Renata’s Online Journal – Health Update.
I have been doing some research on GP communication as I am concerned about how a letter that I wrote to my GP over a year ago was never answered yet it was confirmed that it had been added to the system.
In comparison, my daughter who has Multiple Sclerosis has a Neurologist Consultant at the “University Hospital Wales” who lectures at Cambridge University, and even on annual leave, had the courtesy of responding to my daughters’ emails.
This shows the consultant’s professionalism and sets him apart from mediocre general practitioners who do not give a monkey about your health, only about how many drugs they can prescribe. https://disabledentrepreneur.uk/what-doctors-wont-tell-you/
I have been let down by the system because for years I have been prescribed the same medication and have never been offered ‘Psilocybin Mushrooms‘.
https://www.medicalnewstoday.com/articles/psychedelic-therapy
https://www.drugs.com/illicit/psilocybin.html
I could have easily been treated for my OCD years ago but I guess if that was the case how much money Big Pharma would have missed out on.
I must admit I have never used recreational drugs and if look at the series on Netflix which prompted me to look into this I do not see why I have to poison myself with the medication I am prescribed when there is an alternative. In fact, this has really angered me that not only the local GP do not care about their patients but I could have been potentially cured years ago. I do not see why I have to be a cash cow for the GPs and Pharmaceutical Companies.
Personal Independence Payments (PIP).
So, I have found that the Government has instructed GPs to not respond to PIP and Disability Claims, requested by claimants. GPs in southeast Wales have been told to stop writing letters for patients appealing against decisions to stop benefit payments because it is an “abuse of resources”. (A bit of coinky-dinkle I think). https://www.bbc.co.uk/news/uk-wales-south-east-wales-23353623
The letter I wrote last year had nothing to do with supporting evidence it was to let the Doctor know that I was finding it difficult to do certain things and needed some support or advice.
I do not need my GP fighting my corner because I am more than capable of fighting my own battles.
Unfortunately, even paying for a letter (privately) will be dismissed because the Government has some say for GPs not to support your claim. This is wrong because the GP only knows what the patient tells them and if I write another letter and a link to this site it will corroborate what I am saying.
I did not design this site as clickbait, I designed it as a form of therapy for myself, for my daughter, and for others like us.
When my review comes up for renewal, I will not be jumping through hoops or performing like a circus monkey hopping on one foot, or bending to prove I have disabilities.
Anyone that knows me, knows I have only left my home once in the last 3 years.
Last year I wrote 5 things that were wrong with me and I never had a reply. I then spoke with the practice manager that told me to phone in to book an appointment but with one ailment at a time that would mean I would have had to make five separate calls. Besides, I have anxiety phoning anyone let alone a doctor. https://disabledentrepreneur.uk/anxiety-phoning-your-gp/
My Health Updated 06/07/22
The GP only knows what the patient tells them and although I am self-employed, I know I would never suit an employed environment for the following reasons, although I have built my brand so have no reason to change.
I am the Editor of this site and will continue doing what I am doing and report my findings.
Not everyone is looking for a handout and if there is available money that one is entitled to, one should get what rightfully is owed without jumping through hoops or begging. Don’t offer money and then expect some to hop on one foot whilst touching their nose, it is humiliating and furthermore, the ones that want to swindle the system will perform Oscars. The only way to know for definite if someone is telling the truth is by medical records or published documentation.
“I reiterate I am the Editor of this site, (MON-SAT 9 am – 5 pm) and I am also disabled. I should not have to prove anything that is not already documented or published”. https://disabledentrepreneur.uk/personal-experience-with-claiming-pip/
My OCD.
I suffer from OCD, I have suffered with OCD for the best part of 30 years I am super aware of my surroundings and avoid contact with the outside world (social disconnection) as much as possible. I can deal with the Postman, Courier or Delivery Driver, and Workmen, but that is as far as it will go. I do not have people visiting me and I like it that way. Even at home, I have triggers that cause intrusive thoughts. For example, when the cat brushed past me the other day, it consequently caused me to have a panic attack and anxiety, making me change my clothes and put the contaminated clothes in the wash. I have binned things (some expensive) that I have not managed to disinfect in the past. I cannot be around people, and I prefer my own company anyway. I am fortunate that the job I do has little to no human contact. I am fine online but have problems in the physical world. I use disposable latex gloves to touch things and go through about five hundred pairs a month.
My Bladder.
I have overactive bladder issues and go to the loo every 1.5 hours. It could be from the excess caffeine intake (I need to drink energy drinks to get me through the day). I take Mirtazapine 30mg tablets to help me fall asleep they do jack Sh#t for my OCD.
In a normal work environment needing to go to the bathroom frequently would be difficult because unless the toilet was in proximity, I could potentially have an accident which would then prove embarrassing, and I am not going to take any chances. My bladder gives me little or no warning and when you got to go, you got to go. It is a good job my bathroom is only twenty-five steps away.
Physical Pain.
My pain in my knee is manageable providing I have my meds on hand, and I am in a warm place. The moment it starts to get chilly my knee starts throbbing in dull pain. Getting in and out of the bath is comical because I cannot bend my knee to get in the bath and when I do it is very painful. (But only people who have had their knee kicked seven times purposely would know what I am talking about).
My back pain is concerning because sometimes if I bend to do simple tasks like sort rubbish or feed the cat, I get spasms in my lower back that escalate up my spine to my neck where the feeling that I can describe is like pins and needles or electricity in the nape of my neck. It is not just when I bend it is from standing, washing up for half an hour, or even cooking that I get pain in my lower back. The pain is so bad that it makes me feel sick or lightheaded, but I do not moan and simply endure it. https://disabledentrepreneur.uk/epidural-analgesia/
Swallowing Food.
Swallowing food (Dysphagia) can be a problem at times (not all the time, just occasionally), and even taking small bites and chewing is frightening when food gets stuck. Banging on my breastbone and jumping up and down rarely relieves the issue and I must wait a few antagonizing minutes waiting for it to naturally slither down. I have had to put my fingers down my throat in the past just to dislodge the food, which no longer seems appetizing to continue to finish my meal thereafter.
My Cerebellar Atrophy.
I was diagnosed with Cerebellar Atrophy over ten years ago and have noticed of late that I get dizzy spells and sometimes I need to grab hold of something to stop me from falling. I did fall down the stairs albeit 5 steps over a year ago as I mentioned in my letter and most recently, I lost my balance when I was at the top of the stairs. https://disabledentrepreneur.uk/i-nearly-died-due-to-losing-my-balance-of-cerebellar-atrophy/ I believe my cerebellar atrophy was from the head trauma I endured from my ex.
My Depression.
All I will say is that I had a Police welfare check after British Gas reported me last month. I won’t say I was suicidal as you have to have a lot of guts to go through such a thing and I do have things to live for. But I would be lying if I said I was not sad or depressed. I try to keep myself busy all the time to forget all the bad things that have gone wrong in my life and I do use this online journal to vent my anger and share my thoughts (I see this journal as online therapy, considering I have had little help from the NHS and by coincidence, I told the Police about the letter I wrote, that was not responded to by any Doctor, the PCW rolled her eyes in disbelief).
“I will say one thing though I am a survivor of domestic violence. I do get stressed and very anxious at times and have little patience for people, especially ones that are condescending and judgmental. So, unless you have walked in my shoes you have no right at all the judge me”.
Final Note.
PIP Assessment. The criteria are as follows:
(One needs twelve points to qualify, furthermore how can someone measure pain. Everyone’s pain threshold is different).
I have just done a Self-PIP Test On:
I will use the points system and this online journal as proof of my disability.
https://www.benefitsandwork.co.uk/pip-test-form
I score thirty-one points.
What the points criteria do not mention is:
Do you experience:
- Stress
- Anxiety
- Depression
- Suicidal Thoughts
- Intrusive Thoughts
- Cognitive Impairment (Jumbling Up Words Or Totally Missing Words Out Of Sentences
- Obsessive-Compulsive Disorder
- Dysphagia
- Loss of Balance
- Sitting
- Bending
- Insomnia
- Pain
- Numbness
- Experience Light Headiness
- Confusion
- Lack of Concentration
- Social Disconnection
- Forgetfulness
You should read the reviews about this surgery to understand how unprofessional they are. If you report them you run the risk of being kicked out. https://disabledentrepreneur.uk/doctor-patient-confidentiality/
Both my daughter and I have been told in the past if we do not like how the surgery and staff conduct themselves to find a different doctor, in other words, leave.
When you are ‘DEPENDENT ON MEDICATION’ as both my daughter and I are, imagine having to wait to be assessed by a new doctor’s surgery (it is more hassle than it’s worth and you most probably have to physically come in which I have a problem with social disconnection, which will be out of the question unless it was an emergency).
https://nicelocal.co.uk/cardiff/medical/meddygfa_albany_surgery/reviews/
I am so tempted to give a review for the Doctor https://www.iwantgreatcare.org/doctors/dr-raluca-cristina-capatana/reviews/new?t=origin-profile.
My initial grievance is with the Surgery and the Doctor who does not work there yet her name is still on the website? http://www.wales.nhs.uk/albanyrd/practice-staff
“This online journal serves as evidence of both my daughter and my health condition and anyone else that wishes to participate in the health discussions and get anything off their chest”.
Anyone else that wishes to vent and wants their own space on an exact match searchable keyword domain name should message us below and we will set up a landing page where you too can write to your heart’s content (free of charge).
**Please note if your medical condition is published on our platform, it is not proof you have a disability or illness you must have medical evidence to corroborate your illness, which can be done by visiting your GP, writing a letter, or having an online consultation.
#personalindependencepayments #pip #pipscore #renataonlinejournal #pipselftest
