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Category: Stress

Coping With Life When You Are Disabled.

Copying With life When You Are Disabled.

I have this methology “if life gives you lemons, make lemonade”. I am not the type of person to whinge and moan, I just make the most of what I have and try to get on with it.

I always keep myself busy and set goals. However my physical and mental disabilities are obstacles that daily I have to get round.

My OCD is by far one of my prominent disabilities and have designed a quarantined cocoon area where only I have access to. This area allows me to be free of any anxieties that I would have in the normal environment. I have adopted this practice to save cleaning my whole home from top to bottom day in and day out. Believe me I used to clean from top to bottom every single day until I realised I was wasting valuable time doing something else.

Keeping myself busy does help to block out intrusive thoughts to a certain degree. I am the worlds worse for critising myself. I try to brain train to reason with myself that what I do is ridiculous and out of character to normal people, but it all is related to stress, anxiety and depression. Depending how stress I am under will depend how well my day will be. If I am super stressed, I find that I cannot concentrate and even do minuscule tasks.

My OCD is germ contamination related and I am even more conscious of my surrounding and the things that I touch. I dislike people visting me and visa versa. I prefer not to go out, hence I am not going out any time soon pandemic regulations or not.

I actually wrote an article on my other blog about germ awareness and cross contamination: https://marketingagency.cymrumarketing.com/2021/02/16/saliva-and-mail-cross-contamination-of-germs/

As for my other disabilities:

  • Cerebellar Atrophy (I lose my balance or grip and muddle my words up especially when I write, I also have mental blocks).
  • OCD (I am aware of germ cross contimination and and am careful what I touch).
  • Social Disconnection (I prefer my own company and not go out and socialise, although we can’t anyway but you get my drift).
  • PTSD (I have flashbacks of the physical and mental trauma I endured in the past and certain things trigger my depression).
  • Clinical Depression (This is related to past physical and mental trauma I endured, in which there are days where I go to a dark place).
  • Rheumatoid Arthritis (I cannot bend my knee, again from past physical trauma/abuse).
  • Dysphagia (I sometimes choke of food, I get a painful feeling followed by trouble swallowing and breathing and only when the food is dislodged does the feeling subside, gross I know but what can I do? I have been told I could have surgery but there is no gauarantee that it would work. I am not going to go under the knife for anything, I can tell you that for sure).
  • Epidural Analgesia (Chronic Back Pain, even bending down to feed the cat makes my back spasm, the same goes if I am standing for excessive length of time I have shooting pains from the small of my back to the nape of my neck. Simple taskes like taking out the rubbish or bringing in the grocery shopping has brought tears to my eyes in the past).

So yes I have good days and bad days but I do not dwell on my ailments and try to live the best way I can. I adapt to around my disabilities. Fortuantely for me I offer digital services so I can do 100% of my work online and do not have to venture out.

Stress and worry are contributing factors to my OCD, PTSD, Depression and Social Disconnection.

  • Getting headaches (I have regular headaches)
  • Having stomach cramps (I have a bad stomach most days, but that can be from drinking energy drinks to keep me awake).
  • Not being able to sleep (I find my medication helps me sleep but it takes a few hours for me to wind down, hence I watch a film or play a game, I also read books from time to time).
  • Feeling pains in your chest (I do not get them often but when I do it is scary as I have also experienced jaw ache and shooting pain down my left arm in the past). I have had an ecg scan done and the doctor said there was nothing wrong, yet the same doctor also prescribed antacid ‘Gaviscon’ to my daughter even though she was later diagnosed with MS after I admitted her into A&E.
  • Having constant worring (If I do not keep myself busy I do worry hence I try to keep my mind occupied all the time). Worrying only makes your health deteriorate and although life struggles can get in the way of your happiness, one needs to find a way to tackle the problem we are faced with, rather than sweep them under the carpet. Confronting your inner demons makes you stronger. Sometimes simply writing down your problems is the first step to dealing with whatever is on your mind. Talking to a friend or family member also helps but for me expessing my emotions in the form of a blog is theraputic in itself.
  • Having panic attacks (I only get these if I have to meet negative people). People that judge or critise, you know the people I am talking about or if I have a deadline in work or something that I have seen or heard that has triggered the onset of sheer panic. However for most part I am organised and know to how to avoid trigger warnings, so panic attacks are subdued.
  • Feeling shortness of breath, (I only get this if I cannot swallow due to my Dysphagia or at times when I have in the past been in distress, due to the trauma and abuse I endured).
  • Having mood swings with friends or family (I avoid socialising so no one knows my moods and no one can be on the tail end if I do have a bad day).
  • Finding it hard to feel happy (Continuously reassuring myself and staying positive that what I am doing will eventually change my life for the better, is enough to motivate me to get up and tackle every day tasks).

Although I was going to do a daily/weekly journal of my health, I am not able to do so at present as I have many projects I am working on and simply do not have the time, but I always try to strive to stay focused and optimistic that tomorrow will be a better day.

Obviously adopting a healthy lifestyle can help with coping with life struggles, such as:

  • Regular Exercise
  • Breathing Exercise
  • Meditation
  • Eating Healthily
  • Brain Training
  • Learning New Things
  • Staying Focused
  • Being Organised
  • Setting Goals
  • Time Management
  • Avoiding Negative People
  • Learning to Trust People
  • Motivation
  • Talking to Family and Friends About Your Troubles
  • Discussing your Problems with Professionals, Health, Finance, Relationships etc

Final Thoughts!

I am a disabled entrepreneur and I have created a business round my disabilities. The way I saw it when I first started out, I would not fit in or be accepted in a normal working enviroment and I am the most happiest I have ever been for a long time doing what I do and it works for me. So the way I see it is my disabilities are a blessing in disguise, as I would not be where I am today without them.

I avoid negative judgemental people especially if they have power trips (Trolls especially that have nothing better to do than try an bring a person down, these get immediately blocked).

As for me I will help anyone that genuinely needs my help. I am very good at analysing people and situations and I am very astute.

Stay safe, stay focused and stay motivated, nothing stays the same forever unless you let it…

What is Multiple Sclerosis (MS).

Amongst my knowledge of OCD and Cerebellar Atrophy I have been thrown into the deep end with Multiple Sclerosis. The reason for this, my daughter was diagonosed with it at the age of 15. It was a shock to the system for the both of us to learn about the disease, the diagnosis and what treatments there were and what are available.

At the time my daugher was put on Lemtrada (alemtuzumab).

I had concerns when I read that the treatment was still going ahead even though European Medicine Agency (EMA) had taken it off the market. The hospital and EMA said that no new patients would be having to drug but the patients already on it would have to finish the course.

RED TAPE!

I personally think there was political red tape and that is the reason the drug had to be continued with existing patients as it cost too much and was too complicated to get a refund, I may be wrong but no one has stepped up to correct me. If the drug had been bought upfront you could not exactly get your money back I suppose. I do not know how buying drug work, but I assume pharmaceutical companies get paid upfront as they have to make large batches, with expiry dates hence the NHS cannot return drugs once they have been manufactured in large quantities.

https://www.ema.europa.eu/en/medicines/human/referrals/lemtrada

Lemtrada suppresses the immune system for some time after a treatment course so people will be more vulnerable to infections such as colds and viruses.

LEMTRADA can cause serious side effects including:

Serious autoimmune problems:

Some people receiving LEMTRADA develop a condition where the immune cells in your body attack other cells or organs in the body (autoimmunity), which can be serious and may cause death.

Serious autoimmune problems may include:

  • Immune thrombocytopenic purpura (ITP), a condition of reduced platelet counts in your blood that can cause severe bleeding that may cause life‑threatening problems.
  • Call your healthcare provider (HCP) right away if you have any of the following symptoms: easy bruising; bleeding from a cut that is hard to stop; coughing up blood; heavier menstrual periods than normal; bleeding from your gums or nose that is new or takes longer than usual to stop; small, scattered spots on your skin that are red, pink, or purple
  • Kidney problems called anti‑glomerular basement membrane disease, which, if not treated, can lead to severe kidney damage, kidney failure that needs dialysis, a kidney transplant, or death.
  • Call your HCP right away if you have any of the following symptoms: swelling of your legs or feet; blood in the urine (red or tea‑colored urine); decrease in urine; fatigue; coughing up blood.

So its no suprise that On July 3, 2020 Sanofi Genzyme was notified that Lemtrada Home Phlebotomy Partner, Examination Management Services Inc., (EMSI) has gone out of business.

https://www.lemtrada.com/

Because of this, unfortunately, all future Lemtrada Home Phlebotomy (lab draw) visits from EMSI have been cancelled.

Patient safety is Sanofi Genzyme’s #1 priority (thats a joke if I ever heard one as my daughter was still administerd the drug after the EMA said it was unsafe) and they continued to say they are working to provide an alternative phlebotomy solution as well as coordinate alternative testing options for your next monthly lab tests.

This tells me that the company had to do refunds and the NHS here in the UK were slow and had already paid the doctors.

I wrote an article on my other blog how Doctors get a commission from pharmaceutical companies for promoting drugs.

You can read the article here:

https://marketingagency.cymrumarketing.com/2019/10/15/lemtrada-alemtuzumab-sanofi-genzyme/

Doctors receiving money from pharmaceutical companies.

https://www.telegraph.co.uk/news/2016/06/30/individual-nhs-doctors-receiving-100000-per-year-from-drugs-firm/

I personally think when I first learned about this, that I was angry that the NHS knew the risk, yet used my daughter as a lab rat.

If you have any questions related to this announcement, please contact your healthcare provider or your One to One Nurse at (USA) 1-855-557-2483.

If you are in the UK contact your MS Team, or speak to the Ward Manager or Professor assigned to your case.

Multiple sclerosis (MS)

Multiple Sclerosis is an auto-immune disease that attacks healthy white cells. The lesions that can affect the brain and spinal cord can cause a wide range of potential symptoms, including problems with vision, arm or leg movement, sensation or balance.

It is an incurable disease with lifelong symptoms that can sometimes cause serious disability, although it can occasionally be mild.

The average life expectancy is slightly reduced for people with MS and symptons can be alliviated with different courses of treatments.

In most cases, people get diagnosed in their 20s or 30s but it has been known the patients have shown symptoms as young as 15 years of age. In fact, it can develop at any age. It’s about 2 to 3 times more common in women than men.

MS is one of the most common causes of disability in younger adults.

https://www.nhs.uk/conditions/multiple-sclerosis/symptoms/

The most common symptoms include:

Cerebellar atrophy

Cerebellar atrophy is associated with MS and is more extensive in patients with secondary progressive MS and those with longer disease duration when compared with people who have relapsing–remitting (RR) MS and/or shorter disease duration. Cerebellar atrophy has been shown to correlate with clinical measures of disability.

Multiple sclerosis (MS) commonly affects the cerebellum causing acute and chronic symptoms. Cerebellar signs contribute significantly to clinical disability, and symptoms such as tremor, ataxia, and dysarthria are particularly difficult to treat.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3281565/

For Further Information Contact the Following Links.

https://www.nhs.uk/conditions/multiple-sclerosis/

https://www.nationalmssociety.org/What-is-MS

https://www.mssociety.org.uk/

https://www.webmd.com/multiple-sclerosis/default.htm

https://www.mayoclinic.org/diseases-conditions/multiple-sclerosis/symptoms-causes/syc-20350269

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5487391/

https://jnnp.bmj.com/content/88/12/1065

https://journals.physiology.org/doi/full/10.1152/jn.00245.2018

Christmas Stress Due to Depression & OCD

Christmas Stress Due to Depression and OCD.

As most of you know I suffer with Depression and OCD. I have good days and bad days and this last week has made my illnesses sky rocket.

Had the electricians that did Pat Testing the begining part of the year done their jobs properly and seen that the cooker sockets where inside the hot zone that they should have corrected it.

However because they did not do this, this has created a domino effect when one thing happens after another due to consequences of peoples actions. Now as you know my cooker arrived which I paid for (more fool me) seeing as I have never had a cooker change in the last 24 years of living at my rented residence, you would have thought the landlord would be happy. I told him I was buying a cooker months ago but conveniently he has forgotten.

So to add insult to injury it has been a week since the cooker was delivered and it is still not been installed.

I was told my landlord would turn up on Saturday then at near enough Midnight he text me to say he would be coming Monday or Tuesday (No Show) so I text him yesterday and asked if he was coming today this was a hours ago and so far he has ignored me.

You have to also know what type of landlord he is, I reported another fault in March of this year and he only had it fixed in December so you can imagine the pace he goes.

The chain reaction of events has caused me to to go into severe depression and I am in a very dark place at the moment (This is now my landlords fault for making me feel like this as he was the last straw, the straw that broke the camels back to speak).

This is the main factor of my depression at the moment.

But there are additional factors whereby because I am disabled I have a disabled sticker on my wheelie refuse bin, so all the wheelie bins on the street were emptied apart from mine and I checked with the council and there was no reason why my bin was not emptied so my rubbish will pile up for another two weeks in which keeping rubbish in my home is against health and safety and I do not want to attract mice.

I have had problems with mice before and when my neighbour lived down stairs with her cats we had no mice but the moment she left we ended having a mice problems.

I took it upon myself to allow my daughter to have a kitten who is now 1 yr 6 months years old it was supposed to be also good for her Multiple Sclerosis therapy and is an eco friendly mice deterrent.

Now when my landlord came about 6 months ago just before the first lockdown to inspect the property he mentioned nothing about the cat but because I have essentially caused him to loose money because of this cooker installation he has now said he can smell cat urine on the entrance of the flat and up our staircase and that he will need to buy a new carpet.

This is his way to scamming me as he will buy a cheap carpet and charge me through the roof for changing it. He will have to pay me back for the cooker in that case…..touché.

He scammed me once before by changing the dates of when the rent was due by asking for the rent two weeks after I paid my monthly rent and then moved the rent forward by a month essentially got 6 weeks rent in one month.

“Fool me once shame on you, fool me twice shame on me fool me three times I will publically shame you”, (although he fooled me once he won’t be fooling me again).

These are very challenging times for me and only I can get through this, but I still can blame people for making me feel the way I do.

To top it all I phoned the retailer yesterday to see where my refund was seeing as I had waited five working days and they said there was a ‘system error’ and I have to wait a further five working days.

If I treated my customers the way Blue Chip Companies treat theirs, I would most certainlynot have any business left.

No consideration for peoples mental health.

Famous People Suffer With Mental Health.

It just shows even famous A-Listers have demons that they fight with in their heads.

I wrote a post why people do not care and now I can prove the point.

FINAL THOUGHTS!

For me to be treated by my landlord like a third rate citizen is unforgivable and down right, ignorant and rude with no apology absolutely nothing.

If he was too ill he could have got his assistant to message me, rather than blank me altogether.

Out of courtesy I would have if I were in his shoes been more transparent, just shows the difference in class of people we are.

My landlord has now caused me to sink into a deep well of depression”.

Because he owns the property he thinks he is better than me.

I on the other hand see it as cheap rent and somewhere to sleep.

I certainly would not call it home.

One day the tables will be turned and he will wish he treated me differently.

“Show respect and you will earn respect”

Sorry if I have ranted on about myself but I find writing my thoughts is a bit like therapy, I am releasing the tension and the anger and sharing it with you.

I am not bothering to contact my landlord again and will see how long it takes him to show his face.

As a paying tenant I have a right to have a cooker and if I was trying to do him a favour I can essentially insist he re-imburses me including all the takeouts and persished food, not to mention PTSD and compensation for work I could essentially loose because I am too ill to work because of his antics and his cowboy contractors.

“On a scale of 1 feeling fine and 20 feeling really low I am 20 plus at the moment and am feeling extremely anxoious as to my Landlords next move. I personally do not know how he can face me again seeing he ruined my Christmas and I am subjected to takeout every day at an average cost of £30 per day as I have no other means of cooking”.

https://www.jmw.co.uk/services-for-you/personal-injury/compensation-calculator/head-injury/post-traumatic-stress-disorder

Christmas Stress.

CHRISTMAS STRESS!

I wrote yesterday on my other blog about appliance retailers not mentioning anything about ‘Hot Spots’, hence this is the reason for my post today. I am ‘Extremely Stressed’ to the point I want to curl up into a ball and cry.

Curl Up In a Ball and Cry.

My brand new cooker was delivered last Thursday, to to date it has not been installed.

Who can I blame, the retailer, the landlord or the incompetent electricians that did pat testing at the beginning of the year or perhaps all three?

My OCD is so guarded I cannot face another soul at the moment and it does not help that I have to wait on my landlord who does not give you a time just turns up whenever he feels like it, with no consideration for my disability or my business.

I am getting extremely anxious as Christmas is only a few days away and it looks at the moment I will be toasting marshmallows over a candle at this rate rather than tucking into a Christmas Dinner.

I am not joking when I say all I will have for Christmas dinner is Cheese & Biscuits at this rate followed by marshmallows for desert.

My landlord has his own illnesses and has not come round because he is unwell. He texts messages me near enough Midnight most days, which I find very rude. Some people do not know about etiquette. You would think he would phone or text at a decent hour.

I could try to find someone to re-wire the electrics and a gas engineer but we are on Lockdown so this is going to be virtually impossible. I could not make this up if I tried.

I am not going to say anything at the moment but if my Christmas is going to be ruined I will shout from the roof tops the incompetent pat testing electricians and make sure they loose business.

How am I going to even be compensated for this?

I really have had enough of everything right now and if I did have any Christmas Spirit it has diminished.

The pat testing electricians never mentioned or did anything about the plug socket which was in the middle of the hot zone at the beginning part of the year.

My landlord should sue the electricians.

They also installed a smoke alarm in every room yet I live in a flat with one floor (so all I needed was one alarm). They ruined the artex ceiling in the living room and when my landlord asked them the other day Thursday to be exact to come out rather than move the socket they covered it up 🤬😡🤬 They even did not check my chandalier which in my opinion is a hazard along with the dimmer switch. Total cowboys…..

My Hot Zone With Sockets Covered Up (Against Safety Regulations) 🙂

I could give a long list of things wrong in my flat, from the black mold on my walls clothing and furniture to the electrics that were never checked and my landlord was invoiced for.

These incompetent electricians which I will make internet famous all for the wrong reasons, will feel my wrath when the time is right. They have caused me a lot of uneccessary stress, which I certainly could do without.

The domino effect has started for every domino that gets knocked over there will be a consequence.

Will I ever market this company (hell no) and will make sure they know it aswell. It is wrong to write about someone behind their back just like it’s the same as talking about them behind their back, so once Christmas is over I will shoot them an email and will forward my posts.

The uncertainty of not knowing if my landlord will turn up or if my cooker will be installed before Christmas is causing my OCD to sky rocket.

Every person I am dealing with including the Amazon delivery drivers who are so laid back as if they have no care in the world are irratating me. Clearly seeing me on a foot path outside my home with my t-shirt and leggings on and my passport in my hand as I had ordered something of 18 years verification, you would think they would hurry things along. Why does Amazon insist on the drivers to put your passport number onto Amazon system to deliver a bottle of alcohol, I am 57 years of age I clearly look over 18 so what is the need to collect this data? It is the middle of winter not a hot summers day, so for the driver to look at me and take his time is beyond a joke. I also have a business to run I have to be near my computer as I am managing my clients online chat support so I cannot put my status as ‘away’, as that is not what I am paid for and I cannot loose a sale.

Me With Two Heads Apparantly.

So it is amazing to see people’s reactions when I say anything, its is as if I have two heads by the looks I get, what is wrong with people?

I am at war with the world right now and just want to hibernate away from the human race.

Still no sign of my landlord, he is irratating me to high heaven.

Watch this space for updates…..

Wishing Everyone

Happy Holidays

&

a Happy, Healthy & Prosperous

New Year 2021

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