Disability UK Online Health News Journal, Disability Business Directory, All-In-One Disability Business Solutions. Working in Partnership With Cymru Marketing Journal (CMJUK) & UK Website Designers
I have always known that large corporations do not care about people. If you look at the bigger picture, if you or I murdered someone we would go to jail regardless if we did it ourselves or hired someone to do it for us. So why is it that world leaders can start wars and get away with murder?
The whole point of wars is to raise inflation, people tend to panic buy, by worrying about price rises. But for organizations such as utility providers that are on a gravy train getting compensated by the federal reserve, they do not care about your well-being either.
It is all about the sheer greed for money and power.
OFGEM the ombudsman for energy suppliers is the government. The energy suppliers and the governments work hand in hand. Ofgem is supposed to work with people and not against them: However, Samantha Allen, chief executive of the NHS in the North East and Cumbria, hit out at Ofgem for halting energy supplies for vulnerable people who haven’t paid. Risks to clinically vulnerable people (northeastnorthcumbria.nhs.uk)Do you see that OFGEM is on the side of the energy supplier and not the people?
It will be interesting to see if what I say is true, because I have reported British Gas to OFGEM and I have until October 14th, 2022 to get a response.
The MPs are getting richer and the rest of us are getting poorer.
So it is no surprise there is an investigation going on how MPs have claimed taxpayer’s money to pay for the energy bills.
Ministers’ claims for gas, electricity, and water came to just over £195,000 in 2021–’22, according to an analysis of data from IPSA.
It also showed since 2019 that MPs have claimed just over £692,000 to cover these utility costs, with £538,000 alone going on heating bills.
Suella Braverman, favorite to be named home secretary if Ms. Truss wins the leadership contest, has claimed £7,160 for household utilities since the 2019-’ 20 financial period.
Education secretary James Cleverly, predicted to become foreign secretary, billed taxpayers £4,142 in energy and water bills at the same time.
Among senior Labour MPs making the claims was the party’s deputy leader Angela Rayner, who has been handed £2,318 to cover energy and water bills since 2019.
You have to bear in mind that these people in power have never experienced poverty for themselves, they have never had to worry about keeping a roof over their heads or putting food on the table let alone finding money to pay bills.
It is ironic that the same people go around preaching how someone should budget their money and send you to places like stepchange .org when you already have a clear picture that you do not have enough money coming in to cover your bills. So how can these charities help other than to give donations?
It really rattles me that the people at the top preach to the rest of us about money yet they are the ones causing us to get into debt.
Note From The Editor
Think of it this way the world is overpopulated, and the governments are forking a shed load for vulnerable people and people with disabilities. The governments (UK are in trillions of debt to the EU for Brexit, so where is the money going to come from to clear the UK debt?
I am now on par with managing my money after months of sheer heartache with British Gas. This cost of living, British Gas, and my creditors have caused me to dive into a deep state of depression and some days find it hard to function properly. If Covid was not bad enough and I lost a lot of business now I am having clients dropping like flies because they cannot afford to run their websites any longer. I do not see the government helping small businesses, do you?
I do try to keep myself busy and I try to learn something new every day. Talking to people does not help (not for me anyway), what advice can someone give, if they are not more qualified than me, or know my personal circumstances?
“Knowledge is Power“.
I am not saying do not talk to someone, in fact, I advise you to talk to a friend, family, or colleague, especially if life is becoming unbearable. Even go as far as talking to your GP (Doctor) but if it can’t wait phone A&E or ER.
What I find is venting my thoughts on this site helps. It not only helps me but can help someone else like me.
You do not have to use your real name just set up a Gmail email and register on here to also vent. In fact, I have even got categories called “Online Journal General” and “I Need To Vent”.
My final recommendation is not to stop paying your bills altogether, but instead, pay what you can afford while at the same time reducing your energy usage. This will hurt the energy suppliers’ profits. I have elected to pay monthly by bank transfer rather than direct debit, this gives me greater control over my bank and does not give energy suppliers a license to help themselves.
How To Reduce Your Energy Usage Home & Business – CYMRU DIGITAL MARKETING BUSINESS JOURNAL (cymrumarketing.com)
Warning: Reality Check for Utility Providers, the whole of the UK is not going to be using the same amount of Gas or Electricity prior to the Price Hikes and therefore do not go by past usage and only go by current usage moving forward. British Gas is purposely putting people in debt.
Excited at the fact that I had only used 8 units in the last two weeks which equates to £20.07, according to the customer service advisor I spoke to today, yet my payment plan has not changed and is still asking for £190 per month even though I am going to be using £40 worth of Gas moving forward. (See screenshots of my meter readings below).
According to ‘British Gas’, they calculate past data of usage and I have said in the past I had my central heating on 24/7 other than the summer months, but I am going to be using the bare minimum moving forward.
It was like talking to a brick wall and I have been told that perhaps the payment plan would be adjusted in 6 months but not before. This is forcing people to go into debt.
So hypothetically speaking, if my predicted usage will be £40 per month moving forward x 6 months left of this year which would equate to £240 but British Gas wants me to pay £190 per month x 6 months which equates to £1,140, minus what I owe = £368 & usage £240 gives a final total of £532 overpayment.
I suppose the surplus money in their bank making interest is better than it is in yours.
Now the way my plan has been calculated is for the past years’ usage rather than usage in the future even though I have proved it will be lower as I do not plan to cook, use hot water or turn the central heating on.
If what I owe is £368 and say next month’s bill comes to £40 per month based on my new meter reading on the (15/06/22) x 3 months = £120 + £368 = £488 that I would owe and if British Gas wants £190 x 3 months = £570, that would mean I would overpay £82.00
Yet they are saying “the computer says no” scenario ‘Little Britain’ quote.
I also asked the question today about what support they have for mental health and the vulnerable and this is what I was told:
A payment plan (which we cannot agree on and they refuse to spread over 36 months but in the past they have). This is intimidation.
The Charity ‘British Gas Trust’ is a joke and I would not waste time donating or asking for donations because British Gas does not support the vulnerable, (notice I am not giving this company a backlink in this article).
Contact Stepchangewhich is a third-party charity and is not exactly supported by British Gas, they give financial advice because I advertise Stepchange.org on my useful links page.
So their support for me personally is as useful as a chocolate fireguard.
It was further confirmed that British Gas does not support people with Mental Health other than what has been mentioned above.
This is how condescending companies are because I did not agree to the £190, British Gas expects me to get financial advice “hello, is anyone listening? I do not need financial advice”. I know what my usage is going to be moving forward.
I also stated I need to keep my home warm in the winter months to prevent black mold from growing as my daughter has Multiple Sclerosis (MS) and if I cannot afford to pay the astronomical prices British Gas’ is charging and I fail to turn my heating on which would cause a domino effect and my daughter relapsed from the ‘Black Mold Spores’, then someone would have to be held accountable.
Like I said in my article yesterday “if you do not have the extra money, to begin with, how are you supposed to find the extra money to pay the greedy corporate companies that make a profit on the back of your vulnerabilities”?
Below are screenshots of the meter readings.
Meter Reading 31/05/22Meter Reading 15/06/22
When I pay this company off I am going to switch providers and not recommend this provider to anyone. If any utility company refuses to spread the costs with affordable payment plans and is unreasonable with zero support for your disabilities then you should take action.
They should at least offer you breathing space to give you the time to find the money. I have proven with photographic evidence that my usage is now going to be lower.
I begrudge helping a company that makes money off me or anyone else in a vulnerable position and who is disabled. If I thought any company was worth a good review and marketing I would consider partnering with them, but I do not in this case because they have caused emotional distress which in turn has made my mental health worse.
Cost of Living And The Impact On Struggling Low-Income Families & Entrepreneurs.
Content:
In The News.
Average UK Salary & Overheads.
Self Employed On A Low Income.
Reasons Why Rachel Mclean Minister Does Not Have A Clue.
Mental Health & Low-Income Families.
Mental Health.
Suicide Due to Cost Of Living.
The Government, Brexit, Deficit Spending and Debt Ceiling.
The Hidden Secrets Of Money – Mike Maloney.
Financial Difficulty.
Useful Links.
Final Thoughts From The Editor.
About The Author.
Possible Solutions – Start A Business.
Start A Second Income – Start a Business.
Disability Support.
In The News.
According to Rachel Mclean Minister stated people struggling with bills should ‘work more hours or move to better-paid job’.
Ms. Maclean said: “Over the long term we need to have a plan to grow the economy and make sure that people are able to protect themselves better – whether that is by taking on more hours or moving to a better-paid job and these are long-term actions but that’s what we’re focused on as a government.”
Firstly not all employers have the budgets to give extra hours.
Secondly, if it was so easy to get a job everyone would be doing it and we would not have so many people unemployed.
Thirdly the average salary for the average U.K. full-time worker as reported by the ONS equates to £31,772 over the year. However this may be an average yet there are many jobs that pay the National Minimum Wage based on 40 hours working week at the national minimum wage of for example £9.18, which equates to £17,625 before tax and NI.
⚡️The average energy bill in 2021 was £95 per month but, based on our average family using an average amount of energy, this will rise to £153 per month.
📈Council tax payment – £189
💧 £56 for water.
💻Broadband inc television and landline average £80 per month.
📱Phone bills are £45.00 per month each.
🚝 Average commute would cost them £288 per month.
👨👩👧👦 Childcare costs have risen to £1303 with one child in nursery full time and the other in breakfast club.
🥘Feeding the family costs on average £424 a month.
The Self Employed With a Handful of Jobs With Zero Profit:
Incomings (Excluding Business Overheads) Per Month:
£00.00 Business Profit
£590 Housing Benefit
£400 Working Tax Credits
£240 Personal Independence Payment
Total£1230
OutgoingsPer Month:
£655 Rent
£262 Utility Bills (Water. Gas Elec)
£80 Telephone & Broadband (Without Broadband I cannot work)
£200 Food
£91 Insurance
Total Per Month £1288 (Do The Maths).
Reasons Why Rachel Mclean Minister Does Not Have A Clue:
Getting another job may be in breach of the contract of the current employer.
Tax Implications.
The unemployed who cannot find work (so how is someone in employment going to find work so easily?
People with disabilities who cannot work? How are they supposed to live?
Disabled People in Employment? Disabled people find it more difficult to get work because even though we are supposed to live in a non-discrimination society, a person for example with OCD who has to wear latex gloves to touch things won’t be hired to represent a brand on a high street shop or may feel uncomfortable working in an office environment being the odd one out. Ask yourself this question how many people do you see working who have wheelchairs? Businesses with no wheelchair access are not going to go out of their way to build ramps and fit disability equipment unless that person they were hiring was worth more than his/her weight in gold.
Self Employed on low incomes as they struggle to get more business?
People with children, so are you supposed to get a second job so that you can pay for childcare to look after your kids whilst you are at work? (getting a stranger to bring your child up, I have never got my head around this unless you earn a lot of money and your career is very important to you).
Not all households have two incomes some people live on their own and only have one income.
Mental Health and Low-Income Families.
This affecting people’s mental health with the Governments and the Banks playing God with your prosperity? Lee Anderson, Conservative MP for Ashfield, said in the House of Commons that meals could be cooked for as little as 30p a day. (You can’t even buy ramen noodles for 30p) I suppose if you had eggs and toast or jam sandwiches every day that may bring the shopping bill down, but who wants to eat toast and eggs every day?
Let’s be hypothetical here:
2 Dozen Eggs: £4.00
2 Loaves of Bread £2.40
Butter or Spread £2.00
Total Price of Groceries: £8.40 divided by 7 days = £1.20 a day
I suppose if you ate one egg a day (after all we can’t be greedy) it would bring the cost down by £2.00 which would mean your daily food bill would be 91p per day.
I am sure health professionals would be falling over themselves saying how unhealthy this would be.
But who on earth wants to live like this? This affects a person’s quality of life never mind their mental state. It’s humiliating and downright cruel. No one should be made to starve to fit in with the Government agenda.
The government needs to get its house in order before palming off its problems on the public.
The cost of living crisis is affecting the nation’s mental health and the already vulnerable mind.
Sarb Bajwa, CEO of the BPS (The British Psychology Society) said:
“The absence of measures to support the most vulnerable is glaring, and many families will be swept into poverty over the coming months, as they struggle to pay their bills and put food on the table. The mental health impacts of this are severe – we know that the stress of raising a family in poverty can have huge ramifications on parents’ and children’s mental health and that poverty is one of the major risk factors for the development of mental and physical health problems“.
A Sheffield Labour MP said some people in his constituency have attempted suicide in response to the rising cost of living. Paul Blomfield, MP for Sheffield Central, said: “I spent yesterday morning at a crisis meeting in a part of my constituency where incomes are lowest. And we were looking at the way in which the cost-of-living crisis we’re facing was impacting people”.
The Government, Brexit, Debt Ceiling & Deficit Spending.
Debt Ceiling
The debt ceiling is the maximum amount that the U.S. government can borrow by issuing bonds. When the debt ceiling is reached, the Treasury Department must find other ways to pay expenses. Otherwise, there is a risk the U.S. will default on its debt.
In other words, because the UK left the EU, the Brexit Divorce Bill in July 2021, was estimated at £40.8bn but Downing Street insisted the figure was between £35bn and £39bn. https://www.bbc.co.uk/news/51110096 we now have a crisis on our hands. The Government needs to find the money to pay the EU. Goods and services are now subject to tariffs, increasing the cost of raw materials into Britain and finished products out.
Depending on your location Country/Town/City there may be emergency grants available. For Cardiff for example if are experiencing severe financial hardship you may wish to make a claim to the Discretionary Assistance Fund (DAF) Discretionary Assistance Fund (DAF) | GOV.WALES
The governments have overspent and people and businesses too. So what does that mean in the long run for the British Public? For starters, the cost of living has to be increased to pay back the debts that have accumulated and forces people to borrow even more money. For every pound/dollar borrowed you have to pay interest which is fiat currency to the banks and that is how the monetary system revolves.
If the Government and Politicians are so quick to give advice why don’t they swap places with people living on the poverty line, if one is born with silver spoons in their mouths they will never grasp how the other half lives and it is easy to dish out advice if you have never experienced life, where you have to worry where your next meal is going to come from.
It is easy to pass judgment whilst hosting wine and cheese parties and decorating walls with gold wallpaper at a cost of £840 per roll?
It’s easy to say find a job when businesses are not hiring and do not want to spend.
All businesses are tightening their reigns on their spending, so the chances of a pay rise or an increase in hours are going to be slim.
What happened to all the money that was confiscated from the Oligarchs and all their assets? (is it all just smoke and mirrors simply to confuse everyone so that they do not find out what is really going on?). Why can’t the assets be sold off to pay off the national debt?
Why are the owners at the Federal Reserve getting a 6% commission, why can’t they reduce their cut to 1%; and the rest of the money sent back into the system? (It’s not as if they can take all the money with them when they die).
Creditors should not hound the vulnerable, by phoning or texting several times a day (it is called harassment). If a person has admitted hardship the creditor should put a halt on payments overdue and even come to some arrangement to pay back in affordable monthly payments rather than making a person feel emotionally and mentally unwell. (£40 x 60 months = £2,400) It is better to get something back than nothing at all. The same goes with Utility companies do not force people into corners as you never know what they might do.
About The Author.
I am an advocate for mental health and poverty. I write about Disabilities, Business, Politics, and Finance.
I have Disabilities.
I write in my Online Journals where I share my articles with my network of nearly 11K connections on LinkedIn and on Social Media Platforms, Groups, and Pages.
If I can help just one person, I know I am making a difference one step at a time.
The more people stand up and express their dissatisfaction with how they are being treated eventually something will change.
Possible Solutions– Start a Business.
The Governments instead of throwing spanners in the work with their lame solutions; instead they should encourage people to set up their own businesses and start a second income. Anyone and everyone can start a business and the possibilities are endless.
I can help you start up a second income and offer free advice and support.
The other thing that has been brought to my attention is how cost-cutting the government is with benefits, robbing Peter to pay Paul so to speak, by taking away simple necessities from the already high risk and vulnerable people to pay for their spending on Wars and their own agendas, they are doing the classic “Daniel Blake” scenario.
My daughter has MS (Multiple Sclerosis) and has a Cardiff Bus Concessionary Travel Card, have now said she will not renew her card even though she already was awarded the card; unless she gets the new updated PIP award letter that is still being processed. She has been given a deadline to produce the letter within the next eight weeks which PIP have said they will not be able to do. If people have a long-term illness they should not be expected to jump through hoops to prove they are ill. They should have evidence from health care professionals and should not be expected to perform like performing seals.
As it happens my daughter is going to have treatment again in the next few weeks because she has relapsed and her MRI scan showed new lesions. The powers that be should not be adding more stress to people who are ill that have corroborating evidence.
If you found this article interesting and useful please take the time to share it with your friends, families, and colleagues. Don’t forget to use the links throughout this article and last but not least please consider buying me a cup of coffee. Some of the National newspapers are using paywalls which is annoying so we will continue providing free content, without forcing people to subscribe to read the full articles.
Feeling Suicidal is when a person is in a very dark place metaphorically speaking when they have lost the will to live and they see no other way of escaping from the nightmare they are in.
The rise in suicides likely to be linked to austerity – but the story behind each suicide is complex.
When a person has lost all hope and the will to live they cannot see anything else other than dying. They believe that once they die their nightmare will be over and they will not feel anguish, sadness, loneliness, or despair. They do believe the grass is greener on the other side but is it though?.. Some people believe if you commit suicide you go to hell. So if life feels like hell right now, the real hell will be far worse.
When a person falls into this state of feeling hopeless when nothing is working out fine for them and no one understands them or cares or bothers with them it is understandable they may sink deeper into the abyss.
Most of our depression is fueled by fear, loss, and grief. “Disabled Entrepreneur UK” covers all topics in all categories (I have linked some of the topics in this article).
There are many factors that can cause a person to feel so low:
They feel like a failure, they have nothing to show for their life, they fear failure.
They have lost their job.
They have lost their home, through evicition or natual disaster, divorce, seperation or money problems such as bankruptcy or not being able to keep up with the mortgage payments.
They have lost their family through death or family fued.
They have or are going through a divorce and are losing their home, their children and their money.
They have been robbed.
Their business is going under.
They have lost their life partner, through seperation, or death.
They have lost their child through miscarrage, illness or accidental death.
They are discriminated, humiliated or made a mockery of. They have people or institutes that judge them.
The have financial burdens that if their money was taken away how would they cope (benefits).
They feel no one cares or understands them and every time they reach out people do not take them seriously.
They are stuck in a physically and mentally abusive relationship.
They are being bullied in school or in the workplace.
Harrassment because of sexual orientation, religion, skin colour, beliefs, ethnicity.
They have no friends.
They feel lonely.
They feel the world has turned against them.
Their family and friends have turned against them because or their sexual orientation, religion or beliefs.
They are the abuser in a domstic viilent relationship and have they gone too far with their actions and feel worried they will get caught.
Many adults will experience feelings of hopelessness or suicidal thoughts at some point in their lives.
This could be because they do not have a close support network that understands them (friends/family/co-workers) and they may feel embarrassed to reach anyone in their network for the fear of being laughed at or for the worries they have to be brushed under the carpet so to speak.
SIGNSTO LOOK OUT FOR.
Social Withdrawal.
Excessive Quietness,
Irritability.
Uncharacteristic Outbursts.
Crying For No Reason.
Hating Everything and Everyone.
Talking about Death or Suicide.
“If you are feeling suicidal, the most important thing is to talk to someone“.
“If authoritarian institutions try to judge or discriminate against a person for their mental health, remind them no one is perfect and everyone could be in the same shoes as a suicidal person one day feeling life is not worth living”.
When you feel sad and lonely and feel you have no one to turn to there are organizations specifically designed to help people going through what you are going through. They are not discriminating or judgemental they actually care about you as they would not be there otherwise. They are there to lend an ear, you do not even have to say your real name. You just need to take the brave steps to reach out that is all you have to do.
If you are going through a difficult time, you may be feeling isolated and disconnected from your friends, family, or other groups. It might it difficult to start a conversation about your feelings, therefore there are organizations such as the Samaritans that can listen to your problems and perhaps steer you in the right direction. But it’s important that you let the people around you know how you are feeling. It’s important to remember that people in these organizations care and will want to help you.
Saying that, be prepared for the people in your immediate circle that may be oblivious to your sadness and may try to back away because they have their own problems.
The best people to start with are the ones that have been professionally trained, such as a GP or Mental Health Organisation. Not everyone in your close network of friends and family will understand or even want to help you, so keep that in mind.
What to do if you are experiencing suicidal thoughts
Your GP should be the first point of contact for any issues affecting your physical and mental health, including suicidal thoughts. They will also be able to diagnose a state of depression or anything in your lifestyle that may be contributing to how you may be feeling.
If you do not have a GP but need to speak with a doctor urgently, you can call NHS non-emergency number on 111 and they will direct you to the nearest available walk-in centre or doctor’s surgery.
Tips for coping with suicidal feelings:
Try not to think about the future, just focus on the present and getting through the day, start by taking baby steps.
Avoid drugs or alcohol, these will only add fuel to the fire.
Go to a safe place like a friend’s house, family or public area, avoid being stuck at home alone, go somewhere where there are people around.
Start a journal, this could be a physical book or online blog.
Find a reason to help others through your personal story.
Do something you usually enjoy.
If you are about to harm yourself or have already done so, call 999 as soon as possible or go to Accident and Emergency (A&E) at the nearest hospital.
Professional suicide support services
If you’re feeling very low, you can contact any of the professional support services below for free.
Sane Line – call 0300 304 7000 (available 4.30pm – 10.30pm every day)
Papyrus Hopeline – call 0800 068 4141, text 07786209697 or email pat@papyrus-uk.org (available 10am – 10pm weekdays, 2pm – 10pm weekends and bank holidays)
The Mental Health Foundation is concerned but not surprised by the latest UK suicide figures. They are in line with other evidence of the distress people are feeling, such as rates of self-harm and self-reported feelings of shame.
Some of the rises in the number of suicides may be due to a change in the rules in England and Wales about how coroners should record suicides. However, it is currently too soon to know what difference the change has made.
Whenever a person takes their own life, there is a complex story behind it.
There is also not a single simple explanation for the increase in the number of people taking their own lives, but it is likely to be linked with economic austerity. We know that suicide rates are linked with people’s uncertainty about their financial futures, unemployment, persistent inequality, loneliness, discrimination, and ill-health.(Citation/Credit).
Asking about suicide does not encourage it, nor does it lead a person to start thinking about it; in fact it may help prevent it, and can start a potentially life-saving conversation
Note From the Editor.
However, I have to agree to disagree, I suffer from Mental Health Issues and on my last PIP assessment I was asked that very question, have I had suicidal thoughts.
Firstly I would not admit to anyone if I had them or not.
Secondly if I did not have those thoughts I basically was given a loaded gun because if I was not thinking about it before, I most certainly was thinking it now and had a seed planted in my head, which I could have easily gone through with it had I have been in that state of mind.
“The difference is I do have everything to live for and can teach people including institutions asking someone directly if they are feeling suicidal can go one of two ways and one has to tread carefully”.
“One needs to be subtle and not cause a person to immediately go on the defense and on guard. No one will admit they feel suicidal especially to a stranger unless they actively are looking to get help and are prepared to get the support they need”.
For me personally, this crossed my mind on the odd occasion, but I was not telling a PIP assessor who I did not know and besides my own personal story is complex, it is not one incident but many incidents with many people’s/entities actions that I can blame over many years that have caused me to feel depressed”.
“As I walked away with a loaded gun that the PIP Assessor had metaphorically given and had I not found the strength to over-ride my thoughts I very much doubt you would be reading my story today”.
I have since learned that one can over-ride one’s thoughts with neuroscience which I am actively researching. I hope to publish my findings in the near future.
What assessors should ask instead is:
Have you been feeling low?
Do you feel you can talk to someone?
How often do you feel low?
Do you have friends or family you can talk to?
Do you feel hopeless?
Do you feel worthless?
Do you feel the world is against you?
Do you know of any support networks you can reach out to?
Do you turn to alcohol or recreational drugs to surpress your thoughts?
Do you feel your thoughts are very intrusive?
Do you isolate yourself from society?
Can you cope with life?
Do you have any hobbies?
Do you feel proud of yourself?
Has anyone tried to hurt you physically or mentally?
World Health Organisation:
According to “WHO” Nearly 800,000 people die by suicide in the world each year, which is roughly one death every 40 seconds.
Suicide is the 2nd leading cause of death in the world for those aged 15-24 years.
Depression is the leading cause of disability worldwide.
When someone you know looks or behaves not their usual self, ask them if they are ok and that they can talk to you whenever they want with no pressure. Always be kind to people as you do not know what they are going through or feeling.
Never be judgemental or dictate to them what they should or should not do. Everyone has the ability to make their own decisions for their own reasons. If you have an opinion tell it once, it is up to the person to listen, continue bombarding the person with your opinions will eventually make the person withdraw from you. If people do not want to listen or take on board your advice do not force it on them.
If you say you are going to phone someone, stick to it, and never give empty promises as that person could just be waiting for you (CD) as there are consequences to our actions.
Do not be that family member that only reaches out once a year at Christmas. Phone the person regularly throughout the year. Get the distant relative involved in your life, do not disregard them like leftover meat. Phone them if they are not inclined to meet with you.
People battle demons in their heads and it is only right for you as a decent human being to be there for the person that may be going through worse ordeals than yourself.
If you are a good person you will spread awareness that people do not have to go through things alone, share your story so that people can relate to you.
If you do not have a job and no one wants to employ you, then create a job and be your own boss. I can motivate and inspire anyone.
Nothing is so bad that you cannot overcome the problem(s) you are faced with, believe me, I know, I have been there, done that, and got the t-shirt. In fact, it did cross my mind on the odd occasion but found a way to get through it. Besides, I have a family and a business I am grateful for having a roof over my head and food to eat. Find the things you are grateful for and think there is always someone worse off than you. Where there is a will there is a way. Obstacles are there so that we can learn how to overcome them. Life is a lesson to be learned.
So if I can survive with everything I have gone through over the years, so can you.
Suicide is so very final and there is no guarantee what you will be faced with on the other side. It could be as some believe that people who commit suicide go straight to hell and some countries do not give people proper burials just dump their bodies in mass graves. It’s ironic that the actor who played the character Chris Nielsen (Robin Williams) “What Dreams May Come” in a film about suicide, committed suicide. Even famous people have demons and get depressed. (Rich and Depressed).
I have been pushed to my limits many times including when I lost both my parents and my brother but I have also had to deal with domestic violence not to mention losing someone I loved. This is part of the grieving process.
There will always be people who will try to be judgemental and will think they are better than you. Let it all go over your head, no one on this planet is better than you. Just because they may be more educated, have social status, or are some sort of institution or royalty, behind every company, there is a human being doing exactly the same as you, eating, sleeping, and surviving.
Anyone who is reading this and simply wants to talk can set up an anonymous Gmail account and message me using the form below.
“Nothing is unbearable that cannot be conquered”.
For me how I deal with depression other than doing research I use this site to write my mental health problems as an online digital journal specifically designed to help myself and others like me.
“I can lend an ear and point you in the right direction, you do not have to give your real nameand everything you say will be kept confidential”.
**Please note: messages are answered within 24 hours.
However, you can chat with me using the chatbox, Open Monday to Friday Business Hours.
If you want to speak with someone outside of these hours I recommend getting in touch with the Samaritans.
“If you want to write your own story I can create your own page and together we can inspire more people”.
It used to be whatever you said to your GP would not be repeated to anyone else, unless it warranted it, such as if the person was in some way in danger of harming themselves or if they needed medical care and support.
However as times have changed with information being passed around on the internet and emails being hacked, there was no secure way of sending an email to this particular surgery which is concerning in itself.
Apparently and this in particular aimed at my own GP, so cannot vouch for any other surgeries, that whatever you told your doctor, could also be accessed by other staff at the surgery. But in my case, my data was accessed by the adjoining pharmacy inside the building of the surgery.
I am all for data security and privacy and what I choose to share online about my illnesses may not be necessarily be everything I want to divulge publicly, hence may keep some information private, but obviously, as I have found out two people have now gained access to my letter and I have not had a response back from the doctor, which is very alarming.
So my question is does the Doctor actually know the letter exists or do I just have the word from the practice manager? What if my letter was printed off and passed around I have no guarantee that it wasn’t?
However, I was due a medication follow-up review today and although I had emailed the Doctor directly on the 25th of May 2021 I later found out this particular doctor is no longer at the practice and I had to forward my email to the practice manager on the 27th.
The practice manager acknowledged the email and said that I needed to make an appointment with my GP over certain things I had written in the letter. The practice manager also told me over the phone that my medical data can be accessed by all the staff in the surgery but to not worry as they had all signed non-disclosure agreements. 🤢
What a 🐊 of💩 so you are telling me that someone could read this information and then go home and repeat it to their friends/partner or spouse? A nondisclosure agreement is not worth the paper it is written on as there are no guarantees that your information will not be shared. A person could simply say I read this about a certain individual and there would be absolutely no proof that the said person did or did not share the information. There are absolutely no guarantees whats so ever that what is written would not be repeated or talked about during the lunch breaks or pillow talk.
To think that the surgery thinks people are stupid or gullible is beyond belief that they would be sucked into their garbage of an excuse that all staff at the surgery can gain access to your medical records, but cannot disclose any information because of non-disclosure agreement they had signed.🤬😡 Talk to the hand ✋.
What if a patient had some embarrassing ailment (I am not talking about myself btw) 😂🤣 (seriously though it is not a laughing matter) and was riddled with STD’s and everyone in the surgery including the pharmacist got to read their medical notes?
The principle of the matter is unprofessional and unethical. The patient should not have to be forced to tell the receptionist what is wrong with them as in the case of this particular surgery.
According to best practices but this is for England and not Wales only the bare minimum should be accessed but the pharmacist today confirmed she had read my letter which I quote her saying “it was very thorough and detailed and that is what they prefer”.
She asked about my medication and told me to take it at regular intervals. One of the prescription drugs is a sleeping tablet and within 30 minutes I am zonked out, so if I took it at regular times it would interfere with my life because I cannot go to sleep every night at an exact time.
This was going over her head and she was not interested in anything I had to say. She was trying to teach me to how to suck eggs as if I needed a 30-year-old to tell me what to do and in the ideal world where I did not have such an unpredictable job, I would possibly be a good girl and go to sleep the same time every night, but my lifestyle does not permit me. I even told her my job is not a 9 to 5 and sometimes I could be working at 3 am in the morning.
Now wait for this, I said, considering she had read my letter what did she suggest about this one problem I had and this is laughable by her response, she only told me to phone the GP. 😡
Although my time could be better spent than phoning and then waiting on someone to get back to me, I will be phoning the GP just so that I can speak to them for comment and get to the bottom of how my medical records have been shared.
So tell me if I had written a letter nearly a month ago to the GP you would think the Doctor(s) would have the decency to reply. Their lame excuse will be they are too busy to respond to emails.
I get a thousand plus emails a day and still find time to respond.
I think it is downright rude and unprofessional to ignore a letter that every tom dick and harry has read but does not get a response from the doctor to which the letter was addressed in the first place.
So what the hell was the reason for the pharmacist to access my medical records to ask if me if I smoke or take alcohol and then not give me any advice at all, what a waste of time and resources and my time (which not relevant in the eyes of the NHS, they can waste your time but you cannot waste theirs).
She then said she would book me in for another annual review, why though? If they get email updates from me why speak to me?
I responded unless there was anything I needed I would be perfectly capable to email or phone the GP myself and did not need an annual review (omitting the part that her phone call was a waste of my precious time).
I am fuming how my medical file has no privacy protection. 🤬😡
I have mentioned this surgery before on a marketing blog I also run and have been told if I make waves I could be struck off their register yet I depend on my medication.
They also have said to me that they (the NHS) quote “do not have an obligation to help me if they do not want to”.
So if you are savvy to know about my other blog just search for GP Surgery Cardiff. Sorry, no links given.
Confidentiality is not absolute
Confidentiality is an important ethical and legal duty for doctors, however, it is not guaranteed and is not absolute. Your doctor may be able to disclose personal information without breaching his/her duties of confidentiality under certain circumstances, such as when the disclosure is of overall benefit to a patient who lacks the capacity to consent.
Patient confidentiality can be defined as: ‘The law whereby a doctor or medical practitioner cannot reveal anything said to them by their patients during consultation or treatment.”
Confidentiality is something that is protected, by law, by a myriad of legislation including the Data Protection Act 1998, The Computer Misuse Act 1990and The NHS Confidentiality Code of Practice.
Your first port of call should be to complain to the GP practice, you should send them a recorded signed for formal letter or email, failing that you have three options as in the links below, but in my experience of other things I have complained about in the past you run the risk of being removed from the surgery and their response is very biased as they will protect themselves, so do take this into consideration and always have another surgery lined up just in case of the worst-case scenario, remember also if you get kicked out of your surgery another surgery may not accept you based on how much trouble you make, as surgery (a) may put notes for surgery (b) to read, hence it is good practice to also request all your data from surgery (a) before approaching surgery (b).
Amongst my knowledge of OCD and Cerebellar Atrophy I have been thrown into the deep end with Multiple Sclerosis. The reason for this, my daughter was diagonosed with it at the age of 15. It was a shock to the system for the both of us to learn about the disease, the diagnosis and what treatments there were and what are available.
I had concerns when I read that the treatment was still going ahead even though European Medicine Agency (EMA) had taken it off the market. The hospital and EMA said that no new patients would be having to drug but the patients already on it would have to finish the course.
RED TAPE!
I personally think there was political red tape and that is the reason the drug had to be continued with existing patients as it cost too much and was too complicated to get a refund, I may be wrong but no one has stepped up to correct me. If the drug had been bought upfront you could not exactly get your money back I suppose. I do not know how buying drug work, but I assume pharmaceutical companies get paid upfront as they have to make large batches, with expiry dates hence the NHS cannot return drugs once they have been manufactured in large quantities.
Lemtrada suppresses the immune system for some time after a treatment course so people will be more vulnerable to infections such as colds and viruses.
LEMTRADA can cause serious side effects including:
Serious autoimmune problems:
Some people receiving LEMTRADA develop a condition where the immune cells in your body attack other cells or organs in the body (autoimmunity), which can be serious and may cause death.
Serious autoimmune problems may include:
Immune thrombocytopenic purpura (ITP), a condition of reduced platelet counts in your blood that can cause severe bleeding that may cause life‑threatening problems.
Call your healthcare provider (HCP) right away if you have any of the following symptoms: easy bruising; bleeding from a cut that is hard to stop; coughing up blood; heavier menstrual periods than normal; bleeding from your gums or nose that is new or takes longer than usual to stop; small, scattered spots on your skin that are red, pink, or purple
Kidney problems called anti‑glomerular basement membrane disease, which, if not treated, can lead to severe kidney damage, kidney failure that needs dialysis, a kidney transplant, or death.
Call your HCP right away if you have any of the following symptoms: swelling of your legs or feet; blood in the urine (red or tea‑colored urine); decrease in urine; fatigue; coughing up blood.
So its no suprise thatOn July 3, 2020 Sanofi Genzymewas notified that Lemtrada Home Phlebotomy Partner, Examination Management Services Inc., (EMSI) has gone out of business.
Because of this, unfortunately, all future Lemtrada Home Phlebotomy (lab draw) visits from EMSI have been cancelled.
Patient safety is Sanofi Genzyme’s #1 priority (thats a joke if I ever heard one as my daughter was still administerd the drug after the EMA said it was unsafe) and they continued to say they are working to provide an alternative phlebotomy solution as well as coordinate alternative testing options for your next monthly lab tests.
This tells me that the company had to do refunds and the NHS here in the UK were slow and had already paid the doctors.
I wrote an article on my other blog how Doctors get a commission from pharmaceutical companies for promoting drugs.
I personally think when I first learned about this, that I was angry that the NHS knew the risk, yet used my daughter as a lab rat.
If you have any questions related to this announcement, please contact your healthcare provider or your One to One Nurse at (USA) 1-855-557-2483.
If you are in the UK contact your MS Team, or speak to the Ward Manager or Professor assigned to your case.
Multiple sclerosis (MS)
Multiple Sclerosis is an auto-immune disease that attacks healthy white cells. The lesions that can affect the brain and spinal cord can cause a wide range of potential symptoms, including problems with vision, arm or leg movement, sensation or balance.
It is an incurable disease with lifelong symptoms that can sometimes cause serious disability, although it can occasionally be mild.
The average life expectancy is slightly reduced for people with MS and symptons can be alliviated with different courses of treatments.
In most cases, people get diagnosed in their 20s or 30s but it has been known the patients have shown symptoms as young as 15 years of age. In fact, it can develop at any age. It’s about 2 to 3 times more common in women than men.
MS is one of the most common causes of disability in younger adults.
Cerebellar atrophy is associated with MS and is more extensive in patients with secondary progressive MS and those with longer disease duration when compared with people who have relapsing–remitting (RR) MS and/or shorter disease duration. Cerebellar atrophy has been shown to correlate with clinical measures of disability.
Multiple sclerosis (MS) commonly affects the cerebellum causing acute and chronic symptoms. Cerebellar signs contribute significantly to clinical disability, and symptoms such as tremor, ataxia, and dysarthria are particularly difficult to treat.
Depression is a feeling we have that sets our emotions and our moods to become very low. This feeling can last for weeks or many months.
Depression is not about feeling sad for a few days it is about the prolonged feeling we cannot shake. Depression is not about being weak. It is a real illness. Depression is feeling persistently sad for weeks or months, rather than just a few days.
Symptoms of depression include the feeling of unhappiness or feeling hopelessness. Our emotions at low levels cause us to have low self-esteem, lose confidence, and general interest in everyday life. At this level, we no longer care about ourselves and what is going on around us. We no longer can focus properly and need to be steered in the right direction.
What is clinical depression?
Clinical depression is the more severe form of depression, also known as major depression or major depressive disorder. It isn’t the same as depression caused by a loss of a loved one or a medical condition. It is a deep state of very low self-esteem, where you may have thoughts of suicide. This type of depression makes a person feel there is no way out and they simply want to stop themselves from feeling so miserable.
Clinical Depression is a like being in a very deep dark tunnel with no light at the end of it.
What would have made us happy once is no longer enjoyable. Clinical Depression can cause people to go into isolation away from other people. Facing people can be difficult and the avoidance of admitting there is something wrong is lessened if a person with depression goes into solitary confinement.
People with depression are less likely to answer their phones or socialize. However, this can lead to loneliness which can turn into a vicious circle that sometimes a person cannot get out of.
Some people with depression turn to drinking alcohol excessively or using recreational drugs. Some become dependent on prescription drugs that they may abuse.
Depression can be set off by stressful or traumatic events at home or at work or even at School, College, or University. Stress could be caused by being put under pressure and the fear of failing or losing or having lost something or someone.
Self-employed people who have jobs that require fast results may under pressure have an overwhelming feeling of fear, sadness, and hopelessness. Entrepreneurs have to work even harder to put food on the table unlike a job with a regular wage. An entrepreneur may have the added pressure of paying for all his business overheads, staffs wages, and getting more business in before paying him/herself. Some people simply cannot cope and crack under the strain.
Depression could also be caused by the emotion of feeling sad from problems in your personal life with a partner or it could be because of your personality or family history, it could even be from giving birth (Post Natal Depression). Depression could be simply accepted into society or having to be under a tremendous amount of strain to pass a test or find your next job. It could be that you have been made redundant and feel your life is crumbling right in front of you. The pressure of paying your bills and your mortgage can sometimes drive a person to the breaking point.
There are many reasons why people become depressed it could be financial problems and the fear of your life spiraling out of control. The feeling that perhaps you have no one to turn to.
I have listed useful links below including Samaritans.
Whatever the cause, believe it or not, there is a light at the end of the tunnel and there is always someone you can talk to.
It’s amazing how many people are suffering from depression but simply do not know where to turn or that there are others experiencing exactly the same emotionsas you.
Talking to someone always helps and there are many support groups around to help you. Samaritans will talk to you confidentially any time of the day or night 7 days a week. They won’t ask you personal questions or even your name. You can even block your telephone number if it makes you feel better. They will give you ideas and options of how you can get out of the dark spell you are under. Remember there is a problem with every solution, you just need to know where to look.
Being a self-employed disabled entrepreneur comes with many challenges. One first needs to walk before you can run so starting up as a sole trader and expanding is the most sensible strategy to take. When expanding a business it can be a huge psychological boost to be able to share some of the pressures and the risks with someone else.
Mastering the art of coping under pressure is very important and is a required attribute for any entrepreneur, but for someone who is disabled and has impairment issues that are continuous, or indeed sporadic and unpredictable can affect their health long term. Not being able to manage those pressures and can affect your business and can cause challenges in relation to workflow, planning, and client relationships.
Being disabled can affect your emotions and psychological feelings of confidence and motivation.
Finding strategies to overcome obstacles specific to each individual disabled entrepreneur is vital to sustaining your business. Some disabilities are invisible to most people but require heavy medication and constant management, this can make a person lethargic and react slowly.
When starting out as a sole trader and finding you have too much work to cope with single handily you have to put your health first and offset the workload either by outsourcing or employing people that can help you. Trying to do everything yourself will eventually affect your health even more. Rather than turn away business, decided to expand instead.
Whilst being in demand is flattering, clients who want you one on one as an individual working on their project can pose problems for a disabled entrepreneur. You have to have a critical time path (CTP) and plan your hours carefully. Be transparent from the start and make your clients aware of your disabilities. CEOs are human after all and they all started out from somewhere once so they should be able to compromise meetings face to face. With working from home being the norm because of ‘Coronvirus Lockdowns’ having virtual meetings via ‘Zoom’ is becoming very popular nowadays.
Depending on your circumstances and what type of job you do will depend if you need a public office/shop or not. Most businesses are now transitioning online saving them money in renting office space and business rates.
Some disabilities are unpredictable, one day you may be feeling fine and the next day you are not. Knowing how to work under pressure and to deadlines can be challenging but if for whatever reason you were not feeling up to it one day you can always re-schedule. CEOs are not Ogre’s, they do understand. Furthermore, if you have someone that can help you out and step in can also be beneficial to running a successful business. There are positives as well as negatives to being a self-employed disabled entrepreneur.
Having a disability is hugely varied, and so are entrepreneurs’ ambitions. Some might simply want to work for themselves as a one-man-band offering a service that makes use of their particular skill and managing their work hours to accommodate their impairment.
Even with modest goals, the challenges facing a person with a learning disability who wants to set up in business can feel insurmountable without support, there are “too many” barriers that are “distressing and challenging to get the right support needed.”
Getting financial help can be difficult especially if you are a startup and want to get a loan to buy equipment. Most loan companies including banks need to see a business plan and will also need you to show your previous earnings. Some disabled people may have very low or no previous earned income and simply want to be off the unemployed scale. In these cases, there are Tax Credits you can claim as well as Housing Benefit and Council Tax Reduction (Visit your Local Council Website For Help). By setting up a budget for your expenditure you can relatively easily get overdrafts and pay for things using credit cards. Do avoid loan sharks. Also, look at grants on the Government website to see if your eligible for a financial scheme.
It is fundamental you have access to a computer and the internet to get the relevant help you need in running a business. In order to succeed, having the right information and support, at the right time, is critical for any disabled entrepreneur.
Transportation – Having transport if you have to deliver goods or meet clients is essential. There are private hire cars and logistic companies available including concierge services. There are plenty of options available that can meet your budget.
By learning how to be confident and brushing up with your communication skills will give your clients and customers a reason to trust you and the product or service you are selling.
If you’re a disabled person running a business, you probably need that extra bit of empowerment and motivation. There is nothing stopping you from following your dreams and your dreams will stay dreams unless you find the strength to make your dreams into reality.
Today we celebrate Mental Health Day with the vision of spreading awareness for this important cause.
Mental Health can be anything from anxiety, and depression to more complex mental health disorders. We all need to stand united and support people wherein a lot of cases the disorders are not immediately visible. Not everyone is diagnosed as having a mental health disorder.
Be a good listener to anyone that needs help and wants to talk. Point them in the right direction to get counseling by a professional.
Mental Illness is categorised as having the following disorders:
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