Disability UK Online News Journal, Disability Business Directory, All In One Business Solutions

Month: July 2022

Insulting My Intelligence.

Insulting MY Intelligence.

I am rattled today because of an email I received from an agency that is run by my local council and they seem to separate themselves even though they are one. They are basically saying that they are not the local council and are passing the buck.

I am getting irate because this is costing me time having to argue with them and not to mention it is also affecting my daughter’s mental health and it is also affecting me. We both have disabilities and I fight my daughters’ battles even though it sometimes can also affect me too.

“No one can make you feel inferior without your permission.” – Eleanor Roosevelt

“Never argue with stupid people, they will drag you down to their level and then beat you with experience.” – Mark Twain

“Trusting someone’s opinion over your own is admitting you believe they’re smarter than you are.” – Charles Faraone

It takes a lot to get me rattled but people (sheep reading off scripts) do push my buttons and eventually if one does it enough times “you will see me blow”.

I am normally a calm person but if people purposely wind me up and think I am an idiot to believe the BS, they have another thing coming.

Not only this, the said agency are basically insinuating that Multiple Sclerosis is Not a Disability and they are undermining the results by the Professor of Neuorology.

“This post serves as the foundation of the whirlwind I will stir and will happily sing like a canary”.

Me, The Singing Canary!

So despite showing evidence that my daughter has had a relapse this said agency is still in need of more evidence. My daughter’s neurologist is on annual leave should I demand he drop his holiday and everything else he is doing to pussyfoot around these people?

I find the behaviour of this agency are causing emotional distress and indirectly discriminating which is against the law. If I have proven my daughter has relapsed and needs help getting around occasionally, as no two days are the same, you would think they would be more understanding but they keep putting obstacles in the way and causing distress.

I am dealing with this as I do not want my daughter to relapse again and I will not allow her to jump on one foot whilst touching her nose and act like a performing seal just to prove a point. I reiterate medical evidence will suffice and she will not be questioned by someone who is not qualified for the role (my daughter’s friend is a PIP assessor with only GCSEs to her name).

Indirect discrimination

Indirect discrimination happens when there is a policy that applies in the same way for everybody but disadvantages a group of people who share a protected characteristic, and you are disadvantaged as part of this group. If this happens, the person or organisation applying the policy must show that there is a good reason for it.

A ‘policy’ can include a practice, a rule or an arrangement.  

It makes no difference whether anyone intended the policy to disadvantage you or not.  

To prove that indirect discrimination is happening or has happened:

  • there must be a policy which an organisation is applying equally to everyone (or to everyone in a group that includes you)
  • the policy must disadvantage people with your protected characteristic when compared with people without it
  • you must be able to show that it has disadvantaged you personally or that it will disadvantage you
  • the organisation cannot show that there is a good reason for applying the policy despite the level of disadvantage to people with your protected characteristic

If the organisation can show there is a good reason for its policy, it is not indirect discrimination. This is known as objective justification.

https://www.equalityhumanrights.com/en/advice-and-guidance/what-direct-and-indirect-discrimination

Note From The Editor.

With this said if an organisation treats someone with ‘Multiple Sclerosis’ or any other ‘Invisibile Disability’ the same way you would treat a normal able body person, they are infact indirectly discriminating, which is against the law.

With Multiple Sclerosis you have good days and you have bad days.

The weather can impact your health.

No two days are the same.

The same can be said with someone with mental health issues, one day you can be somewhat fine and other days you could be not doing so well.

There is no way of measuring or predicting if a person will be ok from one day to the next.

Not only this arguing with people (sheep), causes emotional distress which in the case of ‘Multiple Sclerosis’ can cause a person to relapse.

If this continues I will be looking to seek damages for:

  • Emotional Distress
  • Indirect Discrimination.

#travelcards #multiplesclerosis #indirectdiscrimination #humanrights

www.ocd.cymru Domain For Sale.

OCD CYMRU
www.ocd.cymru

www.ocd.cymru Domain Name For Sale.

OCD Cymru would be ideal as a personal blog for someone suffering from OCD, a charity, or a business.

I bought this domain a few years ago in the hope of turning it into a site dedicated to Obsessive Compulsive Disorder (OCD), however, as times move on I decided to develop a site for general disabilities, so this domain www.ocd.cymru is for sale. I do use the domain to promote my articles but I also have a sub-directory.

OCD is very personal to me because I suffer from this disability. If you follow my online journal you will be able to read how I manage my OCD and how people can affect my illness day to day.

You can read all about the articles I have written on OCD here.

#ocd #obsessivescompulsivedisorder #mentalhealth #mentalhealthdisabilities #domainforsale #ocdcymru

Treating disabled people unfairly in the workplace.

Treating disabled people unfairly in the workplace.

Treating disabled people unfairly in the workplace is going to land you in hot water and if you are not careful, FINED!

Employees are less likely to complain for the fear of losing their jobs especially if they rely on their salaries to live. 61% of workers in insecure employment came to work when they were unwell. GMB. Precarious Workers Poll. June 2017. Available from: www.gmb.org.uk/newsroom/millions-insecure-work

Working long hours increases the likelihood of a major depressive episode
Virtanen M, Stansfeld SA, Fuhrer R, Ferrie JE, Kivimäki M (2012) Overtime Work as a Predictor of Major Depressive Episode: A 5-Year Follow-Up of the Whitehall II Study. PLoS ONE 7(1): e30719. Available from: journals.plos.org/plosone/article?id=10.1371/journal.pone.0030719 A company that assumes a person to be well and will give overtime in an indirect way, could be seen as indirect discrimination, assuming a disabled person can work the extra hours. (If you refuse the overtime it could be deemed you are not loyal to the company, that you are slacking and not pulling your weight like the rest of your colleagues).

Employment Tribunal

Time limits – A claim to an employment tribunal should usually be made within 3 months less, 1 day. This is known as the ‘limitation date’. For example, if an employee wants to claim for unfair dismissal, they have 3 months less, 1 day from the date their employment ended to make the claim. You can make the claim or you can get someone to do it on your behalf, such as a friend.

Indirect Discrimination.

I start this post without mentioning the organization (blue chip company) but despite the employee telling the employer at the time of the interview, that they had a disability somewhat one year later the organization has done nothing to help support the person with the disability. The person wants to stay anonymous.

In fact, after sick leave, this company simply said they would ask and not assume after filling in “a return to work form”, yet not even 24 hours later the company disregarded this person’s disability and put them on a very strenuous job knowing that this person would struggle.

Since posting this article the employee in question was put on the spot today on 06/08/22 and when the employee complained about the work load the line manager(N) said “so what can you do” in a somewhat condenscending way, and continued to say because you look normal then you should be treated no different, I can see 🤑 🤑 🤑 signs when this eventually goes to a tribunal.

I am keeping track of everything so that when the 💩 hits the fan, they won’t know what hit them.

Reporting Your Manager

Reporting to someone about a manager especially if they all play happy families in the staff room will not get you anywhere other than making your life even more difficult to bear. Unless you have the names of HR and other Managers higher up, you may be playing a sticky wicket.

The Best Course Of Action

  • First, log the complaint with the manager. For example, if they indirectly discriminate, you can state the job role is causing you discomfort and distress.
  • Formally lodge the complaint in writing (that’s if you are brave enough and do not want to be on the receiving end of repercussions, which may follow, where they will find excuses why you are slacking), I have been there, done that, and got the t-shirt, that is why I now work for myself and am my own boss. Moaning about your boss to another boss is not going to earn you brownie points.
  • This one is by far my favourite report to ACAS. They will have your back from Day 1 and anything that happens after the complaint is lodged they will be standing by you. (Obviously, the moment you report the complaint your managers will be all over you like a red hot rash and will try to defend themselves even going as far as putting right what was wrong, but do bear in mind everything is short-lived and once the dust is settled they could go back to their old ways). You need to decide if the company you work for is worth your health. If your health is affected because of a direct consequence of a company that has done little to support you, you have to decide if you wish to continue to be treated like a door mat or take action by being compensated for your ill health due to the company’s actions of treating you unfairly, never mind your legal rights and how the company has broken the law. Sometimes we have to weigh up if working for a company that does not support disabilities is worth our blood, sweat and health.

https://www.acas.org.uk/advice

https://www.gov.uk/pay-and-work-rights

As An Employer, Of Disabled Employees You Have To Make Reasonable Adjustments

As an employer employing disabled people must make reasonable adjustments to support disabled job applicants and employees. This means ensuring disabled people can overcome any substantial disadvantages they may have to do whilst performing their jobs. (Equality Act 2010).

An individual can take you to an employment tribunal if they think you have not made reasonable adjustments.

Many reasonable adjustments involve little or no cost and could include:

  • making changes to a disabled person’s working pattern
  • providing training or mentoring
  • making alterations to premises
  • ensuring that information is provided in accessible formats
  • modifying or acquiring equipment
  • allowing extra time during selection ‘tests’

Disability law

Discrimination

It is against the law to treat someone less favourably than someone else because of a personal characteristic, such as being disabled. There are different kinds of discrimination.

Discrimination does not have to be direct to be illegal.

You can discriminate indirectly with working conditions or rules that disadvantage a group of people more than another.

How you can be discriminated against

Discrimination can come in one of the following forms:

  • direct discrimination – treating someone with a protected characteristic less favourably than others
  • indirect discrimination – putting rules or arrangements in place that apply to everyone, but that put someone with a protected characteristic at an unfair disadvantage
  • harassment – unwanted behaviour linked to a protected characteristic that violates someone’s dignity or creates an offensive environment for them
  • victimisation – treating someone unfairly because they’ve complained about discrimination or harassment

Employing disabled people and people with health conditions:

https://www.gov.uk/government/publications/employing-disabled-people-and-people-with-health-conditions/employing-disabled-people-and-people-with-health-conditions

If you need help writing a letter and making a complaint just drop us a line using the form below:

#discrimination #disabilitydiscrimination #indirectdiscrimination

British Gas Customer Intimidation & Treating Customers Badly.

British Gas Intimidation and Disregard For Mental Health & Vulnerabilities.

Intimidation is intentional behavior that causes the victim emotional distress, panic, fear, anxiety, and depression. The instigator of intimidation tries to intimidate the victim by threatening a person into paying more than they can afford, not giving time to pay, and simply disregarding the person’s disabilities. Any entity that causes distress to another person should be made accountable, especially if they have no regard for the victims’ personal health and disabilities.

  • Type of harm to vulnerable adult – Emotional /Psychological
  • Meaning – Action or inaction by others that causes mental anguish.
  • Example – Action or inaction by others that causes mental anguish. Inflexible regimes and lack of choice. Mocking, coercing, denying privacy, threatening behaviour, bullying, intimidation, harassment, deliberate isolation, deprivation.

If British Gas denied or try to defend that they did not cause emotional distress then why would they have called the Police (Duty of Care) if that was not the case? British Gas could have pushed me over the edge, and they did cause me anguish, despair, and emotional distress.

Update To Ongoing Saga!

I wrote not so long about ‘British Gas’ and the problems I am having with this company and have decided to write a separate update to the continuation of my saga.

British Gas:

  • Failed to support me with mental health disabilities
  • Failed to offer an affordable payment plan even though I told them that I had contacted their charity and asked them to give me more time.
  • Tried to intimidate me to pay £190 per month even though all I owed at the time was £318.74 (according to the threatening letter date 16th July 2022) as seen below:
  • Caused me emotional distress and as a consequence, they called the Police. (A riot van rocked up on my street and I could see the twitching of net curtains from my neighbours whilst I was publically humiliated because of ‘British Gas’).
  • Sent out intimidating a threatening letter and email.
  • Finally agreed today (27/07/22) to £70 per month which I have been saying from day dot after 3 months of arguing, but then retracted on 04/08/22.
Letter – Address Redacted.
Email Received 27/07/22 With Different Amount To The letter.

Yet today 27/07/22 it has gone up to £328.38 (charging me an extra £9.64, not sure what for? they have overcharged twice) with average usage of £40 per month. I have been paying £70 per month as this is all I can afford and they are now trying to bully me by passing my debt to a debt collecting agency. I stated I would share this far and wide if they continue to use underhanded methods and I will be seeking compensation for the distress this has caused me. If you overcharge 1 million customers £10 you make a 10 million profit.

A quick recap:

  • In January I was paying £65 per month
  • In March it went up to £90 per month
  • In April it went up to £135.00 per month
  • In May it went up to £190 per month

As a consequence, I am now in arrears and have offered to pay £70 per month on the 6th of the month, including my own estimated Gas usage of £40 per month and my arrears spread over 12 months (I have reduced my usage purposely such as not cooking, washing up and am simply eating sandwiches and salads).

But British Gas are not having it, even going as far as to say “they do not support people with mental health or vulnerabilities“, (This was said on a recorded call). The customer rep I spoke with today 27/07/22 said that the previous customer rep was wrong in saying this and that British Gas does support people with mental health (but he would say).

Here are my meter readings which prove I use my own estimated usage of £40 worth of Gas on average a month.

“I Won’t Be Intimidated, I Know My Rights!”

Meter Reading 31st May 2022
Meter Reading 15th June 2022
(If I submitted a meter reading on the 15th, why would I have an estimated meter reading on the 22md for £9.64 it makes no sense, furthermore I got charged
twice on the 22nd June 2022 & after the 16th July 2022 when the letter was sent out for the same amount, so in total, I was scammed £19.28).
Meter Reading 4th July 2022
Meter Reading 27th July – 4th August 2022
( I have used zero gas other than my charges of 33p per day).

I emailed them on 26/07/22 and have stated the above omitting the latest meter reading which I added on 27/07/22 that if they push my buttons I will contact mainstream media journalists and ask them to write about “British Gas”. This company like every other relies on business, customers, and investors for their charity. It won’t look good if I start singing like a canary. In fact, it won’t look good having the title of this article “British Gas Customer Intimidation”, or “British Gas Bullying Vulnerable People” on my other blog. I’m sure I am going to get some eyeballs.

It is not my fault that prices have gone up and if one does not have the money, to begin with, how are they supposed to find the money to pay for something that the 1% only benefit from?

I have also come across a website that an ex-police officer wrote about regarding harassment, the article is dated (old) but it only enforces how I have personally been treated by this company: https://www.peterloud.co.uk/britishgasfraud/harassment.html

Accenture System

There is obviously a fault with the billing system: “Accenture system could have performed at 101 percent efficiency. “British Gas uses bullying and is a threatening company whose call centre staff are among the most unpleasant and downright offensive, not to mention seemingly willfully ignorant and obtuse, in the market, and who wouldn’t know the meaning of customer management if you were to spell it out on their reply prompt screens“. Citation – https://www.mycustomer.com/marketing/technology/british-gas-what-difference-would-a-working-billing-system-have-made

2008

https://www.computerweekly.com/news/2240085992/British-Gas-sues-Accenture-over-problems-with-billing-system

2017

https://www.standard.co.uk/business/british-gas-fined-ps9-5m-for-failures-in-billing-system-a3448451.html

2022

https://www.thisismoney.co.uk/money/bills/article-10390767/Energy-bill-woes-pile-Complaints-overcharging-soar.html

https://www.moneysavingexpert.com/news/2022/04/british-gas-app-usage/

https://www.chroniclelive.co.uk/news/cost-of-living/warning-british-gas-glitch-leaves-23759085

Further Reading

https://uk.trustpilot.com/review/www.britishgas.co.uk?stars=1

https://www.cityam.com/british-gas-the-worst-firm-for-customers-from-bust-suppliers/

Note From The Editor

Intimidation happens in all industries and workplaces. A person who has stated they have a disability for example at the time of their interview has their disability disregarded when they start work, especially if they look fine. Disabilities can be invisible and just because you look fine on the outside you may be in excruciating pain on the inside. I sit in front of a computer screen, you would not know I am disabled unless I told you and people like to make assumptions, so “if he/she can talk on the phone or turn up for work there must not be anything wrong with him/her“, …wrong to assume. An employee may not complain for fear of losing their job and this is where managers take advantage.

I believe my email to general enquiries will get ignored hence I am turning it up a notch and sending a second one to customer complaints, I will give them a few days to reply.

I have come across British Gas complaints contacts; https://www.britishgas.co.uk/complaints/make-a-complaint-credit.html

You can do one of the following:

  • Fill in an online form
  • Online Chat
  • Phone: 0333 202 9532
  • Email Customer Complaints at: customercomplaints@britishgas.co.uk (I sent an email to this email and never had a reply, just saying).

I will be forwarding the email I sent this morning to the above email address.

I won’t be intimidated and I will use my voice to be heard.

If I have any updates I will post them here, but as it stands they are trying to use bully tactics. I am also going to reach out to the mental health charity ‘MIND’ to tell them about this company.

The party is only just getting started…

UPDATE 27/07/22

After receiving the email today I decided to phone the complaints number. I guess people who phone the complaints number get treated differently. I did not go on my high horse ranting, I spoke calmly and I gave my latest meter reading and you will never guess the person with a South African accent said that my £190 prediction was totally wrong.

I had in fact since the 4th July 2022 only used £12 worth of gas including their standing charges, hence they would accept my £70 payment plan which was re-instated today 27/07/22.

So all this stress and distress was for nothing”.

I honestly feel really unwell because of this company and as a consequence am finding it hard to contemplate my workload. I do feel very depressed because of them and feel they should compensate me for the emotional distress I have endured, I will wait and see how they respond to me in the next few days…

I did dispute the £9.64 and the customer representative said the £9.64 was from a bill generated on 22nd June yet I disputed this because my threatening letter dated 16th July 2022 would have reflected the bill on 22/06/22 and I received the inflated. (My threatening letter and my email does not marry up with my payments in the screenshot below). They are obviously pulling numbers out of a hat because I never gave them a meter reading on the 22/06/22 as shown in the meter readings above so where did the £9.64 come from? (If each customer has an extra £10 for argument’s sake added to their account for no reason and there are a million customers that would be £10M in profit that the company would make.

I have now been given two reference numbers the first for the £9.64 (I know it is a small amount but why should British Gas have extra money for the hell of it)?

Complaint number 1
7022412508 – £9.64 – Discrepancy

Complaint number 2 – 8013977142 – Treated Badly

I was told I have to wait 5 days to get a response… (which never happened – updated 04/08/22).

I have since logged into my account and screenshot my payment history and none of the balances reflect the amounts on my threatening letter or email that I received today, but they do reflect the £9.64 as mentioned by the person I spoke to today (although I never submitted a meter reading on the 22/06/22). The mind boggles.

UPDATE 04/08/22

OMG is all I can say. I decided to phone British Gas today in relation to the two complaints I made on 27/07/22 and was told that one complaint had been closed (the one where I was treated badly), oh really… who closed it and why?, and the woman I spoke to said that the complaint was about the £70 payment that had been set up but did not include my outstanding debt and that a debt collection would still come after me for the outstanding amount, which was now £344. She completely disregarded the fact that British Gas phoned the Police on me and the amount of anguish and emotional distress this company put me under. She kept asking what the Police had said when they arrived. The Police told me to let the CEO know and publish far and wide as they are getting a lot of calls with distressed people finding it hard to cope with utility providers and their bullying tactics.

My previous call on the 27th was a contradiction because:

  1. When I phoned the complaints number today and after talking about my complaint I was told I had phoned the ‘Homecare Department’ and not complaints. I have the previous complaint number published in this article and programmed into my phone. (What I believe happens if they do not want to deal with you is they come up with a BS excuse that you dialed the wrong number).
  2. The person I spoke with on the 27th said I would not have a debt collection agency chasing me but wait for it, today the woman I spoke to said the contrary, that a debt collection agency will continue to chase me and include debt collecting charges on top. I said that was a kick in the teeth considering I arranged a payment plan. (I think they move the goal posts as and when they please).
  3. I received an email yesterday that I could choose to be on a variable or fixed tariff. I am currently on a variable which means if the prices go up, so will my bill. With a fixed tariff, it stays the same for 12 months. I did not understand what that meant other than if I switched to a different tariff I might be signing a contract that I could not move to another provider, (according to the woman I spoke to on 04/08/22 that is untrue, yet I have since found out this is a contract and there is a £100 transfer fee if you move to another provider. It is just as well I am not on a fixed tariff after all and do not believe the BS this company tries to feed me). The woman I spoke to today 04/08/22 said I was not eligible for a fixed tariff, so why send me an email giving me the option to switch? (Not that I want to be in any contract with this nightmare company).
  4. I reiterated I wanted to pay manually online and the person I spoke to on the 27th understood that but sent out a magnetic card which according to the woman today meant I would NOT be able to pay online. She then continued to say I needed to set up a Direct Debit (not likely). Direct Debits allows British Gas or any organisation to help themselves to your bank account. She said as long as I made a payment today (which I did) no one would come chasing me. She also said she would text me with my complaint (I am still waiting).
  5. I said I wanted British Gas to explain themselves how they have caused me ‘Emotional Distress’ and ‘how it has affected me’ and what they are going to do about it. I am now preparing to publish this article across all the social media platforms including LinkedIn where I have nearly 11K followers. Let’s see how much British Gas will lose in revenue and donations to their charity when my followers learn that British Gas has nearly pushed me to breaking point, with a header title I plan to use: ‘British Gas Phoned the Police On Me’, I wonder how many connections will take notice?. I also have Chris O’Shea’s email. To think I am advertising their charity as per the request of British Gas, yet they do not pay me for the backlinks.
  6. Because of British Gas, my OCD has got worse, I have anxiety and panic attacks, I stress over everything, and have spiraled into a deep state of depression. I cannot face my neighbours because of the humiliation I endured. I struggle with work (I am self-employed and the Editor of this site, if I do not work, bills do not get paid). I am procrastinating and simply lack energy. This is affecting my health and my business.
  7. Low and behold I phoned the second time today to double-check what the first agent had said and she basically told me (NO) payment plan has been set and the only way I can have a set price I can pay on a monthly basis is if I set up a Direct Debit (they are intimidating people to set up Direct Debits because what is wrong with setting up a standing order or paying manually, there is no difference other that they do not have access to your bank account) and that providing I pay in September I will not have anyone chasing me. I was told to phone back on 22/09/22. When I said how British Gas has been treating me because of the miscommunication she did not escalate a complaint and just said sorry and it won’t happen again (I DO NOT ACCEPT THE APOLOGY and I am going to take this further).

UPDATE 05/08/22

Trust No One. Even after speaking to two people yesterday both saying they have done a payment plan and checked up with a follow-up call no payment plans were set up. (What happened was on the 27th I had a magnetic card set up but the first agent I spoke to yesterday said I could not pay online and canceled the payment plan but then reinstated a cash plan. So the second agent I spoke to yesterday said the same, yet today I have a totally different explanation and eventually have a magnetic card re-instated with a fixed payment plan).

Lies after lies after lies. So today I phone up checking up on yesterday’s phone call and the guy says no payment plan was set up. (He went on to say with a magnetic payment card I do not have to use it and that I can also pay online which was a contradiction to what the agent said yesterday).

I am getting tired of the💩 because they keep insisting I need to set up a direct debit which would mean they could help themselves to my bank account when the prices get increased rather than stick to a set payment plan.

I then discussed both complaints I made on the 27th and basically I was offered £10.00 compensation for the two over charges of £9.64 each totaling £19.28 (they obviously cannot count), which I refused as this is all part of the one complaint and I am not accepting anything less than £xxxxx for the complaint about my ill-treatment and emotion distress and the scamming.

I told the guy I am finding it hard to work, I just about can make updates let alone anything else. If I cannot work I cannot pay my bills.

Not only am I an Editor of several publications, but I am also a website designer, content writer, and digital marketer www.irenata.com So if I cannot work because of ill health, how am I supposed to run my business (www.ukwebsitedesigners.co.uk)?

So regarding my complaint about the ill-treatment by this company the agent I spoke to today who had advice from his supervisor said that ‘British Gas’ do not offer compensation for emotional distress. So they can treat you like 💩 and get away with it. Absolutely disgusting company.

So after speaking to two agents today assuring me that my debt is included in my payment plan, you won’t believe what I have just received by email, only an email chasing me for the outstanding balance.

I have phoned this wretched company yet again (this is my 3rd call today) to sort this out. I am sick to the back teeth with the antics that are taking place. God forbid someone who is more vulnerable, like an elderly person or someone with worse mental health disabilities to me or anyone with cognitive impairment and cannot argue their case.

Despite two agents assuring me yesterday, that I would not be chased for my debt I get the email today chasing me for the debt, (you cannot make this up) screenshot below:

In the third and final call, I made today the woman told me to ignore the email I received today. But this is causing unnecessary stress which I could do without. I have contacted the charity for an update and they are just saying it may take another couple of weeks. If after all this my grievance goes on deaf ears I will share this on social media and make sure that investors think twice before donating to this company. This is a company that does not care about its customers and its workers. This is a company that can treat their customers badly and thinks they can get away with it, this is a company that is causing people to have mental health issues.

What about my ‘HEALTH’ and other vulnerable people’s health, who have been treated just like me?

British Gas should not be able to treat people like something they stepped in and should be held accountable for their actions. British Gas nearly pushed me to breaking point as per the Police callout and they claim they will not compensate for the emotional distress I have endured, we will see about that…

https://www.theguardian.com/uk/2002/jun/06/felicitylawrence

https://www.mycustomer.com/community/blogs/slauchlan/british-gas-the-101-of-bullying

https://www.moneysavingexpert.com/news/2022/06/hundreds-of-households-wrongly-sent-legal-letters-saying-they-ow/

I am sick and tired of this company. I have now reported them to OFGEM.

OFGEM

Contact:

Energy Ombudsman complaints form or call 0330 440 1624.

#britishgas #britishgasintimidation #intimidation #emotionaldistress #harrassment #chrisoshea #jessicatappin

Micro-dosing Psilocybin Mushrooms.

Micro-dosing Psilocybin Mushrooms improve mental health after one month.

Suffering from mental health issues for over 30 years now and being prescribed the same medication year in and year out without any significant improvement one must look at alternative ways to heal.

I suffer from anxiety, stress, depression, panic attacks, social disconnection, and OCD.

The NHS has failed me because month after month my symptoms do not improve, and I must resort to self-help to get through certain days.

I have never explored or ever taken psychedelic drugs and it was only by watching a documentary on Netflix “How to change your mind” that I started to realize there are diverse ways to treat my disorder.

Psilocybin Mushrooms.

Psilocybin mushrooms: commonly known as magic mushrooms, mushrooms, are a polyphyletic informal group of fungi that contain psilocybin which turns into psilocin upon ingestion. Biological genera containing psilocybin mushrooms include Copelandia, Gymnopilus, Inocybe, Panaeolus, Pholiotina, Pluteus, and Psilocybe. Wikipedia

The study published in Nature: Scientific Reports has observed significant benefits to mood and mental health after one month of micro-dosing psilocybin mushrooms.

Mushroom microdoses saw greater improvements across the DASS domains of Depression, Anxiety, and Stress. The study found that the microdose cognitive efficacy was higher performing in people aged under 55.

The study looked at 1133 people over the course of two years. All subjects were over 18 years old, able to read in English, and had access to an iPhone iOS device where participants recorded their results. Scientific Reports is a peer-reviewed, open-access scientific journal published online by Nature Portfolio.

https://www.forbes.com/sites/lindseybartlett/2022/07/05/microdosing-psilocybin-mushrooms-improves-mood-and-mental-health-after-one-month-new-study-finds/?sh=1ad13aff1ab4

The study was conducted by a team of experts in the fields of psychology and mycology: Joseph M. Rootman, Department of Psychology, University of British Columbia, Kelowna, BC, Canada; Maggie Kiraga, an employee of Quantified Citizen Technologies. Pamela Kryskow, a member of the clinical advisory board of Numinus Wellness, co-founder of MycoMedica Life Sciences, and on the Scientific & Medical Advisory Board; Kalin Harvey; Paul Stamets, who founded Fungi Perfecti, LLC; Eesmyal Santos-Brault; Kim P. C. Kuypers; and Zach Walsh, a member of the Advisory Board of the Multidisciplinary Association for Psychedelic Studies (MAPS) Canada and MycoMedica Life Sciences.

The reason GPs are not willing to advise or prescribe holistic medicine is that it would cost the Big Pharma Industry big bucks. If people could cure themselves after a month of using natural plant-made drugs the pharma companies would soon feel the pinch. I wrote previously what your doctor won’t tell you.

I have concluded my own doctor is as useful as a chocolate fire guard.

Even if my doctor could not prescribe ‘Microdosing Psilocybin Mushrooms’ she could have at least told me about it and recommended where I should go to get it. According to the UK, it is still not legal and a petition was made but coincidently because of a General Election in November 2019 it was closed, well all I can say is someone should restart it again: https://petition.parliament.uk/archived/petitions/260806

All I know is that Imperial College London is doing research into the benefits and negative effects of psilocybin and other psychedelic compounds. I only say this as I reside in the UK but other parts of the world will have other studies, where you need to do your own research to find out who is doing it closer to your area.

In the most rigorous trial to date assessing the therapeutic potential of a ‘psychedelic’ compound, researchers compared two sessions of psilocybin therapy with a six-week course of a leading antidepressant (a selective serotonin reuptake inhibitor called escitalopram) in 59 people with moderate-to-severe depression.

The results, published today in the New England Journal of Medicine, show that while depression scores were reduced in both groups, the reductions occurred more quickly in the psilocybin group and were greater in magnitude.

Editors Thoughts.

As a consequence, I blame the NHS and the powers that be for not giving me the right support and ultimately making my condition worse.

Similar to abortions, who has the right to say what you do with your body?

It is your body and how you treat is your business and no one else’s unless you are out of control.

What a person consumes is on them if they are of sound mind. Why make alcohol and cigarettes legal when they cause, liver failure or cancer. The reason why is because ‘Big Pharma’ relies on you becoming unwell. Whilst if everyone was cured they would not be laughing all the way to the bank.

The Journal of Psychopharmacology published a follow-up earlier this year to this widely-publicized study from Johns Hopkins Medicine that found psilocybin may continue to help people with depression up to one year later.

People treated with psilocybin – named ‘COMP360’ by its developers, COMPASS Pathways PLC – showed marked improvements across a range of subjective measures, including in their ability to feel pleasure, and express emotions, greater reductions in anxiety and suicidal ideation, and increased feelings of wellbeing.

Dr. Robin Carhart-Harris, Head of the Centre for Psychedelic Research at Imperial, who designed and led the study, said: “These results comparing two doses of psilocybin therapy with 43 daily doses of one of the best performing SSRI antidepressants help contextualize psilocybin’s promise as a potential mental health treatment. Remission rates were twice as high in the psilocybin group than in the escitalopram group.

“One of the most important aspects of this work is that people can clearly see the promise of properly delivered psilocybin therapy by viewing it compared with a more familiar, established treatment in the same study. Psilocybin performed very favorably in this head-to-head.”

https://www.imperial.ac.uk/news/219413/magic-mushroom-compound-performs-well-antidepressant/

As suggested by the Imperial College London / Thomas Angus; Psilocybin capsules: warn that while the initial findings are encouraging, patients with depression should not attempt to self-medicate with psilocybin. However, I will be writing to anyone that is doing clinical trials with the view of volunteering.

I am therefore going to be on the lookout for clinical trials in my area, we can only wait and see. I could have been cured years ago, instead of being kept as a lab rat.

#magicmushroons #microdosing #psilocybinmushrooms #psychedelics

How To Cope With Anxiety.

How to cope with anxiety.

I do not know about you but somedays I feel like I am going to blow a gasket.

The number of times I hear people saying ‘SORRY’ when I tell them they are making me feel anxious is disgraceful. People, in general, may show kindness in the spur of the moment but caring is another ball game altogether. People only care if it directly affects them. Saying ‘SORRY is only sugar coating something or attempting to brush it off. Saying ‘SORRY’ has no meaning at all if there is no genuine gesture made. The other thing I have noticed with people is they use the blame game, “it is not us” it is them or you, and this can cause people to have emotional distress. https://disabledentrepreneur.uk/why-people-do-not-care/

Anxiety is a very unpleasant feeling of unease, which escalates into panic attacks, worry, or fear, that can be mild or severe. Everyone at some point in their lives experiences feelings of anxiety. Anxiety is a lingering feeling of perhaps worrying about sitting for an exam or having a medical test or job interview.

https://www.nhs.uk/mental-health/conditions/generalised-anxiety-disorder/overview/

However, anxiety can manifest into panic attacks where one may feel light-headed, nauseous, heart-racing, and breathless (hyperventilating). Other symptoms can be restlessness, insomnia, lethargy, tearfulness, sweating, trembling, lack of concentration, nervousness, and gastrointestinal (GI) problems.

Saying sorry is not going to cut it. If you make someone unwell through your actions you should compensate them and make them feel better again. Simply saying sorry is just a waste of energy, yours and theirs. (In other words, think before you speak). If you cause a person unnecessary anxiety because you have said something that can cause a person to feel distressed then you have to be responsible for your actions.

My Anxiety

Coping Strategy.

  • Keep busy.
  • Use breathing techniques.
  • Use hypnosis.
  • Count to ten.
  • Go into another room, and remove yourself from the negativity.
  • Distract yourself from the cause that is making you anxious.
  • Avoid looking at social media and news sites as much as possible.
  • Avoid watching movies with violence.
  • Avoid negative people.
  • Avoid alcohol and drugs.
  • Turn your phone off or set your calls to not disturb (silence calls).
  • Focus on something positive, a hobby, a goal, etc.
  • Keep a diary or use an online journal (we can give you space to write down your thoughts, just message us using the form below).
  • Learn something new, there are plenty of courses you can do (Udemy).

My favorite way to vent my anger and frustration is to voice my opinions online.

If you use social media the powers that be may reprimand you if they do not like what you write, but on my websites, I have free reign. I am my own boss and I can write pretty much anything I wish.

LinkedIn as an example the other day sent me a warning notification that I had breached the policy yet they did not explain what I had done exactly. I tried to reach out to a faceless company that has simply ignored my plea and am none the wiser about what I did wrong. This has caused me anxiety because at the flick of a switch they can suspend you with no regard to your livelihood and how it would affect your business. they can suspend you simply just because they can.

I try to use my own channels to voice my opinion because the only entities left that can penalize you are the search engines and the governments if they thought you were saying something out of turn. I wrote about online censorship on my other site.

Further Reading:

Anyway if you want free online space where you can vent or share your stories just message us using the form below and remember to distract yourself from the issue that is causing you distress:

#anxiety #panicattacks #hyperventilation #stress #emotionaldistress

Renata’s Online Journal – Health Update.

Renata’s Online Journal – Health Update.

I have been doing some research on GP communication as I am concerned about how a letter that I wrote to my GP over a year ago was never answered yet it was confirmed that it had been added to the system.

In comparison, my daughter who has Multiple Sclerosis has a Neurologist Consultant at the “University Hospital Wales” who lectures at Cambridge University, and even on annual leave, had the courtesy of responding to my daughters’ emails.

This shows the consultant’s professionalism and sets him apart from mediocre general practitioners who do not give a monkey about your health, only about how many drugs they can prescribe. https://disabledentrepreneur.uk/what-doctors-wont-tell-you/

I have been let down by the system because for years I have been prescribed the same medication and have never been offeredPsilocybin Mushrooms‘.

https://www.medicalnewstoday.com/articles/psychedelic-therapy

https://www.drugs.com/illicit/psilocybin.html

I could have easily been treated for my OCD years ago but I guess if that was the case how much money Big Pharma would have missed out on.

I must admit I have never used recreational drugs and if look at the series on Netflix which prompted me to look into this I do not see why I have to poison myself with the medication I am prescribed when there is an alternative. In fact, this has really angered me that not only the local GP do not care about their patients but I could have been potentially cured years ago. I do not see why I have to be a cash cow for the GPs and Pharmaceutical Companies.

Personal Independence Payments (PIP).

So, I have found that the Government has instructed GPs to not respond to PIP and Disability Claims, requested by claimants. GPs in southeast Wales have been told to stop writing letters for patients appealing against decisions to stop benefit payments because it is an “abuse of resources”. (A bit of coinky-dinkle I think). https://www.bbc.co.uk/news/uk-wales-south-east-wales-23353623

The letter I wrote last year had nothing to do with supporting evidence it was to let the Doctor know that I was finding it difficult to do certain things and needed some support or advice.

I do not need my GP fighting my corner because I am more than capable of fighting my own battles.

Unfortunately, even paying for a letter (privately) will be dismissed because the Government has some say for GPs not to support your claim. This is wrong because the GP only knows what the patient tells them and if I write another letter and a link to this site it will corroborate what I am saying.

I did not design this site as clickbait, I designed it as a form of therapy for myself, for my daughter, and for others like us.

When my review comes up for renewal, I will not be jumping through hoops or performing like a circus monkey hopping on one foot, or bending to prove I have disabilities.

Anyone that knows me, knows I have only left my home once in the last 3 years.

Last year I wrote 5 things that were wrong with me and I never had a reply. I then spoke with the practice manager that told me to phone in to book an appointment but with one ailment at a time that would mean I would have had to make five separate calls. Besides, I have anxiety phoning anyone let alone a doctor. https://disabledentrepreneur.uk/anxiety-phoning-your-gp/

My Health Updated 06/07/22

The GP only knows what the patient tells them and although I am self-employed, I know I would never suit an employed environment for the following reasons, although I have built my brand so have no reason to change.

I am the Editor of this site and will continue doing what I am doing and report my findings.

Not everyone is looking for a handout and if there is available money that one is entitled to, one should get what rightfully is owed without jumping through hoops or begging. Don’t offer money and then expect some to hop on one foot whilst touching their nose, it is humiliating and furthermore, the ones that want to swindle the system will perform Oscars. The only way to know for definite if someone is telling the truth is by medical records or published documentation.

“I reiterate I am the Editor of this site, (MON-SAT 9 am – 5 pm) and I am also disabled. I should not have to prove anything that is not already documented or published”. https://disabledentrepreneur.uk/personal-experience-with-claiming-pip/

My OCD.

I suffer from OCD, I have suffered with OCD for the best part of 30 years I am super aware of my surroundings and avoid contact with the outside world (social disconnection) as much as possible. I can deal with the Postman, Courier or Delivery Driver, and Workmen, but that is as far as it will go. I do not have people visiting me and I like it that way. Even at home, I have triggers that cause intrusive thoughts. For example, when the cat brushed past me the other day, it consequently caused me to have a panic attack and anxiety, making me change my clothes and put the contaminated clothes in the wash. I have binned things (some expensive) that I have not managed to disinfect in the past. I cannot be around people, and I prefer my own company anyway. I am fortunate that the job I do has little to no human contact. I am fine online but have problems in the physical world. I use disposable latex gloves to touch things and go through about five hundred pairs a month.

My Bladder.

I have overactive bladder issues and go to the loo every 1.5 hours. It could be from the excess caffeine intake (I need to drink energy drinks to get me through the day). I take Mirtazapine 30mg tablets to help me fall asleep they do jack Sh#t for my OCD.

In a normal work environment needing to go to the bathroom frequently would be difficult because unless the toilet was in proximity, I could potentially have an accident which would then prove embarrassing, and I am not going to take any chances. My bladder gives me little or no warning and when you got to go, you got to go. It is a good job my bathroom is only twenty-five steps away.

Physical Pain.

My pain in my knee is manageable providing I have my meds on hand, and I am in a warm place. The moment it starts to get chilly my knee starts throbbing in dull pain. Getting in and out of the bath is comical because I cannot bend my knee to get in the bath and when I do it is very painful. (But only people who have had their knee kicked seven times purposely would know what I am talking about).

My back pain is concerning because sometimes if I bend to do simple tasks like sort rubbish or feed the cat, I get spasms in my lower back that escalate up my spine to my neck where the feeling that I can describe is like pins and needles or electricity in the nape of my neck. It is not just when I bend it is from standing, washing up for half an hour, or even cooking that I get pain in my lower back. The pain is so bad that it makes me feel sick or lightheaded, but I do not moan and simply endure it. https://disabledentrepreneur.uk/epidural-analgesia/

Swallowing Food.

Swallowing food (Dysphagia) can be a problem at times (not all the time, just occasionally), and even taking small bites and chewing is frightening when food gets stuck. Banging on my breastbone and jumping up and down rarely relieves the issue and I must wait a few antagonizing minutes waiting for it to naturally slither down. I have had to put my fingers down my throat in the past just to dislodge the food, which no longer seems appetizing to continue to finish my meal thereafter.

My Cerebellar Atrophy.

I was diagnosed with Cerebellar Atrophy over ten years ago and have noticed of late that I get dizzy spells and sometimes I need to grab hold of something to stop me from falling. I did fall down the stairs albeit 5 steps over a year ago as I mentioned in my letter and most recently, I lost my balance when I was at the top of the stairs. https://disabledentrepreneur.uk/i-nearly-died-due-to-losing-my-balance-of-cerebellar-atrophy/ I believe my cerebellar atrophy was from the head trauma I endured from my ex.

My Depression.

All I will say is that I had a Police welfare check after British Gas reported me last month. I won’t say I was suicidal as you have to have a lot of guts to go through such a thing and I do have things to live for. But I would be lying if I said I was not sad or depressed. I try to keep myself busy all the time to forget all the bad things that have gone wrong in my life and I do use this online journal to vent my anger and share my thoughts (I see this journal as online therapy, considering I have had little help from the NHS and by coincidence, I told the Police about the letter I wrote, that was not responded to by any Doctor, the PCW rolled her eyes in disbelief).

“I will say one thing though I am a survivor of domestic violence. I do get stressed and very anxious at times and have little patience for people, especially ones that are condescending and judgmental. So, unless you have walked in my shoes you have no right at all the judge me”.

Final Note.

PIP Assessment. The criteria are as follows:

(One needs twelve points to qualify, furthermore how can someone measure pain. Everyone’s pain threshold is different).

I have just done a Self-PIP Test On:

I will use the points system and this online journal as proof of my disability.

https://www.benefitsandwork.co.uk/pip-test-form

I score thirty-one points.

What the points criteria do not mention is:

Do you experience:

  • Stress
  • Anxiety
  • Depression
  • Suicidal Thoughts
  • Intrusive Thoughts
  • Cognitive Impairment (Jumbling Up Words Or Totally Missing Words Out Of Sentences
  • Obsessive-Compulsive Disorder
  • Dysphagia
  • Loss of Balance
  • Sitting
  • Bending
  • Insomnia
  • Pain
  • Numbness
  • Experience Light Headiness
  • Confusion
  • Lack of Concentration
  • Social Disconnection
  • Forgetfulness

You should read the reviews about this surgery to understand how unprofessional they are. If you report them you run the risk of being kicked out. https://disabledentrepreneur.uk/doctor-patient-confidentiality/

Both my daughter and I have been told in the past if we do not like how the surgery and staff conduct themselves to find a different doctor, in other words, leave.

When you are ‘DEPENDENT ON MEDICATION’ as both my daughter and I are, imagine having to wait to be assessed by a new doctor’s surgery (it is more hassle than it’s worth and you most probably have to physically come in which I have a problem with social disconnection, which will be out of the question unless it was an emergency).

https://nicelocal.co.uk/cardiff/medical/meddygfa_albany_surgery/reviews/

I am so tempted to give a review for the Doctor https://www.iwantgreatcare.org/doctors/dr-raluca-cristina-capatana/reviews/new?t=origin-profile.

My initial grievance is with the Surgery and the Doctor who does not work there yet her name is still on the website? http://www.wales.nhs.uk/albanyrd/practice-staff

“This online journal serves as evidence of both my daughter and my health condition and anyone else that wishes to participate in the health discussions and get anything off their chest”.

Anyone else that wishes to vent and wants their own space on an exact match searchable keyword domain name should message us below and we will set up a landing page where you too can write to your heart’s content (free of charge).

**Please note if your medical condition is published on our platform, it is not proof you have a disability or illness you must have medical evidence to corroborate your illness, which can be done by visiting your GP, writing a letter, or having an online consultation.

#personalindependencepayments #pip #pipscore #renataonlinejournal #pipselftest

What Doctors Won’t Tell You.

Big Pharma.

What Doctors Won’t Tell You.

Most of us when we fall ill, trust our local medical practitioners to get the best remedies and advice. However one has to look at the fact that Doctors’ surgeries are small businesses and the revenue they receive, is from the drugs they prescribe, so it would make no sense to send a patient away and to offer holistic medicine. Pharmaceutical companies are not going to allow your doctor to promote alternative medicine for obvious reasons.

https://www.patrickholford.com/advice/how-gps-are-paid-to-prescribe-ineffective-drugs/

https://www.propublica.org/article/doctors-prescribe-more-of-a-drug-if-they-receive-money-from-a-pharma-company-tied-to-it

The pharmaceutical industry totaled 1.27 trillion US Dollars in 2020 and is responsible for the research, development, production, and distribution of medications. The market has experienced significant growth during the past two decades, and pharma revenues worldwide.

https://www.statista.com/topics/1764/global-pharmaceutical-industry/#dossierKeyfigures

https://www.statista.com/statistics/263102/pharmaceutical-market-worldwide-revenue-since-2001/

An alternative would be to try holistic medication and if that did not work then resort to seeing your doctor. Holistic medicine aims to improve health and wellness through the body, mind, and soul. Usually, holistic medicine combines traditional medicine and complementary and alternative medicine (CAM).

(Disclaimer – You must visit your doctor if you have a serious condition and you should not put off something that if caught quickly can be treated. If you are seriously unwell you should visit your local doctor as soon as possible and not delay your recovery by trying to cure it yourself). Holistic medicine is for people like me who have been on medication for 30 years and find it has little benefit so will look for alternative medicine, whilst still continuing to take the prescribed medication, until a cure is found).

https://www.healthline.com/health/holistic-doctor

Note From The Editor

I have recently read that Blueberries have medicinal properties: Blueberries can help heart health, bone strength, skin health, blood pressure, diabetes management, cancer prevention, and mental health.

https://vashiva.com/dr-shiva-live-blueberries-heart-health-does-your-doctor-know/

People who use blood thinners, such as warfarin, should speak to their medical practitioner before increasing their intake of blueberries, as the high vitamin K content can affect blood clotting.

I am all for improving mental health and when I have been prescribed medication for the last 30 years that has little to no effect I have to look at alternative solutions. I am definitely going to include blueberries in my diet from now on: https://www.medicalnewstoday.com/articles/287710

Other Drugs and Multiple Sclerosis.

By coincidence, a drug I have previously written about “Lemtrada Alemtuzumab” for example is an infusion that my daughter is taking this week for the treatment of multiple sclerosis and the cost to the NHS (UK) is $158,000, followed by $60,000 increments for each treatment: https://multiplesclerosis.net/living-with-ms/lemtrada-economics-ms-treatments One needs to read the “Important Safety Information” in the popup of the website to comprehend my concerns in the “Cymru Marketing” article I wrote.

https://www.telegraph.co.uk/news/2016/06/30/individual-nhs-doctors-receiving-100000-per-year-from-drugs-firm/

https://www.abpi.org.uk/reputation/disclosure-uk

https://marketingagency.cymrumarketing.com/2019/10/15/lemtrada-alemtuzumab-sanofi-genzyme/

https://www.gov.uk/drug-safety-update/lemtrada-alemtuzumab-updated-restrictions-and-strengthened-monitoring-requirements-following-review-of-serious-cardiovascular-and-immune-mediated-reactions

Dr.SHIVA Ayyadurai, MIT Ph.D

To learn more about Dr.SHIVA Ayyadurai, MIT Ph.D. – Inventor of Email, Systems Scientist, engineer, educator – presents a CytoSolvert Health visit:

https://vashiva.com/join/

https://vashiva.com/dr-shiva-live-how-pumpkin-seeds-support-cardiovascular-health-a-cytosolve-analysis/

https://vashiva.com/dr-shiva-live-blueberries-heart-health-does-your-doctor-know/

https://vashiva.com/join/#freebook-m

https://truthfreedomhealth.com/

#holisticmedicine #bigpharma #lemtrada #alemtuzumabsafety #doctorpayouts #alternativemedicine #pharmaceuticals

Zena’s Online Journal – Alemtuzumab.

Zena’s Online Journal – Alemtuzumab.

Today I started my Alemtuzumab treatment at the Health University Hospital Wales in Cardiff.

It was touch and go last week as I was just getting over my chest infection. I had to have emergency antibiotics to clear the infection before starting my treatment, followed by an x-ray to make sure it was safe to go on to the next phase.

08.00 am

So today is the day and I am having my treatment, I am now hooked up to the infusion drip, I have had steroids, aciclovir, 1 x antihistamine, 1 x antibiotic, 2 x paracetamols, and ibuprofen.

I feel I should have gotten there a little earlier because by the time I had my ECG done this morning I started to get hungry. My mum told me to order a Deliveroo, which I would not do, can you just imagine a pizza delivery rolling up.

Anyway, I have two more days of this so will keep you updated as the days progress.

15.52 pm.

My treatment is over for the day but I have a very high temperature and a really bad headache. They are monitoring me for the next two hours.

I did not bring my Apple watch to monitor my heart rate although it was noted on their machines that my heart rate spiked to 180/60.

I will charge my watch tonight.

I had to share my room with another lady who told me she was only in for the day and was only getting one day of treatment as she suffers from Stiff Person Syndrome. She told me she gave up her career in Law because of her illness.

https://www.ninds.nih.gov/health-information/disorders/stiff-person-syndrome

I won’t post two more separate posts but instead, I will just update a continuation of this one tomorrow.

Update 05/07/22

My temp was a little high 37.6 -37.7 but we came to the conclusion it was probably because I walked in and it’s warm out. The nurse said I had a higher level of glucose in my wee but she said it was probably from my steroids yesterday and told me to avoid eating so much sugar and then lastly I had an elevated CRP level in my blood which can be an indication of infection but because I’m not showing any symptoms of infection, they’ve decided to continue with the treatment.

I’m on steroids as we speak. The doctor from yesterday annoyed me, he just stares and lingers and then comes over and tells me about my blood and asks to listen to my chest then tells me to breathe in and out, like wtf do you think I normally do? (I get it, he was checking my lungs but what is the point when I had an x-ray to check for a chest infection) Does he not think I breathe on the regular? 🙄

I’ve had my cannula removed, don’t think my vein could handle it any longer because the nurse said she could see it was a bit swollen and I did say it was really tender to touch so she just said she’ll take it out and re-do it.

Update 06/07/22

Today is my last day of treatment and have had the awful doctor again today that does not wear his name badge and only introduces himself as ‘Doctor’ he never takes notes or writes anything down. With a little investigation, I found that all doctors and medical staff have to wear name badges otherwise they could face disciplinary action. Read the NHS Policy below:

HR_150

I should by rights report him and have sneakily taken a photo of him whilst he was not looking. ( I have not published it because of data protection but it is on my phone). He could be a civilian pretending to be a doctor for all I know and it seems weird that he gives off bad vibes, even the patients sharing my room agree with me.

08.13 am

My obs were fine and so is my wee.

Will give a final update once I have left the hospital later today.

13.37 pm

I had to have a second blood test done of the day not sure why.

15.37 pm

I had to have my third blood test because someone lost my second set of blood in transport so I’m not in the best of moods.

16.32 pm

I was finally discharged. I was told that they have marked my blood as urgent and if I do not hear back from them no news is good news so to speak.

I did not have a high-temperature today, but I did have severe heartburn, and everything I drank and ate tasted metal, even the tuna sandwich. I also started to have a headache.

I am glad it’s over, although for the next 3 weeks I have to self-isolate.

I will now just have to wait for my next MRI to see what changes have happened but that won’t be until later this year Sept/Oct time.

Update 07/07/22

Just a quick update the dreaded rash has reared its ugly head it is all over my legs and my arms. I have antihistamines which the hospital gave me but it is not a prevention of getting the rash or a cure it is just a remedy to ease the discomfort. I am going to buy some chamomile lotion which I am surprised the hospital did not give me. I suppose because they did not see a rash at the time I was on the ward I guess they thought I did not need it. I look like I have chicken pox.

08/07/22

LEGS UPPER AND LOWER.
TORSO

How long does it take for your immune system to recover after Lemtrada?

After IV administration, there is rapid and profound lymphopenia that gradually recovers (return of absolute lymphocyte count to the lower limit of normal in 40% of patients at 6 months and in 80% by 12 months).

Is alemtuzumab a chemotherapy?

Alemtuzumab is a type of targeted cancer drug. It’s a treatment for some types of leukaemia and skin lymphoma. And may be used as part of a stem cell transplant.

https://my.clevelandclinic.org/departments/neurological/depts/multiple-sclerosis/ms-approaches/lemtrada-alemtuzumab

https://www.cancerresearchuk.org/about-cancer/cancer-in-general/treatment/cancer-drugs/drugs/alemtuzumab

#ms #multiplesclerosis #multiplesclerosistreatment #lemtrada #alemtuzumab