an American specialist late Dr. Bob Kramer from Dallas in Texas USA. Josh is extremely fit and holds the Guinness Book of World Records for lifting one million kilograms in 22 hours 10 minutes back in October 2018, which is equivalent to lifting 700kg a minute. Josh is a motivational speaker and empowers children with cystic fibrosis.

https://www.joshlj24.com/

https://shop.resultsinwellness.co.uk/blogs/news/meet-our-new-painpod-brand-ambassador-josh-llewellyn-jones-obe

https://www.walesonline.co.uk/news/wales-news/record-breaking-athlete-who-born-15238620

#cf #cfwarriors #cysticfibrosis