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Category: Personal Indpendence Payments (Page 1 of 2)

Personal Indpendence Payments (PIP) is a governemt benefit that pays money to help you with everyday life if you’ve an illness, disability or mental health condition. You can claim on top of Employment and Support Allowance or other benefits. Your income, savings, and whether you’re working or not or social status will not affect your eligibility.

Cost Of Living and Suicide

Cost Of Living and Suicide

When will the powers that be wake up that low-income families are not surviving because of the price rises? It is all very well to say to reach out to a charity but there is no quick remedy available.

The Office for National Statistics publish suicide data for England here.

  • 5219 suicides were registered in 2021*. This is 307 more than in 2020.

Latest suicide data | Suicide facts and figures | Samaritans

Why the Rise in Suicides Is Even More Concerning than You Think (menshealth.com)

Suicide_Stats_Wales_2021

Does this not scream alarm bells?

Suicide is at a record high and people like Yee-King Ho, known as ‘Fion’ to friends and family, came to live in London from Hong Kong in April 2022, moving to a flat in Richmond in what family hoped would be an exciting chapter in her life, felt there is no way out which resulted in her taking their own life.

***Warning Sensitive Material***

In Loving Memory -RIP

‘Intelligent, dedicated’ woman, 27, takes her own life after struggling to afford £900-a-month rent and having to choose which meal to eat

‘Intelligent, dedicated’ woman, 27, takes her own life after struggling to afford £900-a-month rent and having to choose which meal to eat (msn.com)

Here are a few comments that were with the article below:

  • james moss This is what is wrong with a low-paid economy, people do not want to just survive, people want to have a life, where they can save, and save for a pension, as well as find a home they can afford whether single or families people need proper wages to be a full member of our society, the conservative governments have broken the link between low pay and social homes, we were told that private renting would self-regulate, instead, the rental market has driven the housing market to the crisis we are now suffering, the young woman in question was like many people in this country drowning in the cost of a place to survive, and that is what she was trying to do survive, to live in the UK today and cover the costs 35K is needed, with less than that people are surviving on the crumbs and it is sadly wrong, 2 people on minimum wage can manage, but again it is marginal.
  • DBDavid Beech was Murdered by a corrupt system
  • DBDavid Beech The inept political awareness and lack of action from UK citizens simply assist the corrupt to thrive, when poorer citizens cannot survive.

Master Plan

Maybe this is the master plan to help get rid of the poor people living off the state. Imagine how much money they would save if there were fewer people dependent on them.

Question to the Powers That Be.

  1. Do you not find this article alarming?
  2. Do you not see that people in the comments agree that this is disgraceful?
  3. Have you ever had to worry about putting food on the table or worry how to pay your bills?
  4. Were you born privileged with a silver spoon in your mouth?
  5. How about supporting small businesses, the disabled, and the vulnerable?

The Powers That Be Do Not Care About Low-Income Families Or The Vulnerable

They say they care but in reality, they don’t. Has anyone done the maths on £104 a-week tax credits which equates to £2.60 an hour?

I get it, a self-employed person has to do everything in their power to get more work but what if the person does everything they can and still no more work comes in, how are they supposed to live?

Even if you are single over 35 on universal credit which equates to £334.91 per month = £2.10 per hour or £83.73 a week to live on.

Do the sums not add up, do you need to go back to school to resit your maths test?

Universal Credit: What you’ll get – GOV.UK (www.gov.uk)

Example of Living On Universal Tax Credits & Housing Benefit For a Single Person Over the Age of 35 (Unemployed)

Here is an example of a single person living on Housing Benefits and Universal Tax Credits.

Housing Benefit £590 even though their rent is £650

Universal Tax Credit £334.91

Total = £924.91 ( Equals £5.78 an hour based on 40 hours per week)

So if you continue with the calculations:

Opening Balance: £924.91

Rent: £650

Closing Balance: £274.91 (or £68.72 per week divided by a 40-hour week = £1.71 per hour to live on)/

If a person lives on £274.91 and just pays their utility bills there is nothing left over to pay for food.

Arguably people who are disabled or on the sick may get £247.40 PIP per month (lower rate) Personal Independence Payment (PIP): How much you’ll get – GOV.UK (www.gov.uk) but people who are unemployed because small businesses are not hiring, do not want to spend money on services that they will try and do themselves to cut costs. Even the likes of Elon Musk closed down many offices around the world and laid off people, so how are people supposed to live when they can’t find suitable employment? Small businesses are also struggling.

Can no one see the bigger picture here or is it just me?

Disability UK Logo

I welcome any comments and do share this with your connections.

If you are feeling suicidal, remember there is always a solution to every problem.

I think the large corporation should pay taxes and there should be a profit threshold cut-off, where excess amounts of profits go back into the system.

Do not let your thoughts get the better of you. Speak to someone just to get things off your chest or send us a message via our Facebook Page (we will keep your information confidential).

“Personally what I find therapeutic is to vent my frustration online for everyone to read”.

SUICIDE SUPPORT

If you have suicidal thoughts, talk to someone about them, don’t bottle things up. If you do not have any friends or family, reach out to the Samaritans on 116 123 For Free. Sometimes talking to a stranger can help you put things into perspective and helps you tackle daily challenges. Arrange an appointment with your local doctor and explain how you are feeling. Do not drink alcohol or take recreational drugs as this may make the matter worse. Seek professional help asap.

Further Reading

This is how much single people are paying for living expenses compared to couples (msn.com)

#costofliving #pricerises #mentalhealth #suicideprevention #dwp #univeraltaxcredits #taxcredits #inflations

Personal Independence Payment (PIP) Telephone Assessment

Personal Independence Payment (PIP) Telephone Assessment

Written by the Editor Renata M Barnes.

Today my daughter had her PIP assessment over the phone. My daughter told me she had four reminder text messages saying that her phone call appointment was scheduled for 09.15 hrs yet the assessor phoned at 08.45 am and when my daughter did not pick up phoned again at 09.10 am (where is that 09.15 may I ask, did the assessor have cognitive impairment to not phone at the scheduled time)?

The assessor was made aware I was listening in as the call was on loudspeaker.

The duration of the call lasted one hour and ten minutes and in that time my daughter was asked the same questions which were on the questionnaire she submitted.

Breach of GDPR

The caller never said the call was being recorded even though by law they have to say. Furthermore, the assessor did not offer a copy of the call recording which means that the assessor may have been working from home or the call was not recorded at all.

My daughter suffers from Multiple Sclerosis which is a progressive disorder that there is no cure.

There is (HSCT) hematopoietic stem cell transplantation currently not available on the NHS, which aims to wipe out and regrow the immune system similar to Lemtrada Alemtuzumab treatment which my daughter had last year.

Sensitive Questions

The assessor asked the same questions as what was on the form but went into some very alarming questions, some of which were so sensitive that could have caused a trigger in mental health patients, like have you ever had any suicidal thoughts or wanting to self-harm.

No one should be in a position to answer such a question because:

  1. It can cause a trigger and the person may not have had those thoughts before, but may now have a seed planted in their head to do it sometime in the future. When asking such a question you should not put those words directly into a person’s thoughts. It should be handled in a way of “how low do you feel on any given day” and “how do you feel when you are feeling low“? You should not say “have you had suicidal thoughts”? This is a TRIGGER. This type of questioning should only be done by a qualified professional, face-to-face (not over the phone).
  2. Secondly, the person being interviewed may not be truthful if there are many people present. Perhaps the person may not want to admit those thoughts in front of their carer, parent, or a total stranger. Someone who is feeling low and that question is asked, could theoretically not tell the truth to the person asking, yet the option would be there in their minds. One should never plant a seed in someone’s head. Only a professional psychologist or psychotherapist would assess a person’s mental health, not a complete stranger.
  3. The assessor should go by the medical evidence from the doctor’s reports and not ask these questions directly (by asking this question it is deemed as reversed psychology). Only a mental health professional should ask these questions. Talking about suicide is a taboo topic that is very sensitive, one needs to build trust between the person asking and the patient. People with suicidal thoughts may sometimes never admit to having them, so it is best to ask “how low a person is feeling” or “has ever felt” and open up a dialogue, rather than ask that question directly.

Further Reading:

https://lifehacker.com/how-to-plant-ideas-in-someones-mind-5715912

Does asking about suicide and related behaviors induce suicidal ideation? What is the evidence? https://pubmed.ncbi.nlm.nih.gov/24998511/

PIP assessor told claimant to ignore her ‘irrelevant’ suicide attempt… then challenged her son to a fight – Disability News Service

Degrading & Humiliating Questions

  1. Asking the person if they can wipe their posterior is degrading especially when admitting if one can or can’t to a stranger.
  2. What has that got to do with my daughter’s condition she is not in a wheelchair which was made clear at the beginning and is on her medical records. I understand that these questions may be asked but should be directed to the clinician and not the patient.

Work & Studying

PIP is a non-means tested benefit and when deciding a person’s eligibility for support their disability or condition and how it affects their life is taken into account. So what with the twenty questions such as “what is content marketing” etc? (what I have written now is called content).

  1. When my daughter was asked how she gets to university she said she takes a taxi. I noticed a pause from the assessor. So unless she was thinking that would cost an arm and leg, don’t tell me because I already know that is why I help my daughter pay for transportation. So despite telling the assessor my daughter does not walk far, why in the next line of questioning does the assessor ask how far can she walk in terms of a length of a bus? (I thought these questions were not relevant and were no longer being asked).
  2. When asked what work she does my daughter said marketing and how many hours per week. My daughter is the assistant editor of this website so she may work two hours one week or 16 hours the next. It depends on the assignments I give her. My daughter is not self-employed unlike myself. The assessor continued so what is my daughter’s role which she replied writing blog posts. Blog posts can take an hour or can take a whole day to do and it all depends on how many words are written and for what purpose. I have more than one website www.irenata.com I use a link wheel of websites to drive traffic from multiple directions. www.mrketingcardiff.com and www.ukcontentwriters.com to name a few.
  3. My daughter then was asked a question if there was a fire at the university how long would it take her to get out of the building? (How would she know that if she has never had a fire evacuation? The assessor continued to say this was a hypothetical question. This is ridiculous as how would my daughter know where she was at any given point in a worst-case scenario if the lifts did not work it would take her longer? How long is a piece of string? She could be on the top floor. (So does that mean if you escape a fire you have no problem with mobility).

Stress

My daughter was never asked about her stress levels although she did mention the frustration of her disability. Stress and frustration can coincide together but they can also have different meanings. The assessor did not go into too much detail other than how my daughter remembers to take her medication and who feeds the cat (yes that was asked). https://disabledentrepreneur.uk/stress-cognitive-function/

Stress is a complicated disorder in itself. Stress can be prolonged whilst frustration is short-term. The stress of rewriting a blog post or assignment due to a lack of concentration or increased fatigue can cause frustration.

Medication

My daughter was asked what medication she was on and the one medication the assessor said and I quote “Hold on I need to Google it“, this is no word of a lie and I can prove this was said, just don’t ask me how.

Irrelevant Questions

  1. . Who lives with you (why is that relevant)?
  2. How many bedrooms have you got? (and the point is what)?
  3. Who pays the bills?
  4. How long have you done online grocery shopping?
  5. So you have a cat, who feeds the cat, and why?

Pointless Questions!

Final Thoughts From the Editor

I am really looking forward to my assessment because it will open a can of worms regarding the GP support I have not had.

My daughter’s call lasted over an hour, this is not going to happen with me as time is money and I already wasted one hour today listening in to a call that was pointless.

The assessor insinuated because my daughter has a part-time job and is studying it may look like there is nothing wrong with her even though it is her physical well-being that is affected and not her mental health.

I did not think this should be used as a fit for work assessment, but more so as a health and well-being assessment and the prognosis of the ability to function from day to day.

I have disabilities but I still can work by managing my health in such a way it does not hinder me. It is the outside world I have a problem with, because of my OCD and social disconnection issues. However, if I was put in a situation where it was an emergency and had to leave my home, I would worry about the consequences of my disorder afterward. I have literally thrown away things I have not been able to salvage or disinfect. I am the happiest in my own company with my own surroundings.

I run several businesses online for my clients but that does not make me fit to work in the physical world. One should not draw conclusions about a person’s ability because from one day to the next the ability to function can be impaired.

For my own assessment, I have given them enough information, that I envisage my call will be halved. I most certainly will not answer questions like what my daughter was asked today, because they have enough evidence on file. I am not going to answer questions such as am I capable of wiping my own ar#e?

My daughter should have stated she documents her health online but for some reason omitted this. We will have to wait on the decision in 8 weeks’ time.

Multiple Sclerosis is an auto-immune disease that attacks healthy white cells. The lesions that can affect the brain and spinal cord can cause a wide range of potential symptoms, including problems with vision, arm or leg movement, sensation, or balance. It is an incurable disease with lifelong symptoms that can sometimes cause serious disability, although it can occasionally be mild. The average life expectancy is slightly reduced for people with MS and symptoms can be alleviated with different courses of treatments. In most cases, people get diagnosed in their 20s or 30s but it has been known that patients have shown symptoms as young as 15 years of age. In fact, it can develop at any age. It’s about 2 to 3 times more common in women than men.

MS is one of the most common causes of disability in younger adults.

https://www.nhs.uk/conditions/multiple-sclerosis/symptoms/

The most common symptoms include:

Other than fatigue, vision, numbness, and pain nothing else was discussed in the above list or the fact that stress and anxiety can cause MS relapses.

So why is the government somehow wanting people with disabilities to jump through hoops (quite literally) to prove they are disabled when their medical records should suffice?

I would have put a stop to the questioning and said so what do you know about multiple sclerosis or in my case OCD & cerebellar atrophy. Secondly, I would have said… so I gave you access to my medical records but clearly, you have not read them.

I reckon these assessors have to do something to sift through the scammers in this world, but the people that genuinely need help, are made to feel belittled, degraded, and inadequate just to get the extra bit of help.

Further Reading

PIP assessor walked out! – Benefits and Work Forum

Pip assessor has lied – Benefits and Work Forum

PIP Assessors Get £50 Bonuses For Meeting Targets Says Whistleblower | Same Difference (samedifference1.com)

PIP investigation: ‘Lie after lie after lie’ – Disability News Service

Fury As Nurses Offered Private Healthcare Perk To Become DWP Benefits Assessors | HuffPost UK News (huffingtonpost.co.uk)

‘Humiliating’ PIP Assessments Being Held At Luxury Spa Owned By Millionaire Duncan Bannatyne | HuffPost UK News (huffingtonpost.co.uk)

MS Relapses

With multiple sclerosis, the weather plays an important factor and people suffering from MS can relapse when the weather is too hot or too cold.

MS and Cold Weather: Are MS Symptoms Worse During Winter Months? (webmd.com)

Cold Weather and MS Symptoms: Effects and How to Cope (verywellhealth.com)

Therefore with the rise in the cost of living and keeping one’s home warm the extra bit of money helps. Yet this was not discussed, which tells me the assessor had no knowledge of Multiple Sclerosis.

The assessor said I quote so you are making an effort to work and let the disability stop you, sorry I am not being patronized even though it came across that way.

I did want to put my two penneth in, but I figured that it was best to keep my mouth shut and see what happens when the decision is made for my daughter.

The Assessor

The assessor should have:

  1. Stuck to the given scheduled time and not rang half an hour earlier.
  2. Said if the call was being recorded or not and asked the interviewee if they wanted a copy of the call recording.
  3. The assessor should have also introduced herself properly (which she did not) and said what she was qualified in (which again she didn’t).
  4. The assessor should have acknowledged the other person listening to the call but chose to ignore them (which was deemed unprofessional).
  5. The assessor should not ask extremely sensitive questions to cause a trigger.
  6. The assessor should have gone by the medical records to gain all the information she needed without humiliating the interviewee.
  7. The assessor should not have asked irrelevant questions such as who feeds the cat and why?
  8. The assessor should not have spoken about her own health issues as that is unprofessional.
  9. Asked how long the household did online shopping (how is that relevant to the claimant when we were in lockdown which had nothing to do with the claimant’s illness).
  10. Asked to explain what content was in my daughter’s job role.

As for me, let the circus begin, I can’t wait!

#personalindependencepayments #pip #pipassessment #pipassessor #multiplesclerosis #ms #humiliation #suicidalthoughts #triggers #telphoneassessments #callrecordings #gdpr

Personal Independence Payment (PIP) Assessments

Personal Independence Payment (PIP) Assessments

What is a PIP assessment?

Under normal circumstances a  PIP assessment is an opportunity for you to talk about how your condition affects you – it’s not a diagnosis of your condition or a medical examination.

The DWP will use evidence from the assessment to help them decide if they need PIP.

Therefore it is best to make your own report and detail everything about your illness and how you manage your daily activities.

An in-depth report is evidence that can be used against the DWP if your claim is denied. Having a phone call you cannot record the conversation.

Concluding the call you should ask for a copy of the recording which you are entitled to have by law.

People have the right to request copies of the data that is held by an organization, the ability to search and copy recorded calls will be necessary. Requests of this type must be responded to within one month. GDPR and Legitimate Interest. https://www.compliancejunction.com/gdpr-rules-recording-calls/

A health professional will carry out your assessment, write a report and send it to the DWP.

Talking about how your condition affects you

A helpful guide on the Citizens Advice website says that you should be prepared to talk about how your condition affects you even if you have already detailed it on your PIP claim form.

This can be hard to do, but it will really help if you can talk about:

  • the kind of things you have difficulty with, or can’t do at all – for example, walking up steps without help or remembering to go to appointments
  • how your condition affects you from day to day
  • what a bad day is like for you – for example, ‘On a bad day, I can’t walk at all because my injured leg hurts so much’ or ‘On a bad day, I’m so depressed I can’t concentrate on anything

It is a good idea to have your own copy of your PIP claim form with you for telephone assessment, that way you can refer back to it.

I strongly suggest on headed paper write a concise report detailing your illness without leaving out a single thing.

Discrimination

A disabled lawyer launched a ground-breaking legal case against the Department for Work and Pensions (DWP) over his claim that it deliberately discriminated against him in rejecting his claim for disability benefits. Daniel Donaldson founder of the Scottish social enterprise law firm Legal Spark, believed DWP chose to discriminate against him and other people with mental health conditions in the way it has dealt with their personal independence payment (PIP) claims.

This is very worrying if the DWP has discriminated against a lawyer. Although the article about Donal Donaldson was published in 2018 it is very worrying how the government is playing God with people’s lives who genuinely need help.

Daniel ended up taking the DWP to Glasgow Sheriff Court and was seeking nearly £5,000 in damages, to cover bank charges, the removal of his bus pass, and £4,000 in compensation for the discrimination.

Donaldson sued the DWP Equality Act against the Scottish government because it failed to take on responsibility for PIP from DWP when it had the powers to do so in 2016.

A Scottish government spokesman said:

“We have repeatedly called on the UK government to halt the roll-out of PIP in Scotland, most recently following the report of the UN Committee on the Rights of Persons with Disabilities which called for a review of PIP due to the damage it is causing people”.

Donaldson said the “UK government had created “a hostile and degrading environment for disabled people” by “using public policy to strip people of their statutory entitlement to benefits”, including PIP and employment and support allowance (ESA)”.

You can read the full story here: Disabled solicitor launches ground-breaking legal case over PIP discrimination – Disability News Service

Useful Links

Discrimination: your rights: What you can do – GOV.UK (www.gov.uk)

Equality Advisory Support Service (EASS) – GOV.UK (www.gov.uk)

My Concerns about the up-and-coming assessment for my daughter

Circus Monkey!

Assistant Editor

My concern is my daughter who has Multiple Sclerosis and is also the assistant editor of ‘Disabled Entrepreneur – Disability UK Journal’, according to the MS Society, the DWP is making it even more difficult to claim. PIP fails | MS Society

It is soul-destroying having to justify you have an illness. People should not have to be made to perform like circus monkeys to prove they are ill. The assessment is on the 5th of January 2023. I will be listening to the call.

My daughter has already expressed anxiety and stress and is worried about taking the call.

PIP Email Address

I have advised my daughter to write a letter and attach it to an email prior to the assessment call, this adds extra weight to your claim and creates a carbon footprint of evidence.

PIP say they do not have an email address even though they do😂 : contactus@capita-pip.co.uk

Medical evidence should suffice. A primary neurologist consultant is far more qualified than any PIP assessor”.

An Assessors Qualifications

According to Capita’s, website to be an assessor you may be a nurse, occupational therapist, paramedic, physiotherapist, pharmacist, speech and language therapist, or clinical psychologist who is looking for a change, for new opportunities.

As a Disability Assessor, you’ll:

  • be a fully qualified healthcare professional 
  • have a minimum of one year’s post-full registration experience
  • be fully registered with a relevant UK regulatory body (NMC/HCPC/GPhC or other), without restriction or conditions and with a valid PIN
  • live and be based in the UK 
  • have sound written communication skills
  • be able to manage conversations and ask questions effectively
  • be confident with computers 

Who we’re looking for | Capita PIP Careers (capitapipjobs.co.uk)

This proves that they do not have to have to be specialists in any disorder. A nurse has general knowledge of how the body works but is not specialized in any field other than nursing.

According to the Royal College of Nursing:

All registered nurses must choose from one of four specialisms as part of their nursing degree – adult nursing, children’s nursing, mental health nursing, or learning disability nursing. It’s possible to change after graduating, but this doesn’t mean your career is decided. 

Adult nursing

Adult nurses work with patients over 18. They can work in hospitals or in community settings such as people’s homes, health centers or nursing homes.  Once qualified, they can take extra courses to specialize in areas such as cancer care, women’s health, accident and emergency, critical care, practice nursing, health visiting or school nursing.

Children’s nursing

Children’s nurses work with children and young people up to 19 years old and can work in a variety of settings, from specialist baby care units to adolescent units. Children react to illness in a very different way from adults, and children’s nurses are specially trained to understand their needs. Children’s nurses also support, advise and educate parents and carers. Once qualified, they can specialize in areas such as health visiting, school nursing, intensive care, child safeguarding, and cancer care.

You cannot confuse a nurse with a doctor or specialist. A nurse will not have the same qualifications as a doctor, neurologist, consultant, or psychiatrist.

What is Multiple Sclerosis

Multiple Sclerosis (MS) is a chronic, neurodegenerative condition for which there is currently no cure.

In MS, the body’s immune system attacks myelin, the protective cover around nerve fibers. Damage, which can occur anywhere in the central nervous system, interferes with messages traveling from the brain and spinal cord to other parts of the body. Symptoms are many and varied but unique to each person. They can include problems with balance, vision, the bladder, bowel, speech, memory, fatigue, and painful muscle spasms, among many other things. MS affects over 100,000 people in the UK, many of whom experience their first symptoms during the peak of their working lives, in their 20s and 30s. MS is both a fluctuating and progressive condition. While the progression and symptoms of MS vary from individual to individual, primary progressive MS affects around 10 to 15% of people with MS. This is progressive from the very first symptoms. The remaining 85% of people with MS are initially diagnosed with relapsing forms of MS, where people have distinct attacks of symptoms with the underlying damage building up over time.

Many people with MS will go on to develop secondary progressive MS within 15 years of being diagnosed.

“Having MS is debilitating – it shouldn’t be made harder by a welfare system that is humiliating, degrading, and adds more stress which can lead to relapses. Stressing an individual out to the point that they relapse could consequently make that person lose their mobility and become bedridden”.

If a person with Multiple Sclerosis relapses because of the stress they endure fighting for something that should help them, then the government should be made accountable.

Relationship between stress and relapse in multiple sclerosis: Part I. Important features – PubMed (nih.gov)

From a personal perspective, my daughter did actually relapse after being frustrated with her laptop not booting up consequently hurling it across the room. So stress is definitely a factor, that should not be ignored.

PIP-2018-2021-update-MS-SOCIETY

#personalindependencepayments #pip #ms #multiplesclerosis #pipassessment #stress #anxiety #dwp #capita #msrelapses

My GP & Neurologist’s Negligence

My GP and Neurologist‘s Negligence

I phoned my GP today after waiting two months for a prescription that my neurologist consultant had prescribed for my unbearable pain which is caused as a result of my multiple sclerosis and yet, to this day I have not had the medication.

When I queried it today, the receptionist I spoke with stated that he was not ‘medically trained’ to read the letter sent from the neurologist at the hospital and that I would have to wait for the doctor to read it and approve. This goes to show the mentality of the receptionists at my GP as mentioned previously, he stated he couldn’t read my letter as he was not ‘medically trained’, when in reality, he shouldn’t be reading my letter at all as that would breach Data Protection Act 2015. None the less, I gave the GP the benefit of the doubt and continued to wait for my medication.

A few weeks go by and I get a call from the GP, although to my surprise it is not the doctor but a different receptionist. The woman I spoke with informed me that she was passing on a message from the doctor stating I had to have a consultation to discuss the medication at hand. When I questioned why I would need to discuss the medication when I had already done so with my consultant, she could not reply. As a result of this, it meant that I would have to ring up the GP at 8am the following day to fight for an appointment to then have to wait all day for a doctor to give me a call back.

Why do I need a consultation with the GP when my consultant who is a qualified neurologist has prescribed them?

I believe this is to test people and for them to beg to get medication. So am I to believe my general practitioner doctor is more qualified than the neurologist? This is now causing me anxiety and stress. Stress can lead to MS relapse.

So they cannot book an appointment at the time of the phone call, you have to be a good soldier and do as they ask.

When I told my mother who is also my carer, she said she would intervene and write a letter (which never gets answered, may I add) demanding that I have the medication otherwise my mother would take it up with the ombudsman.

I am worried I will get kicked out of the surgery as I am dependent on my drugs for the excruciating pain I endure, so told her not to pursue it. I have been threatened by this surgery before regarding not agreeing with some of the things they say. Both my mother and I have agreed that I contact my primary neurologist and explain not only have I fallen through the gaps regarding getting my monthly blood as stipulated on the Lemtrada website but my GP is refusing to give me the medication that the consultant requested.

This is Medical Negligence!

I am documenting this as evidence that my quality of life is being compromised because of my GP not giving me my medication and my concerns that my blood is not being tested to monitor any changes to catch them early.

This will be forwarded to PIP (Personal Independence Payments).

I will update again once I get further information.

My GP Google Reviews

Update 15/12/22

I phoned my GP to book a consultation under duress otherwise I would have had hope in hell to get my medication, even though it was prescribed by a neurologist.

The doctor did phone me back only to ask me what I needed to talk about…OMG.

When I said about my medication she continued to ask which medication I was referring to, even though supposedly there was a message on my notes. She then asked if I am capable to take them…..what the hell?

What a waste of time and resources.

The doctor did not even know why she was ringing me other than me requesting a callback which I was put on the spot to do, otherwise, I would not have had my meds.

And people wonder why they struggle to get a GP appointment, this is a perfect example as to how the GP waste resources, time and effort. This appointment could have been utilised for someone who actually needed it, not for a chit chat.

Further Reading:

https://cavuhb.nhs.wales/

Prescribing in general practice (bma.org.uk)

Public Services Ombudsman for Wales

https://www.jcpsolicitors.co.uk

https://www.thorntons-law.co.uk/knowledge/to-sue-or-not-after-medical-negligence

Update 20/12/22 – Non-existent blood tests!

My non-existent blood tests (required by law).

After losing my patience waiting for my non-existence letter to arrive to notify me to have my blood test done, I decided to contact my primary neurologist by email. Baring in mind I am supposed to have a blood test done every month to prevent/pick up early, transfusion related conditions such as Immune Thrombocytopenic Purpura (ITP), kidney problems/anti-GBM disease and problems of the thyroid gland (hypo/hyperthyroidism). As I am writing this, it has been 7 weeks since my last blood test and yet my primary consultant could not care less, he is obviously happy I have lined his pockets ready for Christmas.

Granted he was quick to respond.

The unfortunate thing is, had I of not emailed him, he would have been none the wiser that I had not had any blood work done. Surely, as my primary consultant, it is his responsibility to ensure that as his patient, I am having the necessary tests to ensure I am ok.

Not only that, he confirmed my blood test on the 2nd November was okay, would he have not noticed that I was not scheduled for a repeat test for the following month? Would he have not spoken with the other neurologist that I saw last? Do people within the hospital even communicate with one another, or is that my responsibility too?

I did mention that I understood Royal Mail was on strike and the nurses and emergency service are following suit. I was concerned that I have not had any blood tests done and my neurologist replied to sort it out myself and phone his secretary.

Why should I go out of my way to chase blood tests?

I have always had my blood taken at the hospital so why suggest I have them done at my GP who is also as useful as a chocolate fireguard?

Why move the goalposts? Why try to fix something that is not broken, meaning continue to have my blood taken at the hospital?

It is the responsibility of the consultant to make sure I have a blood test done and not down to me to do their job for them.

I can see pound signs of their lack of empathy and aftercare for their patient.

If something is found that could have been prevented all hell will break loose, mark my words.

What the Government Has to Say:

Lemtrada▼ (alemtuzumab): updated restrictions and strengthened monitoring requirements following a review of serious cardiovascular and immune-mediated reactions

A review of the benefits and risks of alemtuzumab (including fatal reactions) in the treatment of multiple sclerosis has now concluded and recommended a revised indication, additional contraindications, and strengthened monitoring requirements before, during, and after treatment. Patients offered alemtuzumab should be alerted to the early risks of cardiovascular events and thrombocytopenia around the time of infusion and to the delayed risk of immune-mediated reactions. Healthcare professionals should inform patients what to do if they develop any symptoms of these disorders.

https://www.gov.uk/drug-safety-update/lemtrada-alemtuzumab

https://www.ema.europa.eu/en/medicines/human/referrals/lemtrada

Meeting highlights from the Pharmacovigilance Risk Assessment Committee (PRAC) 28-31 October 2019 | European Medicines Agency (europa.eu)

He has had his commission so I am not a priority even though under the Alemtuzumab Guidelines I have to have my blood checked every month.

lemtrada-article-20-procedure-lemtrada-multiple-sclerosis-measures-minimise-risk-serious-side_en

My primary consultant came up with all these fancy words as if I am supposed to understand even though I am not medically trained.

And we wonder why the NHS is in the state it is in because no one seems to be doing their jobs properly, yet everyone is complaining they are overworked and underpaid.

Be lucky you have a job is all I can say”.

Lucky Black Cat
My MS Therapy Cat (Tibbles).

#gpnegiligence #prescribedmedication #neurology #neurologist #neurologistconsultant #consultant #specialist #ms #multiplesclerosis #MeddygfaAlbanySurgery

PIP Review Digital Form

Disclaimer – Although I phoned PIP last week I have since written other articles which would have pushed this article to the bottom of the pile so I have changed the publishing date to today for easy access even though the article was originally published last week.

PIP Review Digital Form.

It is my turn to have a review for my personal independence payment and they do not make it easy to renew. The system is designed for you to not have the energy to argue. But arguing is what I am good at among my other many talents.

I can honestly say my OCD and stress levels have got so bad all because of the emotional distress PIP has caused.

I have phoned three times and had one call back.

Today (14/11/22) I tried to do the review over the phone and the person who said he would phone me put me through to someone who was not helping. I ended up not confirming the callback, so I guess no one will phone me unless I phone back again and wait another 30 mins to get through.

This PIP review process has caused my OCD to flare up more because they cannot access my website, or so it seems (so they are not human) to read my article even though I repeated my domain name umpteen times.

I was told I would have to have an assessment, I turned around and said I would want to know the qualifications of the person before assessing me, although I would not have any proof. Anyone can say they have a Ph.D. over the phone.

This website and my medical records should be sufficient evidence in order to be able to access my information. I am not going to jump through hoops to prove I am disabled.

What are Personal Independence Payments For?

Personal Independence Payment (PIP) can help with extra living costs if you have both:

  • a long-term physical or mental health condition or disability
  • difficulty doing certain everyday tasks or getting around because of your condition

You can get PIP even if you’re working, have savings, or are getting most other benefits.

Personal Independence Payment (PIP): What PIP is for – GOV.UK (www.gov.uk)

“I AM IN EMOTIONAL DISTRESS AS A DIRECT CONSEQUENCE OF PIP”

I cannot handle stress, hence hate making phone calls or talking to people who cause me stress”.

I phoned last week 10th & 11th of November 2022 and today 14th of November 2022 and explained I needed a digital form to send to them and their response was sorry we currently do not have the form”.

Why make it difficult? all documents are on a database and all are stored on servers somewhere.

I explained I do not have a social worker (I felt this comment degrading, I am not that mentally disabled that I would need a social worker), and I stated I have many sensitive documents to send (which I cannot send in the post) which not only would cost me a fortune in printing and postal fees but could also jeopardize my privacy.

I am anxious about the humiliation I will have to endure with the assessment like my medical records are not enough evidence.

In fact, I found a letter that was archived confirming my article and health condition.

This surgery has moved and DR Dolben has retired. My medical records including this letter would be on the system. My medical records are now held at Meddygfa Albany Surgery 219-221 City Road Roath Cardiff CF24 3JD and the head Doctor is Dr. Capatana.

My Background

  • I am the Editor of Disability UK – Disabled Entrepreneur Online Journal which I own, I am also the Editor of other online publications, which are all under the www.ukwebsitedesigners.co.uk umbrella.
  • I am a web developer.
  • Internet Marketer.
  • Content Writer.

Famous people with OCD:

https://disabledentrepreneur.uk/category/famous-people-with-ocd/

MPs Charles Walker and Kevan Jones tell of mental health issues – BBC News

There is nothing wrong with my intellectual brain (Nikola Tesla had OCD). I am an abled-bodied person although I have physical and mental problems as referenced in my letters sent to my GP, which can be confirmed on my medical records. I just have issues dealing with people who stress me out, I cannot cope very well with stress and anxiety, and have a problem dealing with germ contamination. My mental health is an issue to include:

  • OCD
  • Intrusive Thoughts
  • Depression
  • Stress
  • Anxiety
  • Emotional Distress
  • Procrastination

My Daily Life Routine

I have everything delivered, my grocery, my prescription, and take-outs. I have a business and do everything online, there is nothing I cannot do, other than send PIP Review forms back. 🤣😂

“I can adapt my life around my disability”.

I am able to cook and clean and do all the usual things anyone else can do with the aid of disposable latex gloves and sanitizing products”.

“I can give support to people that need me, which is why I developed this website to help people with disabilities. Did you there are Politicians in the UK with OCD”?

“I just find it difficult to interact with the outside physical world.

(Wearing latex gloves in public is embarrassing)”.

Although this is tongue-in-cheek humor, (Obviously, this video is a joke, someone with OCD would not allow anything to touch the floor (the spray bottle and backpack touched the floor). However, there is a serious side to OCD where I have been known in the past to sanitize public seating before sitting down. I once cleaned a window sill at a hospital before putting down my laptop and showed the dirt to the doctor, who turned around and said and I quote “I am not a cleaner, take it up with the ward manager”. It got to the stage where I refused to sit in the GP waiting area or in the office. I now avoid public humiliation, germ cross-contamination, and social interaction as much as possible. I now live in a sanitized quarantined home and do everything online. I am happy to keep my own company!

“I can manage my finances and run a business and can give support to anyone that needs me”.

(I prefer not to have incoming calls unscheduled as I could be working and do not want to be disturbed), plus the fact I prefer to communicate online rather than talk over the phone, phone calls cause me stress – phone phobia.

Phone calls cause me anxiety”.

What happened to being eco-friendly and saving the planet?

I carried on saying, I do not go out, I run a business and the easiest way is to send a digital copy, (every organization on this planet has online or digital downloadable forms, but PIP doesn’t). Even the gov website has online forms inclusive of tax returns and renewals of working tax & child credits.

PIP has made me emotionally distressed.

I also confirmed the email address (contactus@capita-pip.co.uk) I would send the information to and was told sorry this is not the email address it is for appeals and renewals, not reviews“. Quick thinking I replied that in the subject line I would say please forward this to the relevant person to which the agent replied “you cannot send it there because it may never be seen”.

I also stated this was causing me anxiety, so the agent said she would phone me back in an hour, which she did, and said she could send someone over. I replied because of my OCD I do not have people coming over, besides I run a business and cannot stop my business to stop and chat or fill out forms. How on earth am I supposed to forward sensitive data to a complete stranger?

Telephone Confusion!

(Which has caused me anxiety)!

The agent also gave me the option to get my daughter to send in the form but again I do not want the sensitive data sent in the post, she then asked when my daughter was coming back from UNI.

I did not clock on what the assessor meant until we ended the call. (I suffer from cognitive impairment due to my cerebellar atrophy), all I remember the assessor saying was “so you do not know when your daughter finishes uni” repeating it twice.

My daughter lives with me and goes to a local university I do not know her timetable so do not know when she finishes uni on any given day. But I guess the assessor thought my daughter travels or lives away.

I guess where the confusion came from when the assessor said do I have anyone to fill in the form or post it on my behalf, I said I only have my daughter but she goes to uni and what I should have continued to say is too busy to do errands for me.

It’s usually the other way around, I do all the writing, and phone calls (virtual landline) if I really need to. (I spoke to PIP 4 times over this review), and chasing on my daughter’s behalf but strictly online.

I am Super Stressed by this Review! “This is why I hate talking over the phone”!

Can of Worms.

This personal independence payment review is going to open up a can of worms because not only with my GP not responding to my letters other confirmation that they were received and put on the system but the breach in GDPR by having a cluster pharmacist tell me she had read my letter which was not addressed to her and was marked private and confidential.

My Online Journal

https://disabledentrepreneur.uk/category/renatas-online-journal/

Dilemma

I am now stuck between a rock and a hard place. I will send the form to the email I have regardless and see what happens but I will also contact pip again on Monday 14th to see if they can access this article to download, (I did that and the person said due to security reasons he could not access my site), even though I said I had embedded a PDF, including screenshots of the form to view online or download. No one then can argue they cannot access my review. I hate all the stress, I do not need it in my life.

“There is no cure for OCD”!

My OCD is not curable, so why does PIP think my OCD has miraculously got better? considering I have suffered with it for the best part of 30 years, in fact, the more stressed I am the worse my OCD gets. I use on average 200 pairs of latex gloves a week and do not interact with the outside world other than online. I will also send proof of invoices from Amazon on how much I spend.

Is OCD Curable: Know Why It’s Not, And Your Best Case Scenario (mantracare.org)

I do not see why I have to have a review, the day my health improves DWP will be the first to know.

“My overview letter is below, inclusive of the review form, ready for download”.

PIP-OVERVIEW-ONLINE-PDF-USE-2

I actually noticed an error in my letter on page 3, this is my cognitive impairment playing up because within the same sentence I said I use 200 pairs of gloves (I should have said (200 pairs per week ) which would be 1000 pairs, not 500 as stated. I jumble up words when I get stressed. I have not amended this error just to prove a point. Normally when I do content writing I read the article 20 times or more and get a second set of eyes.

Final Thoughts

No one can argue I never submitted or published my PIP review on time.

In fact, with the stress I have had to endure with my attempted communication, I have filled in the form which has caused my OCD to flare up and it is being sent this Wednesday recorded and signed for. The whole process could have been dealt with differently without it being degrading and humiliating.

But what I stated in the form which caused me a lot of distress filling it in, is that I will be contacting the health secretary Rt Hon Steve Barclay, and will be asking the Politicians who have OCD to comment on their disabilities and see if they are treated the same way and how they cope with the disorder.

I should not have to feel like I am bonkers. It does not help when I am trying to heal and have people question me even after I have attempted to show proof.

I have shown evidence of one of my disabilities online (OCD). I know there is a protocol that PIP needs to adhere, to assess people but at least treat people with dignity and not degrade them, make life easier by doing online forms, saving the government money, printing and sending out paper forms (This in itself costs the government money), thus also helping to save the planet from carbon emissions and it would be less stressful for people with disabilities that perhaps have problems filling out physical forms like myself.

I read that the NHS wastes £100m a year sending out letters so how much does it cost the government to send out PIP forms by post?

NHS ‘wastes £100m a year sending letters’ | News | The Times

MPs with OCD

MPs Charles Walker and Kevan Jones tell of mental health issues – BBC News

Just because I am disabled does not stop me from doing things, I just have to adapt to my surrounding to fit in with my disabilities”.

“My disabilities do not define me or stop me from following my dream”.

“Go Digital, Save Money & the Planet”

One final last thing I would have had an assessment sooner with my GP over my mental health had they bothered to contact me, seeing as I wrote two very detailed letters which were confirmed by the practice manager that they had been received and had been put on the system, but no clinician contacted me regarding my most recent letter, even though it stated in the email someone would.

Email Confirmation 27/05/22
Email Confirmation 08/09/22

#pip #pipreviews #personalindependancepayments #digitalforms #dwp

DWP – Good News for claimants – PIP renewal 12-month extensions.

DWP – Good News for claimants, PIP 12-month extensions official announcement!

For people waiting anxiously to have their PIP awards renewed and have had extensions every 3 months the DWP has officially announced that all renewals will be extended for 12 months. This now gives breathing space to people affected by the cost-of-living crisis.

The official confirmation came in the latest edition of the DWP newsletter, Touchbase.

The full text of the announcement is as follows:

“This month we have started automatically extending existing PIP claims awaiting review by up to 12 months. This will happen 35 days before the award’s end date. 

“The extension provides greater certainty for claimants and in particular help with continuing to access other support, e.g. a blue badge for parking. 

“From 31 October, a letter will be sent automatically to claimants confirming continuing entitlement for up to 12 months. Until then, we will update claimants by text message that their award reviews have been extended and will remain in payment.

“Anyone needing written confirmation before 31 October can contact the helpline on 0800 121 4433 and we will issue a notification of entitlement. Otherwise, claimants do not need to contact us unless their circumstances change. 

“In line with our usual process, we may review claims before their new end date and if so, will write to claimants to inform them. PIP payments will be received as normal until we complete the review of a claim. If we have not completed the review by the extended award date, we may extend the end date of the PIP award again and will write to claimants to tell them about this. 

“Please share this information within your organizations.”

DWP officially confirms automatic 12 month PIP extensions (benefitsandwork.co.uk)

#dwp #pip #personalindependencepayments #benefits #piprenewals

GP (Doctor) Negligence Evidence.

GP (Doctor) Negligence Evidence.

** This post is primarily for the UK. I have written several articles about my GP (Doctor) Negligence and Doctor-Patient Confidentiality in recent times. I am for my own records posting evidence they have only confirmed my letters have been put on the system but both times have not been actioned. Furthermore, I have been in communication with several people, not only relating to this particular surgery but others around the UK also encountering similar problems. I have now discovered why GP (Doctor) Surgeries are backlogged… read more…

Local doctors’ surgeries across the UK are either closing or their clinicians are retiring early.

The impact of the aftermath of the pandemic has caused a strain on doctors and other workers in local GP practices which have seen some “struggling to maintain regular services” which has meant some closing surgery doors to all but the most urgent cases.

Playing “Russian Roulette”, with people’s lives is what is happening as each day brings new absences. Those with overall responsibility for general practice, such as NHS England and the Clinical Commissioning Groups (CCGs), have had “no backup plan”.

Doctors revolt over pension tax rules: What sparked the row? | This is Money

A survey carried out by the Royal College of GPs (RCGP) found that at least a third of doctors were planning to retire in the next five years, leaving 14,000 fewer GPs than are currently working.

Addressing the Health and Social Care Committee, retired GP Dr. Andrew Green said, “We need to accept that 10-minute appointments are not safe. The only way that you can run a 10-minute appointment surgery on time is by cutting corners.

Therefore introduce a questionnaire to be filled out by patients who could then write about their ailments for the doctors to review” similar to what I have done, although my surgery is as helpful as a chocolate fire guard. A ten-minute appointment can then be reduced to two or can be done online using encryption software”

According to “herd immunity” policy, which has allowed the coronavirus to rip through the population in successive and ever-higher waves of infection, has placed intolerable burdens on NHS hospitals.

“This is all smoke and mirrors and I believe the herd immunity is working because most people would have received their vaccinations. I believe it is down to the doctors themselves not managing their time properly or insufficient staff quotas”.

This has produced a monumental backlog of those waiting for vital elective procedures, which now exceeds 6 million. In turn, this increases pressure on GPs, who must manage patients on excessively long waiting lists, with some people forced to live with excruciating pain or physically limiting conditions. UK doctor’s surgeries forced to close doors to all but urgent care needs – World Socialist Web Site (wsws.org)

However, more common reasons cited for wishing to depart included feeling exhausted, overworked, and underpaid, as well as having too little time to do their jobs to the desired standard.

Senior doctors in the NHS are reducing their hours, turning down extra work, and even retiring early to avoid being hit with huge tax bills on their pensions, a report reveals. NHS consultants ‘turning down work to avoid huge pension tax’ | NHS | The Guardian

The government’s enforced collapse of free universal healthcare services will be used by it to push for the further privatization of the sector.

“Just mark my words and won’t be long before our NHS collapses and we will have to have to have insurance or pay towards our healthcare”.

UK doctor’s surgeries forced to close doors to all but urgent care needs – World Socialist Web Site (wsws.org)

EVIDENCE

Evidence of the emails I received to state my letters were logged on the system.

FINAL NOTES:

To recap I wrote a letter which I emailed last year 9 pages long and this year 15 pages long, it was put on the system and both times never actioned.

I have been told previously by my surgery if I do not like how things are run to change doctors (I am not the only one judging by the Google Reviews). It is easier said than done if you have social disconnection problems, run a business, and do not have time to register at a new surgery never mind the shortfall on the prescribed medication, whilst you wait for your registration to be approved and your medical records sent over.

The NHS are playing “Russian roulette”, put it this way my doctor’s surgery, in particular, most definitely is playing with people’s health.

If you are unhappy you should first address your practice manager or write to your head doctor failing that you can complain to the NHS (see links below).

I know I could take this further and I will one day, but at the moment I am dependent on my medication, albeit there is a shortage of Gaviscon.

NHS NEGLIGENCE COMPLAINTS

https://www.mind.org.uk/about-us/our-policy-work/you-and-your-gp/for-gp-patients/

https://www.nhs.uk/using-the-nhs/about-the-nhs/how-to-complain-to-the-nhs/

https://www.nhs.uk/service-search/other-services/Patient-advice-and-liaison-services-(PALS)/LocationSearch/363

https://www.nhs.uk/service-search/other-services/Clinical-Commissioning-Group/LocationSearch/1

https://www.cqc.org.uk/contact-us/how-complain/complain-about-use-mental-health-act

https://www.ombudsman.org.uk/

https://www.ombudsman.org.uk/publications/my-expectations-raising-concerns-and-complaints

HOW TO COMPLAIN

https://www.nhs.uk/using-the-nhs/about-the-nhs/how-to-complain-to-the-nhs/

https://www.nhs.uk/service-search/other-services/Patient-advice-and-liaison-services-(PALS)/LocationSearch/363

(Recommended)

https://www.ombudsman.org.uk/

#nhs #doctorssurgeries #generalpractitioners #dutyofcare #doctorspractice #negligence

PIP Personal Independence Payment Delays And The Repercussions On Mental & Physical Health.

PIP Personal Independence Payment Delays And The Repercussions On Mental & Physical Health.

Disclaimer Scotland: People in Scotland will no longer be able to make a new claim for Personal Independence Payment (PIP) from August 29 when the benefit will be replaced by Adult Disability Payment (ADP) in all 32 council areas across the country. At present, 13 local authorities are now offering ADP to adults over 16 and under State Pension age living with a disability, long-term illness or a physical or mental health condition.

Most people don’t like complaining and will not make a formal complaint about anything let alone the DWP, because they believe it would be a waste of time and could cause a knock-on effect on their other benefits.  For those that do complain and, after many months of pursuing, end up giving up.  The ones that are determined come away with a pathetic apology and feel they have hit a brick wall. They accept the mediocre admission by the DWP or Atos, Capita, that these organizations made a mistake and nothing else happens, their mental health is simply disregarded without a second thought.

ANN ABRAHAMS – REPORT

However, the most recently released report reveals that a tiny number of people pursue their complaints further and end up being awarded large sums in compensation. The report is called ‘Small mistakes, big consequences’ and is written by Ann Abrahams, the Parliamentary and Health Service Ombudsman. Ann Abraham should be a name that should stand out as well as your local MP.

Remember nothing happens quickly after all these people are not in a hurry to find money to put food on their tables, only you are”…

(The report can be downloaded using the following link: Parliamentary and Health Service Ombudsman Small mistakes, big consequences HC 6 (publishing.service.gov.uk)

MEDICAL EVIDENCE

Your illnesses and disabilities should be corroborated with medical evidence and letters from GPs and consultants. This payment is to help with your daily living and is not an alternative to being a benefit bum and living off benefits. This payment is for people who truly deserve the extra money because of their disabilities. The reason why the Government is clamping down is because of too many fake, lazy individuals that see this as free money.

DELAYS

Delays are causing people to become ill through worry and stress. https://www.mind.org.uk/information-support/types-of-mental-health-problems/stress/what-is-stress/ Hundreds of thousands of disabled people are having to wait for £300 million of vital support, according to a new analysis from Citizens Advice.

Citizens Advice said: “PIP, which can see people with an illness, disability or mental health condition receive up to £157 a week, is a lifeline for millions of people, yet the government is playing with people’s lives and their health.

There are currently around 327,000 Disabled people on the waiting list, with an average waiting time of five months. Citizens Advice projects this means £300 million of payments that would be awarded are being held up, after all the government needs to look after themselves first before thinking about the other half of the population. You are not their priority, although you should be.

“Waiting for this payment is having a huge impact on people’s lives. Delays in assessment mean that support is held up, forcing people into impossible choices as they try to make ends meet.”

STATISTICS

  • People are facing humiliation as 1 in 5 people have needed to go to a food bank in the last 3 months who have also had an issue with PIP. Many of those waiting for a decision will also be eligible for the £150 disability benefits cost-of-living support payment but are unlikely to get it before October’s mammoth energy price hike.
  • There are more people coming to Citizens Advice for help with PIP than with any other issue in fact an astonishing 41% more than any other issue.
  • Around 150 people are contacting advisors at Citizens Advice every hour for one-to-one help, and its webpage on “How the DWP makes a decision on PIP claims” had 27,700 page views last month, up 56% year on year.

CITIZENS ADVICE

Citizens Advice is calling on the Government to take urgent action to relieve pressure in the system and help get money to people who desperately need it. It is calling for an emergency plan from the Secretary of State for Work and Pensions to urgently tackle this backlog, including reducing the number of claimants required to have a medical assessment, which is the main reason for these delays – and extending the award period so people have to reclaim less often.

The severe PIP assessment backlog is not just affecting new claimants but also those seeking reassessments or needing extensions to their claims. These lengthy delays are having a substantial impact on their applications for other benefits such as blue parking badges, bus passes, and Motability vehicles.” https://disabledentrepreneur.uk/bus-passes-for-the-disabled/

Backlogs in the disability benefit assessment system are having significant knock-on effects on disabled people’s ability to live independently, new evidence has shown.

These delays are also causing further turmoil for disabled people whose support needs have increased and believe they should now be entitled to higher PIP payments.

The evidence has come from the Benefits and Work website, which has heard from a string of existing PIP recipients who say the delays are causing tremendous emotional distress and significant problems.

In March, Disability News Service (DNS) reported how the backlog of disabled people waiting for a PIP assessment had more than trebled in the last five years, from 88,500 in October 2016 to nearly 312,000 by December 2021.

DNS has also reported on similar problems with the Access to Work system, with DWP figures showing the number of disabled people waiting for decisions on their applications has more than quadrupled in a year from just 4,890 in March 2021 to 20,909 in March this year.

One of the ways the Department for Work and Pensions (DWP) is dealing with the lengthening PIP assessment backlog is by providing temporary (3 months), short-term extensions to PIP claimants who are waiting for their benefits to be reviewed.

Editors’ Opinion – “Do they not have enough unemployed people to do a bit of paperwork? How about outsourcing the work would be another idea and finally only appraise the people that have medical evidence to corroborate their illnesses”?

The Government is purposely dragging its heels in order to save money.

“This is Evil, a Disgrace, and a Shambles”.

Vicky Foxcroft, Labour’s shadow minister for disabled people said:

“With the cost-of-living crisis hitting disabled people particularly hard, it is shocking this government has not got a grip of the PIP backlog, which has been going on for months now”.

“Short-term fixes aren’t enough anymore. Disabled people deserve so much better than this; Tory ministers need to get a grip on this backlog, especially given the impact it is now having on other benefits for disabled people.

“A future Labour government would invest properly in disabled people, ensuring they had the support needed.”

A DWP spokesperson said:

“We closely monitor the progress of PIP cases awaiting assessment and take all steps possible to ensure claimants receive the vital support they require”.

“We can and do make in-house decisions on award reviews without referral to assessment providers where necessary and use a blend of phone, video, and face-to-face assessments to ensure support is given as quickly as possible.”

People Who Suffer From OCD

Daily Living Descriptor 6 – Obsessive Compulsive Disorder

The Upper Tribunal has recently made a decision (CPIP/3760/2016) about how people with OCD can claim points under PIP.

BACKGROUND

The PIP Regulations say that people who can’t do an activity listed in one of the PIP descriptors safely, repeatedly, to an acceptable standard, and no more than twice as slowly as a non-disabled person, shouldn’t be counted as being able to do that activity for the purposes of PIP. (I keep a note of my health online and so does my daughter. I think as a sufferer of OCD the form does not actually cover all the different types of OCD). https://disabledentrepreneur.uk/category/renatas-online-journal/ & https://disabledentrepreneur.uk/category/zena-online-journal/

Therefore there has been some confusion about people with OCD, who usually can do an activity perfectly well, but have to do it over and over again or in particular ways or at particular times.

(Assessors who are not specialized in diagnosing OCD or any other illness should not have any input about the claim – just because they have passed e-learning does not make them any more qualified than you or me).

The PIP descriptors and the regulations didn’t deal with this sort of situation very well and so lots of people with OCD lost out on awards. Now the Upper Tribunal has looked at the issue and made a judgment that will help people with OCD to earn points for PIP.

WHAT THE UPPER TRIBUNAL DECIDED

The Upper Tribunal case was about a person who took a very long time to get dressed because their OCD meant they had to repetitively try on lots of different outfits until she found one she was happy to wear. The DWP argued that this long time didn’t count for the purposes of PIP because it was just the person’s choice to try lots of clothes on. The Upper Tribunal, however, held that because the person’s hesitations and repetitive behavior were ‘the consequence of her health condition’, she was entitled to points because it took her more than twice as long as a non-disabled person to dress. But the UT did say that if the longer time had not been a consequence of her health condition, she would not have been entitled to points.

This decision is important because the principle that delays in being able to complete a task because of the consequences of a mental health condition like OCD can be applied to all descriptors, not just dressing. So a person with OCD who can eat perfectly well but who takes an hour to eat because of obsessive rituals about arranging the table, or a person who can wash perfectly well but who does so eleven times three times a day, could claim points under those PIP descriptors.

WHAT THIS MEANS FOR YOU

If you have OCD for example and have obsessive rituals or other behavior which means that you take much longer to do activities of daily living like cooking, eating, dressing, and so on, then you now can use this Upper Tribunal decision to strengthen your argument for claiming PIP.

Note that you will still have to be able to show that you have been diagnosed with OCD or a similar mental health condition and you do in fact have behavior that means you take much longer than a non-disabled person to complete daily living activities. Good strong evidence from people who know you will be needed.

You will also have to show that your behavior is a consequence of your mental health condition and not just your own preferred way of doing things. Showing that you can’t change the way you do things even if it is against your interests will be useful – eg that you miss appointments because you can’t get there in time owing to a dressing ritual.

DIFFERENT TYPES OF OCD

OCD is a very complicated illness it is not just about washing or checking or taking too long to shower, dress or cook food. It may be the fear of germ contamination (as I have). I know logically we are surrounded by germs but the thought of contracting something or being harmed through direct contact with an unsanitized area does not bear thinking about. I am cocooned in my own surrounding where I can keep my intrusive thoughts under control as best I can. My disabilities are not just OCD, they are Depression, Social Disconnection, and Cognitive Impairment (Cerebellar Atrophy) to name a few.

TIMING

As with everything, it all takes time and you are not a priority.

Upper Tribunal decisions take time for your claims, mandatory reconsideration, and appeals, and it may take some months before DWP and assessors finally make the decision.

Unfortunately for you, this causes considerable stress on your mental health and pressure on your finances. You can either suffer and do nothing other than wait or you could complain.

If your appeal is taking longer than expected you have grounds to contact the ombudsman.

If you have been treated unfairly and given the DWP and Tribunal time to respond and they have not within the timeframe then you need to start getting all your evidence together to build a case. You can take it even further and take it to an Ombudsman (Last Resort).

You can read the full judgement herehttps://www.gov.uk/…/ml-v-secretary-of-state-for-work-and-p…

USEFUL LINKS:

PIP delays leave disabled people hundreds of millions of pounds out of pocket – Citizens Advice

How do some claimants get thousands of £££ in DWP compensation (benefitsandwork.co.uk)

How to use DWP for compensation? – LegalBeagles Forum

http://en.wikipedia.org/wiki/Upper_Tribunal

http://www.justice.gov.uk/about/hmcts/tribunals

adminappeals@hmcts.gsi.gov.uk

Suing DWP for compensation … — Scope | Disability forum

Complain to us: getting started | Parliamentary and Health Service Ombudsman (PHSO)

FINAL THOUGHTS FROM THE EDITOR!

If an organization or entity causes you to become unwell because of their actions, they should be held responsible and should pay for damages.

If people are becoming mentally and physically unwell because of the Government’s actions then the claimants should be awarded compensation.

If you have been affected by:

  • Emotional Distress (causing, stress, anxiety, depression, intrusive thoughts, and making your mental illness worse).
  • Indirect Discrimination (entity assuming because you have an invisible illness you are classed as normal).
  • Harassment
  • Intimidation
  • Humiliation (having to go to food banks or being pitied because you are disabled).

Consequences

If your illness gets worse because of an entity’s direct action and in the cases of auto-immune diseases you can relapse because of stress: https://www.everydayhealth.com/hs/living-better-with-ms-guide/triggers-that-can-cause-ms-flares. then, you have under the human rights act the right to take further action. https://www.equalityhumanrights.com/en/advice-and-guidance/what-direct-and-indirect-discrimination

Flawed System

The PIP system is flawed, it employs people who are not qualified in the field of the illness (one needs to be a specialist in the field and should undergo years of training as well as qualifications to determine what the claimant is suffering from). The system is designed to degrade people and to make them unwell. The more people that become unwell the more money Big Pharma makes and that is how the world goes round.

Making a Complaint

Do exhaust all avenues of complaint procedures before contacting the ombudsman and do collate as much evidence as you can. If you have a blog or social media page share it with the people I have mentioned in this article. People usually take notice if you have a professional site and you know what you are talking about.

If you want our help and need a letter we can send you a template with all users, names, and addresses and you fill in the blanks. Our template letters are £5.00 and you will get a download link once the payment has been processed, if you want us to write the letter for you it will cost £25 per 1000 words. Your privacy and data will be safeguarded with a non-disclosure agreement.

PIP Mailing Address is:

Personal Independence (2), 2 Mail Handling Site (A), Wolverhampton., WV98 18B

Tel Number:

0800 121 4433 ( be prepared to wait 45 minutes to be put through)

Email:

contactus@capita-pip.co.uk

** Just to explain when I spoke to PIP today over my daughter’s award the woman said that my daughter or I would have to submit evidence by post. Knowing they had an email I said could it not be done electronically (I bit my tongue about saving the environment) and the woman I spoke to blatantly lied and said there is no email address.

The amount of time I had to wait to be put through could easily cause someone who has multiple sclerosis or any other auto-immune disease and suffers from bad stress and anxiety to easily relapse. Furthermore, I do not know who they employ because I had to spell Alemtuzumab out even though I clearly told the woman the word can be found on www.lemtrada.com.

I am not looking forward to the assessment my daughter is due to have because if they make my daughter perform like a circus monkey that will mean I will have to intervene. My daughter documents her health in her online journal on this platform. I am not looking forward to having to deal with these people.

Contact Us For a Template Using The Form Below:

Further Reading

DWP admits wrongly rejecting disabled people for benefits at record rate | The Independent

People who claim PIP or were denied benefit payments could be owed £13,000 due to rule change | The Sun

‘I’ve recently had my PIP benefit claim turned down – how can I appeal it’ – Mirror Online

Thousands of people ‘wrongly’ denied PIP disability payments after surging in DWP appeals – Mirror Online

#dwp #pip #personalindependencepayments #invisibledisabilities #indirectdiscrimination #humanrights #equalityact #ocdandpip #emotionaldistress #humiliation

Definition of Insulting My Intelligence!

Definition of Insulting MY Intelligence!

Definition of insult or insulting means: when we give a mock with a scornful countenance as in some smiling sort looking aside or by drawing the lip awry or shrinking up the nose. This may include an assumption that we are more knowledgeable than the person we are talking to, thus proclaiming that the person we are directing the comment to is not of high intellect.

I am rattled today because of an email I received from an agency that is run by my local council and they seem to separate themselves even though they are one. They are basically saying that they are not the local council and are passing the buck.

I am getting irate because this is costing me time having to argue with them and not to mention it is also affecting my daughter’s mental health and it is also affecting me. We both have disabilities and I fight my daughters’ battles even though it sometimes can also affect me too.

“No one can make you feel inferior without your permission.” – Eleanor Roosevelt

“Never argue with stupid people, they will drag you down to their level and then beat you with experience.” – Mark Twain

“Trusting someone’s opinion over your own is admitting you believe they’re smarter than you are.” – Charles Faraone

It takes a lot to get me rattled but people (sheep reading off scripts) do push my buttons and eventually if one does it enough times “you will see me blow”.

I am normally a calm person but if people purposely wind me up and think I am an idiot to believe the BS, they have another thing coming.

Not only this, the said agency is basically insinuating that Multiple Sclerosis is Not a Disability and they are undermining the results by the Professor of Neurology.

“This post serves as the foundation of the whirlwind I will stir and will happily sing like a canary”.

Me, The Singing Canary!

So despite showing evidence that my daughter has had a relapse this said agency is still in need of more evidence. My daughter’s neurologist is on annual leave should I demand he drop his holiday and everything else he is doing to pussyfoot around these people?

I find the behavior of this agency is causing emotional distress and indirectly discriminating which is against the law. If I have proven my daughter has relapsed and needs help getting around occasionally, as no two days are the same, you would think they would be more understanding but they keep putting obstacles in the way and causing distress.

I am dealing with this as I do not want my daughter to relapse again and I will not allow her to jump on one foot whilst touching her nose and act like a performing seal just to prove a point.

I reiterate medical evidence will suffice and she will not be questioned by someone who is not qualified for the role (my daughter’s friend is a PIP assessor with only GCSEs to her name).

Indirect discrimination

Indirect discrimination happens when there is a policy that applies in the same way for everybody but disadvantages a group of people who share a protected characteristic, and you are disadvantaged as part of this group. If this happens, the person or organization applying the policy must show that there is a good reason for it.

A ‘policy’ can include a practice, a rule, or an arrangement.  

It makes no difference whether anyone intended the policy to disadvantage you or not.  

To prove that indirect discrimination is happening or has happened:

  • there must be a policy that an organization is applying equally to everyone (or to everyone in a group that includes you)
  • the policy must disadvantage people with your protected characteristic when compared with people without it
  • you must be able to show that it has disadvantaged you personally or that it will disadvantage you
  • the organization cannot show that there is a good reason for applying the policy despite the level of disadvantage to people with your protected characteristic

If the organization can show there is a good reason for its policy, it is not indirect discrimination. This is known as objective justification.

https://www.equalityhumanrights.com/en/advice-and-guidance/what-direct-and-indirect-discrimination

Note From The Editor.

With this said if an organization treats someone with ‘Multiple Sclerosis’ or any other ‘Invisibile Disability’ the same way you would treat a normal able body person, they are in fact indirectly discriminating, which is against the law.

With Multiple Sclerosis you have good days and you have bad days.

The weather can impact your health.

No two days are the same.

The same can be said with someone with mental health issues, one day you can be somewhat fine and other days you could be not doing so well.

There is no way of measuring or predicting if a person will be ok from one day to the next.

Not only this arguing with people (sheep), causes emotional distress which in the case of ‘Multiple Sclerosis’ can cause a person to relapse.

If this continues I will be looking to seek damages for:

  • Emotional Distress
  • Indirect Discrimination.

#travelcards #multiplesclerosis #indirectdiscrimination #humanrights

Renata’s Online Journal – Health Update.

Renata’s Online Journal – Health Update.

I have been doing some research on GP communication as I am concerned about how a letter that I wrote to my GP over a year ago was never answered yet it was confirmed that it had been added to the system.

In comparison, my daughter who has Multiple Sclerosis has a Neurologist Consultant at the “University Hospital Wales” who lectures at Cambridge University, and even on annual leave, had the courtesy of responding to my daughters’ emails.

This shows the consultant’s professionalism and sets him apart from mediocre general practitioners who do not give a monkey about your health, only about how many drugs they can prescribe. https://disabledentrepreneur.uk/what-doctors-wont-tell-you/

I have been let down by the system because for years I have been prescribed the same medication and have never been offeredPsilocybin Mushrooms‘.

https://www.medicalnewstoday.com/articles/psychedelic-therapy

https://www.drugs.com/illicit/psilocybin.html

I could have easily been treated for my OCD years ago but I guess if that was the case how much money Big Pharma would have missed out on.

I must admit I have never used recreational drugs and if look at the series on Netflix which prompted me to look into this I do not see why I have to poison myself with the medication I am prescribed when there is an alternative. In fact, this has really angered me that not only the local GP do not care about their patients but I could have been potentially cured years ago. I do not see why I have to be a cash cow for the GPs and Pharmaceutical Companies.

Personal Independence Payments (PIP).

So, I have found that the Government has instructed GPs to not respond to PIP and Disability Claims, requested by claimants. GPs in southeast Wales have been told to stop writing letters for patients appealing against decisions to stop benefit payments because it is an “abuse of resources”. (A bit of coinky-dinkle I think). https://www.bbc.co.uk/news/uk-wales-south-east-wales-23353623

The letter I wrote last year had nothing to do with supporting evidence it was to let the Doctor know that I was finding it difficult to do certain things and needed some support or advice.

I do not need my GP fighting my corner because I am more than capable of fighting my own battles.

Unfortunately, even paying for a letter (privately) will be dismissed because the Government has some say for GPs not to support your claim. This is wrong because the GP only knows what the patient tells them and if I write another letter and a link to this site it will corroborate what I am saying.

I did not design this site as clickbait, I designed it as a form of therapy for myself, for my daughter, and for others like us.

When my review comes up for renewal, I will not be jumping through hoops or performing like a circus monkey hopping on one foot, or bending to prove I have disabilities.

Anyone that knows me, knows I have only left my home once in the last 3 years.

Last year I wrote 5 things that were wrong with me and I never had a reply. I then spoke with the practice manager that told me to phone in to book an appointment but with one ailment at a time that would mean I would have had to make five separate calls. Besides, I have anxiety phoning anyone let alone a doctor. https://disabledentrepreneur.uk/anxiety-phoning-your-gp/

My Health Updated 06/07/22

The GP only knows what the patient tells them and although I am self-employed, I know I would never suit an employed environment for the following reasons, although I have built my brand so have no reason to change.

I am the Editor of this site and will continue doing what I am doing and report my findings.

Not everyone is looking for a handout and if there is available money that one is entitled to, one should get what rightfully is owed without jumping through hoops or begging. Don’t offer money and then expect some to hop on one foot whilst touching their nose, it is humiliating and furthermore, the ones that want to swindle the system will perform Oscars. The only way to know for definite if someone is telling the truth is by medical records or published documentation.

“I reiterate I am the Editor of this site, (MON-SAT 9 am – 5 pm) and I am also disabled. I should not have to prove anything that is not already documented or published”. https://disabledentrepreneur.uk/personal-experience-with-claiming-pip/

My OCD.

I suffer from OCD, I have suffered with OCD for the best part of 30 years I am super aware of my surroundings and avoid contact with the outside world (social disconnection) as much as possible. I can deal with the Postman, Courier or Delivery Driver, and Workmen, but that is as far as it will go. I do not have people visiting me and I like it that way. Even at home, I have triggers that cause intrusive thoughts. For example, when the cat brushed past me the other day, it consequently caused me to have a panic attack and anxiety, making me change my clothes and put the contaminated clothes in the wash. I have binned things (some expensive) that I have not managed to disinfect in the past. I cannot be around people, and I prefer my own company anyway. I am fortunate that the job I do has little to no human contact. I am fine online but have problems in the physical world. I use disposable latex gloves to touch things and go through about five hundred pairs a month.

My Bladder.

I have overactive bladder issues and go to the loo every 1.5 hours. It could be from the excess caffeine intake (I need to drink energy drinks to get me through the day). I take Mirtazapine 30mg tablets to help me fall asleep they do jack Sh#t for my OCD.

In a normal work environment needing to go to the bathroom frequently would be difficult because unless the toilet was in proximity, I could potentially have an accident which would then prove embarrassing, and I am not going to take any chances. My bladder gives me little or no warning and when you got to go, you got to go. It is a good job my bathroom is only twenty-five steps away.

Physical Pain.

My pain in my knee is manageable providing I have my meds on hand, and I am in a warm place. The moment it starts to get chilly my knee starts throbbing in dull pain. Getting in and out of the bath is comical because I cannot bend my knee to get in the bath and when I do it is very painful. (But only people who have had their knee kicked seven times purposely would know what I am talking about).

My back pain is concerning because sometimes if I bend to do simple tasks like sort rubbish or feed the cat, I get spasms in my lower back that escalate up my spine to my neck where the feeling that I can describe is like pins and needles or electricity in the nape of my neck. It is not just when I bend it is from standing, washing up for half an hour, or even cooking that I get pain in my lower back. The pain is so bad that it makes me feel sick or lightheaded, but I do not moan and simply endure it. https://disabledentrepreneur.uk/epidural-analgesia/

Swallowing Food.

Swallowing food (Dysphagia) can be a problem at times (not all the time, just occasionally), and even taking small bites and chewing is frightening when food gets stuck. Banging on my breastbone and jumping up and down rarely relieves the issue and I must wait a few antagonizing minutes waiting for it to naturally slither down. I have had to put my fingers down my throat in the past just to dislodge the food, which no longer seems appetizing to continue to finish my meal thereafter.

My Cerebellar Atrophy.

I was diagnosed with Cerebellar Atrophy over ten years ago and have noticed of late that I get dizzy spells and sometimes I need to grab hold of something to stop me from falling. I did fall down the stairs albeit 5 steps over a year ago as I mentioned in my letter and most recently, I lost my balance when I was at the top of the stairs. https://disabledentrepreneur.uk/i-nearly-died-due-to-losing-my-balance-of-cerebellar-atrophy/ I believe my cerebellar atrophy was from the head trauma I endured from my ex.

My Depression.

All I will say is that I had a Police welfare check after British Gas reported me last month. I won’t say I was suicidal as you have to have a lot of guts to go through such a thing and I do have things to live for. But I would be lying if I said I was not sad or depressed. I try to keep myself busy all the time to forget all the bad things that have gone wrong in my life and I do use this online journal to vent my anger and share my thoughts (I see this journal as online therapy, considering I have had little help from the NHS and by coincidence, I told the Police about the letter I wrote, that was not responded to by any Doctor, the PCW rolled her eyes in disbelief).

“I will say one thing though I am a survivor of domestic violence. I do get stressed and very anxious at times and have little patience for people, especially ones that are condescending and judgmental. So, unless you have walked in my shoes you have no right at all the judge me”.

Final Note.

PIP Assessment. The criteria are as follows:

(One needs twelve points to qualify, furthermore how can someone measure pain. Everyone’s pain threshold is different).

I have just done a Self-PIP Test On:

I will use the points system and this online journal as proof of my disability.

https://www.benefitsandwork.co.uk/pip-test-form

I score thirty-one points.

What the points criteria do not mention is:

Do you experience:

  • Stress
  • Anxiety
  • Depression
  • Suicidal Thoughts
  • Intrusive Thoughts
  • Cognitive Impairment (Jumbling Up Words Or Totally Missing Words Out Of Sentences
  • Obsessive-Compulsive Disorder
  • Dysphagia
  • Loss of Balance
  • Sitting
  • Bending
  • Insomnia
  • Pain
  • Numbness
  • Experience Light Headiness
  • Confusion
  • Lack of Concentration
  • Social Disconnection
  • Forgetfulness

You should read the reviews about this surgery to understand how unprofessional they are. If you report them you run the risk of being kicked out. https://disabledentrepreneur.uk/doctor-patient-confidentiality/

Both my daughter and I have been told in the past if we do not like how the surgery and staff conduct themselves to find a different doctor, in other words, leave.

When you are ‘DEPENDENT ON MEDICATION’ as both my daughter and I are, imagine having to wait to be assessed by a new doctor’s surgery (it is more hassle than it’s worth and you most probably have to physically come in which I have a problem with social disconnection, which will be out of the question unless it was an emergency).

https://nicelocal.co.uk/cardiff/medical/meddygfa_albany_surgery/reviews/

I am so tempted to give a review for the Doctor https://www.iwantgreatcare.org/doctors/dr-raluca-cristina-capatana/reviews/new?t=origin-profile.

My initial grievance is with the Surgery and the Doctor who does not work there yet her name is still on the website? http://www.wales.nhs.uk/albanyrd/practice-staff

“This online journal serves as evidence of both my daughter and my health condition and anyone else that wishes to participate in the health discussions and get anything off their chest”.

Anyone else that wishes to vent and wants their own space on an exact match searchable keyword domain name should message us below and we will set up a landing page where you too can write to your heart’s content (free of charge).

**Please note if your medical condition is published on our platform, it is not proof you have a disability or illness you must have medical evidence to corroborate your illness, which can be done by visiting your GP, writing a letter, or having an online consultation.

#personalindependencepayments #pip #pipscore #renataonlinejournal #pipselftest

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