Embracing Life’s Uncharted Path: A Young Warrior’s Journey with Multiple Sclerosis
Today, we embark on a poignant journey into the life of a remarkable young individual, whose path is illuminated not just by the exuberance of youth but also by the shadows cast by a challenging companion – Multiple Sclerosis (MS).
1. The Unseen Struggle
Zena is a vibrant soul in her early twenties, whose life took an unexpected turn when she was diagnosed with Multiple Sclerosis. MS, a chronic autoimmune disease affecting the central nervous system, thrust Zena into uncharted territory. The initial shock and disbelief were palpable, yet in the midst of uncertainty, she discovered an inner strength that would become the guiding force in her journey.
2. Resilience Amidst Uncertainty
Living with MS meant facing daily battles, both seen and unseen. Fatigue, mobility challenges, and cognitive fluctuations became part of her daily tapestry. However, Zena’s resilience emerged as a beacon of light, guiding her through the unpredictable terrain. She embraced each day with courage, determined not to let MS define the boundaries of her aspirations.
3. The Support System
Central to Zena’s journey has been the unwavering support of family and friends. Their understanding, encouragement, and empathy created a cocoon of strength around her. Together, they shattered the misconceptions surrounding MS, fostering an environment where Zena could flourish despite the challenges.
4. Redefining Normalcy
For Zena, normalcy became a subjective concept. Everyday victories, whether big or small, took on a profound significance. From navigating the campus with assistive devices to adapting her study routines to accommodate the ebb and flow of symptoms, she redefined normalcy on her terms, refusing to let MS cast a shadow on her ambitions.
5. Advocacy and Awareness
In the face of adversity, Zena found a calling – advocating for MS awareness. She became a vocal proponent of dispelling myths, fostering understanding, and championing research. Through her advocacy, she aimed to create a world where individuals with MS are not defined by their condition but celebrated for their resilience and accomplishments.
6. Celebrating Triumphs
While MS brought its challenges, it also unveiled unexpected triumphs. Zena’s journey was punctuated by academic achievements, personal milestones, and moments of joy that underscored the triumph of the human spirit. Her story serves as an inspiration to others facing similar battles, reminding them that life’s beauty persists even in the face of adversity.
7. Symptoms
Back Pain
Extreme headaches (migraines, 3 occasions – head felt like it was going to explode)
Neuropathic itch in the right shoulder (can last for hours/days)
The altered sensation in my right bum cheek (tingling) lasted 1 day and has reoccurred occasionally and lasts for about an hour or until no longer noticed.
Pins and needles on the right foot (last 3 toes) when initially putting weight on my foot – lasted 2 weeks
Pain in the left arm feels the same as on the legs and spreads from the wrist up to the shoulder – on 2 occasions
Ms hug in the collarbone
Pitted nails
(Monday 6th November 23) ⁃ Altered sensation in right knee – felt wet/ cooling – end of the week, up my right thigh
Friday 10th)⁃ (Saturday 11th) spread down the right side of the calf, part of my bum, possibly into the ankle.
(Saturday 18th) reduced to just the side of the calf, maybe part of the knee but not as noticeable
(Sunday 19th) altered sensation is gone – extreme pain in the lower back, shooting pain, and extreme pressure when trying to turn/bend.
Conclusion:
As we navigate the intricacies of Zena’s journey with Multiple Sclerosis, we find not a tale of defeat but a narrative of triumph over adversity. Her story exemplifies the resilience and courage that define the human spirit, showcasing that even in the face of unpredictable challenges, one can carve a path of hope, purpose, and fulfillment. Through Zena’s eyes, we glimpse the power of embracing life’s uncharted path, discovering strength in vulnerability, and rewriting the narrative of what it means to thrive with Multiple Sclerosis.
We are in the process of building our own directory of A-Z illnesses and disabilities. If you happen to land on this page we encourage you to visit the NHS website about the topic in our category.
It is vital to have platforms that champion inclusivity and diversity, bringing stories and experiences from all walks of life to the forefront. The Disabled Entrepreneur – Disability UK Online Journal is one such platform dedicated to representing the experiences, insights, and accomplishments of disabled individuals. However, like an empty canvas waiting for an artist’s brush, our pages are currently awaiting content. We’re excited to invite guest writers to share their knowledge and perspectives on all health topics, from A to Z. If you have landed on this page that means the category needs content.
A Platform for the Disabled Community
The Disabled Entrepreneur – Disability UK Online Journal is more than just a publication; it’s a celebration of resilience, innovation, and success in the face of adversity. Disabled entrepreneurs, activists, healthcare professionals, and advocates have a valuable platform to share their insights and experiences. This journal is a space where stories and knowledge intersect to form a resource-rich hub for the entire disabled community.
Why Your Contribution Matters
Sharing your expertise and experiences on this platform can have a profound impact in several ways:
Inspiration and Representation: Your stories and knowledge can inspire others in the disabled community. Representation matters, and your contribution can pave the way for others to follow in your footsteps.
Education: The world of disabilities is vast and diverse. By contributing to the journal, you can educate the public and offer insights into topics such as disability rights, accessible technology, healthcare, adaptive sports, and more.
Fostering Inclusivity: By sharing your perspective, you help break down barriers and stigmas surrounding disabilities. The more we understand each other, the more inclusive our society can become.
Professional Growth: Becoming a guest writer for a reputable platform like this can enhance your professional profile and provide valuable networking opportunities.
Topics We’re Looking For
At the Disabled Entrepreneur – Disability UK Online Journal, we aim to cover a wide range of health topics and disability-related subjects. Our pages are open to contributions that span the A to Z of healthand disability, including but not limited to:
Accessible Technology: Innovations in assistive devices and technology.
Mental Health: Strategies for managing mental health while navigating life with a disability.
Policy and Advocacy: Insights into disability rights and policy changes.
Entrepreneurship and Business: Stories of successful disabled entrepreneurs and startup guidance.
Inclusive Education: Strategies for creating inclusive learning environments.
Wellness and Healthcare: Tips on maintaining physical and mental health.
If you’re interested in sharing your knowledge, experiences, or insights on disability-related topics, we invite you to become a guest writer for the Disabled Entrepreneur – Disability UK Online Journal. To get started, simply follow these steps:
Pitch Your Idea: Send us a brief pitch outlining your proposed topic to [email address]. Ensure that it aligns with our vision and mission.
Write Your Article: Once your pitch is approved, start working on your article. Our editorial team will be available to provide guidance and feedback.
Submit Your Article: When your article is ready, submit it for review.
Engage with Our Community: We encourage our guest writers to engage with our readers through comments and discussions, offering valuable insights and answering questions.
Conclusion
The Disabled Entrepreneur – Disability UK Online Journal is not just a publication; it’s a collective voice that celebrates the achievements and experiences of the disabled community. We believe in the power of collective knowledge, and we invite you to be a part of our mission. Your contribution can be a stepping stone for others and an invaluable resource for the world. Join us in filling our pages with content that resonates, educates, and inspires.
As a guest writer, you’ll gain exposure and the chance to build a portfolio of content. We also offer backlinks to your personal or professional website, enhancing your online presence. By sharing your knowledge with our community, you’re not only enriching our journal but also empowering individuals within the disabled community and beyond.
At Disabled Entrepreneur – Disability UK, we are committed to supporting our talented writers. Our goal is to create a platform that compensates contributors once we reach a level of traffic that sustains such payments. As we grow, we are exploring the possibility of introducing a paywall system. This approach will help us continue to provide quality content while rewarding our dedicated writers for their valuable contributions. Your words and expertise are an essential part of our journey, and we look forward to a future where we can reciprocate your efforts more substantially.
Unmasking the Veil of Disability Discrimination: A Call for Inclusivity
Discrimination is a persistent and deeply ingrained issue in societies across the world. Among the various forms of discrimination, disability discrimination remains a grave concern. Despite significant advancements in understanding and acknowledging the rights of individuals with disabilities, prejudice and bias continue to marginalize this community.
Understanding Disability Discrimination
Disability discrimination occurs when individuals are treated unfairly due to their disability, whether it be physical, intellectual, sensory, or psychiatric. Such discrimination can manifest in various ways:
Stereotyping: People with disabilities are often stereotyped as dependent, incapable, or a burden on society, perpetuating negative perceptions and limiting their opportunities.
Accessibility Barriers: Inaccessible environments, both physical and digital, create obstacles that hinder the full participation of individuals with disabilities in various aspects of life, from education to employment and social activities.
Employment Discrimination: Despite legal protections, disabled individuals often face discrimination in the workplace, including biased hiring practices, lack of reasonable accommodations, and wage disparities.
Social Exclusion: Individuals with disabilities frequently experience social isolation, exclusion, or bullying, which can have a profound impact on their mental and emotional well-being.
Lack of Healthcare Access: Some individuals with disabilities may encounter discrimination in healthcare settings, receive subpar treatment, or face biased medical decisions.
Consequences of Disability Discrimination
The consequences of disability discrimination are far-reaching and detrimental to both individuals and society as a whole:
Economic Disparities: Discrimination limits employment opportunities for disabled individuals, resulting in higher unemployment rates and increased reliance on social welfare programs.
Mental Health Impacts: Constant exposure to discrimination can lead to depression, anxiety, and low self-esteem among individuals with disabilities.
Education Gaps: Discrimination in educational settings can hinder the academic and social development of disabled students, perpetuating disparities in access to knowledge and skills.
Social Fragmentation: Discrimination reinforces social divisions and creates a sense of exclusion among disabled individuals, hindering the development of a cohesive and inclusive society.
Lost Potential: Society loses out on the vast talents, creativity, and contributions of disabled individuals who are prevented from fully participating in various spheres of life.
The Legal Framework Against Disability Discrimination
Several countries have recognized the importance of combating disability discrimination and have enacted laws to protect the rights of disabled individuals. The Americans with Disabilities Act (ADA) in the United States, the Equality Act in the United Kingdom, and the United Nations Convention on the Rights of Persons with Disabilities are notable examples. These legal frameworks aim to ensure equal opportunities, access, and protection from discrimination.
The Call for Inclusivity
To combat disability discrimination effectively, we must foster a culture of inclusivity and raise awareness about the challenges faced by individuals with disabilities. Here are some key steps that society can take:
Promote Education: Educate the public about disability rights, inclusion, and the harmful effects of discrimination. Schools and universities should incorporate disability awareness into their curricula.
Ensure Accessibility: Create accessible environments, both physical and digital, to enable disabled individuals to participate fully in all aspects of life.
Employment Equality: Encourage businesses and organizations to adopt inclusive hiring practices and provide reasonable accommodations for disabled employees.
Challenge Stereotypes: Promote positive portrayals of disabled individuals in media and popular culture to challenge stereotypes and promote understanding.
Empower Disabled Voices: Give disabled individuals a platform to share their experiences, advocate for their rights, and be active participants in decision-making processes.
List Of Types Of Discriminations
Discrimination can manifest in various forms, targeting individuals or groups based on various characteristics or attributes. Here is a list of some common types of discrimination:
Age Discrimination: Treating individuals unfairly based on their age, whether it be youth or older age.
Race or Ethnicity Discrimination: Discrimination based on a person’s race, ethnicity, or nationality.
Religious Discrimination: Treating individuals differently because of their religious beliefs or practices.
Disability Discrimination:Unfair treatment or exclusion of individuals with disabilities, including physical, intellectual, sensory, or psychiatric disabilities.
Gender Discrimination: Discrimination based on a person’s gender, including discrimination against women (sexism) or men.
Sexual Orientation Discrimination: Unfair treatment of individuals due to their sexual orientation, including discrimination against LGBTQ+ individuals.
Gender Identity Discrimination: Discrimination against individuals based on their gender identity or expression, including transgender individuals.
National Origin Discrimination: Unfair treatment of individuals based on their country of origin or nationality.
Socioeconomic Discrimination: Discrimination based on a person’s socioeconomic status or economic background.
Marital Status Discrimination: Treating individuals unfairly based on their marital status, whether they are married, single, divorced, or widowed.
Political Affiliation Discrimination: Discrimination based on a person’s political beliefs or affiliations.
Weight or Body Size Discrimination: Discrimination against individuals because of their weight or body size, often referred to as “sizeism.”
Language Discrimination: Treating individuals differently based on their language proficiency or accent.
Pregnancy Discrimination: Unfair treatment of pregnant individuals or those planning to become parents.
Genetic Discrimination: Discrimination based on a person’s genetic information or predisposition to certain medical conditions.
Color Discrimination: Discrimination based on the color of a person’s skin, which can overlap with race discrimination.
Religious Dress Discrimination: Unfair treatment of individuals who wear religious attire, such as turbans, hijabs, or yarmulkes.
Educational Discrimination: Discrimination in educational settings, including bias in admissions, grading, or resource allocation.
Caste Discrimination: Discrimination based on a person’s caste, which is prevalent in some societies and cultures.
Ageism: Prejudice or discrimination against people of a particular age group, often directed toward older individuals.
HIV/AIDS Discrimination: Discrimination against individuals living with HIV/AIDS.
Veteran Status Discrimination: Unfair treatment of military veterans based on their veteran status.
Intersectional Discrimination: Discrimination that results from the intersection of multiple characteristics, such as race, gender, and disability.
Parental Status Discrimination: Unfair treatment based on whether an individual has children or not.
Religious Conversion Discrimination: Discrimination against individuals who have converted to a different religion.
Housing Discrimination: Discrimination in housing is based on various factors, including race, disability, or familial status.
Age of Consent Discrimination: Discrimination against individuals in relationships with age differences.
Citizenship or Immigration Status Discrimination: Discrimination based on a person’s citizenship or immigration status.
It’s important to recognize and combat all forms of discrimination to create a more equitable and inclusive society. Laws and policies in many countries are in place to address and prevent discrimination based on these characteristics.
Controversy Over Personal Independence Payments (PIP): Discrimination Against People with Disabilities and Mental Health Disorders
Personal Independence Payments (PIP) is a UK government welfare program administered by the Department for Work and Pensions (DWP). It is designed to provide financial support to people with disabilities, including those with mental health disorders, to help cover the extra costs they may incur due to their conditions. However, since its introduction, PIP has been a subject of controversy, with allegations of discrimination against individuals with disabilities and mental health disorders. This article explores the issues surrounding PIP and its impact on this vulnerable population.
The PIP Assessment Process
To determine eligibility for PIP, claimants are required to undergo a stringent assessment process. This process involves a face-to-face interview and the completion of a detailed questionnaire, where claimants must provide evidence of their disability or mental health condition and how it affects their daily lives. Points are awarded based on the severity of the condition and its impact on mobility and daily living activities.
Controversy and Discrimination Allegations
Inconsistent Assessments: One of the major criticisms of the PIP system is the inconsistency in assessments. Reports of assessors providing contradictory decisions and claimants being denied support for conditions deemed severe by healthcare professionals have raised concerns about the accuracy and fairness of the process.
Insufficient Understanding of Mental Health: Mental health disorders can be invisible and fluctuate in severity. Critics argue that PIP assessors, who are often not mental health specialists, may not adequately understand the complexities of these conditions, leading to underestimations of their impact on daily life.
High Rate of Appeals: A significant number of PIP decisions are appealed, and many of these appeals are successful. This suggests that initial assessments may not be capturing the true extent of claimants’ disabilities or mental health challenges.
Stress and Anxiety: The assessment process itself can exacerbate mental health issues, leading to anxiety and stress for claimants. The perceived adversarial nature of the process has been criticized for causing harm to those who are already vulnerable.
Inadequate Support: Some argue that PIP does not provide enough financial support to cover the extra costs associated with disabilities, particularly for individuals with mental health disorders who may require ongoing therapy, medication, or other forms of support.
Impact on Vulnerable Populations – The controversy surrounding PIP has real-world consequences for people with disabilities and mental health disorders:
Financial Hardship: Denying or reducing PIP support can lead to financial hardship, making it even more challenging for individuals to access necessary services or participate in daily life activities.
Worsening Health: Stress and anxiety resulting from the PIP assessment process can exacerbate mental health conditions, leading to a decline in overall well-being.
Increased Dependence: Reduced PIP support may force individuals to rely on family members or other forms of support, rather than maintaining their independence.
Stigma and Discrimination: The controversy surrounding PIP contributes to the stigmatization of people with disabilities and mental health disorders, perpetuating negative stereotypes.
Calls for Reform
To address the controversy surrounding PIP and allegations of discrimination, various advocacy groups, healthcare professionals, and policymakers have called for reforms to make the system fairer and more supportive:
Improved Assessor Training: Ensuring that PIP assessors receive comprehensive training, particularly in understanding mental health conditions, can lead to more accurate assessments.
Greater Transparency: Advocates argue for increased transparency in the assessment process, including clearer guidelines for assessors and better communication with claimants.
More Compassionate Assessment: Creating a less adversarial atmosphere during assessments can help reduce stress and anxiety for claimants.
Frequent Reviews: Regularly reviewing and updating the PIP assessment criteria to reflect the evolving understanding of disabilities, including mental health conditions, is essential.
The controversy over Personal Independence Payments highlights the challenges faced by individuals with disabilities and mental health disorders in accessing necessary financial support. Addressing these issues requires a careful reevaluation of the PIP assessment process and a commitment to ensuring that it is fair, consistent, and supportive of those who need it most. Discrimination against this vulnerable population must be actively addressed to create a more inclusive and equitable society.
Personal Independence Payment (PIP) has faced criticism and allegations of discrimination.
Individuals with disabilities include those with conditions such as:
Mental Health Disorders: People with conditions like Obsessive-Compulsive Disorder (OCD), Depression, Anxiety Disorders, Schizophrenia, Bipolar Disorder, and other mental health conditions may experience difficulties in PIP assessments, particularly due to the often invisible nature of these conditions.
Multiple Sclerosis (MS): MS is a progressive neurological condition that can lead to various disabilities, including mobility issues, fatigue, and cognitive impairments. Some individuals with MS have reported challenges in securing PIP support.
Chronic Pain Conditions: Conditions like Fibromyalgia, Complex Regional Pain Syndrome (CRPS), and Chronic Fatigue Syndrome (CFS) can cause severe pain and disability. However, these conditions may not always receive the recognition they deserve in PIP assessments.
Neurological Disorders: Other neurological conditions, such as Parkinson’s Disease, Epilepsy, and Huntington’s Disease, can lead to significant disabilities, but individuals with these conditions may also face difficulties in securing PIP support.
Autism Spectrum Disorders (ASD): Autism, including conditions like Asperger’s syndrome, can impact an individual’s ability to engage in daily living activities and may require additional support. However, navigating the PIP assessment process can be challenging for individuals with ASD.
Physical Disabilities: Individuals with physical disabilities, such as spinal cord injuries, amputations, and musculoskeletal disorders, may also face discrimination or inconsistent assessments in the PIP system.
Visual and Hearing Impairments: People with visual impairments, hearing impairments, or deafness may experience difficulties in accessing PIP support, especially if their needs are not adequately understood during assessments.
Learning Disabilities: Individuals with learning disabilities, such as Down syndrome or intellectual disabilities, may struggle to access PIP support due to the complexity of the assessment process.
It’s important to note that the issues surrounding PIP assessments are not limited to specific disabilities but often revolve around the assessment process itself, which may not effectively capture the nuances and impact of various disabilities, including those mentioned above. Advocacy groups and policymakers continue to call for reforms and improvements to ensure a fair and equitable system that supports individuals with diverse disabilities.
Conclusion
Disability discrimination is a pervasive and deeply ingrained issue that hampers the progress of individuals with disabilities and society as a whole. To address this problem, we must work collectively to break down barriers, challenge stereotypes, and promote inclusivity in all aspects of life. By doing so, we can build a more equitable and compassionate world where every individual, regardless of their abilities, is given the opportunity to thrive and contribute to the betterment of society.
Invisible Disabilities
Invisible disabilities are conditions or impairments that significantly impact an individual’s life but are not immediately apparent to others. These disabilities can encompass a wide range of conditions, including chronic illnesses, mental health disorders, cognitive impairments, and sensory sensitivities.
While not visible to the naked eye, invisible disabilities can have profound effects on a person’s daily functioning, requiring understanding, support, and accommodation from society to ensure that individuals with these conditions can fully participate in all aspects of life.
Recognizing and respecting the challenges faced by those with invisible disabilities is essential for fostering inclusivity and promoting a more compassionate and equitable world.
Laws
When someone is discriminated against, several laws may be violated depending on the nature of the discrimination. In most democratic societies, discrimination based on factors such as race, gender, religion, disability, age, or sexual orientation is illegal. These laws aim to protect individuals from unfair treatment and promote equality. Discriminatory actions can lead to violations of civil rights and anti-discrimination laws, which can result in legal consequences for the perpetrators. Additionally, there are often specific laws and regulations at local levels that address various forms of discrimination, ensuring that individuals have legal recourse when their rights are infringed upon.
Loving someone who’s struggling in the grip of addiction is heartbreaking. All you want to do is help. But here’s the thing: there’s a thin and blurry line between helping and enabling an addict. And it’s extremely easy to end up on the wrong side of that line. That’s why experts in the field believe this is an important discussion to have. Here’s how to help a loved one dealing with addiction!
Educate yourself
There’s no use trying to support a person dealing with addiction without understanding addiction itself. Once you know more about SUD, you can get information about how it is treated, learn about different treatment options for their addiction, learn how to approach your loved one about their addiction and encourage them to seek help.
Adjust your expectations
Don’t expect a single conversation to fix the problem. Addiction distorts the user’s reality. To them, lies often do not feel like lies, so be prepared for denial. Similarly, self-destruction feels like survival. So, excessive shaming and criticizing, lecturing, and alike won’t work either. Stop trying to find the switch – it doesn’t work like that.
Set healthy boundaries
Setting healthy boundaries is essential for both you and the addicted loved one. So, set them lovingly and as often as you feel the need to. Make the consequences of crossing those boundaries as clear as possible. And, finally, always follow through.
Let them make mistakes
Addicts are more likely to proactively seek professional help if they’re allowed to make mistakes without the promise of their supporter’s rescue. So, if you want to help a loved one dealing with addiction, let them reap what they sow.
Encourage them to seek help
Helping someone you love with their addiction may feel like one of the loneliest places in the world. But don’t forget that you’re not on your own. Encourage them to schedule a doctor’s appointment, a counseling session, or a peer support group meeting. Be optimistic and supportive, and emphasize that you will be there for them every step of the way.
Relapse isn’t a sign of failure. Naturally, you can always help them plan their best defense for relapse prevention. For instance, you can educate yourself about relapse prevention, learn how to identify high-risk behaviors and devise a plan for triggers and cravings.
Don’t fight their battles
Want to help a loved one dealing with addiction? You can love them and support them. However, you cannot fight their battles for them, no matter how much you might want to.
In a quiet, cozy little neighborhood, Mr. Tibbles, the Cat Reporter, was in the midst of drafting an article on the importance of emotional support for those affected by Multiple Sclerosis. His human, Zena, had been sharing her own experiences and insights, which inspired him to explore this delicate topic further. Little did he know that his next story would take an unexpected turn.
One sunny afternoon, as Mr. Tibbles was diligently pawing at his keyboard, he heard a faint sobbing coming from the house next door. Being the curious and compassionate cat he was, he decided to investigate. As he entered through the open window, he found a young girl named Sarah, curled up on her bed, tears streaming down her face.
Sarah had just had a heated argument with her boyfriend, James. The quarrel had left her feeling shattered and alone, her heart heavy with sorrow. She hadn’t realized how much she needed someone to talk to until Mr. Tibbles entered the room, his soft fur and gentle presence immediately calming her.
With a knowing look in his wise eyes, Mr. Tibbles approached Sarah and nuzzled her cheek, offering silent but unwavering support. Feeling comforted by his presence, Sarah began to talk, pouring her heart out to the understanding feline. She told him about the argument, her fears, and her worries about her relationship with James.
Mr. Tibbles listened intently, his purring growing louder as if to say, “It’s going to be okay.” He didn’t offer solutions or advice; instead, he provided the invaluable gift of being a non-judgmental and empathetic listener.
As the evening sun dipped below the horizon, Sarah’s tears had transformed into smiles, thanks to the unexpected friendship she found in Mr. Tibbles. His simple act of being there for her had made a world of difference.
Over the following days, Mr. Tibbles continued to visit Sarah, offering his comforting presence whenever she needed it. He became her confidant and, in a way, her silent therapist. Sarah also realized that sometimes, taking a step back and talking about one’s feelings was the first step towards resolving conflicts and strengthening relationships.
As time passed, the bond between Sarah and Mr. Tibbles grew stronger. In the process, Mr. Tibbles learned an important lesson himself: that sometimes, the most profound acts of support could be as simple as being there to lend an ear or a furry shoulder to lean on. His next article on emotional support took on a deeper meaning, as it was now inspired by his firsthand experience in helping a young girl find solace and healing in the warmth of his presence.
Mr. Tibbles The Health Cat Reporter – Supporting Young Minds
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