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Wearable Pain Detectors

August 29, 2024 / Andrew Jones / 0 Comments
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Disclaimer: This article is for educational purposes only. Neither the author of this article nor the owner of DisabledEntrepreneur.uk take any liability or responsibility for the accuracy, completeness, or usefulness of the information provided. No claims are made regarding the effectiveness, safety, or legal standing of any devices or methods mentioned. Readers should consult with a qualified healthcare professional before making any decisions based on the content of this article.

Understanding Pain: Definition and the Role of Wearable Pain Detectors

What is Pain?

Pain is a complex and subjective experience that serves as a critical warning signal for our bodies. It is the body’s way of alerting us to potential or actual harm. The International Association for the Study of Pain (IASP) defines pain as “an unpleasant sensory and emotional experience associated with, or resembling that associated with, actual or potential tissue damage.” Pain can be acute, which is temporary and often results from injury or surgery, or chronic, lasting for months or even years, sometimes with no clear cause.

Pain is a multifaceted phenomenon that involves sensory, emotional, cognitive, and social components. The perception of pain varies widely among individuals, influenced by factors such as psychological state, cultural background, and previous pain experiences. Understanding and managing pain is vital for improving quality of life, especially for those who suffer from chronic conditions.

Wearable Pain Detection Devices: A Technological Breakthrough

In recent years, advancements in wearable technology have led to the development of devices designed to monitor and detect pain levels in real time. These devices use a combination of sensors, algorithms, and data analytics to assess physiological indicators associated with pain, such as changes in heart rate, skin conductivity, and muscle activity. By continuously monitoring these signals, wearable pain detectors can provide valuable insights into an individual’s pain experience, offering a more objective measure than self-reporting alone.

Who Benefits from Wearable Pain Detection Devices?

  1. Chronic Pain Patients: Individuals suffering from chronic conditions like fibromyalgia, arthritis, or neuropathy often experience fluctuating pain levels. Wearable pain detectors can help them monitor these fluctuations, providing a more accurate picture of their pain over time. This data can be used to adjust treatment plans and improve pain management strategies.
  2. Healthcare Providers: For doctors and therapists, wearable pain detectors offer a new way to track a patient’s pain remotely. This technology can enhance patient care by providing real-time data that can inform clinical decisions, such as adjusting medication dosages or recommending specific therapies.
  3. Pain Researchers: For those involved in pain research, wearable devices provide an unprecedented level of detail and continuous data. This can lead to a better understanding of pain mechanisms and the development of more effective treatments.
  4. Individuals Applying for PIP (Personal Independence Payment): One of the significant challenges faced by individuals applying for PIP, a benefit for people who need help with daily living activities or mobility due to a long-term health condition or disability, is providing evidence of their pain and its impact on daily life. Wearable pain detectors can generate a trackable report of pain levels, offering objective evidence that can be used to support PIP applications. This data can show the consistency, intensity, and frequency of pain, which is crucial for demonstrating the extent of disability.

Where to Buy Wearable Pain Detection Devices

If you’re interested in exploring wearable pain detectors, a few options are available online. Here are some noteworthy devices:

  1. Quell by NeuroMetrix: Quell is a popular wearable device designed to manage chronic pain. It uses neurostimulation to block pain signals and has an accompanying app that tracks your pain levels over time. You can purchase Quell directly from their website at www.quellrelief.com. (USA).
  2. Cove Headband: The Cove Headband is another wearable that aims to reduce stress and manage chronic pain through gentle vibrations on the skin behind the ears. It’s available for purchase on www.feelcove.com. (USA).
  3. TENS Units: While not specifically a pain detector, TENS (Transcutaneous Electrical Nerve Stimulation) units are commonly used for pain relief. Some advanced models include tracking capabilities. These can be found on sites like Amazon (www.amazon.com) or at specialized retailers.

Transcutaneous Electrical Nerve Stimulation (TENS) unit Comprehensive Guide)

A Transcutaneous Electrical Nerve Stimulation (TENS) unit is a device used for pain management by sending mild electrical impulses through the skin to interfere with pain signals sent to the brain. These devices are commonly used for various types of pain, including chronic pain, acute pain, muscle pain, and nerve pain.

Regarding trackable data, some advanced TENS units come with features that allow users to monitor and track their usage and pain levels over time.

These units may include:

  1. Usage Logs: Track the duration and frequency of each session.
  2. Pain Level Tracking: Record pain levels before and after each session to monitor effectiveness.
  3. Customizable Settings: Adjust settings like pulse rate, pulse width, and intensity to find the most effective combination for pain relief.

These features can help users and healthcare providers better understand the effectiveness of the treatment and make necessary adjustments.

Advanced Features of TENS Units

  1. Usage Logs:
    • Session Duration: Records how long each session lasts.
    • Frequency: Tracks how often you use the device.
    • Intensity Levels: Logs the intensity settings used during each session.
  2. Pain Level Tracking:
    • Pre- and Post-Session Pain Levels: Allows you to input your pain levels before and after each session to monitor changes.
    • Pain Diary: Some units come with an app or software where you can keep a detailed pain diary, noting down specific pain areas and any changes over time.
  3. Customizable Settings:
    • Pulse Rate: Adjust the number of electrical pulses per second.
    • Pulse Width: Modify the duration of each pulse.
    • Intensity: Control the strength of the electrical impulses.
  4. Connectivity and Apps:
    • Bluetooth Connectivity: Some TENS units can connect to your smartphone via Bluetooth.
    • Mobile Apps: These apps can provide detailed analytics, reminders for sessions, and even allow you to share data with your healthcare provider.
  5. User Profiles:
    • Multiple Profiles: If more than one person is using the device, you can create separate profiles to track individual usage and pain levels.

TENS Units Available To Buy:

1. iReliev TENS + EMS Combination Unit

  • Features:
    • Combines TENS and EMS (Electrical Muscle Stimulation) for pain relief and muscle conditioning.
    • Bluetooth Connectivity: Syncs with a mobile app to track usage and pain levels.
    • Customizable Settings: Offers multiple intensity levels, pulse rates, and widths.
    • Usage Logs: Keeps detailed records of session duration and frequency.

2. Omron Pocket Pain Pro TENS Unit

  • Features:
    • Portable Design: Compact and easy to carry.
    • Pain Diary: You can log pain levels before and after sessions.
    • Customizable Programs: Includes various pre-set programs for different types of pain.
    • Usage Tracking: Monitors how often and how long you use the device.

3. HealthmateForever YK15AB TENS Unit

  • Features:
    • Large LCD Display: Easy to read and navigate.
    • Multiple Modes: Offers 15 modes for different pain relief needs.
    • User Profiles: Can store data for multiple users.
    • Pain Level Tracking: Logs pain levels and session details.

4. Compex Wireless USA 2.0 Muscle Stimulator

  • Features:
    • Wireless Design: Provides freedom of movement during sessions.
    • Mobile App: Connects to an app for detailed tracking and analytics.
    • Customizable Settings: Allows for personalized intensity and pulse adjustments.
    • Progress Monitoring: Tracks your progress over time and provides insights.

These models offer a range of features that can help you manage your pain more effectively and keep track of your treatment progress.

**PLEASE NOTE** Before purchasing YOU MUST do your due diligence and ask the seller/manufacturer if the model has a pain detector and can output trackable data. Unfortunately, we were unable to confirm if the above models do or don’t.

Using Wearable Pain Detectors for PIP Documentation

For those applying for PIP, having a detailed, trackable report of your pain can be a game-changer. Many wearable devices come with companion apps that allow users to download or print reports summarizing pain data over days, weeks, or months. These reports can be included in your PIP application as objective evidence of how pain impacts your daily life and your need for assistance.

To use this data effectively:

  • Consistently Wear the Device: Ensure that the device is worn consistently according to the manufacturer’s instructions. Continuous data over a long period provides the most compelling evidence.
  • Regularly Download Reports: Make it a habit to download reports at regular intervals. Some devices allow you to annotate pain episodes, which can provide additional context for your PIP application.
  • Consult with Your Healthcare Provider: Share your pain reports with your healthcare provider. They can help interpret the data and provide additional documentation to support your PIP claim.

Conclusion

Wearable pain detection devices represent a significant advancement in pain management and assessment. By providing objective, trackable data, these devices offer valuable support for chronic pain sufferers, healthcare providers, and individuals seeking benefits like PIP. As technology continues to evolve, the ability to monitor and manage pain in real time will likely become an integral part of healthcare, improving outcomes and quality of life for millions. There are devices and systems designed to detect and measure pain. One notable example is a system developed by researchers at MIT, which measures a patient’s pain level by analyzing brain activity using a portable neuroimaging device. 

These technologies aim to provide more objective measures of pain, which can be particularly useful in clinical settings. Instead of asking patients to balance on one leg while touching their nose (because that’s so reliable – sarcasm), doctors could rent out wearable pain detection devices for a month. If the device isn’t returned for any reason, the patient could be charged for a replacement. However, if the device is affordable, it makes more sense to buy one outright, allowing you to overwhelm PIP assessments with a continuous stream of data. Integrating these devices into mainstream healthcare could significantly reduce the chances of people scamming the system by providing objective, trackable evidence of their pain.

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Event Model Agencies Should Hire Disabled Models

August 11, 2024 / Editor / 0 Comments
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This article uses trigger wording of a sensitive nature, readers discretion is advised.

The Power of Inclusivity: Why Event Model Agencies Should Champion Disabled Models

In a world where diversity and inclusivity are more than just buzzwords, the modeling industry has a crucial role to play in shaping perceptions and promoting acceptance. While progress has been made in recent years, there remains a significant gap in the representation of disabled individuals in fashion, advertising, and promotional campaigns. Event model agencies and businesses must actively seek out disabled models, actors, and promotional staff, ensuring that they are not only included but celebrated in their campaigns. Failing to do so is not just a missed opportunity for inclusion—it’s a form of discrimination.

Embracing Disability Inclusion

Research shows that a significant portion of the population is directly connected to disability, with around 61 million adults in the U.S. alone living with some form of disability. In the UK, approximately 14.6 million people are living with a disability. This figure includes a wide range of conditions, from physical disabilities to mental health issues, and represents around 22% of the overall population. These statistics highlight the significant presence of disabled individuals in the UK, underscoring the importance of inclusivity and accessibility in all aspects of society, including business, media, and public services. Furthermore, nearly 70% of consumers report personally knowing someone with a disability, whether a family member, friend, or colleague. This personal connection has a strong influence on purchasing decisions, as studies indicate that 86% of consumers are more likely to buy from a company that actively supports disabled people and promotes inclusivity. This demonstrates that consumers not only value inclusivity but are also willing to support brands that align with their values, making it a strategic imperative for companies to embrace and champion disability inclusion.

Citations:

Why Inclusivity Matters

Inclusion is about more than just ticking a box; it’s about creating a society where everyone feels seen, valued, and accepted. When businesses and agencies include disabled models in their campaigns, they send a powerful message that beauty and talent are not confined to a narrow standard. This approach challenges outdated stereotypes and demonstrates that disability is just one aspect of a person’s identity, not a defining limitation.

The impact of this inclusivity is profound. For people with disabilities, seeing someone like themselves represented in mainstream media can be empowering. It fosters a sense of belonging and reinforces the idea that they are not invisible or irrelevant. For the wider public, it normalizes disability and promotes a broader understanding of what it means to be human.

The Business Case for Disabled Models

Beyond the ethical imperative, there is a strong business case for including disabled models in advertising and promotional campaigns. Consumers today are increasingly demanding that brands reflect the diversity of the world they live in. According to a study by Accenture, brands that champion inclusivity have seen a 5% increase in their market share over the past few years. This is not surprising—when consumers see themselves represented, they are more likely to feel a connection to the brand and remain loyal customers.

Moreover, the spending power of people with disabilities and their families is significant. In the UK alone, the “purple pound,” or the spending power of disabled households, is estimated to be worth over £274 billion per year. By neglecting this demographic, businesses are missing out on a substantial market.

The Role of Modeling Agencies

Modeling agencies are gatekeepers in the fashion and advertising industries. They have the power to shape the careers of models and the direction of campaigns. Therefore, they have a responsibility to ensure that their rosters reflect the full spectrum of society. This means actively recruiting disabled models, actors, and promotional staff and advocating for their inclusion in campaigns.

Agencies that do not have disabled talent on their books are not only limiting their clients’ options but also perpetuating discrimination. By excluding disabled individuals, they are sending a message that these individuals are not worthy of representation or are not capable of fulfilling the demands of the industry. This is a harmful and outdated notion that must be challenged.

Overcoming Barriers

There are, of course, challenges to achieving full inclusivity in the modeling industry. Some agencies may worry about the logistics of working with disabled models, such as accessibility concerns or the need for additional accommodations. However, these challenges are not insurmountable. By working collaboratively with disabled individuals and advocacy groups, agencies can create environments that are inclusive and accommodating.

Education and awareness are also key. Many people, including those within the fashion industry, may not fully understand the experiences of disabled individuals or the barriers they face. Modeling agencies can play a crucial role in educating their clients and the public about the importance of inclusivity and the value of diverse representation.

Moving Forward

The inclusion of disabled models in advertising and promotional campaigns is not just a trend—it’s a necessary evolution in the modeling industry. Event model agencies and businesses must recognize the importance of representing all members of society and take active steps to include disabled individuals in their work. This is not only the right thing to do but also makes good business sense.

As consumers, we have the power to demand more from the brands we support. By advocating for inclusivity and supporting campaigns that feature diverse talent, we can help to create a world where everyone feels accepted and included. Modeling agencies, too, must rise to the challenge, ensuring that their books are filled with talent from all walks of life. Only then can we truly say that the fashion and advertising industries are reflective of the world we live in.

Conclusion

The inclusion of disabled models in the modeling industry is not just about representation—it’s about respect, equality, and the recognition of the inherent worth of every individual. By championing disabled models, agencies and businesses can make a powerful statement about the kind of world we want to live in—one where everyone has a place and everyone is seen.

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Renata, the editor of DisabledEntrepreneur.uk, is a retired model and photographer, with extensive experience in the modeling industry and running her photographic studio. She is aware of the obstacles and barriers disabled people face in this field. Renata vividly recalls one model who refused to wear short-sleeved outfits due to visible scars from self-harming. This experience underscored the importance of understanding and addressing individual needs. Renata believes that by knowing such challenges in advance, clients can find solutions that not only accommodate but also celebrate disabilities, turning them into powerful messages of inclusivity and strength.

Here is a perfect opportunity to start your modeling agency specializing in disabled models, actors, and promotional staff. We have on our books the perfect domain name www.disabilitymodels.co.uk If any aspiring disabled models would like us to promote them free of charge, just drop us a message using the form below and we will create a landing page and promote you across our network of connections. Moreover, any modeling agencies wanting a helping hand to be found on the first page of search engines should enquire about our digital marketing and SEO services.

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The Link Between Epstein-Barr virus, Location & MS

August 2, 2024 / Zena M / 0 Comments
Brown and Cream Landscape Image Of A Vintage Typewriter With The Wording 'Multiple Sclerosis (MS) typed On Paper. Image Credit: PhotoFunia.com Category: Vintage- Typewriter.
Brown and Cream Landscape Image Of A Vintage Typewriter With The Wording ‘Multiple Sclerosis (MS) typed On Paper. Image Credit: PhotoFunia.com Category: Vintage- Typewriter.

The Link Between Epstein-Barr virus, & MS

Multiple sclerosis (MS) is a chronic autoimmune disease that affects the central nervous system, leading to symptoms such as muscle weakness, coordination problems, and cognitive impairments. While the exact cause of MS remains unknown, research has increasingly pointed to the Epstein-Barr virus (EBV) as a significant environmental factor in its development. Understanding the connection between EBV and MS can shed light on potential pathways for prevention and treatment.

Epstein-Barr Virus: An Overview

EBV, a member of the herpesvirus family, is one of the most common viruses in humans. It is the primary cause of infectious mononucleosis, also known as glandular fever or “mono.” EBV is highly prevalent, with approximately 95% of adults worldwide having been infected by the time they reach adulthood. Once infected, individuals carry the virus for life, as it remains dormant in the body’s B cells.

Evidence Linking EBV to MS

Numerous epidemiological studies have identified a strong association between EBV infection and MS.

Key findings include:

  1. Increased Risk Following EBV Infection: People who have had infectious mononucleosis are at a significantly higher risk of developing MS. Studies have shown that the risk can be up to 2-3 times greater compared to those who have not had mono.
  2. High Seroprevalence in MS Patients: Almost all MS patients show serological evidence of past EBV infection, indicating that they have been exposed to the virus. This prevalence is higher than in the general population.
  3. Temporal Relationship: Longitudinal studies have demonstrated that EBV infection precedes the onset of MS. For instance, a study of U.S. military personnel found that those who seroconverted to EBV positivity had a substantially higher risk of developing MS compared to those who remained EBV-negative.
  4. Immune Response Specificity: MS patients often exhibit an abnormal immune response to EBV, characterized by elevated levels of antibodies against the virus and increased activity of EBV-specific T cells. This suggests that the immune system’s response to EBV may play a role in triggering MS.

Mechanisms of Association

The exact mechanisms by which EBV contributes to MS development are not fully understood, but several hypotheses have been proposed:

  1. Molecular Mimicry: One theory suggests that EBV proteins may resemble components of the myelin sheath, the protective covering of nerve fibers in the central nervous system. The immune system, in attacking EBV, might inadvertently target myelin, leading to the demyelination characteristic of MS.
  2. B Cell Dysregulation: EBV persists in B cells, and chronic infection may lead to B cell dysregulation. This could promote an autoimmune response, as B cells play a crucial role in antigen presentation and antibody production.
  3. Latent Infection Reactivation: Periodic reactivation of latent EBV in the central nervous system might stimulate ongoing inflammation and autoimmune responses, contributing to MS pathogenesis.

Implications for Prevention and Treatment

Understanding the link between EBV and MS opens new avenues for potential interventions:

  1. Vaccination: Developing an effective vaccine against EBV could reduce the incidence of infectious mononucleosis and potentially lower the risk of MS. Vaccination efforts are currently in progress, with several candidates undergoing clinical trials.
  2. Antiviral Therapies: Targeting EBV with antiviral medications could help manage or reduce the reactivation of the virus, thereby mitigating its potential role in MS progression.
  3. Immune Modulation: Therapies aimed at modulating the immune response to EBV could prevent the autoimmune attack on the central nervous system. This approach may involve the use of monoclonal antibodies or other immunotherapies.

The association between Epstein-Barr virus and multiple sclerosis is a compelling area of research that highlights the intricate interplay between viral infections and autoimmune diseases. While EBV is not the sole cause of MS, its significant role in the disease’s development underscores the importance of further studies to unravel the underlying mechanisms. Advances in understanding this link could pave the way for innovative strategies to prevent and treat MS, ultimately improving the lives of those affected by this debilitating condition.

The Link of Birth Location on Multiple Sclerosis Risk

Multiple sclerosis (MS) has been observed to have a geographical pattern, suggesting that the country or location where a person is born may influence their risk of developing the disease. The prevalence of MS tends to be higher in regions farther from the equator.

Here are some key points:

  1. Latitude Effect: There is a higher prevalence of MS in countries located at higher latitudes, both in the northern and southern hemispheres. This means that countries farther from the equator, such as those in Northern Europe, Canada, the northern United States, New Zealand, and southern Australia, have higher rates of MS compared to those closer to the equator.
  2. Environmental Factors: The difference in MS prevalence by location suggests that environmental factors play a significant role. One such factor could be sunlight exposure and vitamin D levels. Reduced sunlight exposure in higher latitude regions may lead to lower vitamin D levels, which is thought to be associated with an increased risk of developing MS.
  3. Migration Studies: Research has shown that people who migrate from high-risk regions to low-risk regions (and vice versa) before adolescence tend to acquire the MS risk of their new location. This further supports the idea that environmental factors, particularly those affecting individuals during childhood, contribute significantly to MS risk.
  4. Genetic Factors: While geography and environment play a role, genetics also influence MS risk. Certain populations have a higher genetic susceptibility to MS, which can contribute to the geographical patterns observed.
  5. Hygiene Hypothesis: Another theory is the “hygiene hypothesis,” which suggests that people in more developed, higher-latitude countries are exposed to fewer infections during early childhood due to better sanitation and healthcare, which might affect the immune system in a way that increases MS risk.

Overall, while MS is influenced by a complex interplay of genetic and environmental factors, the country or location where a person is born and raised does appear to have a significant impact on their risk of developing the disease.

Conclusion

The connection between geographical location, Epstein-Barr virus (EBV), and multiple sclerosis (MS) underscores the complexity of factors contributing to the disease. The higher prevalence of MS in regions farther from the equator suggests that environmental influences, such as sunlight exposure and vitamin D levels, play a critical role in disease risk. Simultaneously, the strong association between EBV infection and MS highlights the significance of viral triggers in the autoimmune response that characterizes MS. Together, these insights point to a multifaceted etiology involving both environmental and infectious components, which may inform more effective prevention and treatment strategies. By integrating geographical and viral perspectives, future research can better address the intricate pathways leading to MS, ultimately enhancing outcomes for individuals at risk.

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Navigating Property Renovations with Disabled Tenants: A Guide for UK Landlords

July 23, 2024 / Andrew Jones / 1 Comment
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Brown & Cream Image Depicting Typed Wording On Typewriter Paper, Mentioning ‘Fear & OCD’. Image Credit: PhotoFunia.com Category Vintage Typewriter

Fear Of Contamination & Invasion Of Personal Space

Renovating a rental property in the UK can be a challenging process, particularly when the tenant is disabled and has specific needs, such as those related to mental health and obsessive-compulsive disorder (OCD) with a focus on germ contamination. Landlords have a duty to handle such situations with care, balancing renovation goals with the tenant’s well-being.

Here’s a detailed guide for UK landlords on how to manage renovations respectfully and lawfully.

1. Understand Legal Obligations

a. Equality Act 2010 Compliance: Under the Equality Act 2010, landlords must ensure they do not discriminate against tenants with disabilities. This includes making reasonable adjustments to accommodate tenants’ needs during renovations.

b. Housing Act 1988: While primarily concerning tenant rights and eviction, this act also necessitates that any work done does not render the property uninhabitable or significantly affect the tenant’s ability to live comfortably.

2. Communicate Openly and Respectfully

a. Arrange a Discussion: Schedule a meeting with your tenant to go over your renovation plans. Be transparent about the scope of work, expected duration, and potential impacts on their living conditions.

b. Listen to Concerns: Be attentive to any concerns your tenant may have, particularly regarding OCD and germ contamination. These issues can make the renovation process more stressful for them.

c. Provide Written Information: Offer a written notice detailing the renovation schedule, expected disruptions, and any measures you plan to implement to minimize the impact. This helps clarify the process and reassures the tenant.

3. Plan for Accommodations

a. Adjust Timing: Try to schedule renovations during times that will cause the least disruption to the tenant, such as when they are away from home or during quieter hours.

b. Minimise Disruptions: Implement strategies to control noise, dust, and other disturbances. This might include using air purifiers, sealing off work areas, and cleaning regularly to maintain a clean environment.

c. Consider Temporary Relocation: If the renovations are extensive, you might offer temporary accommodation or a reduction in rent to compensate for the inconvenience and impact on their living conditions.

4. Implement Health and Safety Measures

a. Dust and Contamination Control: Use containment methods like plastic sheeting and HEPA filters to manage dust. Ensure that any areas under renovation are thoroughly cleaned before the tenant resumes normal use.

b. Safe Work Practices: Ensure that all contractors adhere to strict hygiene and safety standards to prevent contamination. This includes regular hand washing and using clean tools and materials.

c. Keep Tenants Informed: Regularly update the tenant on the progress of the renovation and any changes to the plan. Keeping them in the loop can help reduce anxiety and make the process more manageable for them.

5. Offer Support and Flexibility

a. Provide Emotional Support: Recognise that renovations can be particularly stressful for tenants with mental health conditions. Offer support and be willing to make additional adjustments to accommodate their needs.

b. Seek Feedback: Regularly check in with the tenant to gather feedback on how they are coping with the renovations and make any necessary adjustments to address their concerns.

c. Document Everything: Keep detailed records of all communications, accommodations, and adjustments made. This documentation is crucial for addressing any potential disputes or complaints.

6. Review and Reflect

a. Post-Renovation Review: Once the renovations are completed, review the process to ensure all issues have been resolved and the tenant is satisfied with the outcome.

b. Learn and Improve: Use the experience as a learning opportunity to enhance how you manage similar situations in the future, aiming for a smoother process and better tenant relations.

The Challenge of Renovations for Tenants with OCD and Germ Contamination Concerns

When undertaking property renovations involving tenants who are particularly sensitive to issues of cleanliness and contamination—such as those with obsessive-compulsive disorder (OCD) focused on germ contamination—there are unique challenges to address. Despite the best efforts to prepare and contain work areas, it is often inevitable that the quarantined space will be exposed to some degree of contamination, causing significant distress to the tenant.

The Problem

Inherent Exposure Risks: Even with meticulous preparation, such as using dust sheets and creating physical barriers to separate renovation areas, contamination can still occur. Dust, debris, and even airborne particles can inadvertently migrate into the quarantined area, compromising the tenant’s sense of safety and exacerbating their stress.

Quarantine Space Challenges: For tenants who rely on a meticulously controlled environment due to their condition, moving into another room or temporary accommodation may not be a viable solution. The very nature of their condition makes it challenging to adapt to new environments, which can lead to heightened anxiety and distress if they are forced to leave their familiar, controlled space.

Solutions to Mitigate Contamination and Manage Tenant Stress

1. Enhanced Containment Measures

a. Advanced Containment Systems: Instead of relying solely on dust sheets, invest in more advanced containment systems such as negative pressure enclosures. These systems use air pressure to prevent dust and contaminants from escaping the work area. The air in the containment area is filtered through high-efficiency particulate air (HEPA) filters before being released, significantly reducing the risk of contamination.

b. Specialized Cleaning Protocols: Before commencing renovations, conduct a thorough cleaning of the area to be renovated, and ensure that any dust sheets or barriers used are clean and free of contaminants. Consider employing professional cleaning services that specialize in contamination control to prepare both the work area and the quarantined space.

2. Personalized Solutions for Tenant Well-being

a. Temporary High-Cleanliness Solutions: Instead of relocating the tenant, provide high-cleanliness solutions within their existing space. This can include portable air purifiers with HEPA filters, which can help reduce airborne contaminants and improve air quality.

b. Increased Frequency of Cleaning: Arrange for frequent, targeted cleaning of the quarantined area, using non-toxic, high-efficiency cleaning products. Ensure that cleaning staff are trained in techniques that prevent cross-contamination.

c. Real-time Monitoring: Implement real-time monitoring of air quality and contamination levels in both the renovation and quarantined areas. This data can help you address issues as they arise and reassure the tenant that their environment is being actively managed.

3. Psychological and Practical Support

a. Emotional Support and Reassurance: Provide consistent emotional support to the tenant, acknowledging their distress and offering reassurance. Regular check-ins can help alleviate anxiety and allow the tenant to voice any concerns promptly.

b. Clear Communication: Maintain transparent communication with the tenant throughout the renovation process. Update them regularly on the steps being taken to mitigate contamination and the progress of the work.

c. Create a Contingency Plan: Develop a contingency plan that includes immediate steps to address any contamination issues that arise. This plan should include protocols for rapid response and cleanup to minimize any potential impact on the tenant.

4. Post-Renovation Evaluation

a. Comprehensive Post-Renovation Cleaning: Once renovations are complete, conduct a thorough cleaning of the entire property to ensure that no residual dust or contaminants remain. This should include professional cleaning services to ensure the highest standards of cleanliness.

b. Final Assessment and Feedback: After completing the renovations, carry out a final assessment with the tenant to ensure their concerns have been addressed and their living environment meets their standards.

c. Learn and Adapt: Use feedback from this process to refine your approach to future renovations, incorporating lessons learned to better manage similar situations.

Impact Of Dust On People Suffering With MS

Dust can potentially affect people with multiple sclerosis (MS), although the impact may vary from person to person. Multiple sclerosis is a chronic illness of the central nervous system that can cause a range of symptoms, including fatigue, difficulty with mobility, and cognitive issues.

Here’s how dust might influence individuals with MS:

1. Respiratory Irritation

a. Airway Sensitivity: People with MS can have compromised immune systems or respiratory issues, which makes them more sensitive to environmental irritants. Dust can irritate the respiratory system, leading to coughing, sneezing, and exacerbation of existing respiratory conditions.

b. Allergic Reactions: Dust often contains allergens like pollen, mold spores, and dust mites, which can trigger allergic reactions. For individuals with MS, this could result in additional health issues that exacerbate their overall symptoms.

2. Impact on MS Symptoms

a. Fatigue: Exposure to dust and allergens can increase fatigue, a common symptom of MS. Dust-related respiratory issues can further contribute to feelings of tiredness and reduced energy.

b. Cognitive Function: Poor air quality and exposure to dust might also affect cognitive function. MS can already impact cognitive abilities, and added respiratory stress might worsen cognitive difficulties or contribute to brain fog.

c. Overall Discomfort: Dust can exacerbate general discomfort and inflammation, which may contribute to increased symptoms or make existing symptoms feel worse.

3. Infection Risks

a. Respiratory Infections: Dust can carry bacteria and viruses that might increase the risk of respiratory infections. For people with MS, infections can potentially trigger relapses or worsen existing symptoms.

b. Immunocompromised State: While MS itself doesn’t necessarily make a person immunocompromised, some MS treatments might. This increased vulnerability means that respiratory infections and allergic reactions to dust can be more problematic.

Solutions for Minimizing Dust Impact

**1. Regular Cleaning and Air Quality Control

a. Use HEPA Filters: Install high-efficiency particulate air (HEPA) filters in air purifiers and vacuum cleaners to capture dust and allergens. Regularly replace filters to maintain their effectiveness.

b. Frequent Cleaning: Maintain a regular cleaning schedule that includes dusting surfaces with damp cloths to avoid stirring up dust. Avoid using dry dusters, which can disperse dust into the air.

c. Minimize Carpets and Upholstery: Opt for hard flooring and washable surfaces where possible, as carpets and upholstered furniture can trap dust.

**2. Create a Low-Dust Environment

a. Keep Windows Closed: During high pollen seasons or when dust is a concern, keep windows closed to reduce the amount of dust entering the home.

b. Manage Humidity: Use dehumidifiers to keep indoor humidity levels low, as high humidity can contribute to mold growth and dust mites.

**3. Health Monitoring and Support

a. Regular Health Check-Ups: Ensure that individuals with MS have regular check-ups with their healthcare provider to monitor any respiratory or allergy-related issues.

b. Consult Professionals: For personalized advice on managing dust and maintaining a healthy environment, consult with healthcare professionals who understand the specific needs of those with MS.

Dust can affect individuals with multiple sclerosis, primarily through respiratory irritation, exacerbation of fatigue, and potential cognitive impacts. By implementing effective dust control measures and maintaining a clean, low-dust environment, it’s possible to mitigate these effects and help manage the overall well-being of individuals with MS. Regular communication with healthcare providers and adherence to best practices for maintaining indoor air quality can further support their health and comfort.

Conclusion

While it is challenging to entirely eliminate the risk of contamination during renovations for tenants with severe OCD and germ contamination concerns, implementing advanced containment measures, offering personalized support, and maintaining open communication can significantly mitigate distress. By taking these steps, landlords can better manage the renovation process and support their tenants’ well-being, ensuring a smoother and more considerate transition through necessary property improvements.

Handling property renovations when a tenant with disabilities is in situ requires careful planning, empathy, and adherence to legal obligations in the UK. By prioritising open communication, implementing effective accommodations, and maintaining high standards of health and safety, landlords can navigate the renovation process while supporting their tenants’ well-being. A thoughtful and well-managed approach not only ensures compliance with legal requirements but also fosters a positive and respectful landlord-tenant relationship.

For tenants with mental health issues, particularly those with obsessive-compulsive disorder (OCD) focused on germ contamination, the thought of raising concerns about renovations with a landlord can be daunting. They may fear negative repercussions or believe that their complaints could lead to conflicts or even retaliation. This apprehension can be compounded by the potential for renovations to exacerbate their symptoms, as exposure to dust, noise, and disruption can significantly impact their mental well-being. If a tenant finds that their symptoms worsen directly as a result of the renovations, they have a few options. They should first document their condition and the ways in which the renovation has impacted their mental health, including any professional advice or medical documentation. They can then seek to address their concerns with the landlord, ideally in writing, to request additional accommodations or adjustments. If these steps do not resolve the issue, tenants may have grounds to seek damages for any distress or deterioration in their condition caused by the renovations. Consulting with a legal professional specializing in housing law can provide guidance on the potential for seeking compensation and navigating the appropriate channels for filing a claim.

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Legal Implications of Placing an Elderly Parent in a Care Home

June 19, 2024 / Editor
Brown and Cream Image, Depicting a Typewriter With The Wording 'Elderly Support' Typed On Paper. Image Credit: PhotoFunia.com Category Vintage Typewriter.
Brown and Cream Image, Depicting a Typewriter With The Wording ‘Elderly Support’ Typed On Paper. Image Credit: PhotoFunia.com Category Vintage Typewriter.

Disclaimer

DisabledEntrepreneur.uk and DisabilityUK.co.uk are not legal professionals and do not have the authority to provide legal advice. The information provided on these websites is for general informational purposes only and should not be construed as legal advice.

For specific legal guidance and to address any individual circumstances, readers are strongly encouraged to consult with a qualified law firm or legal professional.

Importance of Consulting Next of Kin When an Elderly Person is Unwell

When an elderly person is unwell, they may not be in a position to make informed decisions about their care due to diminished responsibility. This condition can significantly impair their judgment, leading to concerns that they are not of sound mind. In such situations, it is crucial to consult the next of kin to ensure that any decisions made reflect the best interests of the elderly individual. The involvement of family members not only provides emotional support but also ensures that the decisions are made with a comprehensive understanding of the person’s preferences and needs. Failure to consult the next of kin in these circumstances can lead to legal challenges, as it can be argued that the unwell person was not capable of making sound decisions independently.

Who Decides That an Elderly Person Should Go into a Care Home?

Deciding to place an elderly parent in a care home is a significant and often emotional decision. It involves not only the health and well-being of the elderly person but also legal and ethical considerations. When family members live far away, ensuring that the right steps are taken becomes even more critical.

The decision to place an elderly person in a care home generally involves several stakeholders, including the elderly person, their family, healthcare professionals, and sometimes legal authorities. The specific process can vary depending on the country and local regulations, but here are the common steps:

  1. Assessment by Healthcare Professionals:
    • The elderly person’s doctor or a social worker usually conducts a thorough assessment to determine their medical needs, cognitive function, and ability to live independently. This assessment helps decide whether a care home is the best option.
  2. Capacity to Decide:
    • If the elderly person has the mental capacity to make their own decisions, they have the right to choose whether to move into a care home. Mental capacity means they can understand, retain, and weigh the necessary information to make a decision and communicate their choice.
  3. Power of Attorney:
    • If the elderly person lacks mental capacity, someone with a legal power of attorney (POA) for health and welfare can make the decision on their behalf. A POA is a legal document that grants someone the authority to make decisions about another person’s health and personal welfare.
  4. Court Involvement:
    • In cases where there is no POA and there is disagreement or uncertainty about what is in the best interest of the elderly person, the matter might be taken to court. A court-appointed guardian or conservator may then make the decision.

The Role of Next of Kin

Next of kin typically refers to the closest living blood relatives, such as children, siblings, or spouses. Involving the next of kin in the decision-making process is crucial for several reasons:

  1. Informed Decisions:
    • Family members often have valuable insights into the elderly person’s preferences, history, and needs, contributing to a more informed decision.
  2. Legal Requirements:
    • In many jurisdictions, there are legal requirements to inform or consult with the next of kin before making significant decisions about an elderly person’s care. This ensures transparency and respect for family dynamics.
  3. Emotional Support:
    • The transition to a care home can be challenging for the elderly person. Support from family members can ease this transition and provide emotional comfort.

Legal Consequences of Failing to Inform Next of Kin

Failing to inform or consult the next of kin can have several legal implications, depending on the jurisdiction:

  1. Breach of Duty:
    • If the person making the decision (e.g., someone with POA) fails to consult the next of kin, they might be seen as breaching their duty of care or fiduciary duty. This could result in legal action against them.
  2. Violation of Consent Laws:
    • Laws vary by jurisdiction, but generally, any significant decision about an individual’s health and welfare requires informed consent. If the elderly person cannot consent and the next of kin are not informed, this could be a violation of consent laws.
  3. Family Disputes and Legal Challenges:
    • Failure to inform or involve the next of kin can lead to family disputes, which might escalate to legal challenges. Courts may be asked to intervene, potentially leading to reversals of decisions or the appointment of a new guardian.

Best Practices

To avoid legal issues and ensure the best outcome for the elderly person, consider the following best practices:

  1. Open Communication:
    • Maintain open lines of communication with all family members. Keep them informed about the elderly person’s condition and the proposed plans.
  2. Document Everything:
    • Document all decisions, discussions, and assessments related to the elderly person’s care. This documentation can be crucial if legal issues arise.
  3. Seek Legal Advice:
    • Consult with an elder law attorney to ensure that all legal requirements are met and to navigate any complex situations.
  4. Advance Directives:
    • Encourage the elderly person to have advance directives in place, such as a living will and a durable power of attorney. These documents can clarify their wishes and designate a trusted decision-maker.

Conclusion

Placing an elderly parent in a care home is a decision that carries significant legal and ethical responsibilities. It is crucial to ensure that all relevant parties, especially the next of kin, are involved and informed throughout the process. By adhering to legal requirements and fostering transparent communication, families can make the best decisions for their loved ones, ensuring their safety and well-being while avoiding potential legal pitfalls.

Next of Kin Obtaining Power of Attorney After Placement in a Care Home

A next of kin can still become a power of attorney (POA) for their elderly relative even after the relative has been placed in a care home, provided the elderly person has the mental capacity to grant this authority. If the elderly person is deemed competent, they can legally designate their next of kin as their POA, allowing them to make health, financial, and personal care decisions on their behalf. If the elderly person lacks mental capacity, the next of kin may need to apply to a court to be appointed as a guardian or conservator. This legal process ensures that the elderly person’s interests are protected and that their care is managed by a trusted family member.

Further Reading:

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Why Do People Assume or Presume?

July 1, 2021 / Editor / 2 Comments

Why Do People Assume or Presume?

Taking People For Granted, Assuming, Presuming and Mental Health.

People make assumptions as an efficient way to process the world. It is a shortcut to knowing the facts. As one Yale neurobiology professor explained, the brain’s vast neural network requires huge amounts of energy to keep it running: … One way our brain saves energy is by making assumptions. Making assumptions can ruin people’s lives.

Assume vs Presume

Presume is a verb that means to suppose, to take for granted, or to dare. Assume is a verb that means to suppose, to take for granted, to take upon, to do, or to undertake.

Assume and presume both mean “to take something for granted” or “to take something as true.” The difference between the words lies in the degree of confidence held by the speaker or writer. … ‘Presume‘ is the word to use if you’re making an informed guess based on reasonable evidence.

Therefore as an example I ask you some questions.

These are all hypothetical questions.

  1. Would you assume for example someone could find nearly $100 per month only by giving them one month’s notice for an increase in rent? Would you presume they could afford to find the $100?
  2. The second question would you assume someone who is self-employed to drop everything because you were arriving without even asking them if the date of your arrival was suitable for them? or would you presume they would just find the time because you snapped your fingers?
  3. The third question would you message a VIP and assume they have time to chat with you or that they will phone you when what you could say could have been written in an email that would take a minute or two to read, or would you expect that person to take time out of their busy schedule to hear you waffle on about something that could have been put in writing? or would you presume they would drop what they are doing to casually chat with you?
  4. Would you assume or presume that whoever you asked to call you or meet you could afford to do so? Would you assume or presume that their finances can meet the budget of an excursion for example or meeting up to go to a fancy restaurant? A self-employed person has more commitments than the average person, they have to pay the overheads of their business not just their own personal expenses.

These are all hypothetical questions that a disabled entrepreneur is faced with and I want to teach people to consider others before making rash decisions. It is unfair to put anyone on the spot regardless of their status, disability or situation.

Always discuss things and be very understanding and be respectful of someone’s wishes. Never judge based on a person’s choices.

Always find out the facts first and understand people’s circumstances before making plans or assumptions.

A self-employed person may not have the time to meet and maybe 100% dedicated to their work. “Just because you have free time or work for someone else, there is a difference. If you work for someone else your wage is guaranteed, however, if you work for yourself your income is not”.

Do take off your rose-colored tinted glasses before making plans. There is a saying “put your brain in gear before putting your mouth in motion”.

People with Rose–colored tinted glasses tend to be optimistic and have a cheerful way of looking at life. … Someone who looks at things through rose-colored tinted glasses looks on the bright side, sees the glass half full, and looks for a silver lining in all things. So their way of thinking maybe if you lose work because of a casual meet-up to not to worry as another job will come along, having a go-lucky attitude. They also may think that life is too short to worry about finances and just go with the flow and live for the moment. Their excuses will always override your thinking and you cannot win.

NEVER ASSUME OR PRESUME ANYTHING!

  1. Do not assume or presume that people can talk to you when they are working 24/7.
  2. Do not assume or presume people can meet you even for five minutes if they have a busy schedule or a critical time path and manage other people’s businesses.
  3. Do not assume or presume people can pull money out of their a##es just because you are demanding. Think about what this will do to a person’s mental state of mind if you go on your high horse and be expectant.
  4. You would not expect, assume or presume the likes of say, someone like “Elon Musk” to drop everything for you so do not think you are so special that anyone will drop everything for you.
  5. Consider the other person’s circumstances before assuming or presuming they can travel. They may have health issues and may find it difficult to travel. Do not assume or presume that someone with a physical or mental disability will recover miraculously within a short space of time of your arrival, never assume or presume anything.
  6. Never assume or presume that within a month someone can find an extra $100 per month for a rent increase when they could have lost business because of the pandemic or their job.
  7. Never invite yourself to anyone’s home without asking them first if it is convenient, do not assume or presume that you turning up someone will drop everything for you.

“It really rattles me when people are so narrow-minded and do not care about anything apart from themselves”.

People simply do not care: https://disabledentrepreneur.uk/why-people-do-not-care

I am venting my anger because not only do I have time wasters trying to waste my precious time, attempting me to do work but refusing to sign contracts, I also have those that think they can waste my precious money.

If you cannot support me, why bother talking to me? If you are just wanting to meet up to be nosey and judgemental, you can read about me online and do not have to see me? https://renataentrepreneur.com/irenata-my-sites

Do take people’s circumstances into consideration especially if they are running a business and have health issues.

If you want to see someone but they are not comfortable meeting you consider Facetime, Skype, Zoom, Teams to name a few, I personally do not have to see you in person.

Do not assume or presume that I for one will drop everything for you because you are arriving, you should never put anyone on the spot and expect to meet if you know they have health issues.

Do not assume or presume that my health issues will miraculously go away within a short space of time when I personally have battled my illness for 30 years. Do not put people on the spot and force them into a situation they do not want to be in.

Do not be selfish.

Do not assume or presume because you are turning up on a weekend that someone such as myself does not work weekends. Always find out the facts and give the other person plenty of time to make adjustments if at all possible and discuss a happy medium where both parties can agree to something, consider the person’s disabilities, and do not expect too much from that person if you care about them.

Ask in advance if that particular date is suitable for both parties concerned, do not assume or presume that they can take time off work, and be aware that may lose business because of your selfish, careless thinking.

Life lesson does not matter how old you are, if you want something from someone be prepared to compensate them for their time, service, and resources.

Never assume or presume people’s financial circumstances or their health and never assume or presume to take up people’s time.

Assumption can lead to resentment and animosity. Always communicate properly and understand that people that run small businesses may not have free time especially if they are trying to build their empires. Always consider other people’s circumstances first before being selfish.

There are so many self-centered people in this world, that simply only care about themselves but live a lie pretending they care about others, do not be one of them!

Note From the Editor.

Putting my health issues aside for a moment, I run several businesses www.irenata.com, and manage over 100 websites. I support startups that may not have the money to pay for a website upfront but want a helping hand to get them started. In return, they recommend me to other businesses. Just because I have over 100 websites they may not all be payable until the end of the trial period. Where I have to dedicate at least 2-4 hours of work a month to each website, so do the maths, that is 2-4 x hours per website x 100 websites = 200 – 400 hours per month divided by 4 weeks is 50 -100 hours a week which divided by 7 days is 7-14 hours per day without me doing anything else, so where have I find the time to meet up for a casual chit chat? I don’t and I can’t. I am not going to jeopardize my business for anyone.

This Is How My Critical Time Path Should Look Like below:

However, I cannot keep to my plan and most certainly cannot take time off work.

This is just an example CTP.

“So before assuming or presuming I can take time off work, take into consideration that I run several businesses of my own and manage other people’s businesses also”, so do the maths.

So before being judgemental and labeling me, I will protect my business with my life and will put it before anyone and anything else. I know there are people who are just watching and waiting for me to fail but I will not let that happen.

“Just because I have a disability does not make me crazy”.

If I choose not to waste my time walking around a park aimlessly for 10 minutes a day that’s my business. If I want fresh air I can step outside or if I want to do exercise I can do it in the comfort of my home.

I can manage my disabilities using my own methodology and do not like people trying to change my way of thinking unless I specifically ask them to.

If you have not walked in my shoes you have no right to make opinions, assumptions, or presumptions.

#assume #assuming #presume #presuming #takingforgranted

Personal Experience with claiming (PIP)

May 2, 2021 / Editor / 3 Comments
PERSONAL INDEPENDANCE PAYMENT

When does reform become dangerous?

Over three years ago the Conservatives began to roll out personal independence payments (PIP) – in essence, the mandatory, mass re-testing of disabled and chronically ill people – and the answer is getting stark.

Are you entitled to Personal Independance Payment?

You can appeal by writing an in-depth letter and collecting all the evidence to help with your claim. My evidence is my online journal on this site which I own.


Personal independence payments assessment is designed to punish the poor and ill, regardless if it is a legitimate claim or not. Everyone is thrown into one basket.

A report released by the Muscular Dystrophy UK is the latest piece of evidence to expose an administrative catastrophe: appointments canceled at the last minute, lost applications, year-long delays.

Two in five respondents report being sent to an assessment centre that wasn’t accessible for disabled people. This is designed purposely to save the government money as the people that genuinely want help may give up in the process of fighting back. Not everyone knows how to appeal and if the government makes it hard for them to claim and appeal, the disabled person will just simply just give up. The assement is designed to break you down.

Since the pandemic interviews have been suspended but prior to the lockdown and my own personal experience once you manage to make it inside the building, the picture is as dire: widespread reports of assessors – employed by private firms hired by the Department for Work and Pensions – who showed no respect for disabled people, (this is especially true in my case and the humiliation I personally felt and the length of time I had to stand ), while some didn’t even understand the condition they were testing (one man, with muscular dystrophy, pointed out that the word “progressive” means “muscles don’t come back”).

Once you are at the interview you will be asked to answer a series of questions and perform endurance manoeuvers to see if you can balance on your feet, walk or how mobile you are etc. My daughter’s neurologist wrote in his report my daughter has a spastic gate and the assessor undermined the neurologist report saying my daughter could walk fine.

You will also be asked questions about your finances and if you are coping or if you are in rent arrears and credit card debt to mental health issues. I was asked what I do for a living and did not elaborate on it other than to say I do web design.

I think this form of questioning is to intimidate and degrade you.

Just because one can manage finances does not make you a healthy person. Even if you spend 60 hours or more on the internet working as some entrepreneurs do will not make that person any less disabled.

Even if the person who is an entrepreneur but disabled could successfully trade online would not mean that because they are successful at what they do that there is nothing wrong with them.

I just have a problem with interacting physically and germ contamination, I have no problem being online.

I was personally asked about my toilet hygiene and routine and if I sat on the toilet and how I wiped my you know what and how I maneuvered around in the bathroom. I felt humiliated and felt the whole ordeal very upsetting and I still have anxiety about it to this day. So you can imagine my fear and anxiety of another assessment next year.

One woman, with a muscle-wasting disease, said that she developed panic attacks after her assessment. She is now under the care of a mental health team and doesn’t leave her house.

That the government deliberately built PIP with tightened criteria – and is sitting by as the system descends into disarray – becomes grimmer still when you consider that this is being done to a benefit tied to other essential disability services that people cannot live without.

Without PIP a disabled person can’t access anything from carer’s allowance to severe disability premium. If that isn’t enough, anyone who is rejected – or bumped down to the standard rate – is also barred from the Motability scheme for an accessible car or powered wheelchair.

Sarah, a nurse with progressive muscle wasting and weakness, was seven months pregnant – and was forced to hand back her Motability car. The 29-year-old had been receiving the higher rate of disability living allowance (the predecessor to PIP), but after being reassessed she was knocked down to the standard rate – despite her condition deteriorating.

Sarah could not take her fatigue medicine without affecting her pregnancy, and her disability meant she was at risk of falling when she walksed, and permanent damage. “That vehicle was a lifeline to me,” she says. “I’ve lost my independence.”

Sarah appealed and was due at a tribunal but found it was canceled with just two days’ notice – and no explanation.


The government is skewing benefits appeals against disabled people.

It took the resignation of Iain Duncan Smith and a budget hole of billions to get the mainstream media to shine a light on the disaster of PIP – or many politicians to find a conscience. One cut to the benefit is stopped. A new secretary of state is hired. And the news cycle moves on. The disabled can’t. For many, things are only getting worse.

Between 400 and 500 adapted cars, powered wheelchairs, and scooters are being taken away from disabled people every week. Independence went – with a maximum of seven weeks to hand your lifeline back. As an insight into the logic, let alone empathy, in this system, that’s notably less time than it takes to go to appeal or even to get the results of mandatory reconsideration – meaning the DWP’s ruling can be overturned, but the disabled person’s car or wheelchair will already have been taken. (At the last count, 60% of appeals against PIP were successful).

Darran uses a wheelchair – and has a degenerative muscle wasting disease – but last year was downgraded on PIP and lost his car. In his own words, it left him “housebound and isolated”, and he scraped together the deposit for another accessible vehicle. The DWP later informed Darran that its decision had been “mistaken”, and his old car would be returned. “My £2,000 deposit is non-refundable,” he says. “I’ve lost that money.”

This is starting to look like a game played by the ‘Dr. Evil’s’ of this world with repercussions on ordinary disabled people’s lives. Take away benefits and the sick become destitute. Remove a car or wheelchair and disabled people become housebound. It’s happening right now – and what’s worse, most of the public won’t even know it, not unless people fight for their rights and have advocates speaking on their behalf.

Note From the Editor.

For me I have severe OCD I cannot be around people and my symptoms have only got worse since the pandemic.

“I am paranoid about germs“.

I even registered a domain name www.germawareness.co.uk as I think Saliva, Postal System, and Cross Contamination play an important role in spreading germs.

I also have severe depression and the only way I manage is if I self isolate. The only person I can be around is my daughter and she too is disabled with MS.

I can understand why the government has put a tight reign on the benefit and that is to stop people scamming the system. I know of one person personally, that would walk with a walking stick for show but when he was drunk he could walk perfectly normally. The government needs to send out spies on scammers that claim to have bad backs but go grocery shopping when they think no one is looking.

I am the modern-day female version of ‘Howard Hughes’ he suffered from severe OCD and self-isolated.

“I can function to a certain degree, but only in my own quarantined environment and if I have surplus disposable gloves and litres of Dettol Disinfectant on hand if I have intrusive thoughts and my OCD is playing up. I also have a designated area no one can enter or touch”.

I used to be able to venture out but now I have anxiety and panic attacks at the sheer thought of seeing other people. I am fine online but physically is a no-no for me. I used to enjoy going out with my daughter once a month when she had her monthly blood and urine tests done but that all stopped not only because my OCD has worsened but because the hospital has strict rules and that the patient should come in on their own unless they are severely disabled.

Obviously, if my daughter needed urgent emergency assistance outside of my home I would have to bite the bullet and no doubt in my mind burn all my clothing when I came home. My daughter’s being is a high priority to me so I would have to sacrifice my own just to help her, knowing I had a counteracting measure in place to ease my anxiety but that would be in exceptional circumstances.

I remember when I had my last assessment and the assessor claimed there was nothing wrong with me. She insisted on touching my photo ID even though I told her I had OCD and I had to stand for one and half hours as I did not want to sit down on public seating (This is humiliation, discrimination and if it causes harm under duress is also against the human rights act).

She also asked me if I had any suicidal thoughts, well in my opinion that is like handing someone a loaded gun. You simply do not put those thoughts into someone’s head if they say they have severe depression. Whatever is in the medical notes should suffice and some unqualified assessor should not plant a seed into someone’s head. Even if I had suicidal thoughts I would not admit to them, not that I have had, just saying.

(I have a reason to live and hopefully, there may be a cure for my OCD someday). I have set goals and am doing my best to achieve them.

But for someone more vulnerable than myself this is highly unprofessional to ask about suicide.

(I should have recorded the interview).

Imagine the applicant going home after the interview and then attempting their own life all because the assessor gave them the idea.

My assessment is up for renewal next year and there is no way I am going to go as I cannot venture out because of my mental health. I also found out that the DWP Agency Capita employs school leavers who have no professional qualifications. I know this as a fact as my daughter as it happens, knows one of them and they are really good friends. The other thing is this particular person actually spoke about people she had assessed to my daughter.

One can obviously see I am stressing about it a year ahead of my time but if I had enough money and I would not depend on PIP to help me buy disposable gloves and disinfectant at alarming levels.

https://www.theguardian.com/commentisfree/2016/jun/07/pip-disaster-disabled-access-report-benefits

https://www.independent.co.uk/news/uk/home-news/philippa-day-inquest-dwp-overdose-benefits-b1793424.html

Atos pays out for negligent PIP assessment after visit from debt enforcement officers

#personalindependancepayment #pip #disabilityallowance #mobilityallowance #tribunals #pipassessment #pipassessor #capita

Coping With Mental Health As An Entrepreneur

March 31, 2021 / Editor / 0 Comments

I have not been on this site for a while now as I have been working mainly on my other sites www.ukwebsitedesigners.co.uk and https://marketingagency.cymrumarketing.com/#home I have forwarded the domain name www.cymrumarketing.co.uk to this sub domain but it does not always work with Norton or Firewalls for some reason.

I have also updated the Disclaimer Page & added a Networking Page under the heading Legal Pages, this is to let viewers know that the owner of this site uses a SEO Link Wheels to generate traffic and that all the Websites and Blogs are all under one umbrella belonging to Renata M Barnes (UK Website Designers) You will see the credit in the footer of all the websites I own and also manage for other clients.

Moving on I have also started to intergrate video marketing into my services. This is a useful tool to attract business and I am now offering it to my clients. You can view a the portfolio of Videos here.

As for my health it is starting to deteriorate as the pressures and daily stresses of life can sometimes be overwhelming. I am fighting hard for it not to beat me but when my own health professionals are working against me rather than for me it can be too much to bear…….I will explain.

Not only am I disabled I also have a disabled daughter that I am officially a carer for, so when I see red flags I tend to question things as in the case of my GP who threatens you if you make waves. Read the latest on this Surgery that has brought me to breaking point: https://marketingagency.cymrumarketing.com/category/bayer-pharmaceutical/ All I was doing was voicing my concerns as my daughter is classed as a vulnerable person and I was told I lack respect to the highly qualified pharmacist and clinician at the surgery and was told that seeing there is a breakdown of doctor/patient relationship it would be in my best interest to find another surgery.

“I am really struggling with my health and have developed social disconnection disorder and have a fear of venturing out. The less face to face human interaction I have, the happier I feel”. I have been hurt too many times to care to mention and the people I trusted the most betrayed me. In my lifetime I have experienced discrimination, racial attacks, have been abused physically and mentally and have been physically assaulted, disrespected, undermined, critised, judged, belittled, robbed, have felt sadness, dispair and dealt with grief. All these things are contributing factors to my mental disability, which has been caused by other people and entities. There is no denying my mental health is due to a domino effect caused by direct consequences to other peoples actions.

My Richter Mental Health Scale.

It is because of certain individuals and certain events that I am this way. I am 58 yrs old and have met my fair share of people over the years and I can count on my one hand how many people I can trust. I can also name each and every single person and entity responsible for my ill health and the reasons why.

Some cope by turning to drinking alcohol or taking recreational drugs. People smoke cigarettes claiming it calms their nerves, I do not smoke cigarettes, do not drink alcohol or take recreational drugs but depend on the prescription medication that are prescribed for me. Everyone has different ways with coping with stress, trauma and life events, mine is documenting everything (therapeutic) and adapting around my disabilities aswell as trying to help others.

Anaphylaxis Allergy.

I also cancelled my Covid-19 Vaccine appointment as I have a severe anaphylaxis allergy to PEG where I was vaccinated with steriod in the past which had polythylene glycol in fact over the years I have had many anaphlaxis allergies including severe breathing difficulties from penicillin and severe skin allergy where my face looked reptilian and I was in excrutiating pain, all of which is on my medical records. https://marketingagency.cymrumarketing.com/2021/03/19/polyethylene-glycol-peg-allergy-as-a-cause-of-anaphylaxis/ I am not prepared to take any risks with my life or become more ill than I already am. At least with my OCD, Depression I can manage my life to a certain degree and can work around my disabilities. But being off work fully is inconceivable and is something I cannot do as I have obligations to my clients.

I have to be online every single day, imagine being too ill to work what would happen to your business if you had no one to help you? Your clients are not going to say “ok call us when you feel better”, the food chain still has to carry on. I have heard the second vaccine is worse the the first but I am waiting on herd immunity to kick in as I do not plan venturing out any time soon.

I would not describe myself as a hypochondriac as all my disabilities are medically documented. I try not to think about illnesses unless it is affecting me directly and at any given time. I try to actually block out my disabilities and try to live a relatively normal life to a certain degree (although there is nothing normal about me). The world on the internet is not going to know about my disabilities unless they bother to do some research about me, so me sitting in front of a computer screen I am as normal as the next person.

I cannot be critised for having no empathy. I will help people in need but will never make it personal. If someone needs me to lend them my ear or a shoulder I will try and help.

To be frank I have coped better than most during the Covid-19 Lockdown. My business has improved as people have turned to the internet for a second income stream. Where I had issues about people bumping into you and not looking where they where going in the past, it is as if the heavens have opened up and had everyone stay 2 metres apart (not that I go out anywhere though).

Wearing disposable latex gloves is no longer questionable and I do not feel the odd one out anymore.

I do miss going out once a month with my daughter when she and I used to go up to the hospital for her to have her monthly blood done and then we would go to a restaurant in the city centre. I won’t say I will never go again as they say “never say never”, but it is going to take me a long time to adjust to the new surroundings and facing people at the moment is really causing me distress. I am fine with the grocery and courier drivers but that is as far as I am willing to interact physically with other people other than my family.

“I do have a goal and that is to make enough money for me to retire comfortably and for my daughter to have a head start in life. My priority is my family and my business and nothing else”.

I won’t let this general practice surgery beat me. I have a long list of people I can complain to.

Coping With Mental Health in General.

  1. Take time out to have some TLC. Do something that will make you happy and relaxed. Try to occupy you mond with something else other than what is worrying you.
  2. If you work for a company see if they have an HR department that deals with mental health. If not suggest that they do have a department and volunteer to be a spokesperson, you will no longer be seen as a follower and more so as a leader. Every business no matter how big or small should have some sort of department to air your worries and anxieties and perhaps meet up once a week to just chat. However if you find that there is no such option and you have had no alternative to tell your employer, he/she has a responsibility under Equalities Act to be obliging and to accommodate you and your condition if it is considered a long term affliction. You may not be the only one that is suffering so considering starting a club even after work can make all the difference.
  3. Stay focused it is easy to just to clock watch until the hour hand hits 5 o’clock but that does not help you or your employer hence you need to set goals and try to make some progress on a daily basis. You should concentrate on the work in hand but at the same time consider starting a second income stream and do research and learn. Reading helps people to stay motivated and empowers them to learn a new skill. This skill could help your employer or can help you to break away and go it alone.
  4. Do not over critisie yourself, if things are not going your way, tomorrow is another day. Accepting the fact that we all experience good days and bad days is just a way of life and we need to learn to overcome obstacles that come our way. For me venting my anxiety, anger and frustration online is therapeutical. I know some one will read it and will relate. I also think that what I write could actually help someone other than myself.
  5. The impact of problems such as depression and anxiety are unique and individual to each and every one of us and how we cope with them and different situations of life is equally as individual. Above I have merely mentioned some advice on dealing with issues of mental health in the workplace, but speaking to your GP and building a network of support are arguably the most important steps you can take in your recovery. For me I personally will not be relating my anxieties any time soon to my GP if I still have one, as it is practice management that you tell the reception first what is wrong with you, what ever happend to GDPR and not sharing the information with anyone other than your doctor. According to an inspection report that I downloaded on another post I made https://marketingagency.cymrumarketing.com/2021/03/30/gp-surgeries-are-small-businesses/ the receptionists have to sign a non disclosure agreement. This is hog wash if they wish to talk about you without actually mentioning you name.

Super Power.

Disabled Entrepreneur Super Power!

Just because I have a mental health disability does not make me less of a person. My disability does not define me and make me less intelligent, in fact on the contrary my disability is my ‘Super Power’ and although it comes with challenges it gives me strength and purpose to carry on and help motivate and empower others that having a disability is not the end of the world and you can still achieve your aspirations and all you need is a gentle push. Never let some tell you it cannot be done or it is impossible for you to achieve, listen to your heart and not what others tell you. Do not listen to naysayers.

My Super Power is everytime anyone disrespects me, tries to undermined me or do other atrocities I will write about them. Anyone throwing obstactles in my way, making my life difficult or miserable, I will document. Everytime anyone tries to do anything to hurt me I will hit the keyboard. The same goes if I see anyone being treated unfairly, the perpetrator will feel my Super Power.

Whats your super power? Mine is exercising my journalist skills!

Reaching Out.

If you want to talk to just drop me a line, I am happy to chat to you online or send emails. Although I do not do face to face meetings I am happy to help anyone who is feeling distressed. Just because I have difficulty interacting physically does not mean I have a problem interacting virtually. Remember a problem shared is a problem halved. If you have a network of people you can rely on then that is fine, but if you don’t there are many organisation out there that can help and I also can lend an ear or shoulder to cry on or send virtual hugs.

Royal Mail VS Other Couriers & People With Disabilities.

January 16, 2021 / G0LDEND0MA1NS / 1 Comment

Royal Mail Vs Courier & People With Disabilities.

This post is a mixture of two posts rolled into one (no pun intended).

  1. The First Being Logistics.
  2. The Second About Disabilities.

History of Royal Mail was originally established in 1516 as a department by the Royal Family. The company’s subsidiary company Royal Mail Group Limited operates the brands Royal Mail (letters) and Parcelforce Worldwide (parcels).

The company provides mail collection and delivery services throughout the UK and is now a private company after it’s shares where floated on the stock exchange in 2015.

https://en.wikipedia.org/wiki/Royal_Mail

GRIEVANCE

Now my grievance is that such a big company has no online chat and if one wanted to lodge a complaint this is what they say “We are currently experiencing very high call volumes”, this tells me their service is not up to scratch and they have not employed enough people to deal with the demand and are delivering poor service. The response time is between 10 and 35 days.

For people with mental health and immune disorders, this is absolutely unacceptable.

Employ more staff or give up your yearly bonuses and have a cut in salary meaning salaries from the top and that way you will be able to afford to employ more people.

Just because you are a PLC company there have been many before you which have tried and failed in our current climate with businesses going bust left right and centre.

You have to stay ahead of your competion, you need to dig deep into your pockets to survive.

Furthermore their website is not straight forward to navigate and I should know as I build websites.

“There should be no room for error”.

Any decent company should have online chat.

So this is the domino effect of a company simply not doing their jobs properly as I will explain:

Two parcels were sent on 12/01/21 from the same Royal Mail Post Office, one to ‘Amazon’ and the other to ‘Pretty Little Thing’. The Amazon notification came within 24 hours and refund within 48 hours but for ‘Pretty Little Thing’ the parcel is still in the sorting office even though ‘Royal Mail’ aims to deliver in one working day.

Now considering there is a time frame for when things can be returned and my daughter’s return date is bordering on the deadline, you would think they would speed things along.

My daughter who suffers with Multiple Scleroris is on the verge of having a relapse because of ‘Royal Mail’.

Multiple Sclerosis can leave a person wheelchair or bed bound, so as her carer I think it is only right to ruffle a few feathers.

To think before Christmas someone refused to use Royal Mail to send a fragile gift and I tried defending the company I now have egg on my face, and so has my daughter.

Unless the company can up with a quick plan of action I will not be saying a good word about this company.

The CEO is Stuart Simpson.

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