Disability UK Online News Journal, Disability Business Directory, All In One Business Solutions

Category: Personal Indpendence Payments

Personal Indpendence Payments (PIP) is a governemt benefit that pays money to help you with everyday life if you’ve an illness, disability or mental health condition. You can claim on top of Employment and Support Allowance or other benefits. Your income, savings, and whether you’re working or not or social status will not affect your eligibility.

GP (Doctor) Negligence Evidence.

GP (Doctor) Negligence Evidence.

** This post is primarily for the UK. I have written several articles about my GP (Doctor) Negligence and Doctor-Patient Confidentiality in recent times. I am for my own records posting evidence they have only confirmed my letters have been put on the system but both times have not been actioned. Furthermore, I have been in communication with several people, not only relating to this particular surgery but others around the UK also encountering similar problems. I have now discovered why GP (Doctor) Surgeries are backlogged… read more…

Local doctors’ surgeries across the UK are either closing or their clinicians are retiring early.

The impact of the aftermath of the pandemic has caused a strain on doctors and other workers in local GP practices which have seen some “struggling to maintain regular services” which has meant some closing surgery doors to all but the most urgent cases.

Playing “Russian Roulette”, with people’s lives is what is happening as each day brings new absences. Those with overall responsibility for general practice, such as NHS England and the Clinical Commissioning Groups (CCGs), have had “no backup plan”.

Doctors revolt over pension tax rules: What sparked the row? | This is Money

A survey carried out by the Royal College of GPs (RCGP) found that at least a third of doctors were planning to retire in the next five years, leaving 14,000 fewer GPs than are currently working.

Addressing the Health and Social Care Committee, retired GP Dr. Andrew Green said, “We need to accept that 10-minute appointments are not safe. The only way that you can run a 10-minute appointment surgery on time is by cutting corners.

Therefore introduce a questionnaire to be filled out by patients who could then write about their ailments for the doctors to review” similar to what I have done, although my surgery is as helpful as a chocolate fire guard. A ten-minute appointment can then be reduced to two or can be done online using encryption software”

According to “herd immunity” policy, which has allowed the coronavirus to rip through the population in successive and ever-higher waves of infection, has placed intolerable burdens on NHS hospitals.

“This is all smoke and mirrors and I believe the herd immunity is working because most people would have received their vaccinations. I believe it is down to the doctors themselves not managing their time properly or insufficient staff quotas”.

This has produced a monumental backlog of those waiting for vital elective procedures, which now exceeds 6 million. In turn, this increases pressure on GPs, who must manage patients on excessively long waiting lists, with some people forced to live with excruciating pain or physically limiting conditions. UK doctor’s surgeries forced to close doors to all but urgent care needs – World Socialist Web Site (wsws.org)

However, more common reasons cited for wishing to depart included feeling exhausted, overworked, and underpaid, as well as having too little time to do their jobs to the desired standard.

Senior doctors in the NHS are reducing their hours, turning down extra work, and even retiring early to avoid being hit with huge tax bills on their pensions, a report reveals. NHS consultants ‘turning down work to avoid huge pension tax’ | NHS | The Guardian

The government’s enforced collapse of free universal healthcare services will be used by it to push for the further privatization of the sector.

“Just mark my words and won’t be long before our NHS collapses and we will have to have to have insurance or pay towards our healthcare”.

UK doctor’s surgeries forced to close doors to all but urgent care needs – World Socialist Web Site (wsws.org)

EVIDENCE

Evidence of the emails I received to state my letters were logged on the system.

FINAL NOTES:

To recap I wrote a letter which I emailed last year 9 pages long and this year 15 pages long, it was put on the system and both times never actioned.

I have been told previously by my surgery if I do not like how things are run to change doctors (I am not the only one judging by the Google Reviews). It is easier said than done if you have social disconnection problems, run a business, and do not have time to register at a new surgery never mind the shortfall on the prescribed medication, whilst you wait for your registration to be approved and your medical records sent over.

The NHS are playing “Russian roulette”, put it this way my doctor’s surgery, in particular, most definitely is playing with people’s health.

If you are unhappy you should first address your practice manager or write to your head doctor failing that you can complain to the NHS (see links below).

I know I could take this further and I will one day, but at the moment I am dependent on my medication, albeit there is a shortage of Gaviscon.

NHS NEGLIGENCE COMPLAINTS

https://www.mind.org.uk/about-us/our-policy-work/you-and-your-gp/for-gp-patients/

https://www.nhs.uk/using-the-nhs/about-the-nhs/how-to-complain-to-the-nhs/

https://www.nhs.uk/service-search/other-services/Patient-advice-and-liaison-services-(PALS)/LocationSearch/363

https://www.nhs.uk/service-search/other-services/Clinical-Commissioning-Group/LocationSearch/1

https://www.cqc.org.uk/contact-us/how-complain/complain-about-use-mental-health-act

https://www.ombudsman.org.uk/

https://www.ombudsman.org.uk/publications/my-expectations-raising-concerns-and-complaints

HOW TO COMPLAIN

https://www.nhs.uk/using-the-nhs/about-the-nhs/how-to-complain-to-the-nhs/

https://www.nhs.uk/service-search/other-services/Patient-advice-and-liaison-services-(PALS)/LocationSearch/363

(Recommended)

https://www.ombudsman.org.uk/

#nhs #doctorssurgeries #generalpractitioners #dutyofcare #doctorspractice #negligence

PIP Personal Independence Payment Delays And The Repercussions On Mental & Physical Health.

PIP Personal Independence Payment Delays And The Repercussions On Mental & Physical Health.

Disclaimer Scotland: People in Scotland will no longer be able to make a new claim for Personal Independence Payment (PIP) from August 29 when the benefit will be replaced by Adult Disability Payment (ADP) in all 32 council areas across the country. At present, 13 local authorities are now offering ADP to adults over 16 and under State Pension age living with a disability, long-term illness or a physical or mental health condition.

Most people don’t like complaining and will not make a formal complaint about anything let alone the DWP, because they believe it would be a waste of time and could cause a knock-on effect on their other benefits.  For those that do complain and, after many months of pursuing, end up giving up.  The ones that are determined come away with a pathetic apology and feel they have hit a brick wall. They accept the mediocre admission by the DWP or Atos, Capita, that these organizations made a mistake and nothing else happens, their mental health is simply disregarded without a second thought.

ANN ABRAHAMS – REPORT

However, the most recently released report reveals that a tiny number of people pursue their complaints further and end up being awarded large sums in compensation. The report is called ‘Small mistakes, big consequences’ and is written by Ann Abrahams, the Parliamentary and Health Service Ombudsman. Ann Abraham should be a name that should stand out as well as your local MP.

Remember nothing happens quickly after all these people are not in a hurry to find money to put food on their tables, only you are”…

(The report can be downloaded using the following link: Parliamentary and Health Service Ombudsman Small mistakes, big consequences HC 6 (publishing.service.gov.uk)

MEDICAL EVIDENCE

Your illnesses and disabilities should be corroborated with medical evidence and letters from GPs and consultants. This payment is to help with your daily living and is not an alternative to being a benefit bum and living off benefits. This payment is for people who truly deserve the extra money because of their disabilities. The reason why the Government is clamping down is because of too many fake, lazy individuals that see this as free money.

DELAYS

Delays are causing people to become ill through worry and stress. https://www.mind.org.uk/information-support/types-of-mental-health-problems/stress/what-is-stress/ Hundreds of thousands of disabled people are having to wait for £300 million of vital support, according to a new analysis from Citizens Advice.

Citizens Advice said: “PIP, which can see people with an illness, disability or mental health condition receive up to £157 a week, is a lifeline for millions of people, yet the government is playing with people’s lives and their health.

There are currently around 327,000 Disabled people on the waiting list, with an average waiting time of five months. Citizens Advice projects this means £300 million of payments that would be awarded are being held up, after all the government needs to look after themselves first before thinking about the other half of the population. You are not their priority, although you should be.

“Waiting for this payment is having a huge impact on people’s lives. Delays in assessment mean that support is held up, forcing people into impossible choices as they try to make ends meet.”

STATISTICS

  • People are facing humiliation as 1 in 5 people have needed to go to a food bank in the last 3 months who have also had an issue with PIP. Many of those waiting for a decision will also be eligible for the £150 disability benefits cost-of-living support payment but are unlikely to get it before October’s mammoth energy price hike.
  • There are more people coming to Citizens Advice for help with PIP than with any other issue in fact an astonishing 41% more than any other issue.
  • Around 150 people are contacting advisors at Citizens Advice every hour for one-to-one help, and its webpage on “How the DWP makes a decision on PIP claims” had 27,700 page views last month, up 56% year on year.

CITIZENS ADVICE

Citizens Advice is calling on the Government to take urgent action to relieve pressure in the system and help get money to people who desperately need it. It is calling for an emergency plan from the Secretary of State for Work and Pensions to urgently tackle this backlog, including reducing the number of claimants required to have a medical assessment, which is the main reason for these delays – and extending the award period so people have to reclaim less often.

The severe PIP assessment backlog is not just affecting new claimants but also those seeking reassessments or needing extensions to their claims. These lengthy delays are having a substantial impact on their applications for other benefits such as blue parking badges, bus passes, and Motability vehicles.” https://disabledentrepreneur.uk/bus-passes-for-the-disabled/

Backlogs in the disability benefit assessment system are having significant knock-on effects on disabled people’s ability to live independently, new evidence has shown.

These delays are also causing further turmoil for disabled people whose support needs have increased and believe they should now be entitled to higher PIP payments.

The evidence has come from the Benefits and Work website, which has heard from a string of existing PIP recipients who say the delays are causing tremendous emotional distress and significant problems.

In March, Disability News Service (DNS) reported how the backlog of disabled people waiting for a PIP assessment had more than trebled in the last five years, from 88,500 in October 2016 to nearly 312,000 by December 2021.

DNS has also reported on similar problems with the Access to Work system, with DWP figures showing the number of disabled people waiting for decisions on their applications has more than quadrupled in a year from just 4,890 in March 2021 to 20,909 in March this year.

One of the ways the Department for Work and Pensions (DWP) is dealing with the lengthening PIP assessment backlog is by providing temporary (3 months), short-term extensions to PIP claimants who are waiting for their benefits to be reviewed.

Editors’ Opinion – “Do they not have enough unemployed people to do a bit of paperwork? How about outsourcing the work would be another idea and finally only appraise the people that have medical evidence to corroborate their illnesses”?

The Government is purposely dragging its heels in order to save money.

“This is Evil, a Disgrace, and a Shambles”.

Vicky Foxcroft, Labour’s shadow minister for disabled people said:

“With the cost-of-living crisis hitting disabled people particularly hard, it is shocking this government has not got a grip of the PIP backlog, which has been going on for months now”.

“Short-term fixes aren’t enough anymore. Disabled people deserve so much better than this; Tory ministers need to get a grip on this backlog, especially given the impact it is now having on other benefits for disabled people.

“A future Labour government would invest properly in disabled people, ensuring they had the support needed.”

A DWP spokesperson said:

“We closely monitor the progress of PIP cases awaiting assessment and take all steps possible to ensure claimants receive the vital support they require”.

“We can and do make in-house decisions on award reviews without referral to assessment providers where necessary and use a blend of phone, video, and face-to-face assessments to ensure support is given as quickly as possible.”

People Who Suffer From OCD

Daily Living Descriptor 6 – Obsessive Compulsive Disorder

The Upper Tribunal has recently made a decision (CPIP/3760/2016) about how people with OCD can claim points under PIP.

BACKGROUND

The PIP Regulations say that people who can’t do an activity listed in one of the PIP descriptors safely, repeatedly, to an acceptable standard, and no more than twice as slowly as a non-disabled person, shouldn’t be counted as being able to do that activity for the purposes of PIP. (I keep a note of my health online and so does my daughter. I think as a sufferer of OCD the form does not actually cover all the different types of OCD). https://disabledentrepreneur.uk/category/renatas-online-journal/ & https://disabledentrepreneur.uk/category/zena-online-journal/

Therefore there has been some confusion about people with OCD, who usually can do an activity perfectly well, but have to do it over and over again or in particular ways or at particular times.

(Assessors who are not specialized in diagnosing OCD or any other illness should not have any input about the claim – just because they have passed e-learning does not make them any more qualified than you or me).

The PIP descriptors and the regulations didn’t deal with this sort of situation very well and so lots of people with OCD lost out on awards. Now the Upper Tribunal has looked at the issue and made a judgment that will help people with OCD to earn points for PIP.

WHAT THE UPPER TRIBUNAL DECIDED

The Upper Tribunal case was about a person who took a very long time to get dressed because their OCD meant they had to repetitively try on lots of different outfits until she found one she was happy to wear. The DWP argued that this long time didn’t count for the purposes of PIP because it was just the person’s choice to try lots of clothes on. The Upper Tribunal, however, held that because the person’s hesitations and repetitive behavior were ‘the consequence of her health condition’, she was entitled to points because it took her more than twice as long as a non-disabled person to dress. But the UT did say that if the longer time had not been a consequence of her health condition, she would not have been entitled to points.

This decision is important because the principle that delays in being able to complete a task because of the consequences of a mental health condition like OCD can be applied to all descriptors, not just dressing. So a person with OCD who can eat perfectly well but who takes an hour to eat because of obsessive rituals about arranging the table, or a person who can wash perfectly well but who does so eleven times three times a day, could claim points under those PIP descriptors.

WHAT THIS MEANS FOR YOU

If you have OCD for example and have obsessive rituals or other behavior which means that you take much longer to do activities of daily living like cooking, eating, dressing, and so on, then you now can use this Upper Tribunal decision to strengthen your argument for claiming PIP.

Note that you will still have to be able to show that you have been diagnosed with OCD or a similar mental health condition and you do in fact have behavior that means you take much longer than a non-disabled person to complete daily living activities. Good strong evidence from people who know you will be needed.

You will also have to show that your behavior is a consequence of your mental health condition and not just your own preferred way of doing things. Showing that you can’t change the way you do things even if it is against your interests will be useful – eg that you miss appointments because you can’t get there in time owing to a dressing ritual.

DIFFERENT TYPES OF OCD

OCD is a very complicated illness it is not just about washing or checking or taking too long to shower, dress or cook food. It may be the fear of germ contamination (as I have). I know logically we are surrounded by germs but the thought of contracting something or being harmed through direct contact with an unsanitized area does not bear thinking about. I am cocooned in my own surrounding where I can keep my intrusive thoughts under control as best I can. My disabilities are not just OCD, they are Depression, Social Disconnection, and Cognitive Impairment (Cerebellar Atrophy) to name a few.

TIMING

As with everything, it all takes time and you are not a priority.

Upper Tribunal decisions take time for your claims, mandatory reconsideration, and appeals, and it may take some months before DWP and assessors finally make the decision.

Unfortunately for you, this causes considerable stress on your mental health and pressure on your finances. You can either suffer and do nothing other than wait or you could complain.

If your appeal is taking longer than expected you have grounds to contact the ombudsman.

If you have been treated unfairly and given the DWP and Tribunal time to respond and they have not within the timeframe then you need to start getting all your evidence together to build a case. You can take it even further and take it to an Ombudsman (Last Resort).

You can read the full judgement herehttps://www.gov.uk/…/ml-v-secretary-of-state-for-work-and-p…

USEFUL LINKS:

PIP delays leave disabled people hundreds of millions of pounds out of pocket – Citizens Advice

How do some claimants get thousands of £££ in DWP compensation (benefitsandwork.co.uk)

How to use DWP for compensation? – LegalBeagles Forum

http://en.wikipedia.org/wiki/Upper_Tribunal

http://www.justice.gov.uk/about/hmcts/tribunals

adminappeals@hmcts.gsi.gov.uk

Suing DWP for compensation … — Scope | Disability forum

Complain to us: getting started | Parliamentary and Health Service Ombudsman (PHSO)

FINAL THOUGHTS FROM THE EDITOR!

If an organization or entity causes you to become unwell because of their actions, they should be held responsible and should pay for damages.

If people are becoming mentally and physically unwell because of the Government’s actions then the claimants should be awarded compensation.

If you have been affected by:

  • Emotional Distress (causing, stress, anxiety, depression, intrusive thoughts, and making your mental illness worse).
  • Indirect Discrimination (entity assuming because you have an invisible illness you are classed as normal).
  • Harassment
  • Intimidation
  • Humiliation (having to go to food banks or being pitied because you are disabled).

Consequences

If your illness gets worse because of an entity’s direct action and in the cases of auto-immune diseases you can relapse because of stress: https://www.everydayhealth.com/hs/living-better-with-ms-guide/triggers-that-can-cause-ms-flares. then, you have under the human rights act the right to take further action. https://www.equalityhumanrights.com/en/advice-and-guidance/what-direct-and-indirect-discrimination

Flawed System

The PIP system is flawed, it employs people who are not qualified in the field of the illness (one needs to be a specialist in the field and should undergo years of training as well as qualifications to determine what the claimant is suffering from). The system is designed to degrade people and to make them unwell. The more people that become unwell the more money Big Pharma makes and that is how the world goes round.

Making a Complaint

Do exhaust all avenues of complaint procedures before contacting the ombudsman and do collate as much evidence as you can. If you have a blog or social media page share it with the people I have mentioned in this article. People usually take notice if you have a professional site and you know what you are talking about.

If you want our help and need a letter we can send you a template with all users, names, and addresses and you fill in the blanks. Our template letters are £5.00 and you will get a download link once the payment has been processed, if you want us to write the letter for you it will cost £25 per 1000 words. Your privacy and data will be safeguarded with a non-disclosure agreement.

PIP Mailing Address is:

Personal Independence (2), 2 Mail Handling Site (A), Wolverhampton., WV98 18B

Tel Number:

0800 121 4433 ( be prepared to wait 45 minutes to be put through)

Email:

contactus@capita-pip.co.uk

** Just to explain when I spoke to PIP today over my daughter’s award the woman said that my daughter or I would have to submit evidence by post. Knowing they had an email I said could it not be done electronically (I bit my tongue about saving the environment) and the woman I spoke to blatantly lied and said there is no email address.

The amount of time I had to wait to be put through could easily cause someone who has multiple sclerosis or any other auto-immune disease and suffers from bad stress and anxiety to easily relapse. Furthermore, I do not know who they employ because I had to spell Alemtuzumab out even though I clearly told the woman the word can be found on www.lemtrada.com.

I am not looking forward to the assessment my daughter is due to have because if they make my daughter perform like a circus monkey that will mean I will have to intervene. My daughter documents her health in her online journal on this platform. I am not looking forward to having to deal with these people.

Contact Us For a Template Using The Form Below:

Further Reading

DWP admits wrongly rejecting disabled people for benefits at record rate | The Independent

People who claim PIP or were denied benefit payments could be owed £13,000 due to rule change | The Sun

‘I’ve recently had my PIP benefit claim turned down – how can I appeal it’ – Mirror Online

Thousands of people ‘wrongly’ denied PIP disability payments after surging in DWP appeals – Mirror Online

#dwp #pip #personalindependencepayments #invisibledisabilities #indirectdiscrimination #humanrights #equalityact #ocdandpip #emotionaldistress #humiliation

Insulting My Intelligence, the meaning!

Insulting MY Intelligence.

I am rattled today because of an email I received from an agency that is run by my local council and they seem to separate themselves even though they are one. They are basically saying that they are not the local council and are passing the buck.

I am getting irate because this is costing me time having to argue with them and not to mention it is also affecting my daughter’s mental health and it is also affecting me. We both have disabilities and I fight my daughters’ battles even though it sometimes can also affect me too.

“No one can make you feel inferior without your permission.” – Eleanor Roosevelt

“Never argue with stupid people, they will drag you down to their level and then beat you with experience.” – Mark Twain

“Trusting someone’s opinion over your own is admitting you believe they’re smarter than you are.” – Charles Faraone

It takes a lot to get me rattled but people (sheep reading off scripts) do push my buttons and eventually if one does it enough times “you will see me blow”.

I am normally a calm person but if people purposely wind me up and think I am an idiot to believe the BS, they have another thing coming.

Not only this, the said agency is basically insinuating that Multiple Sclerosis is Not a Disability and they are undermining the results by the Professor of Neurology.

“This post serves as the foundation of the whirlwind I will stir and will happily sing like a canary”.

Me, The Singing Canary!

So despite showing evidence that my daughter has had a relapse this said agency is still in need of more evidence. My daughter’s neurologist is on annual leave should I demand he drop his holiday and everything else he is doing to pussyfoot around these people?

I find the behavior of this agency is causing emotional distress and indirectly discriminating which is against the law. If I have proven my daughter has relapsed and needs help getting around occasionally, as no two days are the same, you would think they would be more understanding but they keep putting obstacles in the way and causing distress.

I am dealing with this as I do not want my daughter to relapse again and I will not allow her to jump on one foot whilst touching her nose and act like a performing seal just to prove a point. I reiterate medical evidence will suffice and she will not be questioned by someone who is not qualified for the role (my daughter’s friend is a PIP assessor with only GCSEs to her name).

Indirect discrimination

Indirect discrimination happens when there is a policy that applies in the same way for everybody but disadvantages a group of people who share a protected characteristic, and you are disadvantaged as part of this group. If this happens, the person or organization applying the policy must show that there is a good reason for it.

A ‘policy’ can include a practice, a rule, or an arrangement.  

It makes no difference whether anyone intended the policy to disadvantage you or not.  

To prove that indirect discrimination is happening or has happened:

  • there must be a policy that an organization is applying equally to everyone (or to everyone in a group that includes you)
  • the policy must disadvantage people with your protected characteristic when compared with people without it
  • you must be able to show that it has disadvantaged you personally or that it will disadvantage you
  • the organization cannot show that there is a good reason for applying the policy despite the level of disadvantage to people with your protected characteristic

If the organization can show there is a good reason for its policy, it is not indirect discrimination. This is known as objective justification.

https://www.equalityhumanrights.com/en/advice-and-guidance/what-direct-and-indirect-discrimination

Note From The Editor.

With this said if an organization treats someone with ‘Multiple Sclerosis’ or any other ‘Invisibile Disability’ the same way you would treat a normal able body person, they are in fact indirectly discriminating, which is against the law.

With Multiple Sclerosis you have good days and you have bad days.

The weather can impact your health.

No two days are the same.

The same can be said with someone with mental health issues, one day you can be somewhat fine and other days you could be not doing so well.

There is no way of measuring or predicting if a person will be ok from one day to the next.

Not only this arguing with people (sheep), causes emotional distress which in the case of ‘Multiple Sclerosis’ can cause a person to relapse.

If this continues I will be looking to seek damages for:

  • Emotional Distress
  • Indirect Discrimination.

#travelcards #multiplesclerosis #indirectdiscrimination #humanrights

Renata’s Online Journal – Health Update.

Renata’s Online Journal – Health Update.

I have been doing some research on GP communication as I am concerned about how a letter that I wrote to my GP over a year ago was never answered yet it was confirmed that it had been added to the system.

In comparison, my daughter who has Multiple Sclerosis has a Neurologist Consultant at the “University Hospital Wales” who lectures at Cambridge University, and even on annual leave, had the courtesy of responding to my daughters’ emails.

This shows the consultant’s professionalism and sets him apart from mediocre general practitioners who do not give a monkey about your health, only about how many drugs they can prescribe. https://disabledentrepreneur.uk/what-doctors-wont-tell-you/

I have been let down by the system because for years I have been prescribed the same medication and have never been offeredPsilocybin Mushrooms‘.

https://www.medicalnewstoday.com/articles/psychedelic-therapy

https://www.drugs.com/illicit/psilocybin.html

I could have easily been treated for my OCD years ago but I guess if that was the case how much money Big Pharma would have missed out on.

I must admit I have never used recreational drugs and if look at the series on Netflix which prompted me to look into this I do not see why I have to poison myself with the medication I am prescribed when there is an alternative. In fact, this has really angered me that not only the local GP do not care about their patients but I could have been potentially cured years ago. I do not see why I have to be a cash cow for the GPs and Pharmaceutical Companies.

Personal Independence Payments (PIP).

So, I have found that the Government has instructed GPs to not respond to PIP and Disability Claims, requested by claimants. GPs in southeast Wales have been told to stop writing letters for patients appealing against decisions to stop benefit payments because it is an “abuse of resources”. (A bit of coinky-dinkle I think). https://www.bbc.co.uk/news/uk-wales-south-east-wales-23353623

The letter I wrote last year had nothing to do with supporting evidence it was to let the Doctor know that I was finding it difficult to do certain things and needed some support or advice.

I do not need my GP fighting my corner because I am more than capable of fighting my own battles.

Unfortunately, even paying for a letter (privately) will be dismissed because the Government has some say for GPs not to support your claim. This is wrong because the GP only knows what the patient tells them and if I write another letter and a link to this site it will corroborate what I am saying.

I did not design this site as clickbait, I designed it as a form of therapy for myself, for my daughter, and for others like us.

When my review comes up for renewal, I will not be jumping through hoops or performing like a circus monkey hopping on one foot, or bending to prove I have disabilities.

Anyone that knows me, knows I have only left my home once in the last 3 years.

Last year I wrote 5 things that were wrong with me and I never had a reply. I then spoke with the practice manager that told me to phone in to book an appointment but with one ailment at a time that would mean I would have had to make five separate calls. Besides, I have anxiety phoning anyone let alone a doctor. https://disabledentrepreneur.uk/anxiety-phoning-your-gp/

My Health Updated 06/07/22

The GP only knows what the patient tells them and although I am self-employed, I know I would never suit an employed environment for the following reasons, although I have built my brand so have no reason to change.

I am the Editor of this site and will continue doing what I am doing and report my findings.

Not everyone is looking for a handout and if there is available money that one is entitled to, one should get what rightfully is owed without jumping through hoops or begging. Don’t offer money and then expect some to hop on one foot whilst touching their nose, it is humiliating and furthermore, the ones that want to swindle the system will perform Oscars. The only way to know for definite if someone is telling the truth is by medical records or published documentation.

“I reiterate I am the Editor of this site, (MON-SAT 9 am – 5 pm) and I am also disabled. I should not have to prove anything that is not already documented or published”. https://disabledentrepreneur.uk/personal-experience-with-claiming-pip/

My OCD.

I suffer from OCD, I have suffered with OCD for the best part of 30 years I am super aware of my surroundings and avoid contact with the outside world (social disconnection) as much as possible. I can deal with the Postman, Courier or Delivery Driver, and Workmen, but that is as far as it will go. I do not have people visiting me and I like it that way. Even at home, I have triggers that cause intrusive thoughts. For example, when the cat brushed past me the other day, it consequently caused me to have a panic attack and anxiety, making me change my clothes and put the contaminated clothes in the wash. I have binned things (some expensive) that I have not managed to disinfect in the past. I cannot be around people, and I prefer my own company anyway. I am fortunate that the job I do has little to no human contact. I am fine online but have problems in the physical world. I use disposable latex gloves to touch things and go through about five hundred pairs a month.

My Bladder.

I have overactive bladder issues and go to the loo every 1.5 hours. It could be from the excess caffeine intake (I need to drink energy drinks to get me through the day). I take Mirtazapine 30mg tablets to help me fall asleep they do jack Sh#t for my OCD.

In a normal work environment needing to go to the bathroom frequently would be difficult because unless the toilet was in proximity, I could potentially have an accident which would then prove embarrassing, and I am not going to take any chances. My bladder gives me little or no warning and when you got to go, you got to go. It is a good job my bathroom is only twenty-five steps away.

Physical Pain.

My pain in my knee is manageable providing I have my meds on hand, and I am in a warm place. The moment it starts to get chilly my knee starts throbbing in dull pain. Getting in and out of the bath is comical because I cannot bend my knee to get in the bath and when I do it is very painful. (But only people who have had their knee kicked seven times purposely would know what I am talking about).

My back pain is concerning because sometimes if I bend to do simple tasks like sort rubbish or feed the cat, I get spasms in my lower back that escalate up my spine to my neck where the feeling that I can describe is like pins and needles or electricity in the nape of my neck. It is not just when I bend it is from standing, washing up for half an hour, or even cooking that I get pain in my lower back. The pain is so bad that it makes me feel sick or lightheaded, but I do not moan and simply endure it. https://disabledentrepreneur.uk/epidural-analgesia/

Swallowing Food.

Swallowing food (Dysphagia) can be a problem at times (not all the time, just occasionally), and even taking small bites and chewing is frightening when food gets stuck. Banging on my breastbone and jumping up and down rarely relieves the issue and I must wait a few antagonizing minutes waiting for it to naturally slither down. I have had to put my fingers down my throat in the past just to dislodge the food, which no longer seems appetizing to continue to finish my meal thereafter.

My Cerebellar Atrophy.

I was diagnosed with Cerebellar Atrophy over ten years ago and have noticed of late that I get dizzy spells and sometimes I need to grab hold of something to stop me from falling. I did fall down the stairs albeit 5 steps over a year ago as I mentioned in my letter and most recently, I lost my balance when I was at the top of the stairs. https://disabledentrepreneur.uk/i-nearly-died-due-to-losing-my-balance-of-cerebellar-atrophy/ I believe my cerebellar atrophy was from the head trauma I endured from my ex.

My Depression.

All I will say is that I had a Police welfare check after British Gas reported me last month. I won’t say I was suicidal as you have to have a lot of guts to go through such a thing and I do have things to live for. But I would be lying if I said I was not sad or depressed. I try to keep myself busy all the time to forget all the bad things that have gone wrong in my life and I do use this online journal to vent my anger and share my thoughts (I see this journal as online therapy, considering I have had little help from the NHS and by coincidence, I told the Police about the letter I wrote, that was not responded to by any Doctor, the PCW rolled her eyes in disbelief).

“I will say one thing though I am a survivor of domestic violence. I do get stressed and very anxious at times and have little patience for people, especially ones that are condescending and judgmental. So, unless you have walked in my shoes you have no right at all the judge me”.

Final Note.

PIP Assessment. The criteria are as follows:

(One needs twelve points to qualify, furthermore how can someone measure pain. Everyone’s pain threshold is different).

I have just done a Self-PIP Test On:

I will use the points system and this online journal as proof of my disability.

https://www.benefitsandwork.co.uk/pip-test-form

I score thirty-one points.

What the points criteria do not mention is:

Do you experience:

  • Stress
  • Anxiety
  • Depression
  • Suicidal Thoughts
  • Intrusive Thoughts
  • Cognitive Impairment (Jumbling Up Words Or Totally Missing Words Out Of Sentences
  • Obsessive-Compulsive Disorder
  • Dysphagia
  • Loss of Balance
  • Sitting
  • Bending
  • Insomnia
  • Pain
  • Numbness
  • Experience Light Headiness
  • Confusion
  • Lack of Concentration
  • Social Disconnection
  • Forgetfulness

You should read the reviews about this surgery to understand how unprofessional they are. If you report them you run the risk of being kicked out. https://disabledentrepreneur.uk/doctor-patient-confidentiality/

Both my daughter and I have been told in the past if we do not like how the surgery and staff conduct themselves to find a different doctor, in other words, leave.

When you are ‘DEPENDENT ON MEDICATION’ as both my daughter and I are, imagine having to wait to be assessed by a new doctor’s surgery (it is more hassle than it’s worth and you most probably have to physically come in which I have a problem with social disconnection, which will be out of the question unless it was an emergency).

https://nicelocal.co.uk/cardiff/medical/meddygfa_albany_surgery/reviews/

I am so tempted to give a review for the Doctor https://www.iwantgreatcare.org/doctors/dr-raluca-cristina-capatana/reviews/new?t=origin-profile.

My initial grievance is with the Surgery and the Doctor who does not work there yet her name is still on the website? http://www.wales.nhs.uk/albanyrd/practice-staff

“This online journal serves as evidence of both my daughter and my health condition and anyone else that wishes to participate in the health discussions and get anything off their chest”.

Anyone else that wishes to vent and wants their own space on an exact match searchable keyword domain name should message us below and we will set up a landing page where you too can write to your heart’s content (free of charge).

**Please note if your medical condition is published on our platform, it is not proof you have a disability or illness you must have medical evidence to corroborate your illness, which can be done by visiting your GP, writing a letter, or having an online consultation.

#personalindependencepayments #pip #pipscore #renataonlinejournal #pipselftest

Bus Passes For The Disabled.

Bus Passes For The Disabled.

You can apply for a disabled person’s bus pass or rail card if you have an illness and you cannot manage to walk long distances.

People with, mental, physical, and learning disabilities are entitled to apply.

The criteria are that you have to be receiving personal independence payments or a disability living allowance.

You or someone else can apply on your behalf, such as a friend, family member, or carer.

Once approved you will be able to travel for free by bus or get 30% off your train tickets.

Most applications are through your local council as they are the ones that are in charge of public (bus) transport.

Alternatively, you can contact your local Citizens Advice which can help you with the application if you need it. 

Applying for a railcard

You need to use this link to Find out if you’re eligible and how to apply on the National Rail website. Unfortunately, if you do not qualify, you will have to pay the full price for your train tickets. If your application gets rejected you cannot appeal.

Applying for a disabled person’s bus pass 

Criteria:

  • you are blind or partially sighted, deaf, or unable to speak.
  • you cannot walk very far because of a disability, illness, or injuries, such as multiple sclerosis or autoimmune disorder, or a mental illness.
  • you are immobilized you do not have arms or legs.
  • you have a severe learning disability.
  • you’ve been refused a driving license because of your health (but not because of problems with drugs or alcohol). (Although drug addiction and alcoholism is also an illness).

To know if you are entitled to a free bus pass visit the Government website on GOV.UK and see what evidence you’ll need to show if you are eligible.

If you live in London

You’ll need to apply for a ‘Disabled Person’s Freedom Pass’ instead. The eligibility criteria are the same as for the rest of England.

Follow the steps on GOV.UK to apply.

If you don’t qualify for a Disabled Person’s Freedom Pass, you can ask your council for a ‘discretionary bus pass’. Some London councils give these to people who aren’t eligible for a Freedom Pass but have problems getting around.

You might be able to use Dial-a-ride – a free door-to-door bus service run by Transport for London (TfL). You can become a member if you have a long-term disability or if you’re over 85 years old.

You can find out more about Dial-a-ride on the TfL website.

If you are refused a bus pass.

You can appeal to your council if your bus pass application was refused. Check your council’s website to find out how to appeal.

You can also visit your nearest Citizens Advice – an adviser will discuss your options.

Other help you can get.

If you are on a higher disability rate you may also be able to apply for a car, mobility scooter, or powered wheelchair.

If you’re eligible for a bus or rail pass, you might also be able to get:

It’s also worth checking you’re getting all the benefits you’re entitled to – you can use our benefits checker to easily find out.

Final Thoughts From The Editor

Remember you should get what you are entitled to and councils will not make it easy for you otherwise everyone would be doing it.

You have to stand up for your rights or have someone that can appeal on your behalf.

With this said my daughter who has multiple sclerosis and has relapsed, thus is starting her round of treatment of Lemtrada Alemtuzamab on the 4th of July 2022 and finds it hard to walk long distances is in receipt of Personal Independence Payments. Her review for PIP has been postponed and keeps being postponed every 3 months. I am my daughter’s carer and find that this is causing unnecessary stress for my daughter and I have cited that stress can cause people with multiple sclerosis to relapse.

I will come back with an update once I hear back from our local council regarding my daughter’s bus pass. I am finding organizations from Blue Chip Companies to Government Offices either are not fully trained when it comes to the consequences of their actions. A person who is relapsing does not want added stress to further make their illness any worse and God forbid become bedridden.

I have been on the Cardiff Council Travel Website: https://portal.tfw.wales/en/disabled There is no page that says for customers to appeal. I then proceeded to by phoning them and completely forgot the question I needed for this site (cognitive impairment) 🤣😂 although went on to mention my daughter and the woman I spoke to said that nothing was received from my daughter. She also said it is the council’s decision and not theirs, excuse me you are an agency part of the council.

Cardiff Council email address: travelcards@tfw.wales

Cardiff Council phone number: 03003 034 240 Monday to Friday: 09:00 – 17:00

Evidence shows that stress can be a contributing factor to causing relapses in Multiple Sclerosis patients, which can have a bidirectional relationship.

UPDATE 05/07/22

Email Received 05/07/22

Email Content.

Hope you are well.  

I regret to inform you that unfortunately, your daughter does not qualify for the Disabled Concessionary Bus Pass. As an organization, we are only able to approve applicants that score the points specified below on one or more of the following descriptors.  

Department for Work and Pensions (DWP) Personal Independence Payment (PIP) Statement of Entitlement, which shows: Department for Work and Pensions (DWP) Disability Living Allowance (DLA) award letter, which gives details of a Higher Rate Mobility Component (HRMC) award.

8 or more points under Descriptor 7 “Communicating Verbally”; or
12 points under Descriptor 11 “Planning and Following a Journey”; or
8 or more points under Descriptor 12 “Moving Around”.

Please note:  The PIP descriptors and their individual scores MUST NOT be added together. Unfortunately, as an organization, we are unable to carry out individual assessments, however, in this instance, I would recommend getting in touch with your local authority, who will be able to carry out an assessment to clarify if she is eligible for the pass.

Cardiff Council.
County Hall,
Atlantic Wharf,
Cardiff,
CF10 4UW.
Tel – 02920 872087 

Hopefully, this gives some reassurance that there are options that you are able to explore

Kind regards

Leila Rad-Andrews

My Comments.

The above email is inaccurate because the last time my daughter had an assessment was in 2018 and since then she has lapsed twice. My daughter has since done an online assessment test which states she has between 15 & 19 points.

Despite sending in multiple emails including my daughter’s PIP award they have had the audacity to decline my daughter a bus pass.

She is currently in hospital having Lemtrada Alemtuzumab treatment for her Multiple Sclerosis as she has relapsed and this is causing her unnecessary emotional distress which could lead to further relapses.

https://www.everydayhealth.com/hs/living-better-with-ms-guide/triggers-that-can-cause-ms-flares/

https://disabledentrepreneur.uk/zenas-online-journal-alemtuzumab/

“If it is found that my daughter relapses again because of the stress this is causing her, somebody should be held responsible”.

Update 07/07/22

As my daughter’s carer, I am shocked at how I have been given the runaround. Transport for Wales wrote to both my daughter and me in an email stating that she was not entitled to a bus pass because she did not have enough points.

I explained since the last assessment she has since relapsed and just come out of hospital for her treatment yesterday. So any changes will not be reflected. It is as if the arse does not know what the elbow is doing because when I phoned the number that ‘Transport For Wales’ gave me (which was the switchboard for Cardiff City Council) I was then re-directed back to ‘Transport For Wales’ who told me it was Cardiff City Council Hub-Team that I needed to speak to. I then phoned the number again and was told I had to phone 02920871071 which I did, who then told me I had to speak with the Library. I spoke with the hub/library two days ago and I was sent out an application form even though my daughter already filled one in?

We have submitted all the relevant information by email and we are simply getting the runaround. I finally got an email address advicehub@cardiff.gov.uk yet the hub two days ago said they do not have email addresses, yet today the number I phoned told me to go to the library (as if I am going to shut down my business to take time out is hilarious and beyond unbelievable 😂🤣)… and miraculously they found an email address 😂🤣.

According to ‘Transport For Wales’, my daughter is ‘NOT DISABLED ENOUGH’ to be entitled to a bus pass, even though she has ‘MULTIPLE SCLEROSIS’ and has relapsed.

My Daughters’ PIP Test States She Has 15 -19 Points: https://disabledentrepreneur.uk/zenas-pip-self-test/ contrary to her last assessment that was done a few years ago and since then she has relapsed twice and has just finished treatment. https://disabledentrepreneur.uk/zenas-online-journal-alemtuzumab/

I said in mid-flow of the conversation that this is to do with Government purse strings and the guy I spoke to had not got a clue what I was talking about (I have no words 😂🤣 ).

The criteria are as follows:

(One needs twelve points to qualify).

What the points criteria do not mention is:

(Conveniently)…

Do you experience:

  • Stress
  • Anxiety
  • Depression
  • Suicidal Thoughts
  • Intrusive Thoughts
  • Cognitive Impairment
  • Loss of Balance
  • Insomnia
  • Experience Pain
  • Numbness
  • Experience Light Headiness
  • Confusion
  • Lack of Concentration
  • Social Disconnection
  • Forgetfulness

I will update you once again once I get a response from the Advice Hub.

“I dread to think about what the stress could potentially do to someone with progressive autoimmune disease”.

I could feel myself blowing a gasket never mind someone with multiple sclerosis who has literally come out of hospital for treatment because of a relapse.

If you have any questions or need to be steered in the right direction do drop us a line using the form below:

#disabilitybuspass #discretionerybuspass #freebuspass #buspass #mobility #transportforwales #multiplesclerosisstress #multiplesclerosis #MS #multiplesclerosisresplapse

Cost Of Living on a Low Income and Mental Health.

Blood Out Of A Stone!

Cost Of Living on a Low Income and Mental Health.

I need to share this to get it off my chest, yet I prefer to stay anonymous.

I am self-employed and disabled. I have lost a couple of good-paying clients in the last couple of months.

I am getting housing benefits, working tax credits, and pip and have only a few clients that pay me but not enough so that I can live on, the money I get from my business just about covers my outgoings for my business. I was showing a loss last year on my tax return.

Updated 24/05/22

My Incoming Per Month:

£590 Housing Benefit

£400 Working Tax Credits

£240 Personal Independence Payment

Total £1230

My Outgoings Per Month:

£655 Rent

£270 Utility Bills

£80 Telephone & Broadband (Without Broadband I cannot work)

£91 Insurance

Sub Total £1096.00

£165 Debt Repayment/Loans

Total Per Month £1261.00

This means if I was to pay the utility companies what they want and pay back the creditors what I own I still would not have enough money and I would not have any food to buy.

So even if I put the creditors on the back burner I would only be left with £134 to buy food divided by 4 weeks is £33.50 what can I buy for £33.50?

How the hell am I supposed to survive?

Ideally, if I could make another £500 per month I would be in the clear.

I am trying every which way I can to get more business in and with only four clients on my books, I am struggling.

I know what I do works but it is convincing the tire kickers that is the problem. Believe me there any many tire kickers and scavengers about, simply trying to get as much information out of you for free and then going cold on you. I once contacted a whole suburb that only had Facebook pages and not one of them came back to me even though my prices are cheap, but not that cheap that people think it is too good to be true. So I know it’s not me but society in general not wanting to spend.

Support.

I need someone to help me. I do not need pep talks I just want to get out of the financial dilemma that I am in. I do not need a friend, I do not need a counselor, I just need more work.

I am fed up with having the same heartache day in and day out.

I am feeling very low right now and fighting my hardest to keep my thoughts at bay.

I have no one that can help me, believe me, I have tried reaching out to my family and they won’t help me. I have asked them to share my business on social media, it is not as if I was asking them for money and it went on deaf ears.

They are just waiting for me to fail, just so that they can say “see I told you so”. Anyone that says they are supporting me or have supported me needs to put their money where their mouth is because otherwise, they are full of 💩. I have not been well for some time now and as the months’ progress so does my depression.

Sympathy – Asking For a Period of Grace.

I emailed the electricity company (EON Next) yesterday 15/04/22 that I would be late paying my £34 (they never had a problem during Covid Lockdown).

It is not that I have defaulted yet at the time this gets published and was told that my account has gone to a debt collection agency. I tried phoning them today but conveniently they only operate Mon-Fri, which is causing me so much anxiety as I now have to wait until Tuesday after the Bank Holiday to contact them.

Even looking at my account I am in debt by – £22.84 so is there any need to be so “God Damn Dramatic” as this person has been to make me feel like 💩?

I hope their fate is worse than mine; so that they can experience depression firsthand like I am feeling.

The person that replied to my email was Anisah Hussain (E.ON Next)

anisah.hussain@eon-next-cabac46b5ea2.intercom-mail.com

I hope this person reaps what they sow and that goes for any corporation or person in charge reading this.

I am feeling extremely anxious right now and I can feel my heart racing really fast. My stomach well let’s just say I am running to the toilet every few mins.

Nobody should be put in the position to make them unwell or even worse than what they were already feeling.

I do not own anything other than my laptop and my phone which I use for work as I was robbed a few years ago and anything of value was stolen, hence there is nothing anyone can take from me.

I feel so low right now and not sure what to do. My GP is totally useless although I am on medication there is little more they can do for me, to top it all I have a very sick child I am caring for and I am worried about her well being, mental and physical state, so pushing my buttons is only making things worse and causing more anxiety and distress.

You cannot get blood out of a stone!

“I am at the lowest I have been for a long time and it only takes one person to push me over the edge”.

I am not crazy and I do not need to be locked up, I am just feeling really low.

I am not feeling suicidal I am just feeling extremely unhappy right now and I do not want to have any worries. I want people to be understanding and not critical of me or superior to me. I want people to support me.

This email I received just shows that people do not care unless it relates directly to them. I just want to be happy for a change and not have to worry about anything. I want to live a happy carefree life.

Update 19/04/22

Considering they, in theory, were closed yesterday I did get an email from the same agent in relation to my reply and I assume the person is a (she) asked when is a convenient time for her to call me. Why does anyone need to speak to me, do they not understand written English…I replied I would be paying on the 9th of May 2022.

However, my gut feeling told me to phone them today and this is how it played out.

Phone Call No 1. I spoke to an agent that put me on hold and we get cut off

Phone Call No 2. I spoke to a different person who spoke to me as if she was talking to a first-grader. She spoke to me as if she owned the company and kept saying I have never paid my payments on time, blatantly scolding me before putting the phone down on me. She said I did not have a payment plan in place. So what are all my £34 per month payments then?

Phone Call No 3. I told the person I would be paying on the 9th of May 2022 and he said he would put it on the system and I would get a confirmation email, which never transpired.

Two things spring to mind:

Harassment:

What’s the effect of or the intention behind the harassment?

The Equality Act says it’s harassment where the behavior is meant to or has the effect of either:

  • violating your dignity (I felt like I was a nobody with no self worth)
  • creating an intimidating, hostile, degrading, humiliating or offensive environment (the agent spoke to me in a way like she was disciplining a child or someone of no importance).

This means it’s harassment even if the person harassing you didn’t mean to offend or intimidate you, as long as the harassment has one of the above effects.

If you go to court, the judge may have to decide if it’s harassment or not. They will look at how the behavior made you feel and whether it’s reasonable for you to feel this way.

https://www.citizensadvice.org.uk/law-and-courts/discrimination/what-are-the-different-types-of-discrimination/harassment/

Emotional Distress:

The fact is all I owe is £22.84 dated 19/04/21 but has since risen to £75 per month and they tried making a big deal about it. I was spoken to as if I was something someone had stepped in, which is downright disgraceful.

The Damage Has Been Done!

The problem is because people are working from home they will not necessarily have the calls recorded and they literally can speak to you like sh#t, hence I will never be able to prove that the woman I spoke to on my second call spoke to me like I was a nobody. I hope karma pays her a visit and her husband/partner cheats on her or she has a similar fate to what I am going through.

Who the hell did the woman I spoke to think she was talking to? I am not a piece of sh#t to be spoken to this way…

And you wonder why I hate life? when I have to contend with people like this woman this afternoon and then the man that blatantly lied to me about sending me a confirmation email.

I have purposely published this as evidence and compensation for emotional distress which far outweighs the cost of my electricity bill should it ever go down that route, do not tempt me.

#feelingsuicidal #suicide #suicidalthoughts #depression

Personal Independence Payments (PIP) Renewal Assessments.

Personal Independence Payments (PIP) Renewal Assessments.

My daughter has just had her Renewal Pack not so long ago and although it is nothing to do with me so to speak, I hyperventilated the moment she told me. I am not joking I started gasping for air.

Both my daughter and I agree that the amount of humiliation we ate whilst we both went through the last assessment we have agreed we are not going to through this again.

Who is eligible for PIP?

You do not need to have worked or paid National Insurance contributions to qualify for PIP, and it does not matter what your income is, if you have any savings or if you’re working, you could be on a low income or on a high income it does not matter.

You must have a health condition or disability where you:

  • have had difficulties with daily living or getting around (or both) for three months (this needs to have been documented with your GP)
  • expect these difficulties to continue for at least nine months

You usually need to have lived in the UK for at least two of the last three years and be in the country when you apply.

If you get or need help with any of the following because of your condition, you should consider applying for PIP:

  • preparing, cooking or eating food (my daughter cannot stand for long lengths of time preparing and cooking so I do it for her but I have to set timers as I tend to forget if there is someting in the oven and have a few times burnt my food to a crisp)
  • managing your medication (I sometimes forget if I have taken my meds, and if that happens I avoid taking a second dose just in case I overdose)
  • washing, bathing or using the toilet (both my daughter and I have problems getting in an out of the bath and I have fitted a bath hand rail)
  • dressing and undressing
  • engaging and communicating with other people (with nearly 10K connections on LinkedIn I have no problems connecting virtually and have major anxieties physically).
  • reading and understanding written information
  • making decisions about money
  • planning a journey or following a route (my daughter cannot walk long distances and I do not go out because of my OCD)
  • moving around outside the home (I have trouble going down the stairs with my bad knee).

In my opion the DWP should have a set of questions for each disability and not every disability is equal.

Some people have more than one disability (such as myself). Some questions are humiliating such as “how do go to the toilet?”

Also some people will go to any lengths to get an Oscar and the face to face assessment proves nothing, it needs to be based on your GP’s consultations and correspondence.

I wrote a letter to my GP in May and I still have not had a reply even though the practice manager read my letter and so did the cluster pharmacist.

I have redacted some of the information for data protection purposes.

What are the PIP payment rates?

PIP is made up of two components – daily living and mobility. Whether you are awarded one or both, or a combination of the two, depends on how severely your condition affects you.

You will receive the following amounts per week depending on your circumstances:

Daily living

  • Standard rate – £60.00
  • Enhanced rate – £89.60

Mobility

  • Standard rate – £23.70
  • Enhanced rate – £62.55

How do you make a claim for PIP?

You can make a new claim by contacting the DWP, you’ll find all the information you need to apply on the GOV.UK website here.

Before you call, you will need:

  • your contact details
  • your date of birth
  • your National Insurance number – this is on letters about tax, pensions and benefits
  • your bank or building society account number and sort code
  • your doctor or health worker’s name, address and telephone number
  • dates and addresses for any time you’ve spent abroad, in a care home or hospital

Once you’ve contacted the DWP, they will send you a document called ‘How Your Disability Affects You’ to complete which consists of 14 questions and a section for any additional information.

The questions focus on how your condition affects you – put as much relevant detail in as you can to help the assessor understand your physical and mental health needs.

If you have difficulty filling in your form or understanding the questions, contact your local council and ask for help or Citizens Advice.

Stress & Anxiety

My daughter is so stressed out over her renewal I am worried she is going to have an MS relapse. Stress can be a cause of relapse. As her carer, I am very worried about the implications of her health.

My daughter has a friend who is a PIP assessor who basically said that her condition should be reviewed every 10 years as it is a progressive disease. The assessor’s friend even said she personally has no formal qualifications.

I have written about PIP before and here are some of the earlier articles. I also write in the category online journal my actual health conditions as and when they occur.

I wrote to my GP via email on the 27th May 2021 and the practice manager replied back saying they had received the email. So although every Tom Dick & Harry read my 9-page in-depth letter including the cluster pharmacist I have not heard from my GP which is very concerning and I do not see why I have to chase after them considering I wrote in plain readable English what needed addressing and they have totally ignored me.

According to the renewal, they will expect the applicant to have a face-to-face assessment. I personally have not left my home for 2 years and only meet and greet the delivery drivers. I am not going to be forced into a situation where I have to meet other people. I do not have anyone visiting my home either other than couriers and delivery drivers. This is my choice and it is against my human rights to be forced into a situation I am not comfortable with.

Furthermore, the DWP does not take into account that printing and sending out paperwork costs the government money so why on earth do they not have an online version similar to HMRC self-assessments and Tax Credit Renewals? imagine how much money they would save simply doing it online, not to mention saving the planet with carbon emissions. The DWP is not Eco Friendly.

But there are also the other problems and that is people like me do not like handling things that have been touched by someone else. I have difficulty touching envelopes and letters and insist on people emailing me. I bet you are wondering what about food. Food which has been pre-prepared in a factory only the outer packaging is touched by humans, everything else is done by robots.

I had this post in draft mode but I feel that every time I see it unpublished it gives me anxiety as does the PIP assessment.

My anxiety levels fluctuate from day to day and today I am feeling unwell.

Not only have I a list of business things to do which is causing me anxiety I also have to contend with the up and coming assessment. The sheer thought of intermingling with humans the more anxious I get and am more at ease in my own surroundings.

I am trying not to think ahead and need to cross each bridge as I come to it. There is no point in worrying about something that may not even happen.

Today I am feeling depressed and tomorrow is another day!

#personalindependancepayments #pip #depression #ocd #anxiety

Personal Experience with claiming (PIP)

PERSONAL INDEPENDANCE PAYMENT

When does reform become dangerous?

Over three years ago the Conservatives began to roll out personal independence payments (PIP) – in essence, the mandatory, mass re-testing of disabled and chronically ill people – and the answer is getting stark.

Are you entitled to Personal Independance Payment?

You can appeal by writing an in-depth letter and collecting all the evidence to help with your claim. My evidence is my online journal on this site which I own.


Personal independence payments assessment is designed to punish the poor and ill, regardless if it is a legitimate claim or not. Everyone is thrown into one basket.

A report released by the Muscular Dystrophy UK is the latest piece of evidence to expose an administrative catastrophe: appointments canceled at the last minute, lost applications, year-long delays.

Two in five respondents report being sent to an assessment centre that wasn’t accessible for disabled people. This is designed purposely to save the government money as the people that genuinely want help may give up in the process of fighting back. Not everyone knows how to appeal and if the government makes it hard for them to claim and appeal, the disabled person will just simply just give up. The assement is designed to break you down.

Since the pandemic interviews have been suspended but prior to the lockdown and my own personal experience once you manage to make it inside the building, the picture is as dire: widespread reports of assessors – employed by private firms hired by the Department for Work and Pensions – who showed no respect for disabled people, (this is especially true in my case and the humiliation I personally felt and the length of time I had to stand ), while some didn’t even understand the condition they were testing (one man, with muscular dystrophy, pointed out that the word “progressive” means “muscles don’t come back”).

Once you are at the interview you will be asked to answer a series of questions and perform endurance manoeuvers to see if you can balance on your feet, walk or how mobile you are etc. My daughter’s neurologist wrote in his report my daughter has a spastic gate and the assessor undermined the neurologist report saying my daughter could walk fine.

You will also be asked questions about your finances and if you are coping or if you are in rent arrears and credit card debt to mental health issues. I was asked what I do for a living and did not elaborate on it other than to say I do web design.

I think this form of questioning is to intimidate and degrade you.

Just because one can manage finances does not make you a healthy person. Even if you spend 60 hours or more on the internet working as some entrepreneurs do will not make that person any less disabled.

Even if the person who is an entrepreneur but disabled could successfully trade online would not mean that because they are successful at what they do that there is nothing wrong with them.

I just have a problem with interacting physically and germ contamination, I have no problem being online.

I was personally asked about my toilet hygiene and routine and if I sat on the toilet and how I wiped my you know what and how I maneuvered around in the bathroom. I felt humiliated and felt the whole ordeal very upsetting and I still have anxiety about it to this day. So you can imagine my fear and anxiety of another assessment next year.

One woman, with a muscle-wasting disease, said that she developed panic attacks after her assessment. She is now under the care of a mental health team and doesn’t leave her house.

That the government deliberately built PIP with tightened criteria – and is sitting by as the system descends into disarray – becomes grimmer still when you consider that this is being done to a benefit tied to other essential disability services that people cannot live without.

Without PIP a disabled person can’t access anything from carer’s allowance to severe disability premium. If that isn’t enough, anyone who is rejected – or bumped down to the standard rate – is also barred from the Motability scheme for an accessible car or powered wheelchair.

Sarah, a nurse with progressive muscle wasting and weakness, was seven months pregnant – and was forced to hand back her Motability car. The 29-year-old had been receiving the higher rate of disability living allowance (the predecessor to PIP), but after being reassessed she was knocked down to the standard rate – despite her condition deteriorating.

Sarah could not take her fatigue medicine without affecting her pregnancy, and her disability meant she was at risk of falling when she walksed, and permanent damage. “That vehicle was a lifeline to me,” she says. “I’ve lost my independence.”

Sarah appealed and was due at a tribunal but found it was canceled with just two days’ notice – and no explanation.


The government is skewing benefits appeals against disabled people.

It took the resignation of Iain Duncan Smith and a budget hole of billions to get the mainstream media to shine a light on the disaster of PIP – or many politicians to find a conscience. One cut to the benefit is stopped. A new secretary of state is hired. And the news cycle moves on. The disabled can’t. For many, things are only getting worse.

Between 400 and 500 adapted cars, powered wheelchairs, and scooters are being taken away from disabled people every week. Independence went – with a maximum of seven weeks to hand your lifeline back. As an insight into the logic, let alone empathy, in this system, that’s notably less time than it takes to go to appeal or even to get the results of mandatory reconsideration – meaning the DWP’s ruling can be overturned, but the disabled person’s car or wheelchair will already have been taken. (At the last count, 60% of appeals against PIP were successful).

Darran uses a wheelchair – and has a degenerative muscle wasting disease – but last year was downgraded on PIP and lost his car. In his own words, it left him “housebound and isolated”, and he scraped together the deposit for another accessible vehicle. The DWP later informed Darran that its decision had been “mistaken”, and his old car would be returned. “My £2,000 deposit is non-refundable,” he says. “I’ve lost that money.”

This is starting to look like a game played by the ‘Dr. Evil’s’ of this world with repercussions on ordinary disabled people’s lives. Take away benefits and the sick become destitute. Remove a car or wheelchair and disabled people become housebound. It’s happening right now – and what’s worse, most of the public won’t even know it, not unless people fight for their rights and have advocates speaking on their behalf.

Note From the Editor.

For me I have severe OCD I cannot be around people and my symptoms have only got worse since the pandemic.

I am paranoid about germs“.

I even registered a domain name www.germawareness.co.uk as I think Saliva, Postal System, and Cross Contamination play an important role in spreading germs.

I also have severe depression and the only way I manage is if I self isolate. The only person I can be around is my daughter and she too is disabled with MS.

I can understand why the government has put a tight reign on the benefit and that is to stop people scamming the system. I know of one person personally, that would walk with a walking stick for show but when he was drunk he could walk perfectly normally. The government needs to send out spies on scammers that claim to have bad backs but go grocery shopping when they think no one is looking.

I am the modern-day female version of ‘Howard Hughes’ he suffered from severe OCD and self-isolated.

“I can function to a certain degree, but only in my own quarantined environment and if I have surplus disposable gloves and litres of Dettol Disinfectant on hand if I have intrusive thoughts and my OCD is playing up. I also have a designated area no one can enter or touch”.

I used to be able to venture out but now I have anxiety and panic attacks at the sheer thought of seeing other people. I am fine online but physically is a no-no for me. I used to enjoy going out with my daughter once a month when she had her monthly blood and urine tests done but that all stopped not only because my OCD has worsened but because the hospital has strict rules and that the patient should come in on their own unless they are severely disabled.

Obviously, if my daughter needed urgent emergency assistance outside of my home I would have to bite the bullet and no doubt in my mind burn all my clothing when I came home. My daughter’s being is a high priority to me so I would have to sacrifice my own just to help her, knowing I had a counteracting measure in place to ease my anxiety but that would be in exceptional circumstances.

I remember when I had my last assessment and the assessor claimed there was nothing wrong with me. She insisted on touching my photo ID even though I told her I had OCD and I had to stand for one and half hours as I did not want to sit down on public seating (This is humiliation, discrimination and if it causes harm under duress is also against the human rights act).

She also asked me if I had any suicidal thoughts, well in my opinion that is like handing someone a loaded gun. You simply do not put those thoughts into someone’s head if they say they have severe depression. Whatever is in the medical notes should suffice and some unqualified assessor should not plant a seed into someone’s head. Even if I had suicidal thoughts I would not admit to them, not that I have had, just saying.

(I have a reason to live and hopefully, there may be a cure for my OCD someday). I have set goals and am doing my best to achieve them.

But for someone more vulnerable than myself this is highly unprofessional to ask about suicide.

(I should have recorded the interview).

Imagine the applicant going home after the interview and then attempting their own life all because the assessor gave them the idea.

My assessment is up for renewal next year and there is no way I am going to go as I cannot venture out because of my mental health. I also found out that the DWP Agency Capita employs school leavers who have no professional qualifications. I know this as a fact as my daughter as it happens, knows one of them and they are really good friends. The other thing is this particular person actually spoke about people she had assessed to my daughter.

One can obviously see I am stressing about it a year ahead of my time but if I had enough money and I would not depend on PIP to help me buy disposable gloves and disinfectant at alarming levels.

https://www.theguardian.com/commentisfree/2016/jun/07/pip-disaster-disabled-access-report-benefits

https://www.independent.co.uk/news/uk/home-news/philippa-day-inquest-dwp-overdose-benefits-b1793424.html

#personalindependancepayment #pip #disabilityallowance #mobilityallowance #tribunals #pipassessment #pipassessor #capita