The Terrifying Debate: How Assisted Dying Impacts Disabled Individuals
The discussion surrounding assisted dying or euthanasia has long been a contentious and morally complex issue. While proponents argue for the right to choose a peaceful end to suffering, opponents express concerns about potential abuses and the devaluation of human life. Amidst this debate, one group often overlooked is disabled individuals, for whom the discourse on assisted dying can be not just contentious, but terrifying.
At the heart of the debate lies the question of autonomy and quality of life. Proponents of assisted dying argue that individuals should have the right to end their lives on their own terms, particularly when faced with terminal illnesses or unbearable suffering. They advocate for laws that allow for physician-assisted suicide or euthanasia under strict conditions, providing a compassionate option for those who are enduring immense pain.
However, for many disabled people, the legalization of assisted dying raises alarming concerns. Disability rights activists argue that such laws may inadvertently perpetuate societal biases and further marginalize disabled individuals. The fear is that a societal emphasis on “quality of life” could lead to the devaluation of disabled lives, with individuals feeling pressured to end their lives due to societal perceptions of their worth.
Moreover, disabled individuals often face systemic barriers that can contribute to feelings of hopelessness or despair. Issues such as lack of accessibility, discrimination in healthcare, and social stigma can exacerbate feelings of isolation and inadequacy. In this context, the option of assisted dying may seem less like a choice and more like a coerced solution to systemic neglect and discrimination.
Another significant concern is the potential for abuse and coercion. Critics worry that vulnerable individuals, including those with disabilities, may be pressured into assisted dying against their will. This could stem from various sources, including financial strain on caregivers, societal prejudices, or even subtle messaging suggesting that disability equates to a diminished quality of life. Without robust safeguards and protections in place, the legalization of assisted dying could leave disabled individuals particularly vulnerable to exploitation.
Furthermore, the concept of “unbearable suffering” can be subjective and open to interpretation, posing further challenges for disabled individuals. Chronic pain and discomfort are realities for many people with disabilities, but these experiences do not necessarily equate to a desire for death. The assumption that disabled lives are inherently less valuable or less worth living is deeply troubling and undermines efforts to promote inclusivity and acceptance.
In the midst of these concerns, it is essential to listen to the voices of disabled individuals themselves. Many within the disabled community reject the notion that their lives are inherently tragic or lacking in value. Instead, they advocate for greater support, accessibility, and societal acceptance. Rather than focusing on ending lives, they argue for improving the quality of life for all individuals, regardless of ability.
Addressing the complex issues surrounding assisted dying requires a nuanced approach that acknowledges the concerns of all stakeholders. While proponents may emphasize individual autonomy and compassion, it is crucial to consider the broader societal implications, particularly for marginalized groups such as disabled individuals. Any discussions or legislative efforts regarding assisted dying must prioritize robust safeguards, protection of rights, and support services that address the root causes of suffering.
Ultimately, the assisted dying debate is not just about legalizing a medical procedure; it is about shaping societal attitudes towards disability and the value we place on human life. By fostering a culture of inclusion, support, and respect for all individuals, we can work towards a society where every life is valued and no one feels compelled to choose death as a solution to societal neglect or discrimination.
Empowering Inclusion: The Vital Role of Accessibility Tours in Enhancing the Lives of Disabled Individuals
Where travel and exploration are celebrated, accessibility often becomes an afterthought. For many disabled individuals, the barriers to experiencing new places and cultures can feel insurmountable. However, the rise of accessibility tours is changing this narrative, offering a beacon of hope and empowerment to those who have long been sidelined by inaccessible spaces. These specialized tours not only break down physical barriers but also foster a sense of inclusivity and belonging for disabled individuals.
Accessibility tours are meticulously designed to accommodate various disabilities, including mobility limitations, visual or hearing impairments, and sensory sensitivities. They prioritize barrier-free routes, wheelchair-accessible facilities, sign language interpreters, audio guides, and tactile exhibits, ensuring that participants can fully engage with their surroundings regardless of their abilities.
One of the most profound benefits of accessibility tours is the opportunity they provide for disabled individuals to explore the world on their own terms. By removing logistical obstacles and providing tailored support, these tours empower participants to reclaim their autonomy and independence. For many, it’s a chance to fulfill lifelong dreams of visiting iconic landmarks, immersing themselves in nature, or delving into cultural heritage sites.
Moreover, accessibility tours play a crucial role in promoting social inclusion and combating the stigma surrounding disability. By creating spaces where disabled individuals are not just accommodated but actively welcomed, these tours foster a sense of belonging and acceptance. They challenge preconceived notions about what it means to be disabled and highlight the diverse talents and perspectives that enrich our communities.
Beyond individual empowerment, accessibility tours also have far-reaching societal benefits. By setting higher standards for accessibility in the tourism industry, they encourage businesses and organizations to prioritize inclusivity in their practices. This not only enhances the travel experience for disabled individuals but also contributes to a more equitable and inclusive society overall.
Furthermore, accessibility tours serve as powerful educational tools, raising awareness about the challenges faced by disabled individuals and promoting empathy and understanding among the general public. Through firsthand experiences, participants gain insights into the importance of accessibility and the barriers that still exist in our built environment. This increased awareness can drive meaningful change and inspire efforts to create more inclusive spaces for all.
It’s essential to recognize that accessibility tours are not just about physical access; they are about fostering a culture of inclusivity and respect for all individuals. By embracing the principles of universal design and actively involving disabled individuals in the planning process, these tours demonstrate that accessibility is not merely a legal obligation but a fundamental human right.
Accessibility tours are a beacon of hope for disabled individuals seeking to explore the world and experience the richness of diverse cultures. They offer far more than just physical access; they embody the principles of empowerment, inclusion, and social justice. As we continue to strive for a more accessible and inclusive world, let us celebrate the transformative power of accessibility tours in breaking down barriers and building bridges of understanding and compassion.
Navigating the World: A Guide to Traveling with a Disability
Traveling is often seen as a journey of discovery, a way to broaden horizons and create lasting memories. However, for individuals with disabilities, the prospect of exploring new destinations can be daunting, fraught with logistical challenges and accessibility barriers. Despite these obstacles, traveling with a disability is not only possible but can also be immensely rewarding, offering opportunities for adventure, connection, and personal growth.
Planning and Preparation: The key to a successful trip when you have a disability lies in thorough planning and preparation. Start by researching your destination to understand its accessibility features, including transportation options, accommodation facilities, and attractions. Look for reviews from other travelers with disabilities to gain insights into their experiences and recommendations.
When booking flights or other modes of transportation, inform the airline or service provider about your specific needs in advance. Many airlines offer assistance with boarding, transferring, and stowing mobility aids, ensuring a smoother travel experience.
Choosing Accommodation: Selecting suitable accommodation is crucial for a comfortable and enjoyable trip. Look for hotels, resorts, or rental properties that offer accessible rooms equipped with features such as roll-in showers, grab bars, and wheelchair-friendly pathways. Contact the accommodation directly to discuss your requirements and confirm their accessibility features.
Alternatively, consider staying in inaccessible vacation rentals or booking through specialized platforms that cater specifically to travelers with disabilities. These options often provide greater flexibility and customization to meet your unique needs.
Navigating Transportation: Transportation can pose significant challenges for travelers with disabilities, particularly in unfamiliar environments. Depending on your mobility needs, consider various transportation options, such as accessible taxis, public transit, or rental vehicles equipped with hand controls or wheelchair lifts.
Before embarking on your journey, familiarize yourself with the local transportation system and inquire about accessibility features and assistance services available. Plan your routes in advance, identifying accessible stops, stations, and transfer points to minimize potential obstacles.
Exploring Attractions: Exploring attractions and landmarks is a highlight of any trip, but it’s essential to ensure they are accessible to individuals with disabilities. Many popular tourist sites now offer accommodations such as ramps, elevators, and accessible restrooms to facilitate entry and navigation for all visitors.
Before visiting an attraction, check its website or contact the venue directly to inquire about accessibility features, available services, and any special accommodations they offer for visitors with disabilities. Some sites may provide guided tours, tactile exhibits, or audio guides to enhance the experience for individuals with sensory impairments.
Seeking Assistance: Don’t hesitate to seek assistance when needed during your travels. Whether it’s requesting help from airline staff, hotel personnel, or local guides, people are generally willing to provide support to ensure your comfort and safety. Carry essential documents, including medical records, emergency contacts, and details of any necessary accommodations or equipment, in case of unexpected situations.
Embracing the Journey: Above all, traveling with a disability is about embracing the journey and celebrating the richness of new experiences. While challenges may arise along the way, each obstacle overcome is a testament to your resilience and determination. Take the time to savor the moments, connect with locals, and immerse yourself in the culture and beauty of your destination.
By advocating for accessibility and inclusivity in travel, individuals with disabilities can pave the way for future generations to explore the world with greater ease and confidence. Through shared experiences and collective efforts, we can create a more inclusive and welcoming environment for travelers of all abilities, ensuring that everyone has the opportunity to discover the wonders of our world.
Here’s a comprehensive travel checklist to ensure you have everything you need before embarking on your journey:
Travel Documents:
Passport (valid for at least six months)
Visa (if required for your destination)
Travel insurance documents
Itinerary and flight/train/bus tickets
Hotel reservations or accommodation details
Driver’s license or International Driving Permit (if planning to rent a vehicle)
Any required medical documents or prescriptions
Money and Payment Methods:
Sufficient cash in local currency and/or currency for emergencies
Credit/debit cards (notify your bank of your travel plans to avoid card blocks)
Traveler’s checks (if preferred)
Health and Medications:
Prescription medications (with original labels and copies of prescriptions)
Sunscreen, insect repellent, and other skincare products
Personal hygiene products (sanitary pads, tampons, etc.)
Sunglasses and hats/caps
Travel Documents and Information:
Emergency contacts (family, friends, local embassy/consulate)
Copies of important documents (passport, ID, travel insurance, itinerary)
Contact information for accommodations, tour operators, and transportation services
Maps, guidebooks, or digital travel apps for navigation
Safety and Security:
Locks for luggage and/or backpacks
Personal safety devices (whistle, personal alarm, etc.)
Travel safety tips and emergency procedures for your destination
Knowledge of local emergency services (police, ambulance, fire)
Entertainment and Leisure:
Books, magazines, or e-readers
Travel games or puzzles
Music playlists or podcasts
Camera or smartphone for capturing memories
Snacks and Hydration:
Water bottle (empty, to refill after security check)
Snacks for the journey (trail mix, granola bars, fruit, etc.)
Gum or mints for freshening up during travel
Miscellaneous:
Travel pillow and blanket for long flights or train journeys
Reusable shopping bags or eco-friendly containers
Language translation apps or phrasebooks (if traveling to a foreign country)
Any special items or equipment needed for specific activities (hiking gear, snorkeling equipment, etc.)
Remember to review and customize this checklist based on your personal preferences, destination, and planned activities. Bon voyage!
Conclusion
Accessibility tours are a beacon of hope for disabled individuals seeking to explore the world and experience the richness of diverse cultures. They offer far more than just physical access; they embody the principles of empowerment, inclusion, and social justice. As we continue to strive for a more accessible and inclusive world, let us celebrate the transformative power of accessibility tours in breaking down barriers and building bridges of understanding and compassion.
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The Controversial Practice of Mandating Disabled Individuals to Work: A Critical Look at DWP Policies
The Department for Work and Pensions (DWP) in the United Kingdom has often been at the center of debates surrounding its policies, particularly those related to disability benefits and employment. One contentious issue that has stirred considerable public concern is the alleged practice of forcing disabled individuals to work, even against their will. Critics argue that such policies are inhumane, exacerbate existing challenges faced by disabled individuals, and fail to consider the unique circumstances that may hinder their ability to engage in traditional employment.
The DWP’s Approach to Disability and Work:
The DWP’s primary goal is to promote employment and self-sufficiency among the population, including those with disabilities. However, critics argue that the methods employed to achieve this goal may sometimes be draconian and insensitive to the complex needs of disabled individuals.
One of the key elements of controversy is the Work Capability Assessment (WCA), a test designed to evaluate an individual’s ability to work. Critics claim that the WCA often fails to account for the nuanced and varied nature of disabilities, leading to instances where individuals are deemed fit for work when they may not be.
Forced to Work Against Their Will:
Reports have surfaced suggesting that disabled individuals, based on WCA results, are sometimes pressured or coerced into accepting employment, even if they express reservations about their ability to fulfill job requirements. This has led to claims of individuals being pushed into unsuitable or demanding roles, exacerbating their health conditions and negatively impacting their overall well-being.
Impact on Disabled Individuals:
Forcing disabled individuals into employment without considering their unique needs can have severe consequences. Many disabled individuals require specific accommodations, flexibility in work hours, or job roles that align with their capabilities. When these considerations are overlooked, individuals may struggle to cope, leading to increased stress, exacerbation of health conditions, and a higher likelihood of job loss. Some employers may not employ people who are high risk, deemed as liabilities of insurance claims.
Legal and Ethical Implications:
The alleged practice of forcing disabled individuals to work raises serious ethical and legal questions. Human rights advocates argue that individuals with disabilities should not be subjected to undue pressure or discrimination in the workplace. Moreover, critics contend that such policies may violate the Equality Act, which prohibits discrimination based on disability.
Calls for Reform:
In response to growing concerns, advocacy groups and individuals have called for a reevaluation of DWP policies related to disabled individuals and employment. They argue for a more compassionate and nuanced approach that considers the individual needs and circumstances of each disabled person, ensuring that they are not forced into situations that could compromise their health and well-being.
Empowering Lives: The Impact of Entrepreneurship on the Mental Health of Disabled and Unemployed Individuals
The journey of entrepreneurship holds the power to transform lives, offering a sense of purpose, autonomy, and empowerment. For disabled and unemployed individuals, the path of starting a business not only provides economic opportunities but also catalyzes improved mental well-being.
Fostering a Sense of Purpose: Entrepreneurship can infuse individuals with a renewed sense of purpose. For disabled and unemployed individuals who may feel marginalized or excluded from traditional employment, starting a business allows them to define their own goals, pursue their passions, and make a meaningful impact in their chosen field.
Autonomy and Flexibility: Unlike conventional employment structures that may pose challenges for individuals with disabilities, entrepreneurship provides the flexibility to design work environments that accommodate specific needs. Entrepreneurs can tailor their schedules, workspace, and work processes, promoting a sense of autonomy that is invaluable for mental well-being.
Building Confidence and Self-Esteem: Entrepreneurship inherently involves overcoming challenges and taking risks. For disabled and unemployed individuals, successfully navigating the complexities of running a business can significantly boost confidence and self-esteem. Accomplishing goals, no matter how small, contributes to a positive self-perception and mental resilience.
Creating a Supportive Community: The entrepreneurial journey often involves connecting with like-minded individuals, mentors, and fellow business owners. Building a supportive community provides a valuable network for sharing experiences, gaining advice, and fostering a sense of belonging, combating the isolation that some disabled and unemployed individuals may face.
Economic Contributions and Job Creation: Beyond individual benefits, entrepreneurship plays a vital role in economic growth. Small businesses contribute significantly to job creation and economic development. By empowering disabled and unemployed individuals to start their businesses, there is a direct impact on local economies, promoting financial independence and reducing dependence on social welfare systems.
Addressing Mental Health Stigmas: Entrepreneurship can challenge societal perceptions and stigmas associated with disability and unemployment. As individuals showcase their capabilities and accomplishments through successful businesses, they become ambassadors for breaking down barriers and reshaping public attitudes toward disability.
Adaptive Technologies and Innovation: The entrepreneurial spirit often drives innovation, leading to the development of adaptive technologies and solutions that cater to individuals with disabilities. By actively participating in the business world, entrepreneurs can contribute to creating a more inclusive society where products and services are designed with accessibility in mind.
Stress Reduction through Passion Pursuit: Engaging in a business aligned with personal interests or passions can act as a natural stress reliever. Rather than experiencing the pressures associated with jobs that may not be well-suited to their abilities, individuals find fulfillment in pursuing endeavors that bring them joy, ultimately positively impacting their mental health.
Starting a business has the power to transform the lives of disabled and unemployed individuals, offering a pathway to empowerment, purpose, and improved mental health. As these entrepreneurs contribute to economic growth, job creation, and innovation, their efforts resonate beyond individual success, positively impacting communities and challenging societal norms. It is crucial to recognize and support initiatives that promote entrepreneurship among disabled and unemployed individuals, fostering an environment where everyone has the opportunity to thrive.
Starting a Business to Avoid, Stress, Finding Employment & Sanctions.
Starting a business can be a rewarding path for individuals with physical and mental disabilities, offering autonomy and flexibility while avoiding the potential stress of traditional employment and associated sanctions.
Here is a list of business ideas that cater to diverse abilities and interests:
Freelance Writing or Blogging: Utilize your writing skills to offer content creation services for businesses or start a personal blog.
Graphic Design: Create visually appealing designs for clients, such as logos, social media graphics, or marketing materials.
Online Tutoring or Coaching: Share your expertise in a particular subject or skill through online tutoring or coaching sessions.
Virtual Assistance: Provide administrative support to businesses or entrepreneurs remotely, managing emails, schedules, and other tasks.
Handmade Crafts: Channel your creativity into crafting handmade goods, such as jewelry, candles, or artwork, to sell online or at local markets.
Consulting: Offer consulting services based on your professional background and expertise, providing valuable insights to businesses or individuals.
Social Media Management: Assist businesses in managing their social media presence, including content creation, scheduling, and engagement.
E-commerce Store: Start an online store selling products or services that align with your interests or passions.
Photography: Capture special moments by offering photography services for events, portraits, or stock photos.
Fitness Instruction: Become a certified fitness instructor and offer virtual or in-person fitness classes tailored to various abilities (ideal for people with mental health disabilities).
Coaching for Mental Health: Share your experiences and insights by becoming a life coach or mental health coach, providing support and guidance.
Catering or Baking: Turn your culinary skills into a business by offering catering services or selling baked goods.
Podcasting: Share your thoughts, expertise, or personal experiences through podcasting, building an audience, and potential sponsorship opportunities.
Virtual Bookkeeping: Provide bookkeeping services to small businesses or entrepreneurs remotely, helping them manage their finances.
App or Software Development: Develop apps or software solutions that cater to specific needs or industries.
Pet Services: Offer pet-sitting, dog walking, or pet grooming services for local pet owners.
Language Translation: Utilize your language skills to offer translation services for individuals or businesses operating globally.
Online Reselling: Engage in online reselling by curating and selling vintage or unique items through platforms like eBay or Etsy.
Digital Marketing: Start a digital marketing business and help businesses grow. You could also partner with an established company, whilst you get leads.
Affiliate Marketing: Where you promote other people’s products in exchange for a commission. You will need to have to build an email list, network, and do social media advertising.
Starting a business can empower individuals with disabilities to create a work environment that suits their needs while avoiding the potential stress associated with traditional employment and sanctions. It’s essential to choose a business idea that aligns with your interests, skills, and comfort level, ensuring a fulfilling and sustainable entrepreneurial journey. Another way is to study for a trade and get a degree at a university to help you open doors.
Navigating Higher Education: Support and Financial Assistance for Disabled Students
Access to higher education is a fundamental right, and universities around the world are working towards creating inclusive environments that cater to diverse student populations. For disabled individuals aspiring to pursue university studies, there are various support mechanisms and financial aid options available to ensure equal opportunities and a positive academic experience.
Disability Support Services: Most universities have dedicated Disability Support Services (DSS) that provide assistance and accommodations for students with disabilities. These services may include:
Academic accommodations: Adjustments to learning environments, such as extended exam time, accessible materials, or note-taking assistance.
Accessible facilities: Ensure that classrooms, libraries, and other facilities are accessible to individuals with physical disabilities.
Assistive technology: Access to specialized software, devices, or tools that assist in learning or performing academic tasks.
Financial Aid Programs: There are various financial aid programs specifically designed to support disabled students. These programs can help cover tuition, living expenses, and additional costs related to disability accommodation. Some common sources of financial aid include:
Government grants and scholarships: Many governments offer financial assistance programs for disabled students, providing grants or scholarships based on financial need, academic merit, or a combination of factors.
University-specific scholarships: Some universities offer scholarships or grants specifically for disabled students. These may be merit-based, need-based, or focused on particular fields of study.
Private foundations and organizations: Numerous private foundations and non-profit organizations provide financial support for disabled students pursuing higher education. These can include disability-specific foundations or those with a broader focus on education.
Student Loans and Repayment Assistance:Accessible student loans: Governments often provide student loans with favorable terms for disabled individuals. These loans may have lower interest rates or more flexible repayment options.
Work-Study Programs: Many universities offer work-study programs that allow students, including those with disabilities, to work part-time while studying. These programs can provide valuable work experience and financial support.
Vocational Rehabilitation Agencies: Vocational Rehabilitation (VR) agencies are government entities that assist individuals with disabilities in obtaining and maintaining employment. In some cases, they may provide financial support for education and training, including university studies.
Community Resources and Charities: Local charities and community organizations may offer financial assistance, mentorship, or other support services to disabled students pursuing higher education.
Disabled individuals have the right to pursue higher education, and universities are increasingly recognizing the importance of creating inclusive environments. With a combination of disability support services, financial aid programs, and community resources, disabled students can access the necessary assistance to thrive academically. It’s essential for aspiring students to explore available options, communicate with university disability support services, and seek guidance from relevant organizations to ensure a smooth and fulfilling educational journey.
While the DWP’s goal of promoting employment and self-sufficiency is commendable, the alleged practice of forcing disabled individuals into work without adequate consideration of their unique needs is a matter of significant concern. Policymakers must strike a balance between promoting employment and ensuring that disabled individuals are not subjected to undue pressure or placed in situations that may compromise their health. Addressing these concerns requires a comprehensive reevaluation of existing policies and a commitment to a more inclusive and compassionate approach to disability and employment.
With the back-to-work policy, what the Government/DWP should do is employ influencers to motivate and empower the unemployed and disabled to follow their dreams, similarly to what we are doing, but not getting paid for it…ouch!
Start by sharing your story, and using your disability as a stepping stone by inspiring others with your achievements. Be an advocate for your disability.
I have this methology “if life gives you lemons, make lemonade”. I am not the type of person to whinge and moan, I just make the most of what I have and try to get on with it.
I always keep myself busy and set goals. However my physical and mental disabilities are obstacles that daily I have to get round.
My OCD is by far one of my prominent disabilities and have designed a quarantined cocoon area where only I have access to. This area allows me to be free of any anxieties that I would have in the normal environment. I have adopted this practice to save cleaning my whole home from top to bottom day in and day out. Believe me I used to clean from top to bottom every single day until I realised I was wasting valuable time doing something else.
Keeping myself busy does help to block out intrusive thoughts to a certain degree. I am the worlds worse for critising myself. I try to brain train to reason with myself that what I do is ridiculous and out of character to normal people, but it all is related to stress, anxiety and depression. Depending how stress I am under will depend how well my day will be. If I am super stressed, I find that I cannot concentrate and even do minuscule tasks.
My OCD is germ contamination related and I am even more conscious of my surrounding and the things that I touch. I dislike people visting me and visa versa. I prefer not to go out, hence I am not going out any time soon pandemic regulations or not.
I actually wrote an article on my other blog about germ awareness and cross contamination: https://marketingagency.cymrumarketing.com/2021/02/16/saliva-and-mail-cross-contamination-of-germs/
As for my other disabilities:
Cerebellar Atrophy (I lose my balance or grip and muddle my words up especially when I write, I also have mental blocks).
OCD (I am aware of germ cross contimination and and am careful what I touch).
Social Disconnection (I prefer my own company and not go out and socialise, although we can’t anyway but you get my drift).
PTSD (I have flashbacks of the physical and mental trauma I endured in the past and certain things trigger my depression).
Clinical Depression (This is related to past physical and mental trauma I endured, in which there are days where I go to a dark place).
Rheumatoid Arthritis (I cannot bend my knee, again from past physical trauma/abuse).
Dysphagia (I sometimes choke of food, I get a painful feeling followed by trouble swallowing and breathing and only when the food is dislodged does the feeling subside, gross I know but what can I do? I have been told I could have surgery but there is no gauarantee that it would work. I am not going to go under the knife for anything, I can tell you that for sure).
Epidural Analgesia (Chronic Back Pain, even bending down to feed the cat makes my back spasm, the same goes if I am standing for excessive length of time I have shooting pains from the small of my back to the nape of my neck. Simple taskes like taking out the rubbish or bringing in the grocery shopping has brought tears to my eyes in the past).
So yes I have good days and bad days but I do not dwell on my ailments and try to live the best way I can. I adapt to around my disabilities. Fortuantely for me I offer digital services so I can do 100% of my work online and do not have to venture out.
Stress and worry are contributing factorsto my OCD, PTSD, Depression and Social Disconnection.
Getting headaches (I have regular headaches)
Having stomach cramps (I have a bad stomach most days, but that can be from drinking energy drinks to keep me awake).
Not being able to sleep (I find my medication helps me sleep but it takes a few hours for me to wind down, hence I watch a film or play a game, I also read books from time to time).
Feeling pains in your chest (I do not get them often but when I do it is scary as I have also experienced jaw ache and shooting pain down my left arm in the past). I have had an ecg scan done and the doctor said there was nothing wrong, yet the same doctor also prescribed antacid ‘Gaviscon’ to my daughter even though she was later diagnosed with MS after I admitted her into A&E.
Having constant worring (If I do not keep myself busy I do worry hence I try to keep my mind occupied all the time). Worrying only makes your health deteriorate and although life struggles can get in the way of your happiness, one needs to find a way to tackle the problem we are faced with, rather than sweep them under the carpet. Confronting your inner demons makes you stronger. Sometimes simply writing down your problems is the first step to dealing with whatever is on your mind. Talking to a friend or family member also helps but for me expessing my emotions in the form of a blog is theraputic in itself.
Having panic attacks (I only get these if I have to meet negative people). People that judge or critise, you know the people I am talking about or if I have a deadline in work or something that I have seen or heard that has triggered the onset of sheer panic. However for most part I am organised and know to how to avoid trigger warnings, so panic attacks are subdued.
Feeling shortness of breath, (I only get this if I cannot swallow due to my Dysphagia or at times when I have in the past been in distress, due to the trauma and abuse I endured).
Having mood swings with friends or family (I avoid socialising so no one knows my moods and no one can be on the tail end if I do have a bad day).
Finding it hard to feel happy (Continuously reassuring myself and staying positive that what I am doing will eventually change my life for the better, is enough to motivate me to get up and tackle every day tasks).
Although I was going to do a daily/weekly journal of my health, I am not able to do so at present as I have many projects I am working on and simply do not have the time, but I always try to strive to stay focused and optimistic that tomorrow will be a better day.
Obviously adopting a healthy lifestyle can help with coping with life struggles, such as:
Regular Exercise
Breathing Exercise
Meditation
Eating Healthily
Brain Training
Learning New Things
Staying Focused
Being Organised
Setting Goals
Time Management
Avoiding Negative People
Learning to Trust People
Motivation
Talking to Family and Friends About Your Troubles
Discussing your Problems with Professionals, Health, Finance, Relationships etc
Final Thoughts!
I am a disabled entrepreneur and I have created a business round my disabilities. The way I saw it when I first started out, I would not fit in or be accepted in a normal working enviroment and I am the most happiest I have ever been for a long time doing what I do and it works for me. So the way I see it is my disabilities are a blessing in disguise, as I would not be where I am today without them.
I avoid negative judgemental people especially if they have power trips (Trolls especially that have nothing better to do than try an bring a person down, these get immediately blocked).
As for me I will help anyone that genuinely needs my help. I am very good at analysing people and situations and I am very astute.
Stay safe, stay focused and stay motivated, nothing stays the same forever unless you let it…
Amongst my knowledge of OCD and Cerebellar Atrophy I have been thrown into the deep end with Multiple Sclerosis. The reason for this, my daughter was diagonosed with it at the age of 15. It was a shock to the system for the both of us to learn about the disease, the diagnosis and what treatments there were and what are available.
I had concerns when I read that the treatment was still going ahead even though European Medicine Agency (EMA) had taken it off the market. The hospital and EMA said that no new patients would be having to drug but the patients already on it would have to finish the course.
RED TAPE!
I personally think there was political red tape and that is the reason the drug had to be continued with existing patients as it cost too much and was too complicated to get a refund, I may be wrong but no one has stepped up to correct me. If the drug had been bought upfront you could not exactly get your money back I suppose. I do not know how buying drug work, but I assume pharmaceutical companies get paid upfront as they have to make large batches, with expiry dates hence the NHS cannot return drugs once they have been manufactured in large quantities.
Lemtrada suppresses the immune system for some time after a treatment course so people will be more vulnerable to infections such as colds and viruses.
LEMTRADA can cause serious side effects including:
Serious autoimmune problems:
Some people receiving LEMTRADA develop a condition where the immune cells in your body attack other cells or organs in the body (autoimmunity), which can be serious and may cause death.
Serious autoimmune problems may include:
Immune thrombocytopenic purpura (ITP), a condition of reduced platelet counts in your blood that can cause severe bleeding that may cause life‑threatening problems.
Call your healthcare provider (HCP) right away if you have any of the following symptoms: easy bruising; bleeding from a cut that is hard to stop; coughing up blood; heavier menstrual periods than normal; bleeding from your gums or nose that is new or takes longer than usual to stop; small, scattered spots on your skin that are red, pink, or purple
Kidney problems called anti‑glomerular basement membrane disease, which, if not treated, can lead to severe kidney damage, kidney failure that needs dialysis, a kidney transplant, or death.
Call your HCP right away if you have any of the following symptoms: swelling of your legs or feet; blood in the urine (red or tea‑colored urine); decrease in urine; fatigue; coughing up blood.
So its no suprise thatOn July 3, 2020 Sanofi Genzymewas notified that Lemtrada Home Phlebotomy Partner, Examination Management Services Inc., (EMSI) has gone out of business.
Because of this, unfortunately, all future Lemtrada Home Phlebotomy (lab draw) visits from EMSI have been cancelled.
Patient safety is Sanofi Genzyme’s #1 priority (thats a joke if I ever heard one as my daughter was still administerd the drug after the EMA said it was unsafe) and they continued to say they are working to provide an alternative phlebotomy solution as well as coordinate alternative testing options for your next monthly lab tests.
This tells me that the company had to do refunds and the NHS here in the UK were slow and had already paid the doctors.
I wrote an article on my other blog how Doctors get a commission from pharmaceutical companies for promoting drugs.
I personally think when I first learned about this, that I was angry that the NHS knew the risk, yet used my daughter as a lab rat.
If you have any questions related to this announcement, please contact your healthcare provider or your One to One Nurse at (USA) 1-855-557-2483.
If you are in the UK contact your MS Team, or speak to the Ward Manager or Professor assigned to your case.
Multiple sclerosis (MS)
Multiple Sclerosis is an auto-immune disease that attacks healthy white cells. The lesions that can affect the brain and spinal cord can cause a wide range of potential symptoms, including problems with vision, arm or leg movement, sensation or balance.
It is an incurable disease with lifelong symptoms that can sometimes cause serious disability, although it can occasionally be mild.
The average life expectancy is slightly reduced for people with MS and symptons can be alliviated with different courses of treatments.
In most cases, people get diagnosed in their 20s or 30s but it has been known the patients have shown symptoms as young as 15 years of age. In fact, it can develop at any age. It’s about 2 to 3 times more common in women than men.
MS is one of the most common causes of disability in younger adults.
Cerebellar atrophy is associated with MS and is more extensive in patients with secondary progressive MS and those with longer disease duration when compared with people who have relapsing–remitting (RR) MS and/or shorter disease duration. Cerebellar atrophy has been shown to correlate with clinical measures of disability.
Multiple sclerosis (MS) commonly affects the cerebellum causing acute and chronic symptoms. Cerebellar signs contribute significantly to clinical disability, and symptoms such as tremor, ataxia, and dysarthria are particularly difficult to treat.
Things We Don’t talk About Because Its Too Embarrassing.
Weak Bladder Problems,Things We Don’t talk About Because Its Too Embarrassing.
Control Your Bladder Before It Controls You.
As we get older things happen to our bodies that sometimes are very embarrassing to talk about, especially to our friends and our families. It is not always about ones age that can cause us to have weak bladders it could be a number of things and half the female population will experience urinary incontinence at some point in their lives. Stastistics have shown that women are 5 times more likelier to develop bladder problems than men and 1 if 5 women will seek help and go to their GP’s. The age range is about 6% of women between 15 to 44 experience incontinence issues whilst the statistics show 10% of men over 65 to have urinary incontinence to some degree. Studies have shown that in the UK “major faecal incontinence” affects 1.4% of the general population over 40 years old.
However experiencing public humiliation can be avoided if you train your bladder. Have you been in a situation you have coughed or laughed and trickled (now you know where the term comes from “I nearly peed myself laughing” comes from).
Or have had to make a mad dash to the toilet rugby tackling people along the way. What ever the scenario, there are things that you can do to make your life a little less embarrassing without leaving tell tale wet patches around.
We can mock all we want but it is no laughing matter especially when it happens to the best of us. We are human after all.
The causes of embarrasiing problems include weak bladder which I will focus on today but there are other symptoms to do with mental health that people have a hard time talking about, which I will address in another post.
Weak bladder can be caused by the following:
Drinking too much alcohol or caffeine (tea/coffee) or energy drinks. (I am guilty of this).
Not drinking enough fluids such as water – this can cause strong, concentrated urine to collect in your bladder, which can irritate the bladder and cause symptoms of overactivity and cystisis.
If you are not going regularly for a No2 and you find your are constipated.
Infections and underling conditions affecting the lower urinary tract (urethra and bladder) – such as urinary tract infections (UTIs) or tumours in the bladder.
Neurological conditions such as Multiple Sclerosis or Parkinsons Disease.
Natural Childbith where your pelvic floor may be weak.
Certain medicines such as angiotensin converting enzyme (ACE) inhibitors, diuretic, antidepressants, hormone replacement therapy (HRT), sedatives. (My medications can also be a factor of me having a weak bladder)
Increased pressure on your tummy – for example, being heavily pregnant or over weight. (I am definitely overweight as working from home limits how much excersise I do which at the moment is virtually non existent, plus the fact I am social distancing myself from everyone because of my OCD beliefs and cross contamination).
Damage to the bladder or nearby area during surgery – such as the removal of the womb (hysterectomy), or removal of the prostate gland.
Connective tissue disorders such as Ehlers-Danlos syndrome.
Having a poor diet eating, spicy or acidic foods.
Smoking.
The best way to combat incontinence is to change our lifestyles and take better care of our bodies, starting with perlvic floor exercises and changing our diets. But that means discipline as nothing happens overnight.
We can also do some jogging either out and about or on a tread mill and aerobics, with strengthening exercise, such as pilates. There are plenty YouTube Videos you can find and adapt. Also avoid lifting heavy things as this will effect your pelvic floor and add further uneccessary strain.
There are non surgical aids one can use to counteract a weak bladder from incontinece pads to supplements.
Absorbent products, such as pants, pads or pany liners can save you from some embarrassing moments when you simply cannot control your bladder long enough to get to the bathroom or handheld urinals, which are not ideal especially if you are caught out and about, like where can you discretly have a pee, you can’t?, unless you are maybe in you car or out on some country road where you could always take advantage of the bushes.
My brother said he once was caught short on the motorway in non moving traffic and was forced to pee in a coke bottle. Not so easy for women though. My mother had to make service pit stops at every junction when she used to go on longer journeys. For me my bladder gives me no warning at all and I have to do my wriggle dance long enough to run to the toilet which happens to be like clockwork every two hours hence I never get a full eight hours beauty sleep. Its not as if I can time it one minute im ok and the next minute I am desperate.
I have recommended some incontinence supplements and aids below:
Final Thoughts.
Regardless of your age you should never be too embarrassed to say that you have a bladder problem and if you cannot manage it yourself you may need to get some medical advice and see what options are available for you.
Being a self-employed disabled entrepreneur comes with many challenges. One first needs to walk before you can run so starting up as a sole trader and expanding is the most sensible strategy to take. When expanding a business it can be a huge psychological boost to be able to share some of the pressures and the risks with someone else.
Mastering the art of coping under pressure is very important and is a required attribute for any entrepreneur, but for someone who is disabled and has impairment issues that are continuous, or indeed sporadic and unpredictable can affect their health long term. Not being able to manage those pressures and can affect your business and can cause challenges in relation to workflow, planning, and client relationships.
Being disabled can affect your emotions and psychological feelings of confidence and motivation.
Finding strategies to overcome obstacles specific to each individual disabled entrepreneur is vital to sustaining your business. Some disabilities are invisible to most people but require heavy medication and constant management, this can make a person lethargic and react slowly.
When starting out as a sole trader and finding you have too much work to cope with single handily you have to put your health first and offset the workload either by outsourcing or employing people that can help you. Trying to do everything yourself will eventually affect your health even more. Rather than turn away business, decided to expand instead.
Whilst being in demand is flattering, clients who want you one on one as an individual working on their project can pose problems for a disabled entrepreneur. You have to have a critical time path (CTP) and plan your hours carefully. Be transparent from the start and make your clients aware of your disabilities. CEOs are human after all and they all started out from somewhere once so they should be able to compromise meetings face to face. With working from home being the norm because of ‘Coronvirus Lockdowns’ having virtual meetings via ‘Zoom’ is becoming very popular nowadays.
Depending on your circumstances and what type of job you do will depend if you need a public office/shop or not. Most businesses are now transitioning online saving them money in renting office space and business rates.
Some disabilities are unpredictable, one day you may be feeling fine and the next day you are not. Knowing how to work under pressure and to deadlines can be challenging but if for whatever reason you were not feeling up to it one day you can always re-schedule. CEOs are not Ogre’s, they do understand. Furthermore, if you have someone that can help you out and step in can also be beneficial to running a successful business. There are positives as well as negatives to being a self-employed disabled entrepreneur.
Having a disability is hugely varied, and so are entrepreneurs’ ambitions. Some might simply want to work for themselves as a one-man-band offering a service that makes use of their particular skill and managing their work hours to accommodate their impairment.
Even with modest goals, the challenges facing a person with a learning disability who wants to set up in business can feel insurmountable without support, there are “too many” barriers that are “distressing and challenging to get the right support needed.”
Getting financial help can be difficult especially if you are a startup and want to get a loan to buy equipment. Most loan companies including banks need to see a business plan and will also need you to show your previous earnings. Some disabled people may have very low or no previous earned income and simply want to be off the unemployed scale. In these cases, there are Tax Credits you can claim as well as Housing Benefit and Council Tax Reduction (Visit your Local Council Website For Help). By setting up a budget for your expenditure you can relatively easily get overdrafts and pay for things using credit cards. Do avoid loan sharks. Also, look at grants on the Government website to see if your eligible for a financial scheme.
It is fundamental you have access to a computer and the internet to get the relevant help you need in running a business. In order to succeed, having the right information and support, at the right time, is critical for any disabled entrepreneur.
Transportation – Having transport if you have to deliver goods or meet clients is essential. There are private hire cars and logistic companies available including concierge services. There are plenty of options available that can meet your budget.
By learning how to be confident and brushing up with your communication skills will give your clients and customers a reason to trust you and the product or service you are selling.
If you’re a disabled person running a business, you probably need that extra bit of empowerment and motivation. There is nothing stopping you from following your dreams and your dreams will stay dreams unless you find the strength to make your dreams into reality.
Mr. Tibbles The Health Cat Reporter – Supporting Young Minds
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