If the cost of living was not bad enough with people freezing and ambulances not getting to people on time there should be no surprise to have another spanner thrown into the works with the dreaded C###d word making the rounds again. The (C) word was never eradicated but it was stable through herd immunity, so reading the following statement has got my mind blown…
The Transport Secretary Mark Harper has said that even though those traveling from China will have to have a negative test, those who are positive will not have to quarantine upon entry into the UK, despite Beijing admitting there have been many deaths.
UK will allow Chinese travelers with positive Covid tests to enter the UK and not quarantine despite in ‘Shanghai 70% having the virus.
The advice, issued by the UK Health Security Agency (UKHSA) is warning that it is “likely” that Covid, flu, and scarlet fever will continue to rise in the coming weeks.
The UKHSA are advising parents who have a child with a high temperature of 38C or higher to keep them out of school.
Professor Susan Hopkins, the chief medical adviser at UKHSA, said adults should “try to stay home when unwell” and those who venture out should “wear a face covering” to prevent the spread of infection.
I phoned my GP today after waiting two months for a prescription that my neurologist consultant had prescribed for my unbearable pain which is caused as a result of my multiple sclerosis and yet, to this day I have not had the medication.
When I queried it today, the receptionist I spoke with stated that he was not ‘medically trained’ to read the letter sent from the neurologist at the hospital and that I would have to wait for the doctor to read it and approve. This goes to show the mentality of the receptionists at my GP as mentioned previously, he stated he couldn’t read my letter as he was not ‘medically trained’, when in reality, he shouldn’t be reading my letter at all as that would breach Data Protection Act 2015. None the less, I gave the GP the benefit of the doubt and continued to wait for my medication.
A few weeks go by and I get a call from the GP, although to my surprise it is not the doctor but a different receptionist. The woman I spoke with informed me that she was passing on a message from the doctor stating I had to have a consultation to discuss the medication at hand. When I questioned why I would need to discuss the medication when I had already done so with my consultant, she could not reply. As a result of this, it meant that I would have to ring up the GP at 8am the following day to fight for an appointment to then have to wait all day for a doctor to give me a call back.
Why do I need a consultation with the GP when my consultant who is a qualified neurologist has prescribed them?
I believe this is to test people and for them to beg to get medication. So am I to believe my general practitioner doctor is more qualified than the neurologist?This is now causing me anxiety and stress. Stress can lead to MS relapse.
So they cannot book an appointment at the time of the phone call, you have to be a good soldier and do as they ask.
When I told my mother who is also my carer, she said she would intervene and write a letter (which never gets answered, may I add) demanding that I have the medication otherwise my mother would take it up with the ombudsman.
I am worried I will get kicked out of the surgery as I am dependent on my drugs for the excruciating pain I endure, so told her not to pursue it. I have been threatened by this surgery before regarding not agreeing with some of the things they say. Both my mother and I have agreed that I contact my primary neurologist and explain not only have I fallen through the gaps regarding getting my monthly blood as stipulated on the Lemtrada website but my GP is refusing to give me the medication that the consultant requested.
This is Medical Negligence!
I am documenting this as evidence that my quality of life is being compromised because of my GP not giving me my medication and my concerns that my blood is not being tested to monitor any changes to catch them early.
This will be forwarded to PIP (Personal Independence Payments).
I will update again once I get further information.
I phoned my GP to book a consultation under duress otherwise I would have had hope in hell to get my medication, even though it was prescribed by a neurologist.
The doctor did phone me back only to ask me what I needed to talk about…OMG.
When I said about my medication she continued to ask which medication I was referring to, even though supposedly there was a message on my notes. She then asked if I am capable to take them…..what the hell?
What a waste of time and resources.
The doctor did not even know why she was ringing me other than me requesting a callback which I was put on the spot to do, otherwise, I would not have had my meds.
And people wonder why they struggle to get a GP appointment, this is a perfect example as to how the GP waste resources, time and effort. This appointment could have been utilised for someone who actually needed it, not for a chit chat.
After losing my patience waiting for my non-existence letter to arrive to notify me to have my blood test done, I decided to contact my primary neurologist by email. Baring in mind I am supposed to have a blood test done every month to prevent/pick up early, transfusion related conditions such as Immune Thrombocytopenic Purpura (ITP), kidney problems/anti-GBM disease and problems of the thyroid gland (hypo/hyperthyroidism). As I am writing this, it has been 7 weeks since my last blood test and yet my primary consultant could not care less, he is obviously happy I have lined his pockets ready for Christmas.
Granted he was quick to respond.
The unfortunate thing is, had I of not emailed him, he would have been none the wiser that I had not had any blood work done. Surely, as my primary consultant, it is his responsibility to ensure that as his patient, I am having the necessary tests to ensure I am ok.
Not only that, he confirmed my blood test on the 2nd November was okay, would he have not noticed that I was not scheduled for a repeat test for the following month? Would he have not spoken with the other neurologist that I saw last? Do people within the hospital even communicate with one another, or is that my responsibility too?
I did mention that I understood Royal Mail was on strike and the nurses and emergency service are following suit. I was concerned that I have not had any blood tests done and my neurologist replied to sort it out myself and phone his secretary.
Why should I go out of my way to chase blood tests?
I have always had my blood taken at the hospital so why suggest I have them done at my GP who is also as useful as a chocolate fireguard?
Why move the goalposts? Why try to fix something that is not broken, meaning continue to have my blood taken at the hospital?
It is the responsibility of the consultant to make sure I have a blood test done and not down to me to do their job for them.
I can see pound signs of their lack of empathy and aftercare for their patient.
If something is found that could have been prevented all hell will break loose, mark my words.
What the Government Has to Say:
Lemtrada▼ (alemtuzumab): updated restrictions and strengthened monitoring requirements following a review of serious cardiovascular and immune-mediated reactions
A review of the benefits and risks of alemtuzumab (including fatal reactions) in the treatment of multiple sclerosis has now concluded and recommended a revised indication, additional contraindications, and strengthened monitoring requirements before, during, and after treatment. Patients offered alemtuzumab should be alerted to the early risks of cardiovascular events and thrombocytopenia around the time of infusion and to the delayed risk of immune-mediated reactions. Healthcare professionals should inform patients what to do if they develop any symptoms of these disorders.
** This post is primarily for the UK. I have written several articles about my GP (Doctor) Negligence and Doctor-Patient Confidentiality in recent times. I am for my own records posting evidence they have only confirmed my letters have been put on the system but both times have not been actioned. Furthermore, I have been in communication with several people, not only relating to this particular surgery but others around the UK also encountering similar problems. I have now discovered why GP (Doctor) Surgeries are backlogged… read more…
Local doctors’ surgeries across the UK are either closing or their clinicians are retiring early.
The impact of the aftermath of the pandemic has caused a strain on doctors and other workers in local GP practices which have seen some “struggling to maintain regular services” which has meant some closing surgery doors to all but the most urgent cases.
Playing “Russian Roulette”, with people’s lives is what is happening as each day brings new absences. Those with overall responsibility for general practice, such as NHS England and the Clinical Commissioning Groups (CCGs), have had “no backup plan”.
A survey carried out by the Royal College of GPs (RCGP) found that at least a third of doctors were planning to retire in the next five years, leaving 14,000 fewer GPs than are currently working.
Addressing the Health and Social Care Committee, retired GP Dr. Andrew Green said, “We need to accept that 10-minute appointments are not safe. The only way that you can run a 10-minute appointment surgery on time is by cutting corners.
“Therefore introduce a questionnaire to be filled out by patients who could then write about their ailments for the doctors to review” similar to what I have done, although my surgery is as helpful as a chocolate fire guard. A ten-minute appointment can then be reduced to two or can be done online using encryption software”
According to “herd immunity” policy, which has allowed the coronavirus to rip through the population in successive and ever-higher waves of infection, has placed intolerable burdens on NHS hospitals.
“This is all smoke and mirrors andI believe the herd immunity is working because most people would have received their vaccinations. I believe it is down to the doctors themselves not managing their time properly or insufficient staff quotas”.
Evidence of the emails I received to state my letters were logged on the system.
To recap I wrote a letter which I emailed last year 9 pages long and this year 15 pages long, it was put on the system and both times never actioned.
I have been told previously by my surgery if I do not like how things are run to change doctors (I am not the only one judging by the Google Reviews). It is easier said than done if you have social disconnection problems, run a business, and do not have time to register at a new surgery never mind the shortfall on the prescribed medication, whilst you wait for your registration to be approved and your medical records sent over.
The NHS are playing “Russian roulette”, put it this way my doctor’s surgery, in particular, most definitely is playing with people’s health.
If you are unhappy you should first address your practice manager or write to your head doctor failing that you can complain to the NHS (see links below).
I know I could take this further and I will one day, but at the moment I am dependent on my medication, albeit there is a shortage of Gaviscon.
It used to be whatever you said to your GP would not be repeated to anyone else, unless it warranted it, such as if the person was in some way in danger of harming themselves or if they needed medical care and support.
However as times have changed with information being passed around on the internet and emails being hacked, there was no secure way of sending an email to this particular surgery which is concerning in itself.
Apparently and this in particular aimed at my own GP, so cannot vouch for any other surgeries, that whatever you told your doctor, could also be accessed by other staff at the surgery. But in my case, my data was accessed by the adjoining pharmacy inside the building of the surgery.
I am all for data security and privacy and what I choose to share online about my illnesses may not be necessarily be everything I want to divulge publicly, hence may keep some information private, but obviously, as I have found out two people have now gained access to my letter and I have not had a response back from the doctor, which is very alarming.
So my question is does the Doctor actually know the letter exists or do I just have the word from the practice manager? What if my letter was printed off and passed around I have no guarantee that it wasn’t?
However, I was due a medication follow-up review today and although I had emailed the Doctor directly on the 25th of May 2021 I later found out this particular doctor is no longer at the practice and I had to forward my email to the practice manager on the 27th.
The practice manager acknowledged the email and said that I needed to make an appointment with my GP over certain things I had written in the letter. The practice manager also told me over the phone that my medical data can be accessed by all the staff in the surgery but to not worry as they had all signed non-disclosure agreements. 🤢
What a 🐊 of💩 so you are telling me that someone could read this information and then go home and repeat it to their friends/partner or spouse? A nondisclosure agreement is not worth the paper it is written on as there are no guarantees that your information will not be shared. A person could simply say I read this about a certain individual and there would be absolutely no proof that the said person did or did not share the information. There are absolutely no guarantees whats so ever that what is written would not be repeated or talked about during the lunch breaks or pillow talk.
To think that the surgery thinks people are stupid or gullible is beyond belief that they would be sucked into their garbage of an excuse that all staff at the surgery can gain access to your medical records, but cannot disclose any information because of non-disclosure agreement they had signed.🤬😡 Talk to the hand ✋.
What if a patient had some embarrassing ailment (I am not talking about myself btw) 😂🤣 (seriously though it is not a laughing matter) and was riddled with STD’s and everyone in the surgery including the pharmacist got to read their medical notes?
The principle of the matter is unprofessional and unethical. The patient should not have to be forced to tell the receptionist what is wrong with them as in the case of this particular surgery.
According to best practices but this is for England and not Wales only the bare minimum should be accessed but the pharmacist today confirmed she had read my letter which I quote her saying “it was very thorough and detailed and that is what they prefer”.
She asked about my medication and told me to take it at regular intervals. One of the prescription drugs is a sleeping tablet and within 30 minutes I am zonked out, so if I took it at regular times it would interfere with my life because I cannot go to sleep every night at an exact time.
This was going over her head and she was not interested in anything I had to say. She was trying to teach me to how to suck eggs as if I needed a 30-year-old to tell me what to do and in the ideal world where I did not have such an unpredictable job, I would possibly be a good girl and go to sleep the same time every night, but my lifestyle does not permit me. I even told her my job is not a 9 to 5 and sometimes I could be working at 3 am in the morning.
Now wait for this, I said, considering she had read my letter what did she suggest about this one problem I had and this is laughable by her response, she only told me to phone the GP. 😡
Although my time could be better spent than phoning and then waiting on someone to get back to me, I will be phoning the GP just so that I can speak to them for comment and get to the bottom of how my medical records have been shared.
So tell me if I had written a letter nearly a month ago to the GP you would think the Doctor(s) would have the decency to reply. Their lame excuse will be they are too busy to respond to emails.
I get a thousand plus emails a day and still find time to respond.
I think it is downright rude and unprofessional to ignore a letter that every tom dick and harry has read but does not get a response from the doctor to which the letter was addressed in the first place.
So what the hell was the reason for the pharmacist to access my medical records to ask if me if I smoke or take alcohol and then not give me any advice at all, what a waste of time and resources and my time (which not relevant in the eyes of the NHS, they can waste your time but you cannot waste theirs).
She then said she would book me in for another annual review, why though? If they get email updates from me why speak to me?
I responded unless there was anything I needed I would be perfectly capable to email or phone the GP myself and did not need an annual review (omitting the part that her phone call was a waste of my precious time).
I am fuming how my medical file has no privacy protection. 🤬😡
I have mentioned this surgery before on a marketing blog I also run and have been told if I make waves I could be struck off their register yet I depend on my medication.
They also have said to me that they (the NHS) quote “do not have an obligation to help me if they do not want to”.
So if you are savvy to know about my other blog just search for GP Surgery Cardiff. Sorry, no links given.
Confidentiality is not absolute
Confidentiality is an important ethical and legal duty for doctors, however, it is not guaranteed and is not absolute. Your doctor may be able to disclose personal information without breaching his/her duties of confidentiality under certain circumstances, such as when the disclosure is of overall benefit to a patient who lacks the capacity to consent.
Your first port of call should be to complain to the GP practice, you should send them a recorded signed for formal letter or email, failing that you have three options as in the links below, but in my experience of other things I have complained about in the past you run the risk of being removed from the surgery and their response is very biased as they will protect themselves, so do take this into consideration and always have another surgery lined up just in case of the worst-case scenario, remember also if you get kicked out of your surgery another surgery may not accept you based on how much trouble you make, as surgery (a) may put notes for surgery (b) to read, hence it is good practice to also request all your data from surgery (a) before approaching surgery (b).
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